Crohn’s In Childhood Research Association (CICRA) REPORT & ACCOUNTS Year ended 31 Dec 2020
Registered Charity Numbers:
England & Wales 278212 Scotland SC04070
TLidor John Limited Nlghtingale HOle 4648 Eabt Street Epsom SutT¢y KT17 IHQ
ASSoCoN 10 12 to 20 21 to 22
the year cnded 31 De(all2020 The trustees present their report witli the fin2nciAI Statements of the charity. for the year ended 31 December 2020. The truslets have ath)pted the provisions of Accounting and Reporting by Charitieg.. Statement of Recomniended Practsee applicable to charities prepar&ng theu accounts in aeeordanee with the Financial Reporting Standard applicable in the UK and Republie of Ireland (FRS 10?) (effeetive l J£uary 2019). The Tntstees are ¢onfident that during ?020 the objeetiV¢s of thc ¢harity w¢r¢ met by ¢onlinuing to fund re8carch which incrcas¢s knowledtse and understanding of Crohn's disease and Ulcerative coliti5, collectively known as Inflammatory Bowel Disease IIBD). Whilst seeking the ¢aiise and cure the ¢lwity ¢onttnu¢d to provide support and inforrnation for parents and children and ¢oiitinu¢d to raise awaren¢s$ amongst lh¢ general public of the devastating effect this condition cfflitiniies lo have on young lives. Activity leve15 in 2020. however, W¢T¢ reduced due lo the impact of the Covid-19 pandemic on income and on our ability lo n]n face to fa¢¢ m¢¢ting5 such as Family Information Days and t]ie Awards Advisory Panel. Obi#tives atMI &in)s The principal objects tor whEch the Society is established are for the relief of persons suffering from. and to promote and advance publi¢ education and reseaTch into. Crohn's Disease. Ulcerative Colitis and related disorders. Pub]i¢ bawfit The trustees have referred to the Charity Commission's general guidance on Public Benefit when reviewu)g their aims and objectives. Grl.thsPO1l¢Y To meet one of its prAmw objectives, th¢ Charity invests in medi1 research into the ouses and treatmellt of Inflammatory Bowtl Dise¢ (Crohn's Dise2tse and Ulcerative Colitis), particularly as it affects children and yoiing adults. Applications for reseai'¢h funding are invited trom relevant medical and scientific in5titLltions a¥Jd are then subjccted io a rTgoi'ous pcei rcvicw proc¢ss, involving indcpcndcnt specialist referecs xnd thc CICRA Awards Advisory Panel. Typically, the research awards fall within foiir categories.. 3-year Research Traiiiing Fellowships: 3-year PhD Stiidentships, 1-2 year research projeets kd grantb for specific statistical pi'ojects I'elated to IBD in Lhildhood. Bursary grants to help with the costs. of UK based health professEonals and studeiits in trainints (doctors, n[ir8 #nd final y¢ar medical students) involved in IBD research, attending sCi¢tif1¢/iThedleaI meetings, are awarded at the dis¢reEion of the Trust. At the Aniiiial General Meeting held on Mici'osoft Teams on 3 ISI October 2020 two Trustees. Paul Cooper and Sitnon Coleman, stood down and were re-elected for a fijrther 3-year terni. Mrs Nicola Pitney-Hall and Miss Chloe Malloy, who had been co-opted in January 2020 were fornially elected to the Trustee Coinmittee. Dr Richard Hansen stood dowi CICRA'S Honorary Mcdical Director and thanked by the trustees for his significant eonmbutions during his tem) in that role. Dr Hansert was suecccdLxI by Dr Katc Blakelcy and Dr Jcnny Ep.%tew &8 Honorary MediLal Directorg. In ALigiisi 2020 the CEO. Nick Posford. left CICRA to sume the CEO role at another charity. His responsibilitie$ for the day-t(Fday management of the Olle and its Stliff were picked up by the trn5tee5'. The Chair. Margaret Lee, Loniinued to be rpOnsible for the research process. the d(ty-l(Fda) accowiiin¥-. workibI With aLcounidnls TuduT John Limsted and &Teneral offsce and support work. TrusteelTreasurer, Simon Coleman. cofttinued to be responsible lor financial alTairs. OthEr Trustecs undert(x)k additional activities in coreCtion with specific areas of work such as fvndraising. ll)fornation teehnology and represent2tion on extcrnal committees. Page I
CROHNE IN CHILDHOODRESBARCH ASSOCIATION theyearended 31 Dekn2020 CICRA followed government advice rewding working from home to whieh end the office was elosed for much of 2020. No meinbers of staff had to be furloughed or made redundant due to COVtD but there a reduced level of staffg due to changes in staff persoiial circumstances. As TNstees were lmable to meet f&Le to face, zoom n)eclings werc a8ged and plans put in place to cover the increased woA<load whid) was due to the qULYies relating to the vulncrability of thc childrcn with IBD. This increased workload, with a decreased staff, was able to b¢ mct duc to Tru%t¢es, who ivork on a voluntary basi& taking on ex1ra responsibililies and th¢ ¢urr¢nt stafFoff¢ring to work extra hours olso on a volwitary basis. The prinLipal ubjeLlive ufthe chaTity is to raise fifftds lo maintain and expand a research programme to help bring about bett¢T treatments and quality of lif¢ for children and young adults with Inflanllnatory Bowel Disease. Also, to discover. throu] gwood bdsic science. the ca115e and an ¢v¢ntual cure. Since its foundation in 1978 CICRA has funded 25 'fraining Fellowship5. 