Crohn’s In Childhood Research Association (CICRA) REPORT & ACCOUNTS for the year ended 31 Dec 2023
Registered Charity Numbers England & Wales: 278212 Scotland: SC040700
REGISTERED CHARITY NUMBER: EDglalld & Wal¢s 278212 Scotland SC04D700 CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Un4udited Financial Statements for the Year Ended 31 December 2023 Thdor John Limited Nightingale House 4648 East Street Epsom SuTrey KT17 IHQ
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATior Contents of the Financial Statements for the yexr ended 31 December 2023 Page Report of the Trustees lud¢peRdtllt Examinerls Report StstemeDt of FiDaneial Actiyities Balance She¢t Notes to the Financial Ststemtnts 10 to 17 Detailed Statement ofFinaDcial Aetivities 18 to 19
CROHN'S IN CHILDHOOD RLSEARCH ASSOCIATION Report olthe Trustee5 for the year ended 31 December 21123 The trustees present their report with the fjnancial statements of the charity for the year ended 31 December 2023. The trust¢es have adopted the provisions of Accounting and Reporting by Charities.. Statement of Re¢ommeiided Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102} (¢ffective l January 2019). The Trustees are confident that during 2023 the objectives of the charity were by ¢ontinuing to ftthd r¢search which increases knowledge and undei3tanding uf Cruhn'5 disease Ulr¢rativ¢ ¢olitis, coll¢ctiv¢ly known as Inflammatory Bowel Disease (IBD). ilst seeking the cause and cwe th¢ Charity contillued to PToYide support and inforniatiim for parents children and contiDued to raise awaren$ amongst the general public of the devastating effect this condition continues to have on young lives. Activity l¢Yels I 2023 continued to retum towards pre-covid times but re-establishing face to face meetings such as amily Infortnation Days with medical and other support is taking longer. OWECTIVES AND AcfIvITIES Objectiv¢$ ad The principal objects for which (he Society is esrablished are for the relief of pcrsons suffering frorn, and to promote and advance PLLblic education and research into, Crvhn's Di$¢as¢, lJl¢¢rativ¢ Colitis and rclatcd disordcrs. Public bellellt The truste¥s have referred to the Charity Commission's g¢Deral guidance on Public Benefit when reviewino their aitn5 and objectives. GrantmakiAg Policy To meet one of tts. priEuary ubjeLlives, the Charity invests in rnedical research into the causes and treattnent of InElammatory Bowel Dibease {Cruhn's Disease and Ulo¢rative Colit15), particularly as it affects children and young adiilts. Applications for research fundin8 are invited from rel¢vaTJt m¢dic81 and sci¢ntifi¢ institutions and are then subjected to a rigorous er review process, involving ind¢p¢ndent specialist referees and the CICRA Awards Advisory Panel. Typically, the research award5 fall within four categories. 3-year Research I'raining Fellowships, 3-year PhD Studentships. 1-2 year research project5 and grant5 for Specific statistical projects related to LBD in childhood. Bursary grants to help with the costs of UK based health profes5Toiials and sdentS in training (doctors, nurses and final year medical students) Involved in IBD se3h, att¢nding 5¢ieDtificimedical meetings. These are awarded at the discretion of the Trustees. Also awarded at the discretion of the Trustees, a small start-up grant for young scientist&ldoctors in training, to cany out an innovative or pilot sthdy. ACHIF,VF.MErfr AND PERFORL¥tINCE Governance. Management & Humin Re50llrce5 At the Annual General Meetin(F , held on Microsoft Teams OIL 23rd Septemb¢r 2023.. - Simon ColeTnan and Paul Cooper, stoi)d down and were both re-elected for a further 3-year terni. - Neil Gooding resigned a5 a trustee - Sarah Brown was nominated and approved a trustee CIC iTnplemenled their post pandemic staffing mc>del in 202J based on 4 part tEme positions and the Sutton office open 4 days a week, Margaret Lee continued to be responsible for the research proces%, the day-to-day accoullting, workitjg with accouDtant5 '1udor Jolin Limited and general office and suppon work. Trustedfreasurer, Sitnon Coleman, continued to be responsible for financial affairs. Other Trustees continued to undertake additional activities in connection widL specific areas of work- such as fLmdraising. inforniation technology and representation on external committees. The tTUStees held their committee rneetinu5 as a combination of online and face lo face. We continued to see an increased worklo&d due to the queries Ltlatillu to the vlllnerability of children wilh IBD plus the defmite increase in th¢ amount of children being diagnosed, and at an earlier ave. Page I
