Crohn’s In Childhood Research Association (CICRA) REPORT & ACCOUNTS Year ended 31 Dec 2022
Registered Charity Numbers:
England & Wales 278212 Scotland SC04070
REGISTERED CHARITY NUMBER: England & Wales 278212 Scotland SC0411700 CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Unaudited Financial Statements for the Year Ended 31 December 2022 Tudor John Limited Niglilingale House 4648 Easi Street Epsom Surrey KT17 IFIQ
CROILY'S IN CHJLDHOOD RESEARCH ASSOCIATION Contcnts of the Financlal Statements for the yeAr ended 3] Deecmbtr 2022 Page Report of the Trustees Independent Examiner's Report Statement of Finantixl Activities B*lAnee Sheet 10 Notes to the Financial Statements 11 to 19 Detailed Statement of FlnaLei#l Activities 20 to 21
CROHIYTS IN CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the year ended 31 Deeember 2022 The tTUSt¢e5 present their report with the financial statements of the charity for the year ended 31 December 2022. Th¢ truste¢s have adopted the provisions of Accounting and Reporting by Charities.. Statement of Recommended Pra¢ti¢e appli¢able to charities preparing their accounts in accordance with the Financial Reporting Stsndard applicable in the UK and Republic of Ireland (FRS 102) (effective l January 2019). The Trustees are confldent that during 2022 the objectives of the charity w¢re rn¢t by Continuing to nd research which increases knowlcdge and iinderslanding of Crohn's disease and Ul¢erdtiv¢ Colitis, ¢olle¢tively known as luflallllnatory Bowel Disease {IBD). Whilst seeking the cause and cure the charity continued to provide support and information for Pdren15 and children and continued to raise aWlle$S amongst the general public of the devastatsng effect tFAts coudilion conlinues to have on young lives. Activity levels in 2022 started to return towards pre-covid times but there was still a Iillgering effect of reduced staffg levels affectitig both fillhdraising eyellts and f¥e to fa¢¢ meetings such as Family Information Days. OBJECTIVES AND ACfIVITIES Objectives And aims Th¢ principal objects for wlii¢h the Society is established are for the reliefofpersons suiferittg fro]n, and to promote and advance public education and research itito. Crohn's Disease, Ulcerative Colitis and related disord¢rs. Pllblie benefit The trustees have refetted io the Charsty CouJmission'5 g¢n¢ral guidance on Public Benefit when reviewing their aims and objectives. GraDtEnakiDg Poli¢y To Ineet one of its prittw objeetive$, the Charity inv¢5ts in medical research into tbe causes and treattnent of Infiammatory Bowel Disease Icrokni's Dis¢as¢ and Ulc¢rntiv¢ Colitis), porticularly as it affecrs children and young adults. Applications for research funding are invlted from r¢l¢vant medical and scientific institutions and are then siibjected to a rigoroiLS ievi¢w process, involving independent specialÉst referees and the CLCRA Awards Advisory Panel. Typically, the reStah awards fall within four calegories.. 3-year Research Training Fellowships. 3-year PhD Sttidentships. 1-2 year r¢s¢awh pioj¢cts and 'an¢S for specifiL sratistical projects related to IBD in childhood. Biusary grant5 to help with th¢ ¢05ts of UK based t]ealth professionals and students in training {dociors. niSe$ and final year rnedical stIents) involv¢d in IBD research, attending scientificlmedical meeiings. These are award¢d at th¢ di5¢retion of the Trustees. Also awarded at the discretion of ihe Trustees, a small start.up graD( for young scientisisldo¢iors in tr2ining, to carry oiit an innovativ¢ or pilot study. ACHIEVEMENT AND PERFORMANCE Governance, Management & Human Resourees At the Annual General Meeting, held on Microsoft Teams on 31st July 2022. One fntsiee, Grahajn Lee, stuod dowi ?Dd was re<lected for a firther 3-year temL Two ]Jew menibers, Kylie Malloy and Helen Sn)allcoombe were nominated and eleLted to thE Board of Trustees. CICRA colltiuued to operate with rediiced staffing through 2022, partly due to uncertainty aroLmd the lasting impact Of the pandetllic on incoTre, Margaret Lee continued to be responsible for the research process. Ibe day-to-day acLounting, Ivorking with a¢Lountallts Tudor Johll Limited and general offjce and support work. Trust¢eifreasurer, Simon CL¥leman. Continued to be respvnsible for financial a(faÉrs. Other Trustees continued to undertake additiL)nal activities in Connection with spe¢ifiG ateas of work such fiindraising, information teLhnology aiid repres¢ntation on external cominittees. One additional part4illie staff rnember w&s hired to support the charkty's activities. The Sutton office reopened from lockdown in 2021 and ail stafland one Trustee worked from there throughout 2022 . The trustees held their Coimittee meetings as a cornbiiiatioii of online and face to face. Plans reinained in place to cover an inLreased workload which was due to the queries relalillg to the vulnerability of children with IBD plus the deflniie incrcase in the amount of childien beinu diagnosed, and at an earlier age. This increased woiJdoJd, with a de¢reed -staff, able to be met diie to Tru¥tee5. who work on a voluntary basis, taking extra responsibilities and the current Staff offering to work extra houts also on a voluntary basi5. Page I