24 PhD StLidentship5, 62 R¢sear¢h Proj¢as and Set up the first Paediatric (iasttoenterology Laboratory in the During the period under r¢view CICRA continued the fundllw of the following research programme.. AnTrabel David at Oxford University (l year project}- Understanding stiwna in adolescents with IBD Renewal of a regu12r Conlable5 grdl]t to supwrt the ivork undenaken in the Paediatric Gastroenterology Laboratory al St Bartholomew's & The Royal London Hospita]. One bwsary grant, and one John Eamshxw 8w8riL weye agreed before lockdown but were not taken up when tli¢ meetings were cancelled due to lockdown. To ensure transparency and appropriate application of CICRA funds, the Truste¢s follow 2 strict Peer ]ievi¢w system using external referees from the UK 9md other eoulitries, and their oivn appointed Awards Advisory Panel (AAP). all working in an honorary capacity. Based upon the recommendations of the Awards Advisory Panel and AAP Chairrnan, thE TrLiStees make the fmal decision and award the grants. This Peer Revie. applies to all applications tor financial siipptsrt with the e.xception of the very minor grants. Annual wrirtem reports are required for all 2W.dS and are rewiewed by the Trusttts and Medical Adi'isors. CICRA encourages the publie&tion of both positive and negative research rUlts. The Truste¢5 retaill flexibility as to the t1ing and scale of grant making. The 2019 advertisement for applications for 2020 PhD stUdelltshpS or Research Proje¢ts.FrodLiced a good response. Following Peer Revie. a decision was taken to fid two projects, led by Professor Holm Uhlig at Oxford University a] Professor Paloma Ordonez-mordn at Nottingham University. CICIL4 succe5sfillv CopICted its 5 year"Quality of Peer Review" audit hy the Association of MediLdl Research Charities in 2020. The AMRC awarded their Certificate of Good Practice which enables the charity to use the ANIRC 20?0 aL1t IobFO to show that our proce&s for grgthting awards 15 of a high standard. Page ?
ASSOCIATION the yeard¢d 31 2020 CICIU WOTks with Regional Paediatric Centres, specialist units and also district general hospitals across the UK who treat children with IBD and who distribute Tarent Packs, to the parents of newly diagnosed children. CICRA works closely with Paediatrie IBD spceialist nurs¢8 at variaus pa¢diatric g&8troenterology units around the COLinty, their regular contact with the young patients and families is vital and rnch appreciated. CICRA'Can't Wait, cxIS are available for child to help them explain their condition when in urgent need of a toilet. The ePalg scheme puts. yoimg IBD suff¢rei8 in ¢onlaCt with each othervia e mail and is greatly valued by its partieipant%. The F3]nily Support Wod(er ¢onlinued to be funded by the Global Make Some Noise on a two-year granL This role was focussixl on providing dll'ect support lo families of young IBD sufferers and improving the quality of inforniation provided by CICRA. partiLularly in relation to ¢motional wellbeing and school guidance for parents. The demand for support dropped a little during the first lockdown and then increased during the second half of the year as schools rettuneil. The Fatnily Support wotr rFigned in Dxember, six months before the end of her cot]tract in order to pursue a differait career opportunity. Due to the disruptÉon of SeiceS and activities during the year GMSN agreed to extend the 'spend date, of the grant funding for a fijrther 5iK months which enabled CICRA to employ a part time replacement plus some other necessary ehanges of expenditure due to the ongoing COVID restrictions. Whilst therE was a reduction in the activities that the charity could carry Out. including the popiilar regional Family Infomiation Days, the deniand on the staff and Trustees increase& due to meinbers of the medical teams being dq)loyed on COVID. With the occasional ne¢essary visit io the office the staff and TnteeS continiied their work fron) home, offering support to families, especially those witli children diagnosed during the pandemic. Appreciation for the h¢lp givcn lo th¢ Paediatric Gastroenterology t&qtns was expressed by their sociery "We contuiue to appreciate your help m engbliiig rapid comiTrurJic3Éions rcaching out to patieJ21s. fvvheÉJ at t4. essages fjvm the NH3 were iineleAr. Your woikhHshelpedour tewns lo fiCtiOn, especJ3Jly ag illi3es when fvi'e been under onsJil¢rablepressure lo c1[¢1 families iiidividuAIIy': Page 3