CROHN'S IN CHlI,r)HOOD RESEARCH ASSOCIA TION Report of the Trustees for the year ended 31 December 2023 ACltIEVEMF.NT AND PERFORt¥LINCE Researeh The principal objective of th¢ ehariry is to raise fund5 to rnaintain and expand a research programlne to help bring about better treatments and quality tsf lift for children and young adults with Inflammatory Bowel Dis¢a5¢. Also, to discover, throuoh good basic science, the ¢ause and an eventual cure. Since its foundation in 1978 CLCRA has funded 27 Trainino Fellowships, 24 PhD Srndeniships, 62 Research Projects and sd up the fst Paediatric Gastroenterology Laboratory in the U During the period under review CICRA ¢ontinu¢d th¢ funding of the following research.. Research Projects Professor Holm Ohli& Oxford University- Setting up lh¢ Paediutric IBD BioResowce Dr Ai)nabel David. Oxford University- Undersianding siigm¢T in ihe adolescents with l*flampK(7tory Bow¢1 Dts¢e In 2022 the John Eamshaw start-up nt was awarded to Zachary Green at the Noah's ATk ChildTen'5 HospitaL Carditf: 'To aRnIn¥ the feasibility of Non-IpwaYiv¢ Monitoring with Bowel Ultrond in Paediatric Jnflammdtory bowel disease and correlfj1io wilh inflL7mmatOP3' nlorksrs, dtsease aciivity scores a predictor of changes in trgatment (NIM6USStti.j" This stsrted in Augst 2023 and will for one ye. Ren¢wal of a regular consumables grant to support the work undertaken in the Paediatric Qastroenlerolo8y Laboratory at St Bartholomew's & The Royal London Hospital. The trustees is8ued a research call at the ¢nd of 202J and grants amountintr to over £400,000 were award¢d to.. A three yur CICRA fellowsbip was awarded to Dr James Ashton and the team at SoLrtharnpton's Children Hospital with Dr.Zachary Green takiThg up thi5 paediatric clinical and re%earch training 2024. A three year PhD studentship was awarded to Dr Mairi M¢L¢an at Dundee University. A stwient will be appointed in 2024 to look at injury amd leakine5s of the epithelial barrier in IBD io ideiitify new knowledge of why IBD develops and identify new ways of treating this condition. A onc year Project Research Award was made to Profrssor David Wilson at Edinburgh UniTrersity for the novel use of nationwide administrative health data and data.l1nkre w defjne UK paediatric IBD epidemiology, early life associations. course aud educational attainmenl. To ensure transparency and appropriate appli¢ation of CICRA fids, the Trnstees follow a strict Peer Review syste using external referees from the UK and oth¢r countries, and their own appointed Medical Advisory Panel (MAP), all working ill an honordry capacity. Based upon the recommerldations of the Medieal Advisory Panel the Trustees make the final decision and award the grants. This Peer Review applies to all appltcfttions for fjnancial support with the exception of the very minor ants. ADnual writtEn rewrts are required for all awards and are reviewed by the Trustees alld Medical Advisors. CICRA encourages the publication of both positive and negaiive research results. CICRA continues to hold a Certificate of Good Prnctice from ihe Association of Medical Research Chariries wliich etthbles the charity to Use the AMRC 20?0 audit logo 10 show thai our process for granting awards is of & high stsndard. This is a fi¥e year certification. Page 2
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the year tnded 31 Detember 2023 ACHILVELIIE.NT AND PERFORMANCE Infortllation and Support CICRA works with Regionai Paediatric Centreg, specialist units and also district general hospitals across thE UK who treat children with and who distribute 'Parcnt Packs, to the parents of newly diagnosed children. CICIL4 works closely with Paediatric IBD speeiali8t nursc% at various paediatri¢ gastroenterology units eround the county. their regular contact with thc young paticnt8 and families is vital and much appreciated. CICRA'Can't Wait, Cards are available for Children to help them explain their conditiott when Igent need of a toilet. The ¢Pa15 %h¢m¢ puts young IBD Sufferers in contact with each other via e mail aThd is greatly Yalued by youngsters and their PaT¢nts. Feedback r¢ceived from parents highlighted the value of this schce enabling young people to share their experience5 and realise that they are not alone. "E-Pals came t jwi ihe righi iimefor ppEy son. he way in hospEial despeYa¢efoY soweihing posirlve. Having conracifrom people who under5toodwhat he was exp[lILing wlls greal. I wuni io s(ry fhaKkyou- becae that time in hospital was a wery dark iEpnE Jor him andhth?ing conloct wilh people lifiedhis spiriis jt£Si wken ht (undJlJ needed il,: Our fst post covid Family Infornjatitsn Diys were held in 2023 with one in Nottingham in March and anoiher in Bristol in October. "Amon£Jt a lot of direL* Support lo piiÉienls andfarn1l1 ¢hroiigh OlIne and ielephone contacts CICRA also rii wondgrfvlfamily d17ys. Hgoltk prof&Ssin&Es queue up lo help lhe cven¢s und thejgedback show5 how qTecYive importapjt th realfy are". Prof Nick Croft MBBS PhD FRCPCH Feedback