CROHN'S IN CFIILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the year ended 31 December 2022 ACIIIEVEMENT AND PERFORMANCE R2se#rcb The piin¢ipal objective of the charity is to raise funds to njaintain and expand a resear¢h programme to help bring about bettcr treattnents and quality of life for childrett and young adults with Inflarmnatory Bowel Disease. Also. to discover, through good basic scienc¢, the ¢ause and an evelltual cure. Since Its foundation in 1978 CLCRA has funded 25 Trainin8 Fellowships, 24 PhD Studentships. 62 Reseatch Projects and set up the first Paediatriu Gastroenterology IAboratory in the UK. During the period under review CICRA colllillu¢d th¢ ndIng of the following research Researcb Projects Professor Hohn Uhlig. Oxford University- Setling up the Pi7ediulric IBD BioResoiirce Dr Ajjnabel David, Oxford Universily- Urtdersiandin¥sligFPJa the adolesceiits wi¢h Inflommaiory BowelDese At the end of 2022 th¢ John Earnshaw start-up ¥rant was Awatd¢d to Za¢hary Green at the Noah's Ark Children's Ilospilal, Cardiff "To drartiine thcfeosibility 0fNop7-JnVSIve AIoFlltoYing wilh Bostiel Ul¢rusound in Paediatric Iryflomppiatory hoe1 dise(ise t4ndcoiYelotion wilh inflammalory markers, diseasg activity scores unrluJ upwdicloi. ofchanges iu Irealment {NJMBUSSiiidJ'.) Renewal of a Tegular consumables grant to support the work undertaken in th¢ Pa¢diatric Gastroenterology Laboratory At St Bartholomew's & Th¢ Royal London Hospital. To ellSUEe trallsparelley alld aPPTOPTiate application of CICRA funds, tbe Tte¢S follow a strict Peer Review system usin&F exterllal referees froin the UK and other countries. and theit own appoint¢d Medicul Advisory Panel (AAP), all working ill an honorary ¢apa¢ity. Based upon the recommendations of th¢ Award5 Advisory Panel and MAP chairan, tht Trustees rnake ihe final decision and award tlie grants. This P¢er RevÈ¢w applie5 to all applications for financial support with tlie exception of th¢ very minor grants. Annual wrtiten reports are requir¢d fL)r all awards and are reviewed by t1 Tnte¢S and M¢dical Advisors. CICRA encourages the piiblication of both positive and negaiive research results. Due to unavoidabl¢ delays and the uncertainties ovcr th¢ COVID years, earlier grants were Siill undenvay but progressillg w¢ll.. Annabel David's projttt experien¢¢d many delays however was completed in 2022 Givcn these delay¢d 5tsrt5, alld continued uncertainty over post-pand¢n)ic ¢a5h flows, Ihe tTUStees decided that it would bc prwlent to not issue a res¢ar¢li ¢all in 2022 and defer it to 2023. CICRA wntinues to liold a Certificate of Good Practfft¢¢ from the Association of Medical Research Charities wliich enables th¢ charity to use tlie AMRC ?020 audit logo to show that our process for granting awards 2s of a high standard. Page 2
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the year ended 31 Decejnber 2022 ACHIEVEMENT AND PERFORMANCE Information and Support LICRA works with Regional Paediatric Centres, sp¢¢ialist units and also district geDeral hospita]5 across th¢ UK who treat children with IBD and who distribute'Parent Packs, to the paTents of newly diagnosed Lhildren. CICIIA works c105ely witb Paediatric IBD specialist nurses at various paediatric gastroenterology units dround the coutttry, thcir regular contact with the young patients and families is vital and much appr¢ciat¢d. CICRA'Can't Wait, cards are available for children to help thejn ¢KplaiD their condition when in urgent need of a loileL The ePals Kheme puts youug IBD sufferers in ¢onta¢l with each other via e mail and is gr¢aÉly valued by youngsters and their parenls. FeedbaLk received fro parenis higlilight¢d the value of thi& s¢hell in ellabliD¥ youn¥ people to share their experiences and reali5e thai they are not alon¢. "E-P4ls caine alji1 ike rigkt limefor my son, as he was in hospiilll desperateforsameihingpositive. Having coiilacifiom people who itndeislood Trvh£ii he was expeiiertcing grcal. l 'all( ¢0 IhapRkyoti- becaiise ihat iiffte i hosp$(al was a very dark timefor hEM having coniacl 7rVithFeople lifted hi¥.¥piJ'itsjLisÉ whepk he {ond 11) Aeeded it" Unfortutlaiely no Family Iiiformation Days were held in 2022, initially duc to formal Covid-19 restrictions and then out of conceni for the risk ofassembling a large group of potentially ¢lini¢ally-vuln¢rable children. Planning stsrted for th¢$ to resum¢ in 2023. "AJ?iongst u loi ofdire¢isuppor¢ iopuliLnls alldfamilies ihrough online and telephone con(ac£Y CICIU a150 ni Ivonderful J(Ipii£lv duvx. Hgal¢hprofesslonalJ queue up lo help these evenls irnd ihefeedbuckshows hoTrv effeetive and EinporÉanL Ihey reIlY 4rd'. ProfNick Croft MBBS PhD FRCPCH Demand for support grew through 2022 a5 h¢alth 5ervi¢es continued to be stretched and as the numbcr of children and young people being diagnosed with JBD it)cr¢a5ed. Of Concern is the continued unprecedented rcqucBts for support from parents of extremely young children with FBD. Tlie support whtch CICRA offers remains a lifclinc for many families,and is recognised by botb parents and professionals alike. In 2022 we produced a leallet entstled 'Babi¢s and Children with Inflammatory Bowel Disease. and scnt this out to 3000 GP surgeries.in the hope that if they liad a very yoiing Child with JBD symptoms they would at Icast tliink of this as a possibility. We outlined the support w¢ offer and the research we have funded over alTn05t 45 years. Page 3
