## **Crohn’s In Childhood Research Association (CICRA) REPORT & ACCOUNTS Year ended 31 Dec 2020** 


## Registered Charity Numbers: 

England & Wales 278212 Scotland SC04070 



TLidor John Limited
Nlghtingale HOl￿e
4648 Eabt Street
Epsom
SutT¢y
KT17 IHQ

ASSoC￿￿oN
10
12 to 20
21 to 22

the year cnded 31 De(all￿2020
The trustees present their report witli the fin2nciAI Statements of the charity. for the year ended 31 December 2020. The
truslets have ath)pted the provisions of Accounting and Reporting by Charitieg.. Statement of Recomniended Practsee
applicable to charities prepar&ng theu accounts in aeeordanee with the Financial Reporting Standard applicable in the UK
and Republie of Ireland (FRS 10?) (effeetive l J£￿uary 2019).
The Tntstees are ¢onfident that during ?020 the objeetiV¢s of thc ¢harity w¢r¢ met by ¢onlinuing to fund re8carch which
incrcas¢s knowledtse and understanding of Crohn's disease and Ulcerative coliti5, collectively known as Inflammatory
Bowel Disease IIBD).
Whilst seeking the ¢aiise and cure the ¢lwity ¢onttnu¢d to provide support and inforrnation for parents and children and
¢oiitinu¢d to raise awaren¢s$ amongst lh¢ general public of the devastating effect this condition cfflitiniies lo have on young
lives.
Activity leve15 in 2020. however, W¢T¢ reduced due lo the impact of the Covid-19 pandemic on income and on our ability lo
n]n face to fa¢¢ m¢¢ting5 such as Family Information Days and t]ie Awards Advisory Panel.
Obi#tives atMI &in)s
The principal objects tor whEch the Society is established are for the relief of persons suffering from. and to promote and
advance publi¢ education and reseaTch into. Crohn's Disease. Ulcerative Colitis and related disorders.
Pub]i¢ bawfit
The trustees have referred to the Charity Commission's general guidance on Public Benefit when reviewu)g their aims and
objectives.
Gr￿l.￿th￿sPO1l¢Y
To meet one of its prAmw objectives, th¢ Charity invests in medi￿1 research into the ouses and treatmellt of Inflammatory
Bowtl Dise￿¢ (Crohn's Dise2tse and Ulcerative Colitis), particularly as it affects children and yoiing adults. Applications
for reseai'¢h funding are invited trom relevant medical and scientific in5titLltions a¥Jd are then subjccted io a
rTgoi'ous pcei rcvicw proc¢ss, involving indcpcndcnt specialist referecs xnd thc CICRA Awards Advisory Panel.
Typically, the research awards fall within foiir categories.. 3-year Research Traiiiing Fellowships: 3-year PhD
Stiidentships, 1-2 year research projeets k￿d grantb for specific statistical pi'ojects I'elated to IBD in Lhildhood. Bursary
grants to help with the costs. of UK based health professEonals and studeiits in trainints
(doctors, n[ir￿8 #nd final y¢ar
medical students) involved in IBD research, attending sCi¢￿tif1¢/iThedleaI meetings, are awarded at the dis¢reEion of the
Trust￿.
At the Aniiiial General Meeting held on Mici'osoft Teams on 3 ISI October 2020 two Trustees. Paul Cooper and Sitnon
Coleman, stood down and were re-elected for a fijrther 3-year terni. Mrs Nicola Pitney-Hall and Miss Chloe Malloy, who
had been co-opted in January 2020 were fornially elected to the Trustee Coinmittee.
Dr Richard Hansen stood dowi ￿ CICRA'S Honorary Mcdical Director and thanked by the trustees for his significant
eonmbutions during his tem) in that role. Dr Hansert was suecccdLxI by Dr Katc Blakelcy and Dr Jcnny Ep.%tew &8 Honorary
MediLal Directorg.
In ALigiisi 2020 the CEO. Nick Posford. left CICRA to ￿sume the CEO role at another charity. His responsibilitie$ for the
day-t(Fday management of the O￿lle and its Stliff were picked up by the trn5tee5'. The Chair. Margaret Lee, Loniinued to be
r￿pOnsible for the research process. the d(ty-l(Fda) accowiiin¥-. worki￿bI With aLcounidnls TuduT John Limsted and &Teneral
offsce and support work. TrusteelTreasurer, Simon Coleman. cofttinued to be responsible lor financial alTairs. OthEr
Trustecs undert(x)k additional activities in cor￿eCtion with specific areas of work such as fvndraising. ll)fornation
teehnology and represent2tion on extcrnal committees.
Page I