from recent family day attendees reinfowed the value of these events.. "I loved the sharing of infom12tion $0 fr¢ely and for once I felt part of a bigger community and not alone. It can be isolating at times" "Knowing you are OL the right pathldoing the right thing" "Anlazingl I was 5urpri5ed at how much funding has been put into research and also ittdiyiduals to assist with developing an awareThes& of tBD particularly in the earlier years that the charity was set up. For a small charity, l think it's amazing how much good ii'ork is done. Il's gat to get people together and offer tliis kind of support to families" t)¢mand for support grew ain through 2023 a5 health services continued to be stretched and as the number of children and young people being diagnosed with IEID illClEased. Of concern is the ContUed unprecedented requests for sUPPOrt from parents of extremely youllg children with 113U. 'I'he support which CICRA ofters remains a lifeline for many families and is recognised by both parents alld professionals alike. In 2023 35,419 support and infomation leaflets were distributed of which 3,054 were from our colleuion of age appropriate inforniation leaflets. Page 3
CROHN'S IN CHILDHOOD KESEARCH ASSOCIAI'ION Report of tlie Trustee5 for the year end1 31 Deeember 2023 ACHIEVEMbNT AND PERFORMANCF. Increasing awareness Our Family Infortnation Days provide opportunities to lletwork and co-ordinate with healthcare professionals and policy makers as well as to l¢atn about the latest development5 in tr¢attn¢nts and possible causes of Inflanunatory Bowel Disease, especially as it affects the young. Trustees play an a¢tiv¢ rol¢ in organising and attending these meetings. In 202) Tru5tee5 and staff mainthined contact with healthcare pwf¢ssionals and organisations and ned in to many virtual meetings. It should be noted that Trustees do not receive 8ny r¢TThuntrdtiun only ¢]£tim travel and buet style overnight accoEnm(MJatioll expenses, in line with the charity's expense guidelin¢s. The CICRA newsleuer compiled and edited by the trustees and staff. is one of the main vehicles, along with the websAte and social media, for publicising the effect that Inflammatory Bowel Disease can have on children, and for ¢h¢ public to become more aware of their needs. CICRA continues to publish 'easy to understand, inforniation booklets which are always in high demand. CICRA also off#rs inForination and support for parents regarding possibl¢ schoal problems and setting up an Individual Health P14n. This literatUTe covers all ages plus infomiation on what help 15 av&ilable during exam time. CICRA continues to d¢velop and improve its websitE, which eontsins many inforniation resources, and maIntaS a social media presence, priar11Y on Facetthk and Instagram. Membership CICRA does not charge a fixed In¢bershIp fee as the TTUStee5 contTrnu¢ to b¢lieve thai all parents of children affected by Crohn's disease and Ulceralive colitis should have access to CIC]U literatur¢ and infomation on their child's condition. reuardless of tbeir financial position but they invite members to make a donaiion as and when they wish or are able w do so. Membership ts open to paiients, parent5, their famili¢s and frtends, medical professionals and anyone interested in furthering the understanding of. and research into, inflammatory disease in children young adults. CICRA members fundraising 202J saw ndraisin<T events returning to pre covid levels. The Trustees ate very grateful for a]1 the fundraisints members undertake for the eharity. Links with other organisations CICRA is a member of the Association of Medical Research Charities (AMRC), the Ni ational Institute for Health Reseatch (NIHR}, the National Council for Voluntary Organization5 {NCVO) and is registered with the Fundraising Regulator. CICRA continlles to work with BSPGEL4N (Brilish Society of Paediatiic Gastroenterology Hepatolotrv and Nutrition), the RqPCyHAN Public Patient Participation IPPP) r¢psentatiVe and the five a550ciated rrastro charities and in particular Crohn's and Colitis UK. CICIiA exchtr¢S newsletters and wfonnation with the Tn¥ny national and international organizations dealing with Inflammatory Bowel Disease and re5poKds to enquiries from overse, sign posling a]50 to sister organisatiolls as appropriate. FINANCIAL REVIEW FiDancial position As of end of December 2023 the accumlllated funds stood at £73),449 of which £716,449 represented Unrestricted fund5. Research eornmitments for future years and detailed in Note 17 to the accounts amount lo £428,875 with a further £140,000 desionated to future research and 5UPPOrt. In the year under review there was £17.256 of letsacy income, Trust income £83204, other activitie5 and donations £185,175 and inve5tnent in¢orn¢ £21,980. Of the £7Ji,449 accumulated fllnds as al 3 1st December 2023. £370,969 15 iii Fixed Deposit Cash Pund5. Other surplus fuiids are in accounts w'ith CAF. COIF and NatWe5t. Investment pollcy The charit)J's consii(ution authorises the tn]stees to make and hold investments using th¢ funds of the charity. There are no restrictions on ihe trLlStees' power tD invest. <hou(Th the tNstees take appropriate advice before making any inve5tmenis that cany more than a low deJty ee of risk. Page 4