CROHN'S CHILDHOOD RESEARCH ASSOCIATION Report of the Trllsttes for the year ended 31 Dteember 2022 ACHIEVEMETrIT AND PERFORMANCE Increasing awareness Most CICRA face to face meetings were again posll)oned iintil things are settled enough for families to feel cojnfortable in a Crowded rooin and venues are once again free for meetings 8u¢h &$ ours. In a nomMI year, these meetings provide opportunities to t)etwork and co-ordinate with healthcare professionals and policy tnakers a5 well as to learn about the latest developments in treatments and possible causes of Int]ammatory Bowel Disease, especially as it affects the young. TTU5tees norn)ally play an active rolc in organising and attending these meetings. In 2022 Ttee5 aDd %taff maintdined contact with healthcare professionals and organi8ations and wned in io many virtual meetings. It should be not¢d tbat Tnjstees do not receive any remuneration and only claiill travel and budget style ov¢mighi accommodation expenses. in line with the ¢hwity's expense guidelines. The CICRA newsletter Compiled alld edited by the trustees and staff, is one of the main vehi¢le5, alollg ivith the w¢bsite and social media. for pubIicising the effect that Inflammatory Bowel Disease can have un Childre aDd for the public to become more aware of their needs. CICRA continiies to piiblish 'easy to understand, inforniation booklets wbich are always in high denund. CICRA also offers infornvdtion Rnd support for parents regarding possible school probleiDS aiid setting up an Lndividual Health Plan. This literature eovers all ages plus Inforntion on what help is available durillg exEm tilne. CICRA continues to develop and improve its website, which contains many inforniation resources, and maintains a social media pr¢sen¢e, primarily on Facebook Membership CICRA does not charge a fixed membership fee as the Trnste¢s continiie to believe that all parents of childr¢n aff¢¢ted by Crohn's dis¢asc and Ulcerative colitis should have a¢¢¢ss to CICBA literature alld lllfo1lltlts on th¢ir child's condition, rcgllrdless of their financial position but they invit¢ members to make a donatiort as alld when th¢y wish or are able to do so. All literature is issued free of charg¢ but encourage downloadillx frotn the website if possible. Mcmbcrship is open to patients, parents, their famili¢5 and friends, medical pi"ofes5ionals and anyon¢ int¢sted in fiirthering th¢ understanding of, and research into, inflainmatory bow¢1 disease in ¢hildren youllg adul(s. CICRA members fllndrai5ing As with all other charities ndraising by rnembers was disrupted by tlie pandertLiC in 202012021 biit 2022 Saw an increasing retlTm to some fundraising ¢v¢nts. The Trustees are very gtatefitl for the loyal support received from rnembers ti)rough tkn"s period. LinlKS 1th other orgAnisations CICRA is a member of the Association of Medical Research Chaiities (AMRQ, th¢ National Institute for Health Research (NIHR), tlie National Council for VoluDtary Orgatjizations (NCVO) and i5 r¢gist¢r¢d with the Fundraisiiig Regulator. CICRA coiitinues to work with BSPGHAN (British Society of PaEdiatric Gastroenterology H¢patology and Nurrition), the BSPGIIAN Public Patient Participation (PPP) representative and tlie five a550Ciated gastro ¢h8rities and in particular Crohn's and Colit15 UK. C.ICRA exchanges Iiewsletters and information with the many national and international orgaThizattons dealing with Inflammatory BDwel Dhsease and responds to enquiries from overseas. sign posting also to sister organisations as appropriate. Fif4ANCIAL REVIEW Flnanelal positlon As of end of December 2022 tlie accumulated ndS stood at £676,754 of wl)icli £625,985 represented unrestricted funds. Research commitincnts for filre ycars and detailed in Note 17 to the accounts ainoiiiit to £85,096. In the year under review thcrc was £51,000 of Ic8acy incoine, Trust income was £52.600, other activities and donations £130,967 and investment income £4.500. Of the £676,754 accuniulatcd funds as at 3 1st December 2022, £356,398 is in Fixed Deposit Cash Funds. Othcr surplus tund5 are in accounts with CAF, COIF 3nd Na¢Wesi. Page 4
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees fnr the year ended 31 December 2022 FINANCIAL REVIEW(Contd) Inve5tmeRt polrcy Tlie charilS eonstitutiott authorises the trust¢e5 to make aiid liold iThveslments using the futth of the ¢harity. There are no restrictions on the trustees, power to invesl although the twstees ¢ake apprtspriale advice before Jnaking investments that carry more than a low degreB of risk. Reserves pollcy CICRA ha5 no significant secure income, relying almost totally on voluntary contriblltions, donations, grants and nd-raising activitics. In consequence thc trnstees believe that it is ¢ss¢ntial to liave suffi¢i¢nt funds to cnsure continllity in the eveni of a temporory r¢ducts"on in illGome. The trustees have agrccd a policy Éo hold reserves on d¢posit equal lo a minimum of six month5 operational expenses and Covering long rM cominittnents. At the end of 2022 we estimate