ASSOCIAIION Report oftho Tru¥tQ¢0 fry th¢yer eodod 31 Dllber2020 In the p¢riod under review, the CEO and one Trustee covered a three-day lleting in Jalluary one of the only fac¢ to face meéi¢al meetingg CICRA could be represented at before lockdowL In a nollnal year, these meetings throughout the y¢ar provide oppominiti&s to net¥i'ork and cfyordinate witli healthcare prOf5]ona1S and policy makers as well as to 1¢8rn about the latest developments in treatments and possible causes of tnflanunatory Bowtl DTse35e, especially as il affects the young. Trustees pLqy an active role nkntming a CICRA inforniation stand. During the remainder of the year Trustees and staff tuned in to many virtual rneetings. It should be noted that TTUStees do not receive any rEmuner3tion a]M4 ostly claim travel and budget style ovemight acconllnodation expeuse5, in line ivith the chartty's expens¢ guideline5. The CICRA newsletter compiled and edited by the CEO, trust¢es and staff, is one of the main vehicles. along With the website and sooial media, for Niblicising the efft that Inflammatory Bowel Disease Can have on childiell. and for the PLLblic to become more aware ot their needs. CICRA continues to publish easy to lderStand inforniation booklets Ixit in 2020, du¢ to the extra deanand and the loss of some staff no new publieations were produced but due to demand many reprints of the CUent Itterature was needed. The CICRA website ci)ntinues to sce an incre2se in iisers and facebook which was taken over by one of the Trnstees when the part time stscial media st21t member left, due to a Ch2ge in her circunstances. There has been an increased following duringthe year. Membersbip CICRA does not charge u fixed membcrship fcc as the TTU4tces eontinue to bclicve that all parcnts of children affected by Crohn's disease and Ulcerativc colitis shnuld hawc accc ta C.IC.RA litcraturc and infamiation on their child's Condition, regardless of their fjnancial position, but thcy invite members tn make a danation &% and whcn thcy wigh or arc able to do so. All literature is issued free of charge. Memb¢rshÉp is op¢n io paticnts, par¢ML%, thcir f25nili¢3 and friends, mcdical professionalb and an>one interested in rtherIng th¢ understanding of, and r¢segr¢h into, int]ommatory bmvel disease in children and young adults. As with all other charities fundraising by meMbS came lo a temporary stop when lockdown hAppen¢d. The Tnwees are very grate1 for the loyal support received from menibas with ptrsollal doiiatiuns. dvndti(111s in given li¢ii of Ivhal would have been their social spending. Also, Ihe way5 thoiight LIP to suppoll CICRA with virtual fundraising. Thank5 espla1]Y to th¢ childJEn's activitie& Litibwith (ffgani&ation6 CICRA is a mLmbcr of thc Ass()ciation of Medical Research Charities (AMRC). the National Insttiute for Health Re5earth (NIHR), the National Council for Voluntaiy Organi70tions (NCVO} and is registered ivith the Fundraising Regulator. CICRA ¢ontinues to work with BSPGHAN (British Society of Paediatric Gastroenterology Hepatology and Nutrition), the BSPGHAN Public Patient Parti¢ip#tion (PPP) representative and the five associated gastro Charities. CICRA exchanges n¢wsletters and infoiination with the mY national and inlemational organizarions dealing with Inflaminatory Bowel Disease and rtsponds kn enquiries from overseas, sign postsng also to sisier organisations as appropriat¢. FINANCIALREVIBW As of end of December 2020 thc accumulatcd fund8 8tood at £620,93_3 of whicli £548,770 represented unresth¢ted fL5nds. Research Comi7tmentS lor fiiturc veaTh and durtailcd in Notc 18 to tliL accounts amoiint to L?14,-i54. In the year linder review legacies accounted for £4,340 TnLSt incornL £45,525 othcr actiN'itlC8 and donation.% £197,728 and investmert inconie £806. Of the £6?0.933 aeeumulated funds &$ at 31.1 Deccmber ?010, £353,077 is in Fixed Deposit Cash Fund& Other sutplus fidS are in accoiints H'ith CAF, COIF and Natwest. Page 4
CROHNB IN CHILDHOODRESEARCH AsS(AlI0N forthey¢ar ¢k 31 Decemk 2020 The ¢harity'5 Collstittition authorises the ttee5 to make and hold investnJents using the fimds of the charity. There are no restrictions on the trustees, power to invesL although the trustees take appropriate advice before making any investments that cary more than a low degree of risk. CICIL4 has no 5ignifiwt secure income. relying almost totally on voluntary contributions, donations, grants and flmd-raising activities. In consequence the trnstees believe that it is essential to have sufficiellt funds to ensure eontiniiity in the event of a trmporary reduction Én income. The tnistees have ated 2 policy to hold reserves on deposit equal to minimum of sik months operdtional expenses. At the end of 2020 we estimate tl)ese to be £74,100. We continuously review our reseaych programme to ensure that we are up to date with current finding#. The rem&iniMg reserves of £546.833 will be used to Thd research recon)mended to our Trugte¢s by our Medieal Advisory Paijel following a Yigorous peer reTri¢w and of which £214.554 is already comn)itted over the next three years. Ai the lime ol writing Iliis report. CICRA Lontinues to bt impaLttd by the Corvnavirus pandemic. Inco# has stdbilibtd to around haifofil& usiial level, with commiinity events still subj¢¢t to T¢Stri¢tion¥ and many trusts