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the yeAr ended 31 December 2023 FINANCIAL REVtEW Reserves poli¢y CICRA has no significant secure income. relying almost totally on voluntary contributions, donation5. grants and nd-raising activities. In consequence the trnstees believe that it i5 C55ential to have 5uffi¢ient fimds to ensure continutty in the event of a temporary reduction incorne. Th¢ trustees have agreed a policy to hold reserves on deposit equal to a minirnum of six months operational expenses and covering IoE]g temi commitments. At the end of 2023 we estin)ate these to be £140,(bOa. In addition to this we hav¢ £17,000 of fvnds restricted to specific proje¢ts, £428,875 for fure research commitme]Jts and we have £140,000 de5igDated for tUre research and supporL We continuousty VieW our research pmgrllllThe lo that we are up to date with CLllTent fmdings. OUTLOOK The TNstees are hopefiil that the return to r¢lativ¢ norniality in 2023 in a number of areas will continue. It is apparent that the tnedical pmfession who support the charity in a number of ways are under increasing dem£LThds. The Trustees l(M)k forward to 5¢eing the reseaJch grants awarded at the end of 2023 PTogress during 2024. Aloneside the need to ramp up resech efforts. the Trustees are oonscious of th¢ need to illGrease CICRA'S support offering to rncet llnprecedcntcd demand for support from concerned farnilies. 'fhis is being thiven partly by an increase in prcvalencc, and partly by over-stretched healtbcare services b¢ing unabl¢ to provide the patient support that they would like to. The CIC.RA Trustees will continue to review and manage the charity prudently during the cuent cost of living challenges. They will do all they can to continue gs far as possible with the research and support prognqmmes planned.. The focus will be to restore the charity's inco]ne and raP up our research. support and awareness efforts. At the present time the contribution that CICRA makes to the field of paediatric IBD remains as vital as ever. We believe that the surge in new IBD dia¢moses createg an upyent need for fi]rther research and supwrt, particularly for the Yery early onset cases which wpear to show a huge increase over recent years STRUCTURE, GOVERNANCE AND MANAGEMENT Goyerning document l-he charity is controlled by its governing document, a decd of trust and constitytes an unincoorated charity- The Crohn's in Childhood Research Association (CICRA), an unincojporated charitable association. is registered in gland & Wales under Charity Number 278212 and in Seot]and lder Charity Number SC040700. CICRA is govemed by an amended constitution adopted at the Annu21 General Meetin(k on 14 October 1989. Recruitment and appointtnent olnciy trustces The board of trustees shall be not less than six and not more than twelve mem¥Rr8 of le AsslatIon elected at the Annua5 General Meeting. The trustees have the poi¥er to co-opt mcmbcr.% to fill a Casual va¢ancy or as an addition to the existing truCeS. One thsrd of the members of the Board shall retire ¢ach year in order of seniority but may be eli(Tible for re_election The Trustees meet on &verage every six weeks and are responsible for determining poli¢ies, the bud(Yet and overall Enanagement of the charity- The sinall statT team and oifiLe vulunleer5 are re5ponsibl¢ for undertakinrr the day-to-day runnin(T of the Associatio catrying through the policies, budget la day Lo day dd1l51rdtli as determined by the Board Of'TrUets. As well ès representing the charity at medical meetings some TrustE¢s continue to actively wist in the office and in the organisation olevents. Induction trailling of new trllstees New Trustees co-opied durin(F the ycar, or elected at the ACIM, are given an induction course by the Chair outlining the objects as set out ill the Constitution, the role% of thc other Trustecs, thc pre%cnt financial %tanding of the charit)J and it5 commitments. Trustees are asked to take on or share responsibilty For ovcrsccing a certain aspe¢t of the charity i.e. research. finance, communication technologies, OLityeach and supporL et¢. Page 5