these to be £140,000. In addition to this we have £50,769 of knnds restricted to specific projects and £8S,096 for future research ¢ommittnEnt5 We continuously review our research programme to ensure that we are up to date with CUTrellt findings. The remaining reserves of £400,919 will be used to futsd research recominended to our Twstees by our Medical Advisory Panel following a rigorous peer review. Thc Trustees IMve earn)arked £250.000 of this for a research fellow and will fund raise to add to the £150,919 balaTJce tts enable Extsa rc5carcb projects to be commissiotjed. otrrLOOK The Trustees ar¢ hopefid that a retum to relaiive nomality will allow them to InCree charitable aciiviiies in 2023 and plans are in pla¢e Its restart ow" PUlar family infornwtjOD days, with ini¢rest expected to be high from both fainilies at edical professional5. The TrL15tees also plan to advertise for research applications its2023 now that tlie futur¢ looks a little more settled. The setting lip of the Paediatric IBD BioResource project led by Professor Holm Uhlig at Oxforf and funded by CICRA, suffered from dcl&ys ditritjg the pandemic but with a tirne extellsion wc arc pleased to say that many Paediatric Centres are now in the course of sctting llp, or planning, their local group to collect thi% ongoing data. The Tte¢S Considcr that it is vital tliat CICRA ¢oi)tsThues to filnd peer reviewed research and to suppon the families and young people diagnosed with Crolm's disease and UlceTative Colitis which continues lo increase. both in the UK and across the world for which ncither caus¢ nor ¥ur¢ are yet known. Much has been achieved over the years in tern]s of diagnosis and treat£t of paediatric IBD, however the dratnatic increase preval¢n¢e we are seeing wday means that iesearch is needed more than ever. Of parttcular con¢ern is the illci¢a5e ID Very Early OJJ5et IBD {VEOIBD) in extr¢m¢ly young Children. Alongsidc tho need to ramp up Tesearch efforts, tlie TrLiStees are conscioll5 of the need to iTh¢rease CICRA'S sUPPOrt offersng to mect unprecedented dCnnd Eor 5UPPQrt from ¢onc¢rncd families. This is being driven partly by an incrcase in prevalence, and partly by over-stretched healthcare serwces being unable to provide the patient support rhat they would like to. As we rebuild post-pandeillic. the Trustees are also revieiving the structure of the charity in order to ensure that it is set up to acl)ieve its charitable aims in th¢ long t¢rm. A key challenge that thc charity fices LS to grow its income in order to thc incre&se in a¢&ivitics, such as fundrai5cr support. fan]ily day organisalion and admini8lralion ollhe an1 awards process. The ¢osi of living crisis 15 expecting to put addiiion21 pressure on CICRA. Looking ahead. 2023 wall be the 45 ' anDiv¢rsary of CICRA'5 fouiiding which Èh¢ Tnte¢S intend to mark with a fundraising cainpaign. The CICRA TTU5t¢es will continue to review and manage the charity prudently during reeovery from the ¢ur¢nt e¢onomic ttirbulcncc. They will do all tliey can to continue as far as possible with the researcli 2nd siipport programmes plaiined.. The focus will be to restore thc clw2ty's incorne and ramp up our resEarch. support and aivareness efforts. At tlie present time the eontributitsn that CIC]iA makes to th¢ ficld ofpaediatric IBD remains as vital as ever. We belicve Ihat the surge in new IBD diagnoses ¢reaies an urg¢nt need (or fiffther research and support. parti¢ularly for the vcry early 0et ¢ases which appear to show a hiige increase over recent years. Page 5
CROHN'S tN CHILDIIOOD RESEARCH ASSOCIATION Report of the Trllstees for the year ended 31 December 2022 STRUCTURE, GOVERNANCE AND MANAGEMENT Gov¢rning document The charity is wntrolled by its governing document, a deed of trust and constitutes an unillcorporated charity. The Crohn's in Childhood Research Association (CICRAI, an unincorptsrdtEd charitable association, is registered in England & Wales under Charity Nuinber 278212 and in Scotland under Charity Nuber SC040700. CICRA is governed by an amended constitution adopted at th¢ ATU)ual General Meeting on 14 October 1989. Recruitment and appointment of new trustoes The board of trustees Shall be not less than six and not more than twelve members of the Association elected at the A]]nual Genero1 Meeting. The lnteeS have the power to co-opt members tts fill a Lasual vacancy or as an addition lo the existing trustees. One third of the members of the Board shall retire each year in order of 5eTriority but Jnay be eligible for re-election The Trustees meei on averdge every six weeks and are responsible fot deterniiDiug polici¢s, the budget and overall management of Ibe charity- Tbe small staff team and oifice voliinteers are respot]sible for undertaking tbe day-to-day running of the Associatioll, carrying t&)ugh the policies. budget and day to day administralion as deler]nined by the Board of Trustees. As well as representing the clwity at medical meetings some Trustees continue to actively assist in the office and in the organisation of evcnts. Induction and tralning of new tiwstee5 Ncw Tnist££s coPtcd during the year, or elected at the AGM, are given an Induction course by th¢ Chair outlining the objects as sct out in the Constitution, the roles of the other Ttee$, the present finallcial standing of ihe charity alld its commitinents. Trustc¢s asked to take on or share responsibility for overseeinbF a cetiaiu aspect of Ihe ctwity i.e. research, financc, ¢ommunication technolog]e5, outreach and supporL etc. Risk management The trustec.