diverts fijnds Coyid specifiL causes. Memb¢tS th¥ir familieb have rebvonded gelltFuubly to CICRA'S fundraising appeals during the patldemic, for which the Trustets are gratefijl. Costs- in parti¢Lilar, salary costs - have corne down in proportio to the drop in income so financially the ch8Tity wntinu¢s to break even. However, thi5 reflects a reductioii in charitable activity which the Trustees ar¢ keen lo reswn¢ once rtridIOS ease. Notably the popular regiollal Family tnfortTration Days, which remain on hold. CICRA'8 two new iyswch projects, awarded in 20?0, were delayed due to disruption caused by the pandemic. These have now staned, so C.IC.RA is currently fimding three ongoing research projects.. Professor Holm Uhlig at Oxford, Professor Palorna ()rdonez-Moran at Nottingham: and Annabel David at Oxford. After reviewing the fmaneial position at the end of 2020, the Trustees decided to not issue & research call in 2021 in order to pregerve their unrestricted cash reserves until income improves and the current sithation settles. However, it is vital Éhai we continue to fund peei. reviewed research and to support the families aiid young people diagnosed witli Crohn's disease and Ul¢¢rative Colitis which contiiiues to inbrease, both in the UK and acmss the world for which neither c3Us¢ nor cure are yet know Good progress has been seen from research in both the understanding of these dilYi¢ult to rnaDage IoT3g teTm conditions and the development of new treatmenls, birt we are also conscious of the possible side effects of medicatioii on young ¢1111dn. With a drainatic rise in the Very Larly Onset IBD being diagnosed (VLOIBL)) it 15 Vital that continue, bearing in mind the iinpwt of these lifelollg debilitating diseases the fatnilies. F'urthermore. the pandeic h85 highlbghl¢d the vital role that CILIL4 plays in supporting )'oung IBD Slifferers and their f8milies. particularly wrth clinical resources so over-stretched at Present. The CICRA Trustees will Continue to review and nLqnage the charity as best they can during the pgnd¢mic and econoinic doNtUrn. They will do all they can lo continue as far as possible with the research and support progrdnulles planned. As the country re-opens and ihe economy rttovers. the focus will be to re#ore the charity s iRcome and ramp up our re5earcl4 support iu)d awareness efforts. There are early positive signs ivith rescheduled fi1ndralg events now restarting, the Trust¢es beginning lo plan the retum of Fainily Information Days, and the CICRA office reopening. STRUCTURE GOVEIINANCE AND MANAGEMENT The charity is Colltrolled by Ets governing docurn¢nt, a deed of trust and constitht¢s an unincorporaled tharity. The Crohn's in Childhood Research Association (CICRA). unincorporated charitable association, is regist¢red in England & Wales linder c.harity Number 278212 and in scotla[ under Charity Nurnber SC.040700. CICRA is governed by an ainended constittition adopted at the AnnLial General Meeill)g on 14 O¢tober 1989. Page 5
ASSOCIATION theyear aKled 31 Drxomb¢r2020 The board of truste¢s shall be not less than six and not more than twelve members of the Association elected at the Annual G¢nernl Meeting. The trustees have the power to ciFopt members to fill a casual vacancy or as an addition to the existing truste¢s. One third of the ni¢mbers of the BO3 shall retire each year in order of seniority but ma) be eligible for r¢-clection The Twstees meet on average every six weeks and are responsible for determining poli¢ies, the bvdgd overall management of the Charity. The small staff team and office volunteers are responbible for undertaking 11)e day-t<Fday running of the Association. carying througj) the policies. budget and day to day administration os detemiined by the Board of Trustees. As well as representing the dwily at mediLal meetiiigs" sume Tru5t¢es eontinue tu O¢ttv¢l}' assist in the offi¢¢ and in the organisation ofevents. New Trustees co-opted during the year. or elected at the AGM. are given induction Gour5¢ by the Chair Outlining the objects as set out in the Constitution, the roles of the other Trustees. the pres¢nt financial slanding of the charity and its commitments. Trustees are asked to tske on or share responsibility for gvers¢¢ing a ¢ertain asped of the charity i.e. research, finance. cotnmunication teclmolo8ie5. outreach and support, etc. The tru%tees continue to regiElarly examine the gtrategic, bu%illess and operdtional risks to which the charity is exposed. and confirni that they have put in place systems to mitigate those risks as far as they are able to do. England & Wales 278212, Scotland SCO407) Pat Shaw Ilous¢ 13-19 Venthor Road Sutton SiltY SM2 6AQ Mrs M Lee MBE (Chair) Mr S Coleman Mr P Cooper Mr N GLk)ding MrGLee Mr Lhloe Malloy MJ3 N Pitney-Hall Dr P STnith Tudor John Limited Nightingale Ilouse 4fv48 East Street Epsom Siirrey KT17 IHQ Page 6