CROHN'S IL¥ CHILDHOOD RESEARCH ASSOCIATIOTrI Report of the Trustees for the yvar end¢d 31 Deeember 2023 STRUCTURE, GOVERNANCE AND MANAGEMENT Risk management The trustees c4)ntiTrue to regularl) exaEnine the strategic, business and operational risk5 to which the charity is expoge and ¢onfm that they have put in place syste$ to mitigate those risks as far as ihey are able to do. REFERENCE AND ADMTNISTRA TIVE DETAILS Registered Chirity number 278212 Principal address Pat Sh&w House 13-19 VeDtllvr Road SuttLin Surrey SM2 6AQ Trustees G Lee {Chairnian) Ms S Brown (appointed 25.4.23) S Colcma P C(boper Mrs M Lee MBE Mrs C Malloy Ms K Malloy Mrs N Pithey-Hall llldependellt Examiner Tudor Limited NightinlTal¢ House 4648 Street EpsoIn Surrey KT17 IHQ Hon. Awards Advisory Panel Professor I Sanderson (Chairnian) DrPDeb Professor S Emiis Dr J Epstein Dr M Gasparetto Dr R Heuschk¢l Professor T MacDonald Dr S Protheroe Prot¢S50r H Utllig Professor D Wi150n Hon. Clini¢al Directors Dr K Blakeley Dr J Epstein Approved by order of the l)oard of tNstees on 14th September 2024 and si(Fned on its behalf by.. G Lee- Trus1¢¢ Pa¥¥ 6
Indepclldcnt Examiner's Report to the Trustees of Crohn's in Cbildhood Researeh Assoeiation Indepeodent examiner's reporl to tlte trustees uf Crohn's in Childhood Research A8SOCiAtio I report to the charity tNsiees on my exlimination of the accounts of CroFLll'5 in Cbildhood R¢%ear¢b Association (the Trust} for the year ended 3 1 December 2023. Responsibilities And busi5 of report As the charity truste¢s of the Trust you are re5Pgnsible for th¢ preparation of the accounts in accordance with the rEqUitements of the ch{ltI¢5 Art 2011 (Ihe Act,) and the tern]s of th¢ Charities and Thtee Investment (Scotland) Act 2005 and tlie CharEti¢s A¢counts (Srotland) KeguLations 2006 (as amended). The Charity's trustees consider than an audit is not required for thEs year (under S¢rfioll 144(2) of the Lbarities Act 2011 (the 21)1 l Act)) and that the requirement of Regulati 10{I)(a} to (c) of the 2006 Accounts Kegulations does not apply and that an independent examination is requTred. It 15 my responskbility to examine the accounts as required under Section (44(1 l{c) of the Act and to stste whether particular matters have come to Jny attention. I report in respect of my examination of the Trnst's accoiints cattied out iindcr section 145 of the Aet and in carying out my examination I have followed all applicable Direetions given by the Chariry Commission under section 145(5)(b) of the Act and in accordance with Regulation I l of the 2006 Accounts (Seotland) Regulatiorts. Independent examlner's statement Since your charity's gross incoMe exceeded £250,000 your examin¢r must be a member of a listed body. l Can confjrni thal l am qualified to undertake th¢ ¢xlation b¢¢ause l am a member of the Institute of Chartered Accountants iti England dnd Wales, which is on¢ of the listed bodi¢s. I havE Cotnpleted my examination. l ¢onfm that no materiaI matters have come to my attention in connection with the tXdTnindtion ¥iving me oause to beli¢ve that in any malerial respect.. a¢Gounting records were 0t kept in respect of the Trust as required by section 130 of the Act and Section 44(1)(a) of the 2005 Act Kegulation 4 of the 2006 Accounts Regulations (Scotland). or the accounts do not accord with those records.. or the accounts do not comply with the applicable requirements concerning the forni and content of accounts set out in the Charities (Acrounts and Reports) Regulations 2008 and with Regulation 8 ot the 2006 Accounts Regulations oiher than any requirement tbat the accounts give a tNe and fair view which is not a matter cottsidered as part of an independent examination. I have no concerns and have come across no other tnatter5 in connection with the examination to which attention should be drawn in thÉ5 report in order to enable a proper understanding of the accounts to be reached. H. M. Day Bsc FCA DChA The Instibjie of Chartered Accountants in England and Wales Tudor John Limited Nightlngale House 46-48 East Street Epsom Surrey KT17 IHQ Date.. Page 7
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Statement of Financial Aetivities for the year ended 31 Decembtr 2023 202) Totai fvnds 2022 Total funds Unrestricled funds R¢strided funds Notes INCOME AND E,YDOWMEfas FROM Donations and letsacies 216,371 46,749 263,120 210,717 Other trndin(p a¢tivities Inve5knent income 22,515 22,515 23,850 Tot21 260 866 46,749 307 615 2J9 067 EXPETriDKTURE ON Raising funds 77,103 77.103 64,473 Charitable activities Research Support and information programme 17,250 50,782 109.066 60,045 77,528 45,799 Oth 13,968 Total 170402 80,5 17 250.919 216.921 NET INCOMEI(EXPENDITURE) 90.464 (33.7681 56,696 22.146 RECONCILIATION OF FUNDS Totsl fvnd5 broutrht forward 625,985 50,768 676,753 654,607 TOTAL FUNDS CARRIED FORWARD 716449 17.000 733,449 676 753 The noles forni part of ttLese financial statements Page 8