CROHNE IN CHILDHOODRESBARCH
ASSOCIATION
theyearended 31 De￿kn2020
CICRA followed government advice rewding working from home to whieh end the office was elosed for much of 2020.
No meinbers of staff had to be furloughed or made redundant due to COVtD but there a reduced level of staff￿g due to
changes in staff persoiial circumstances. As TNstees were lmable to meet f&Le to face, zoom n)eclings werc a￿8￿ged and
plans put in place to cover the increased woA<load whid) was due to the qULYies relating to the vulncrability of thc childrcn
with IBD. This increased workload, with a decreased staff, was able to b¢ mct duc to Tru%t¢es, who ivork on a voluntary
basi& taking on ex1ra responsibililies and th¢ ¢urr¢nt stafFoff¢ring to work extra hours olso on a volwitary basis.
The prinLipal ubjeLlive ufthe chaTity is to raise fifftds lo maintain and expand a research programme to help bring about
bett¢T treatments and quality of lif¢ for children and young adults with Inflanllnatory Bowel Disease. Also, to discover.
throu￿] gwood bdsic science. the ca115e and an ¢v¢ntual cure. Since its foundation in 1978 CICRA has funded 25 'fraining
Fellowship5. 24 PhD StLidentship5, 62 R¢sear¢h Proj¢as and Set up the first Paediatric (iasttoenterology Laboratory in the
During the period under r¢view CICRA continued the fundllw of the following research programme..
AnTrabel David at Oxford University (l year project}- Understanding stiwna in adolescents with IBD
Renewal of a regu12r Con￿l￿able5 grdl]t to supwrt the ivork undenaken in the Paediatric Gastroenterology Laboratory al St
Bartholomew's & The Royal London Hospita].
One bwsary grant, and one John Eamshxw 8w8riL weye agreed before lockdown but were not taken up when tli¢ meetings
were cancelled due to lockdown.
To ensure transparency and appropriate application of CICRA funds, the Truste¢s follow 2 strict Peer ]ievi¢w system using
external referees from the UK 9md other eoulitries, and their oivn appointed Awards Advisory Panel (AAP). all working in
an honorary capacity. Based upon the recommendations of the Awards Advisory Panel and AAP Chairrnan, thE TrLiStees
make the fmal decision and award the grants. This Peer Revie￿. applies to all applications tor financial siipptsrt with the
e.xception of the very minor grants. Annual wrirtem reports are required for all 2W￿.dS and are rewiewed by the Trusttts and
Medical Adi'isors. CICRA encourages the publie&tion of both positive and negative research r￿Ults.
The Truste¢5 retaill flexibility as to the t1￿ing and scale of grant making. The 2019 advertisement for applications for 2020
PhD stUdelltsh￿pS or Research Proje¢ts.FrodLiced a good response. Following Peer Revie￿. a decision was taken to fi￿d
two projects, led by Professor Holm Uhlig at Oxford University a]￿ Professor Paloma Ordonez-mordn at Nottingham
University.
CICIL4 succe5sfillv Co￿pICted its 5 year"Quality of Peer Review" audit hy the Association of MediLdl Research Charities
in 2020. The AMRC awarded their Certificate of Good Practice which enables the charity to use the ANIRC 20?0 aL￿1t IobFO
to show that our proce&s for grgthting awards 15 of a high standard.
Page ?