ASSOCtATION for Ih• ye4rthded 31 DerAmbw2 Professor I Sanderson {Ch2itman) Professor S E[lS Dr J Epstein Dr R Heuschkel ProfessorT MacDonald Dr S Prothen)e Dr LN Thapar Professor H Uhlig Profegsor D Wilson DrKB]ak¢l¢y Dr J Epstein Approv¢d by order of the board of tLUStees On..4 .....&K.,......... alld signed on its behalf by.. Mrs Margaret Lee MB Page 7
ASSOCIATION trth¥year end3] D#ember2020 The tnteeS are responsible for preparing the Rep(irt af the Trustees and the financial statements in accordance with applicable law and United Kingdom Ac¢oltIng StandaT4ts {lJnited Kingdom CJcncrally Accepted Accounting Practice). The law appli¢able to ¢haritits in England and Wales. the Charities Act 2011, Charity (Aecount9 and Reports) R¢¥iilativnb 2008, th¢ t¢rnis of the Charities and Trustee Investment (Scotlandl Act 2005 and the pi'ovisions of the trust ded Twuires the trustees lo pr¢pare fmancial statements for each financial year which give a trne and fair view of the state of affairs of th¢ charity and of the incoming resources and application of resources, includng the ineolne and ¢xp¢nditure, of the charity for that Tiod. In preparing those fmancial stslements, the trustees are requtred to select suitable a¢counling policies and then apply them consistentlyy observe the methods and principles in the C'haiity SORP,. make judgement5 arld estimates that are reasonable and prudent; prepare the fmancial statements on the going eoncem basis unless it is intippropriate tr) presume that the charity will ntiDue in business. The trustees aiE responsible foi. keepsng proper aecounting records whieh digcloge with reanable acc'&CY at any time the fInl cial position of the charity and to enable them to ensure that the fin2nci21 statements eomply with the Charities Act ?01 I, the Charity (Accoiints and Reports) Regulations 2008, the temis of the Tru%tcc Investmcnt (8cotlandl Act 2005 and tlie provisions of the trt deed. They are also responsible for ft811llrdILT the agsets of the charity and hen for taking reasonable steps for the prevention and detection of fraud and other irr¢gul8riti¢s. Page 8
A3lation l POrt to the charity trustees on my examination of the accounts of Crohn's im Childhood Research Association (the Trust) for the y¢ar ended 31 Deceinber 2020. RMpowl)ilitAe8 andbasis ofreport As the charity trustees of the Trust you are resn$111¢ ftsr the prq)araÉion of th¢ aoUnts in accordance with the requircmenl8 of the Charities Act 2011 {'the Act'l and the teTll]s of the Charities and'lrustee Investment (Scotlandl Act ?005. The C.harity's truses consider that an audit ts not required for this year (under Section 144(2) of the Charities Act 2(11 l (the 2011 Act)) and that the audit requirement of Regulation 10{I)(a) to (c) of the 2006 ACcoLtS Regulations docs not apply and that an independent examination is required. It is my responsibility to examine the accounts as require£l under Section 44(IMc) of the Act and to state whether partiwlar niatters have Come to my attentioi). I report in respect of rny examination of the Trust's accounts Carri out under section 145 of the Act and in carryii)g out my examination I have followed all applicable Directions givell by the Charity Commission under seetion 145{5)(b} of the Act and in accordance with Regulation I l of the 2006 A¢¢ounts (Scotland) Regulations. Since your charity's gross income ekeeeded £250,000 your examiner must be a member of a listed body. I can confim tliat l am qualified to undertAke the examination because l am a registered Jnember vf ICAEW whiLh is one of the listed bodies. I have cornpleted my examination. I confimi that no material matters have come to my attention conneLtion with the exanjination giving me cause to believe that in any material respect.. accowtting records were not kept in respect of the Twst as required by section 130 of the Act and Sedion 44(IXal of the 2(N)5 Act and Rcgulation 4 of the 2006 Accounts Regiilations (Scotland) . or the accounts do not accord 1th those records,. or the accounts do not comply with the applieablc rcquiremcnts concerning the form and content of accounts set out in tlie Charities {Accounts and Reports) Regulations 2008 othcr than any requirement that the accounts give a itue and fair view which is not a matter considcrcd as p&rt ()f an indcpendent examination. I have no concerns and have come across no her matters in ¢onn¢¢tion with the examination to which attention sboiild be drawn in this report in order to enable a proper UndetandIng of the 8¢counts to be reached. H. M. Day Bsc FCA DCIL4 ICAEW Tudor jo1 Limited NiltingaIe Hoe 46-48 East Street Epsom sY KT17 IHQ Date.. Page 9
ASSOCIATION fcf lkn year ¢ndwJ31 D1b2020 2020 Total funds 2019 Total finds Unrestricted ds Restricted fidS Notes Donations and legacies 153,548 74,450 227,998 260,003 Other trading activitie5 Investment income 18.252 6,49U 24,742 806 27,818 2.6¥4 172,606 80.940 253,546 290,505 Raising funds 66,491 66,491 90,325 Research Support and information pro.mMe 17,845 64.601 17,845 116,171 41,178 202,777 51,570 13,152 13,152 8,225 Total 162,089 51.570 213,659 342,505 10.517 29.370 39.887 (52,000) 17 13,663 26224 (52,000) RECONCILIATION OF FUM)S 535,107 30,630 565,737 617,737 605 624 505 737 The notes forni part tsf these financial statements Page 10