CROHN'S ITr4 CHILDHOOD RESEARCH ASSOCIATION Balance Sheet 31 Dettmber 2023 2023 Toial funds 2022 Total fiuLds Unrestricted funds Restricted funds Notes FIXF,J) ASSETS Investjnents 370.969 370,969 356,397 CURRF.prr ASSETS Stocks Debto Cash at bank and hand 12 13 3,623 36,779 333 572 3,623 36,779 350.572 3,347 39,768 312,383 373,974 17,000 390.974 355,498 C.RF.DITORS Amounts falling due within Dne year 14 (28,494) {28,494) 135,142) NET CURRENT ASSETS 345,480 17,000 362,480 320 356 TOTAL ASSETS LESS CURRENT LIABILITIES 716.449 17,000 733.449 676,753 NET ASSETS 716449 733 449 676 753 FUTr4DS Unrestricted funds Restricted fldS 16 716,449 625,985 TOTAL FUNDS 676,753 The faclaI stateTn¢nts were approv¢d by the Board of Tte¢S and authorised for issue and were signed on its b¢half by.. G Lee- Trustee S Coleman- Trustee The notes fonn part of these finclaI statements
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Ntst to Ilie Finallcial Stateinents for Ihe yeAr ended 31 December 2023 AccouFrrING POLICIES BASIS OF PREPARING THE FINANCIAL STATEMENTS The f]nancial ststements of the charity, which is a public benefil entity und¢r FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities.. Stafrment of Recominended Prnctice applicable to charities preparin. their OUnts in accordan¢e with ihe Financial Reportino Standard applicable the UK and Republic of Ireland IFRS 102) (eff¢ctive l January 2019),, Financial Rtportitto Standard 102 'The Finall¢ial Reporting Standard applicable in the UK and Rtpubliu uf Ireland, and the Charities Act 2011. The financial statements have been prepaTed under the historical cost conweniion, with th¢ exception of invesllnents which are included at market value. FILyNcIAL REPORTINC STANDARD 102 - REDUCED DKSCLOSURE EXEMPTIONS The ehariry has kell advantsge of the lollowing disclosure exemption in preparing these f]nan¢ial stslemellts, a% perniitted by FRS I02 'The Financial Reporting Standard applicable in the UK and Republic of Ireland,: the requirenlents oFSe¢tion 7 Statement of c.ash Flows. INCOME All income ig recognised in the Statement of Financial Activities once the charity has entitlement to the funds it is probable that the income will be received and the amount can be measured reliably. EXPENDITURE Li&bilities are recogAised as expenditure as s(K)n as there is a legal or constructiv¢ oblitsation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement arkd the amount of the obligaiion can be Measur reliably. Expenditure is accounted for on an 8¢cruals basis and has been elassified under headings th aggregate all cost relaied to the cateoory. IThere cvsts Lannvl be directly attributed to particular headings they have been allocated to activities on 8 basis ¢onsistent with the use of resources. Grants offered subjeci to conditions which have not been met al the year end date are noted as a commitment but not a¢¢rued as expenditure. TANGIBLE FIXED ASSETS Depreciation is provided at the following annual rates in order to write off ea¢h asset over its estimated useful lif¢. CompuEer equipment Furniture and equipment 20- Ji /0 slrniuht line STOCKS Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items. TAXATION The charity is exempt from on its charitable activities. FUND ACCOUNTING Unrestrtcted funds Can be used in accordance with the charitable objectives al the diseretion of the trustees. Restricted fund5 can only be used for particular reStriCd purposes Wlthin the objects of the charity. Restriction& ari&c when sp¢¢ifi¢d by th¢ doiior or when fun(ts are raised for particular restricted purposes. Further explanation of the nature and pUOSe of each is included in the notes to the finaTr¢ial statements. PENSION COSTS AND OTHER POST-RETIREMENT BENEFITS The charity operates a defmed contribution pension seheme. Contribuiions payable to the Charity's pension scheme are ¢har(Ted to Ihe Siatement of Financial Aciivities in the period to whi£h they relate. Page 10 continued...
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Note% to tbe Finanei#l StaÉements- eontlllued for the year ended 31 DeCebe¥ 2023 ACCOUNTING POLICIES- continued INVESTf*lELNTS Investments ar£ shown in Balance Sheet at th¢ year ¢nd market Yalue. Any llnrealid gxins or losses on revaluation are accounted for in the period in ivhich they arise. Realised and unrealised gain8 and los%s are combined in the appropriate section of the SOFA. OTHER TRADING ACTIVITIES 2023 2022 Merchandise (inel mas) Christtnadsulluller draw 2(M) Club 6,386 11,059 8,407 10,880 22,515 23,850 INVESTLblENf INCOLVtE 2023 2022 Deposit account interest sder5 Fixed Inlerest account 7,408 21,980 4,500 RAISING FUNDS RAISING DONATIONS AND LEGACIES 2023 2022 Staff eosts Tn]5tees' expe[5 Postage and Stationery Office costs Marketing and advertisinr Legal and bank costs Lotteries Other tundraising expenses Out50urcints 29,061 417 8,394 18,767 15,988 249 5,323 19,664 732 58 5,007 10,823 30 6,227 7,631 2,924 Page 11 ntinued...