% eonliniie to regiilarly exaill1e the strategic, business and opeiational risks (o which th¢ ctwity is expose and confirn) that thcy have put in place systems to ]nitigate th05¢ risks as far as ihey are able to do. REFERENCE AND ADMJNISTIL4TIVE DETAtLS Rogistered CharÉty numbers England & Wales 278212, Scotland SC040700 Prineipal address Pot Shaw Hol¢ 13-19 Ventnor Road Siitton SueY SM2 6AQ Trustee$ Mr G Lee (Chair} Mr S Colemaii Mr P Cooper Mr N Gooding MTS M Lee MBE Ms C Malloy Ms K Malloy Mrs N Pitney-Hall Page 6
CROHNIS ITr4 CHILDHOOD RESEARCH ASSOCIATION Report of the Trustees for the ye#r ended 31 December 2022 REFERENCE AND ADMINISTRATIVE DETAILS llldependent Examiner Tudor JohD Liniited Nightingale House 4648 East Street Epsom Surrey KT17 IHQ Hon. Aivards Advlsory Panel Professor I Sauderson {Chairni} DrPDeb Professor S EDnis Dr J Epstein Dr M Gasparelto Dr R Heus¢hkel Professor T MacDonald Dr S Protheroe Professor H Uhlig Ptofessor D Wilson Hon. Cltnleal Dlreetors Dr K Blakeley Dr J Epst¢in 2810912023 Approved by order of the board of tLUStees on .........-............................... ... and signed on its behalf by: Mr5 Niargaret Lee MBE - Ttee Page 7
Independent Exatniller's Report to the Tru5tee5 of Crohn's in Childhood Research Association Independellt examiner's report to the trustees of Crohn's in Childhood Research Assoclation l T¢POrt tg the charity truslees on my examination of the account5 of Crohn's ill Childhood Research AssoLiation (the Trust) for the ellded 31 Decenther 2022. Re5POll5ibilities and ba$15 of report A5 the charity tru5tces of the Trust you are responsible for the preparation of the acccpunts in accordance with th¢ [qUire£t5 of the Cbarities Act 2011 I'the Ac¢,) and tlie terms of the Charities and Trustee InvesttDeDt {ScotlaDd) Act 2005. The Charity'5 trustees consid¢r than an audit is not required for this year {under SgLtiou 144(2) of th¢ Charities Act 2011 (the 2011 ACL)) and that the r¢quir¢inen( of Regulation 10(I)(a) to (c) of Ihe 2006 ALLounts Regulation5 does ot apply and that an independent examinalion is required. It is my responsibility to exa1n¢ the ac¢ouuls as required under Section (44(J)l¢l olthe Acl and tu stAie whether pariieular matteLs huv¢ ¢um¢ lo my attention. I report in respect ofmy examinativn of the Trust's account5 carried out under section 145 of the Acl and in calrying out my examinaliort I have followed all applicabl¢ Dir¢cLions given by the Charity Commission under sectiou 145(5)Ib) of the Act and in accordance with Regulation I l of th¢ 2006 Accounts (Scotland) Regulaiions. Independent examiner's statcmcnt Sinee your charity's gT055 in¢om¢ exceeded £250.000 your eydminer must be a member of a listed body. I can conf that l a]n qualifi¢d io undetiake the examination because l am a registered A]eber oflCAEW which is one of the listed bodi¢s. I have completed my eKamination. I confjrni ihai no material matter5 hav¢ ¢ome to my attention in conneelioll wftth the examination giving me cause io believe that in any material rcspect- accountillg* records were not kept in respect of the Trust as requllrd by section 130 of the Act and Seclion 44(1)(a) of th¢ 2005 Act alld Rebwlation 4 of die 2006 Accoill)ts RelIatiOnS (Scotland); or the accounts do not accord with thos¢ recoriL8' or the accounts do llol comply with the applicable requircmcnts concerning the fornL and content of accounts set out in the Charities (Aceounts and Reports) Regulation5 2008 other thall any reqiiirement that the accounts give a tnje and fair view which is not a matt¢T CQllsid¢red as part of an independent examination. I have no concerns and bav¢ com¢ aoross no other matters in connection with the examination to which attention $hould be drawn in this report in order to enable a proper wid¢rstanding of the accounts to be reached. H. M. DayBS¢ FCADCILA Tudor Jolw Limited Ni8hiiThgale House 46-48 East Street Ep501n Sutrey KF17 IHQ Page 8
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Statement of Financial Activities for the year ended 31 December 2022 2022 Tutal fiIDds 2021 Total funds Unreslricted funds Restricted Notes INCOME AND ENDOWMENTS FROM Donations and l¢gaci¢s 185,717 25.000 210,717 249,025 Otlier trading activitics Invcstment income 23.850 4,500 23,850 4,500 27,005 238 Total 214.067 25.000 239.067 276,268 EXPENDTTURE ON Raising funds 64,473 64,473 53,694 Charitable #ctivities ReseArch Sllpport and infornjation programm¢ 40.661 74.404 19,384 3,124 60,045 77,528 86,539 76,300 Other 14,875 14.875 10,752 Total 194,413 22,508 216.921 227 285 NET INCOME 19,654 2,492 22.146 48,983 RECONCILIATION OF FUNDS Total fullds brought forward 606,331 48,276 654.607 605,624 TOTAL FUNDS CARRIED FORWARD 625,985 50,768 676.753 654.607 The notes form pan of these fthancial stateinents Page 9