ASSOCtATION 31 2ff20 2020 Total funds 2019 Total funds Unrestrieted fullds R¢stricted funds Notes Tangible assets Investments 514 353.077 514 353,077 2,416 352,621 12 353,591 353.591 355.037 Stocks Debtors Lash at bank and in hand 13 14 2,082 42,236 177,187 2,082 42.236 254.875 3.147 40.841 222.532 77.688 221,505 77,688 299,193 266,520 Arnount5 fai]ing due within one year 15 (26,326} (20,834) {47,160) (55.820) 195,179 56,854 252 033 210,700 548.770 56.854 605,624 565,737 NET ASS 548.770 605,624 565.737 17 Unrestricied funds Restricted funds 548,770 56,854 535,107 30,630 605,624 565,737 The financial statements were approved by th¢ Board of Trustees and authorised for issue on ..&..?41k .W*........... and were signed on 11$ behalf by: MLeeMB ee S Coleman- Trustee The not¢s forni part of these financial statetTrents Pagell
CROHWS INCHItJ)HOOD RESEARCH ASSOCtATION I'he fmancial statements of the chlty, which is a public benefit entity under FRS 102, have been prepared in accordaJ)c£ with the chIlleS SORP {FRS 102) 'Accounting and Reporting by Charities.. Staternent of Recommended Practice applicable to charities preparin.4 theiy accounts in 2ceordanee with the FI[)cIal Reporting Standard applicable in the UK and Reptsblic ol. Ireland IFRS 102) (eftective l January 2019),, Financial Reporting Stsndard 102 'The Financial Reporting Standard Rpplicable in the UK and Republic of Ireland, and the Charities Act 2011. The fit)ancial statements have been prepared Imder the historical cost Conventio with the exception of investments which are included at market V21ue. ThL charity has taken advantage of thc following d&¢]0urC cxcinption% in prcparii)g tlic8c financial statents, as pennitted by FRS 102 The Financial Reporting Etgndard applicable in the IJK and Republic (Trf Ireland,: th¢ requirements of Section 7 Ststement of Cash Flows. COME All inLome is re¢OgniS in th¢ Siatement of Financial Activities once the charty has entitlement to the fiind4 it is probable that the income will be reeeived andth¢ arnolt ¢an be measLwed reliably. Liabilities art recogni5ed as expenditure as soon as ther¢ is a legal or constructive obligation conunitting the charity to that expenditUTe, it Is probabl¢ that a transfer of economi¢ benefits will be required in settlement and the amount of the obligation can be measw'ed reliably. EXpendItte És accounted for on an accruals basis ld has been ¢ISified under headiiigs that aggregate all rost related to the ¢at¢gory. Where ¢osls Ca0t directly attribLlted io particular headings they have bepn allocated to artiyities on a basis coT]5islent with the use of resources. Grants oftered subject to conditions which have not been met at the year end date are noted as a cominitmeni but not accrued as expenditure. TANGIBLE F]XED ASSETS Depreciatiot] is provided at the following annual rates order kn MTite Dff eath Set over its estitllated usefi]I life. Computer eqiiipnient Furniture and equspment 330/0 Straight line 20. 330/0 Sti'aightlsne STOCKS Stod(s gr¢ valued al the lower of cost and Det reaiisable value, aftermaking due allowance for obsolete and slow moving itetll5. TAXATION The charity ig exempt from on ils charitable activities. Unrestricted funds Can be I¢d in accordance with the charitable objectives at the discretion of the trustees. R¢strirfed funds only be used for particular restricted purposes within the objects of the Chlty. Restrictions arise when specified by th¢ donor or IvheT> fLmd8 are raiwl for particul restricted puiposes. Further Explanation of the llatte and Pl)95e of ea¢h fiwkd is inoluded li) the notes to the financial statements. Page l? ntinued...
ASS(lATIoN theyear ded31 Decatthff 2020 The charity operate8 a defined contribution pengion scheme. Contributions payable to th¢ Charity's pension scheme are Charged to the Statement of Financial Activities in the period to which they relate. InVestents are shown in Balance Sheet at the year end market valiie. Any unrealised gasns or losses on revftluatitsn are accounted foy in the period in which they arise. Realised and unreali5ed gaiTEs and losses are combined in the appropriate section of the SOFA. 2020 2019 McrchandiAC (inel xmas) Chri%tma¢8umrncr draw 200 Club 7.701 11,447 8.717 12.343 6.758 24,742 27,818 2020 2019 Schroder Inveslment AJ)terest Deposit a¢counl int¢rest Coll.. Deposit Scbroders Trixed Interest account 1,768 18 898 350 456 806 RAtSlNO IY)NATIONS AND LEGACIES 2020 2019 Staff costs Trustees. expet)ses Postage and stationery Oftiee eosts (40/.1 arkding and Rdvertising Legal and ban1< costs Lotteries Other fun£lraising expenses Staff expenses Outsourcing 20,623 485 2,657 18.245 22,689 627 2.859 19.397 378 311 5,842 27,463 56 2,7?3 63 3,690 13,804 139 3.012 02,994 83.054 continued...