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Not¢s to the Finallcial Stal¢ments- eontlRlled for the year euded 31 December 2023 CHARITABLE AcfiviTIES COSTS Direct Costs (see note 6} Grant fundin of ctiviiies Totals Research Support and inforniation progrdmme 8,097 109066 42,685 50,782 109066 117 163 DIRECT COSTS OF CHARITABLE ACTIVITIES 2023 2022 Staff costs Tru5tees' expense5 Postage and stationery Office cost5 Marketing and advertising Family meetings Legal fees Volunteer ¢xpenses Outsourciiig 28,631 3,756 15,589 34,496 12,014 14,489 2,243 9,886 29,497 21,7(kl 2,000 87 248 4278 55 4.385 117 16i 84,432 TRUSTEES, REMUNERATION AND BEf4EFITS There were trnstee5' reinuneration or oth¢r benefits for the year ended 3 I December 2023 nor for tht year ended 3 1 D£ceTnber 2022. TRUSTEES, EXPENSES 2023 2022 Trustees, expenses No Trustee received any remuneration for th¢ir service% as a Trustt¢. A total of £3,930 (2022.. £2.4921 was reimbursed to 4 Trustees12022.. 3). 'fhese Trustees carry out task% in funhcr&n¢e of the charity's objectives on an expense5 only basis and these costs have been allocated as appropriale to R¢search, Support & Infonnation and Cost of Generdting funds. STAFF COSTS The average monthly Umber of employees during the year was as follows: 2023 2022 Administratio No eTnploytes received emolwnents in excess of £60.000. Parwe 12 continued.
CROHN'S KN CHILDHOOD RLSEARCH ASSOCIATION Notes to the Financial Statements - contlnued for the year ended 31 December 2023 COMPARATIVFS FOR THE STATEMEwf OF FINANCIAL ACTIVITIES Unresiricted rund5 Restricted Fulld5 Total fvnds INCOME AND ENDOIVMENTS FROM Donations and legacies 185.717 25,000 2IO.717 Other trading activities Investment income 23.850 23.850 4.500 Total 214067 25.000 239 067 EXPENDITURE ON Raising funds 64,473 64.473 Charitable activities Researeh Support and iDformation programme 40,661 74.404 19,384 3,124 60.045 77,528 Other Total 194413 216,921 NET tycoii 19,654 2,492 22,146 RECONCILIATION OF FUL¥DS Total funds brougbt forward 606.331 48.276 654.607 TOTAL FUNDS CARRIED FORWARD 625.985 -50.768 676,753 io. TANGIBLE FIXED ASSETS Improvements Fixtures propeity fittings Totals COST At l January 2023 and 31 December 2023 3,850 49,156 DEPRECIATION At l January 2023 and 31 D¢c¢mb¢r 2023 3,850 49.156 NET BOOK VALUE At 31 Dccernber 2023 At 31 December 2022 Page 13 continued...
CROHNIS IN CHILDHOOD RESEARCH ASSOCIATION Notes tu the FinAliI'ial Statements- coiitinued for the year ended 31 December 2023 FIXED ASSET INVESTMENTS 2023 2022 Other 370969 356 J97 There were Do inY¢stment assets outside the UK. Investments {neither listed nor unlisted) were as follows.. 2023 2022 SChr0de Fixed Deposit account 370.969 356.J97 12. srocKS 202) 2022 Stock5 3,623 i.347 13. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2023 2022 Prepayments and accnjed incorne 36.779 39.768 14. CREDITORS: AMOUNTS FALLENG DUE WITHIN OIYE YEAR 2023 2022 Trade credttors Taxation and social security Other creditors 21,753 402 20,969 253 15. LEASING AGREEMENTS Minimum lease payments under (-(all¢elIab]e operating leases fall due as follows: 2023 2022 Within one J'ear Between one and five years 39,500 62,500 i8,000 102,000 li6 167 Pase 14 continued..
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Note5 to the Financi81 Statements- coatinued for the y¢ar ended 31 Decernber 2023 16. MOVEMEwf IN *"UNDS Net movement in fijnds Trdnsfe between fijnds At 31.12.23 At 1.1.23 Unrestricted funds Genernl fvt]d Designated fund Research and Support 540,889 85,096 90,464 (483,779) )43,779 140,000 147,574 428,875 140 000 625.985 90,464 716,449 Restricted fund5 Support meetings Family Days Parenting packs Global Make Some Noise 25,768 16,000 9,000 (25,768) (4,000) (9,000) 12.000 TOTAL FUNDS 676 753 733.449 Net movernellt in fid$, included in the above are as follows.. In¢oming resouro¢5 Resour¢e5 expended Movement in funds Unrestricted funds Gellerdl fund 260,866 (170,402) 90,464 Restricted fund5 Sllpport meetings Family Dayg Rescarch grants Parenting p2cks Global Moke Som¢ Noise 14,500 7,500 17,250 2,499 5,000 140.268) 111,500) 117,250) (11,499) (25.768) (4.000) (9.000) 5.000 46,749 80517) TOT AL FUNDS 307.615 250919) Page 15 continu¢d..