CROHf+llS IN CHILDHOOD RESEARCH ASSOCIATEON Balance Sheet 31 December 2022 2022 Total fund5 2021 Total funds Unrestricted fund5 Restricted fullds Note5 FIXED ASSETS Tangyble assets Investments 10 356,397 356,397 353,265 356,397 356,397 353265 CURRENT ASSETS Stocks Debtors Cfjh at bank and in hand 12 13 3.347 39,768 261,615 3,347 39,768 312,383 3,788 36,439 303,298 50,768 304,730 50,768 355.498 343,525 CREDITORS Amounts falling due within one year 14 (35,142) (35,142) (42,IR3) IET CURREIYT ASSETS 269 588 320.356 301,342 TOTAL ASSETS LESS CURIiENT LIABILITIES 625,985 50,768 676,753 654.607 NET ASSETS 625,985 50,768 676,753 654.607 FUNDS 16 Untestri¢t¢d lldS Restracted funds 625,985 50,768 606,33 1 48.276 TOTAL FUNDS 676,753 654,607 09A8cial statements were approved by the Board of Trnstees and authorised for isgue on . amd were signed on irs behalf by.. Mrs Margaret Lee MBE - Trustee S Colenw- Tn]ste¢ The notes forni part of these fInl1 staternentS Page 10
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Note$ to the Financial Statements tor the year ended 31 December 2022 ACCOUNTING POLICIES BASIS OF PREPARING THE FINANCIAL STATEMENTS The financial stateIlleJits of th¢ charity, which is a public benefit entity under FRS 102, bav¢ been prepared in accordance with thc Charities SORP IFRS 1021 'Accoiillting and Reporting by Charities.. Statement of Recommendcd Prdctice applicable to cliaritie5 preparing their account5 in accordance with the Financial Reporting StaNlard applicable in the UK and Republic of IrelaDd {FRS 1021 (effective l Janivary 2019),, Financial R¢porting Siandard 102 'The Financial Reporting Standard applicable ID the UK and Republi¢ of Ir¢land' and the Charities Act 2011. The financial 5tatem¢nts have been prepared under the hIsrical ¢ost convention, with ihe exception of inv¢stm¢nt5 whicli ar¢ included at market value. FINANCIAL REPORTING STANDARD 1112- REDUCED DISCLOSURE EXEMPTIONS The charity l)as tak¢n advantage of the following disclosure exemptions itt preparin8 tlies¢ fitwncial statements, as permitted by FRS 102 'The Financial Reporting Standard applicabl¢ in th¢ UK and Republi¢ of Ireland,: die requirements of Section 7 Stalement of Cash Flows. YCOME All illcome is recognised iti the Siatement of Fiitsncidl Activities on¢e the ciwity hAS entitlement to the funits. it is probable tlial the inuome will be rec¥ived and the amount can b¢ measured reliably. XPENDITURE Liabilitits are reLogllis¢d as expenditure as soon as there is a legal or cunstructiv¢ obligation committing the Ghatity to that expenditure, it is probable that a transfer of eLonoTDiL benefits will be iequired in settlement and the amouni of the obligatioD can be measured reliably. Expenditure is accounteil for on an accruals basis and has been classified under h¢adings that aggregate all cost related to the Late¥ory. Where ¢osts cannot be directly aitsibuted to particular h¢adiDgs they have been allocated io activities oll a basis Consistent wilh the use of resource5. Grants offered subj¢Lt to conditions which have not been mel ai the year ¢nd date ar¢ uoted as a commitment but uot ac¢rued as expendItie. TANGIBLE FIXED ASSETS D¢pre¢iatiou is provided )t Ihe followiDg allniial rates in order to write off each assel over its estimated usefi lif¢. Cornputer equipmeryt Furniture and equipment 330/0 straight line 20- 33 /0 StEdight line STOCKS StoLks are Yalued at the lower of cost and nel realisable value. after making due allowance for obsole and slow moving items. TLXATION The charity is exempt from tsx on tis cbaritable activities. FUND ACCOUIYTING Unre5triLted funds can be used in accordanLe with the charitable objectives at the dL5Lretion of the trustees. Restricted funds can only be used for particul restrieted pU0¢S witbin th¢ objects of the charity. RestrictiODS arise ivhen specified by the donor or when funds are raised for p¥rticular r¢5tri¢t¢d purposes. Further explanatioll of the nature and purpose of each fund is included in the notes to the f]n¥noial sthm¢nts. PENSION COSTS AIND OTHER POST-RETIREMETr4T BENEFITS The charily operates a defined contribution peÉJsion scheme. Conlributions payable io the charity's p¢nsion scheme are char¥ed to the SiateInenl of Financial Activilies in the period to wliich they relaLtt. Pagell continued...
CROHNIS IN CHILDHOOD RESEARCH ASSOCIATION Notts to the Flnanclal Statemellts- coDtiDued for the year ended 31 Decejllber 2022 ACCOUNTING POLICIES- continued INVESTMENTS Investin¢nls arc sbown in Balallce Sheet at the year end rnarkel valu¢. Any unr¢alised gains or losses on r¢valuation are accounled for in the periid in which they aris¢. R¢aii5ed and unreaiised gains and losses ate combin¢d in tbe appropriate section of the SOFA. OTHER TRADING ACTIVITEES 2022 2021 Mercl)andise (incl xmas) Clirlstm2srnMer drnw 200 Club 8,407 10,880 4,563 7.940 12.982 6,083 23,850 27,005 INVESTMENT INCOME 2022 2021 Deposit aOUnt interest Sthrodeis Fixed Interest &ccounl 1,368 3,132 50 188 4,500 238 RAISING FUNDS RAISING DONATIONS AND LEGACIES 2022 2021 Stsff costs Trustres, expenses Posrage and statÈonery Office costs1400/o) Marketing and advertising Legal and batjk costs Lotteries Other fundraisillg expen$¢5 Staff expenses OutsourL'ing 15,988 249 5,323 19,664 732 58 5,007 10,823 7,951 2,851 19,042 1,554 5,626 11,881 23 2,852 2.852 60.696 51,895 Pa8e 12 continued...