ASSOCIATION forthe year ath131 Dec2020 Direct Costs (see note 6) Grant funding of activities Totals Resehreh Supptsrt and information prograEtuDe 6.388 116 171 11,457 17,845 116 171 122,559 11,457 134 016 2020 2019 Staff costs Tnistees, expenses Postage and stationery Office costs {60•/•) Marketing and advertising Family meetings Lega] fees Outsoureing Sraff expenses Depreciation 61,83? 1,926 5.044 27,367 17.038 1,197 95 4,518 1,639 90.661 4.512 5.309 29.095 28.128 38.163 467 4.085 8.047 1.903 122.559 210370 Ther¢ were no tmtees, MnLmeration or other benefits for the year ended 31 December 2020 nor for the year ended 31 December 2019. 2020 2019 Trustees, expenses No TTLSStee Teceived any ren]uneration for their services as a Tjustee. A total of £2,412 1?019.' £5,389) was reimbursed to 4 TTllStees12019.. 5} of which £829 (?019.. £887) was for governance plpOSeS. Four TnJste¢s carry out trdsks in furtherance of the charity's objectives on an expenses only basis and these costs have been a]located as appropriate to Research, Support & Inforniation and Cost of Generatiiig funds. Page 14 ontinued...
AsSOcoN forth¢yw 6nded31 DeLYmbcz2020 STAFF COSTS The average monthly number of employees during the year was as follows.. 2020 2019 A¢Jtninistsation No employees received emolurnents in excess of £60.000. Unrestricted fimds ReslriLted fun(Is Total funds Donations and lega¢i¢s 171,836 88.167 260,(K)3 Other trading activities Investment income 22,989 4,829 27,818 2.684 Totsl 197,509 92,996 290,505 Raising ndS 90,325 90,325 RCcarch Support and inforniation programme 29.)5 138,770 11,273 64,007 41,178 202,777 267,?25 7)280 342,505 (69,716) 17,716 (51000) RECONCILIATION OFFLft4DS 604,823 12.914 617,737 535,107 30,630 565,737 Page 15 cDntinued...
ASSOCIAIION th¢ year e]ed31 DeL*M2020 io. The charge for the year is made up as follows.. 2020 2019 Craitor brought forward Payments during year Creditor carried forward {1,700) 1,700 (36.896} 57.103 21,907 11. TANGIBLE FIXED ASSETS Improvements Fixtures to propety fitEings Totals At l January 2020 and 31 December 2020 3,850 49,156 53,006 At l January 2020 Charge for year 2,567 769 4¥,023 1,133 50,590 1,902 At 31 December 2020 49.156 52.492 NBTBOOKVALUE At J l December 2020 514 514 At 31 Decejnber 2019 1,133 12. 2020 2019 353.077 )52,6?1 There were no investment assets outside the UK. tnvestments (neither listed nor unlisted) were as follows: 2020 2019 Schroders Fixed Deposit account No description 352.621 456 352,6?1 353,077 352,621 Pag¢ 16 continued...
CROHNS IN CHtLDHOOD RESEARCH ASS(QIATION forthe ythr ets1ed31 Dll2020 13. 2020 2019 Stocks 2,082 3,147 14. 2020 2019 Other deor5 Prepayinents d accrued income 4,69? 37,544 37.359 15. 2020 2019 Trade creditors Taxation and social security Other creditors 21.424 260 25,476 25,641 3.098 27,081 55,820 16. Minimum le4)se pa)'ments under non-cancellable operdting leases fall due as follows". 2020 2019 Within oiie year Between one and five years 26.447 35.263 61.710 PC 17 continued...
CROHNS IN CHILDHOOD RESEARCH Ass(oN fortheyear ended31 Decembu 2020 17. Net movement in funds TranSfS between funds At 31.1?.20 At 1.1.20 General fund Designated fid 498,573 10,517 (174.874) 178 0?0 334216 214,554 535,107 10,517 3,146 548.770 Regear¢h- PhD students SLVPOrt meetings Family Days Research grnnts Global Make Some Noise 3,146 8,688 16,000 (3,146) (1,687) 7.INJI 16.(100 24.690 9.163 24.690 6,367 29,370 3,146 56,854 565 737 39,887 605,624 Net movement in funds, included in the above are as follows.. Incoming rttoitrtts Resources expended Movemetlt in funds General fw?d 172,606 {162.089} 10,5l7 Sllppgrt eetingS earch grwitS Parenting packs Global Make Sorne Noise 4.750 24.690 1,500 50. (6,437) (1.687) 24,690 (1,500) 43,633) 6.367 80,940 (51,570) 29.370 253 540 213 659} 39.887 Page 18 continued...