ASSOCIATION
the year￿d¢d 31 2020
CICIU WOTks with Regional Paediatric Centres, specialist units and also district general hospitals across the UK who treat
children with IBD and who distribute Tarent Packs, to the parents of newly diagnosed children.
CICRA works closely with Paediatrie IBD spceialist nurs¢8 at variaus pa¢diatric g&8troenterology units around the COLinty,
their regular contact with the young patients and families is vital and rn￿ch appreciated.
CICRA'Can't Wait, c￿xIS are available for child￿￿ to help them explain their condition when in urgent need of a toilet.
The ePalg scheme puts. yoimg IBD suff¢rei8 in ¢onlaCt with each othervia e mail and is greatly valued by its partieipant%.
The F3]nily Support Wod(er ¢onlinued to be funded by the Global Make Some Noise on a two-year granL This role was
focussixl on providing dll'ect support lo families of young IBD sufferers and improving the quality of inforniation provided
by CICRA. partiLularly in relation to ¢motional wellbeing and school guidance for parents. The demand for support dropped
a little during the first lockdown and then increased during the second half of the year as schools rettuneil. The Fatnily
Support wo￿tr rFigned in Dxember, six months before the end of her cot]tract in order to pursue a differait career
opportunity.
Due to the disruptÉon of Se￿iceS and activities during the year GMSN agreed to extend the 'spend date, of the grant funding
for a fijrther 5iK months which enabled CICRA to employ a part time replacement plus some other necessary ehanges of
expenditure due to the ongoing COVID restrictions.
Whilst therE was a reduction in the activities that the charity could carry Out. including the popiilar regional Family
Infomiation Days, the deniand on the staff and Trustees increase& due to meinbers of the medical teams being dq)loyed on
COVID. With the occasional ne¢essary visit io the office the staff and Tn￿teeS continiied their work fron) home, offering
support to families, especially those witli children diagnosed during the pandemic. Appreciation for the h¢lp givcn lo th¢
Paediatric Gastroenterology t&qtns was expressed by their sociery
"We contuiue to appreciate your help m engbliiig rapid comiTrurJic3Éions rcaching out to patieJ21s. fvvheÉJ at t￿￿4.
essages fjvm the NH3 were iineleAr. Your woikhHshelpedour tewns lo fi￿CtiOn, especJ3Jly ag illi3es when fvi'e been under
onsJil¢rablepressure lo c￿1[￿¢1 families iiidividuAIIy':
Page 3