CROHTr4'S RN CHILDHOOD RESEARCH ASSOCIATION Notes to the Financial Statements- contillupd for the ye¥tr ended 31 December 2022 CHARITABLE ACTIVITIES COSTS Direct Costs {see ote 6) Grant fid]llg or a¢tiviti¢s Totals R¢s¢arch Support and inforniation programme 6,904 77,528 53,141 60,045 84,432 53,141 137,573 DIRECT COSTS OF CHARfvABLE AcrtVlTIES 2022 2021 Stsff costs Trustees, expenses Postage and stationery Offlce costs (60 /0) Marketing and advertising Family meetings Legal fees Volunt¢¢r expenses Outs0[ing Staflexpense5 D¢pre¢iation 14,489 2243 9.886 29.497 21,704 2,000 87 248 4,278 20,047 1,027 5,295 28,563 18,172 540 2,332 4278 3,058 513 84.432 83,825 TRUSTEKS, RElItUNEIL4TtON AND BENEFITS There were no knjstees, remun¢ration or other benefits for the Ye ended 31 Deeember 2022 nor for the year ended 31 December 2021. TRUSTEES, EXPENSES 2022 2021 Trustees, expenses 2.492 No Tntte received ally retnuneTatioEL for their services as a Tntee. A total of £2.492 {2021: £1,141} was reimbursed to 3 Trustees (2021.. 1). Th¢5e Tnistees cary L>ul tasks in funherance of the Lharity's objectives on an expenses utdy basis and these Losts hav¢ been allocated as appropriate tLb Research. Suppurt & InforntIon and Cost of Generating fLd8. Page 13 continued...
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Notes to the Financial Sta¢ements- eontÉnued for the year ended 31 December 2022 STAFF COSTS The average jnonthiy numbcr of employees during the year was as follows.. 2022 2021 Administration No employees received emolumellts in exce55 of £60,000. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Ut]restricted filnds Restricted funds Total nds INCOME AND ENDOMTrIENTS FROM Donations and legacies 184,892 64,133 249,025 Other trading activities Inve5tm¢nt in¢ome 27,005 238 27,005 238 Total 212,135 64,133 276.268 EXPEf4DITURE ON Raising fiinds 53,694 53,694 Charitable attivities Research Support and infornution programme 45,732 44,396 40,807 31,904 86,539 76,300 Other 10,752 Total 154 574 72,7ll 227.285 NET INCOMEI(EXPENDrruRE) 57.561 {8,578} 48,983 RECONCILIATION OF FUNDS Total funds brought forward 548.770 56.854 605,624 TOTAL FUNDS CARRIED FORWARD 606.331 48.276 654,607 Page 14 coniinued...
CROHf4'S IN CHILDIIOOD RESEARCH ASSOCIATION Notes to the Flnanclal Statements- eontillued for the year ended 31 Deceber 2022 io. TANGIBLE FIXED ASSETS Improv¢ents Fixtures prortY fittings Totals COST At l January 2022 and 31 December 2022 3,850 49,156 DEPRECIATION At l January 2022 and 31 December 2022 3,850 49,156 53,006 NET BOOK VALUE At 3 I Decembcr 2022 At 31 Decernber 2021 FIXED ASSET INVESTMENTS 2022 2021 Other 356,397 353.265 There were no investmelll assets ouiside the UK. Investments (tteither listed nor ulltisted) were a5 follows: 2022 2021 Scliroders Fixed Deposit aecoullt 356.397 353.265 12. STOCKS 2022 2021 Stocks 3,347 13. DEBTORS: AMOUNTS FALLING DUE WITHIN 0Tr4E YEAR 2022 2021 Prepajments alld accrued income 36.439 Page 15 continued...
CROHN'S IN CIIILDHOOD RESEARCH ASSOCIATION Notes to the Financlal StAternetEts- continued for the year ended 31 December 2022 14. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2022 2021 Trddc cnditOTS Taxation and social security Otl)cr creditois 20.969 253 13.920 36,026 126 6,031 35,142 42.183 15. LEASING AGREEIIIENTS Minimum lease payments under noll-cancellable operating leases fall due as follows: 2022 2021 WithÉn one year Behveen one and five years 38,000 98,167 26.447 136.167 26,447 16. MOVEMENT IN FUNDS Net movement in funds Trdllsfers betwe¢u funds At 31.1222 At 1.1.22 Unre$tri¢ted funds General lund Designated fund 468.459 137.872 19,654 52,776 (52,776) 540,889 85,096 606,331 19,654 625,985 Restrleted funds Support meetings Family Days Research antS Pareiiting packs Global Make Some Noise 8,892 16,000 14.383 9,000 16,876 25,768 16,000 (14.383) 9.000 48,276 2.492 50,768 TOTAL FUNDS 654.607 22,146 676.753 Page 16 continued...