cROHs IN CHILDHOOD RESEARCH ASSOCL4TION fortl*year ttdty1311)e¢embtr2020 17. Net Transfers bctwcen fid5 movement in fiu)ds At 31.12.19 At 1.1.19 General fimd Designated fund 559,501 (69.716) 8,788 498,573 36,534 604,823 (69,716) 535,107 Suprrf)rt meetings Faniily Days Rcsehrch grant4 Global Make Sorne Noise 3,324 5,000 4,590 5,364 11.000 {1.444) 2.796 8.688 16.000 3,146 12.914 17.716 617,737 52,000 565 737 Compktrative net movement in llds. included in the above are as follows.. Incuming resources Resources expended Movement in funds General fund 197,i09 (267,225) (69,716) Support meetings Family Day8 Rcsearch grants Palpnting pack4 Global Make Some Noise 22,OOn 26,500 9,829 5,51X) (16,636) 115,500) (11273) 15,500) 26371) 5,3&1 11,000 {1.444) 92,996 75,280 17,716 290.505 342,505 52,000) This fi]nd represeiits amounts donated to CICRA towards the cost of the Support Meetings held. Tl)is fund represents amounts donated to CICRA towards the cost of Research Grants. This fund represents amounts donated to CICRA tow< ds the costs of providing parenting packs. Global Makn Som0Noi8e This fiind represents amounts donated to CICIL4 by the Global Make Some Noise Charily towards the cost of A ipport Wotker. Page 19 continued...
ASSOCIATION Iheyear ended 31 D¢m 2QO 18. The c.harity has future grant commitments atreads, entered into and spread over the y¢ars to 2021 2024 inclusive, totslling £214,554 (2019.. £36.534) Theqe multi-year grants &re reviewed annually and payments for second and subsequent years are only made upon receipt of satisfactory progress reports. Conseqiierttly. the tn]stees do not eonsider it appropriate to make provision for these commitments in the financial stslements. Existing research Commitments.. Grant awarded io.. Dr Annabel David, Oxford University Grant &ivarded to.. Professor Holm Uhli& Oxford University Grant awarded to.. Asst. Professor Paloma Ordonez-moran, Nottingham Universtty Laboratr>ry consumables grnnt: Prof. S&ndersoffj Barts & the Royal London Hospital 36,S34 99267 49,953 214.554 The timing of the thve comrnitments is as follows.. Grant C.ommitmenls 2021 Grant C.ommitmenls 2022 Cirant c.ommitments 2023 Cirant Commilmcnts 2024 109,371 49,422 40,289 15272 19. RELATED PARTYDISCLOSURBS There were no related party transactions for the year ended 31 December 2020. Page 20
ASSOakTION fOrtheY end31 December 2020 2020 2019 DonatEons Legacies 223.658 257,870 227,998 260.(N)3 Merchandise (incl xmas) C.hriStmsurnrner draw 2(K) Club 7,701 11,447 8.717 12.343 24.742 27.818 S¢hToder Iiivestment interest D¢posit a¢count interest COIF Deposit S¢hroder5 FIX InleTrst account 1.768 18 898 350 456 806 2,684 253,546 29),505 ) ruslees, expenses Wages Social 5e¢urity Pensions Postage and stationery Oftice costs (40Q/) fvIarketing advei115ing Legal and baDk costs Lotterie5 Other fiindraising expenses Staff expenses Outsourcing 485 19,478 757 388 2,657 18.?45 276 63 3,690 13,804 139 3,012 827 20.988 1,294 407 2,859 19,397 378 311 5,84? 27,463 56S 2,723 62,994 83,054 Merchandise (includino Christmas cards) 3,497 7,271 Tru%tees' expenses Carried lorward 1,926 1.926 4,512 4.512 This page does not forn) part of the statutory financial ststements Page21
cROHs N CHILDHOOD RESEARCH ASSOCIATION forthe ye4r ended31 Decem2020 2020 2019 Bro[ht forward Wages Social security Pensions Postage and stationery otrice coslb (60/0) MarketlDg and advertising Family meelings Legal fees Outsourcing Staff e.xpen5e5 Depreciation of tangible futed assets Grants to institulioits 1.926 57.890 ?.631 1,311 5,044 27,367 17.038 ,197 95 4,518 1,639 1,903 4.512 83.091 5,743 1,827 5,309 29,095 28,128 38,163 467 4,085 8.047 1.903 134,016 243.955 Wagcs Social security Pensions Trustce insurance AGM costs Accountancy Legal and bank costs Staff ¢xpen5¢5 7.705 421 200 2.283 181 54 966 561 3.620 298 262 3,240 525 70 13.152 8.225 Total resources expended 213,659 342 505 39.887 52,000 Thi5 page does not lorni part of the statutory financial stateJnent5 Page 22