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATIOIY Notes to the Financial Statements- continued for the yeAr ended 31 D¢cembcr 2023 16. MOVEMENT IN FUNDS- ¢oDtinued Comparatives for movem¢rJt in funds N¢t movement in funds Transfers between funds At )1.12.22 At 1.1.22 Unrestrieted funds General fid Designated fifftd 468,459 137,872 19,654 52.776 52,776) 540,889 606,331 19,654 625.985 Restricted funds Support meetings Family Days Research grdnts Parenting packs Global Make Some Noise 8,892 16,000 16,876 25.768 16,000 (14.)8i) 9,000 9,000 i) 2,492 50,768 TOTAL FUNDS 654,607 22,146 676,753 Comparative net movement in funds, included in the above are as follow5.. IncoTning resources Resources expended Movement in funds UAreslricted funds Genernl fund 214,067 (194,413) 19,654 Restricted funds Support me¢tin Research orants Global Make Some Noise 20,000 5,000 (3,124) 16,876 (19,383) (14,38)) i) 1) 2,492 TOTAL FUNDS 239,067 216921) 22.146 Support P¥leeting5 This fund repr¢5eThts amounts donated to CICRA towards the cost of the Support Meetings held. Research Gr*nts This fund represents amounts donated to CICRA towards the Cost of ReSeah Grants. Pareiiting Packs This fund represents amounts donated to CICRA towards the cosLs of providing parentints packs. Global lak'e Some Noise Tliis fund represeiit5 amouiits donated to CICRA by the Global Mdke Some Noise Charitv towards tlie cost of the website and digital tnaterial. Researcb #nd Support Desigoated fumd Durints the year the trustees designated fuDds towards providing future Support and Researrh into Crohn's. P&g¢ 16 ontinued..-
CROHN'S tN CHIU)HOOD RESEARCH ASSOCIATION Notes to the Finantial StaterneDts- ctbntinued for tbt ye8r ended 3] December 2023 17. OTHER FINANCIAL COMftylITMF.NTS The Charity has fvttjre grant commitments already entered into and spread over the years to 2023 2024 inclusive, totalling £85,096 (2022- £85,096) These multi-year grts &re reviewed t[UallY and payments for second and 5ubs¢qu¢nt years are only made upon receipt of sattsfactory progress reports. Consequently, the trustees do not consider it appropriate to make provisioll for these committnenls in th¢ f]Danria] 51atements. Existing r¢s¢arcb contMents.. Grant awarded to.. Professor Holm Uhli& Oxford University Grant awarded to.. Dr James Ashton Grant awarded io.. Dr Main McLean Grant awarded to.. Professor D&vid Wilson Labordtory consumables grant.. Prof. lan Sanderson, Barts & the Royal London Hospital 8272 268,068 95,952 49.383 428,875 The timÈng of the above commiknents is as follow5.. Grant Commitments 2024 Grani Cornmitmcnts 2025 Grant C.ommitmcnt% 2026 Gr3nt Cornmilments 2027 98,836 lJ3,686 121,340 75,013 18. RELATED PARTY DISCLOSURES Ther¢ were no related party transathions for the year ended 31 December 2023. Page 17
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Detailed Statement of Financial A¢tivitie$ for tht year ended 31 December 21123 2023 2022 INCOME AND ENDOWMED4TS Donition$ and leg2cles Donation3 26J,120 210,717 Other tradlmg Actffivltles Merchandise (incl XTnas} Christinas15ummer draw 200 Club 8,407 10.880 11,059 22515 23,850 Invwtment income Deposit account iiiterest SGhTod¢ts Fixed Interest account 7.408 14.572 1,368 3,132 Total incoN]ing resvurees 307,615 239,067 EXPENDJTURE Raising donations and legacies Trnstees, expenses Wages Pensions poSe and stationery Off1ce costs Markerino and advertising Letsal and bank costs Lotteries Other fundraising expenses Outsourcing 417 28,784 277 8,394 18,767 249 15,988 5,i2i 19,664 732 58 5,007 10.823 6,227 7,6il 73.451 60,696 Other trading activities Merchandise (includino Chi'istnas cards) 3,652 3,777 Charitable aetivitie5 Trnsrees, expenses Wages Pensions Postage and stationery Office costs Marketiiig and advertising Familv Tneeting5 Legal fees CwTied fonvard i,756 28,266 2.24) 14.489 15.589 i4.496 12,014 18,237 55 112,778 9,886 29,497 21,704 2,000 87 79,906 This paoe does not fortn part of the ststutory fmancial statements Page 18
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Detailed StateEnt of Financi81 Activitie5 for the year eDd¢d 31 D¢¢ernber 2023 2023 2022 Cbaritable activities Brought fonvard Volunteer expenses Outsourcing Grants to institutions 112,778 79,906 248 4,278 53,141 4,385 159,848 lJ7,573 Oth¢r Wages Pensions Tru51ee insurance Accountancy Legal and bar costs 5.806 40 1.506 6,080 536 ,914 1,525 3,630 806 14.875 Total resour$ expended 250,919 216,921 INet income This page does not fonn part of the StatOry financial ststements Pa8e 19