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Notes to the Flnancial StAtemeDts- continued ror the year ended 31 December 2022 16. MOVEMENT IN FUNDS- continucd Net movement in funds. incliided in the above arc as follows= Ineoming rcsources Resources expcnded Movement itt funds UThrestricted funds General fund 214,067 {194.413} 19,654 Restrlcted funds Support mceiings Research grants Global Ik(ak¢ Some Noise 20,0(K) 5,000 (3,124) (19,383) i) 16,876 {14,383) 25,0(X) 22,508 2,492 TOTAL FUNDS 239,067 216.921 22,146 Comparatives for movement In funds N¢t mov¢ment in funds Transfe between ll)ds At 31.12.21 At 1.1.21 Unrestricted funds General fvnd Designated fund 334,216 2l4,554 57,561 76,682 76,682) 468,459 137,872 548.770 57,561 606,331 Restyleted funds Support meeiings Family Days Research grants Parenting packs Global Make Some Noise 7,001 16.000 24,690 1,891 8,892 16,000 14,383 9,000 {10,307) 9,000 (9,162} 9,163 56,854 8,578 48,276 TOTAL FUNDS 605,624 48,983 654,607 Page 17 continued...
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Notes to the Financial StJtements- coDtillued for the year ended 31 December 2022 16. MOVEMENT Ir4 FUNDS- eontinued Compardtiv¢ net movement in fimds. inclLided in the above are as follows.. Incoming resOu¢S Resources expended Movement iu futKIs Unrestrieted funds General fi]nd 212,13S (154.574) 57,561 Restrlcted funds Support meetings Rescareh grants Parenting packs Global Make Some Noise 3,800 30,500 9,000 20,833 {1,909) (40,807) ,891 (10,307) 9.000 9.162) 29,995) 64,133 (72,711) 8.578 TOTAL FUTr4DS 276,268 227,285 48.983 Support Meetings This fund repre$ts an]ounts donated to CICRA towards the cost of the Support Meetings held. ReSer¢h Grants This fund represents 2mtsLtuts donated to CLCRA towards the cost of Researcb Grants. Prenting Packs This repreSts amounts donated to CICRA towards the costs of providing parenting packs. Clobal Make Some Nolse This fund repr¢s¢nts amounts donated to CICRA by the Global Make Some Noise Cbarity towards thc cost of a support worker. 17. OTHER FINANCIAL COMMTfMETr4TS The Charity has future gran¢ commitments already entered into and spread over the years 10 2023 - 2024 inclusive, totalling £85,096 (2021.. £137,872) These multi-year grnnts. are reviewed annually and paynents for sOnd and subsequellt years are only made upon receipt of saÉi5fuctory progre55 rq)orts. Conscqu¢ntly. the trustees do not coiisider It appropriate to make provision for these coinrnitsnents in (hc finDncial statcments. Existing re5ear¢h commit]nents'. Grant aivarded to-. Prof¢850r Holm Uhlig. Oxford University Grant awarded to.. Prof¢ssor Annabel David Oxford University labordtory consumables grant.. Prof. lan Sanderson, Bans & the Royal Lolldoll Hospital 41,360 36,536 7,200 85,096 The tsrning of the abov¢ CO111¢ntS is as follows- Grant Commitsncnts 2023 Grant CoJmDilinents 2024 76,824 8,?72 Page 18 continued...
CROIIN'S IN CHILDHOOD RESEARCH ASSOCIATION Notes to the FinanciAI Statements- eontinued lor the year ended 31 Deeember 2022 18. RELATED PARTY DISCLOSURES There were no relat¢d party transactions for the year etsded 31 December 2022. Page 19
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Detatled SÉatemeDt of Financial Activities for the year ended 31 December 2022 2022 2021 INCOME AND ENDoWMETrs Donations and legacies Donation 210,717 249.025 Other trading actiTr4tles Mcrchandisc (incl xmas) Christmaslsummer draw 200 Club 8,407 10,880 7,940 12,982 6,083 23,850 27,005 Investment income Dcposit account interest Schroders Fixed Interest account 1,368 3.132 50 188 4,500 238 TotAI Ineomlng r¢$our¢es 239,067 276,268 EXPENDITURE Raising donAtions and legacies Trustees. expenses Wages Social security Pensions Postage and stationery Office costs (400/0) Marketing and advertising (Fal and bank costs Lotterie5 Othei ndTlsing expcnscs Staff expenscs Outsourein 249 15.988 114 7,788 86 77 2,851 19,042 5,323 19,664 732 58 5,007 10,823 1,554 5,626 11,881 23 2,852 2,852 60,696 51,895 Other tradlng Activities M¢Nhandise (including Christmas cards) 3,777 1,799 Charitable activities Trustees, ¢xpenses Wages Social security Pensions Postage and stktion¢ry Officc ¢05ts (60%) C&rri¢d forward 2,243 14,489 1.027 19,391 326 330 5,295 28,563 54,932 9,886 29,497 56,115 This page does not form part of the stattitory flna11al statcrnents Page 20
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION Detailed Statement of Finallcial Activities for the year ended 31 Decetnber 2022 2022 2021 ChAritable activities Brought fonvard Marketing and advertj5ing Family m¢ctings Lcgal fees Voluntcer expenses Outsourciog Staff expenses Depreciation of tangEble fixed a55ets GEaiits to L115titutions 56,115 21,704 2,000 87 248 4,278 54.932 18,172 540 2,332 4,278 3,058 513 79.014 53,141 137,573 162,839 Other Wages TrUSe insurance ALCOU]Jtancy Legal and bank c05ts Staff expenses 8,914 1,525 3,630 806 2,448 1.226 3.500 589 14,875 10,752 Total resources expended 216,921 227.285 Net llleome 22,146 48.983 Tl)is page does not foTm part of the statutory financial statements Page21