ASSOCIAIION
Report oftho Tru¥tQ¢0
fry th¢yer eodod 31 D￿llber2020
In the p¢riod under review, the CEO and one Trustee covered a three-day ll￿eting in Jalluary one of the only fac¢ to face
meéi¢al meetingg CICRA could be represented at before lockdowL In a nollnal year, these meetings throughout the y¢ar
provide oppominiti&s to net¥i'ork and cfyordinate witli healthcare prOf￿5]ona1S and policy makers as well as to 1¢8rn about
the latest developments in treatments and possible causes of tnflanunatory Bowtl DTse35e, especially as il affects the young.
Trustees pLqy an active role nkntming a CICRA inforniation stand. During the remainder of the year Trustees and staff tuned
in to many virtual rneetings. It should be noted that TTUStees do not receive any rEmuner3tion a]M4 ostly claim travel and
budget style ovemight acconllnodation expeuse5, in line ivith the chartty's expens¢ guideline5.
The CICRA newsletter compiled and edited by the CEO, trust¢es and staff, is one of the main vehicles. along With the
website and sooial media, for Niblicising the eff￿t that Inflammatory Bowel Disease Can have on childiell. and for the
PLLblic to become more aware ot their needs.
CICRA continues to publish easy to l￿derStand inforniation booklets Ixit in 2020, du¢ to the extra deanand and the loss of
some staff no new publieations were produced but due to demand many reprints of the CU￿ent Itterature was needed.
The CICRA website ci)ntinues to sce an incre2se in iisers and facebook which was taken over by one of the Trnstees when
the part time stscial media st21t member left, due to a Ch2￿ge in her circunstances. There has been an increased following
duringthe year.
Membersbip
CICRA does not charge u fixed membcrship fcc as the TTU4tces eontinue to bclicve that all parcnts of children affected by
Crohn's disease and Ulcerativc colitis shnuld hawc accc￿￿ ta C.IC.RA litcraturc and infamiation on their child's Condition,
regardless of their fjnancial position, but thcy invite members tn make a danation &% and whcn thcy wigh or arc able to do
so. All literature is issued free of charge. Memb¢rshÉp is op¢n io paticnts, par¢ML%, thcir f25nili¢3 and friends, mcdical
professionalb and an>one interested in ￿rtherIng th¢ understanding of, and r¢segr¢h into, int]ommatory bmvel disease in
children and young adults.
As with all other charities fundraising by meMb￿S came lo a temporary stop when lockdown hAppen¢d. The Tnwees are
very grate￿1 for the loyal support received from menibas with ptrsollal doiiatiuns. dvndti(111s in given li¢ii of Ivhal would
have been their social spending. Also, Ihe way5 thoiight LIP to suppoll CICRA with virtual fundraising. Thank5 esp￿la1]Y
to th¢ childJEn's activitie&
Litibwith (ffgani&ation6
CICRA is a mLmbcr of thc Ass()ciation of Medical Research Charities (AMRC). the National Insttiute for Health Re5earth
(NIHR), the National Council for Voluntaiy Organi70tions (NCVO} and is registered ivith the Fundraising Regulator.
CICRA ¢ontinues to work with BSPGHAN (British Society of Paediatric Gastroenterology Hepatology and Nutrition), the
BSPGHAN Public Patient Parti¢ip#tion (PPP) representative and the five associated gastro Charities.
CICRA exchanges n¢wsletters and infoiination with the m￿Y national and inlemational organizarions dealing with
Inflaminatory Bowel Disease and rtsponds kn enquiries from overseas, sign postsng also to sisier organisations as
appropriat¢.
FINANCIALREVIBW
As of end of December 2020 thc accumulatcd fund8 8tood at £620,93_3 of whicli £548,770 represented unresth¢ted fL5nds.
Research Comi￿7tmentS lor fiiturc veaTh and durtailcd in Notc 18 to tliL accounts amoiint to L?14,-i54. In the year linder
review legacies accounted for £4,340 TnLSt incornL £45,525 othcr actiN'itlC8 and donation.% £197,728 and investmert inconie
£806. Of the £6?0.933 aeeumulated funds &$ at 31.￿1 Deccmber ?010, £353,077 is in Fixed Deposit Cash Fund& Other
sutplus fi￿dS are in accoiints H'ith CAF, COIF and Natwest.
Page 4

CROHNB IN CHILDHOODRESEARCH
AsS(￿AlI0N
forthey¢ar ¢￿k￿ 31 Decemk 2020
The ¢harity'5 Collstittition authorises the t￿￿tee5 to make and hold investnJents using the fimds of the charity. There are no
restrictions on the trustees, power to invesL although the trustees take appropriate advice before making any investments
that cary more than a low degree of risk.
CICIL4 has no 5ignifiwt secure income. relying almost totally on voluntary contributions, donations, grants and
flmd-raising activities. In consequence the trnstees believe that it is essential to have sufficiellt funds to ensure eontiniiity
in the event of a trmporary reduction Én income. The tnistees have a￿ted 2 policy to hold reserves on deposit equal to
minimum of sik months operdtional expenses. At the end of 2020 we estimate tl)ese to be £74,100. We continuously review
our reseaych programme to ensure that we are up to date with current finding#. The rem&iniMg reserves of £546.833 will be
used to ￿Thd research recon)mended to our Trugte¢s by our Medieal Advisory Paijel following a Yigorous peer reTri¢w and of
which £214.554 is already comn)itted over the next three years.
Ai the lime ol writing Iliis report. CICRA Lontinues to bt impaLttd by the Corvnavirus pandemic. Inco￿# has
stdbilibtd to around haifofil& usiial level, with commiinity events still subj¢¢t to T¢Stri¢tion¥ and many trusts divert￿s fijnds
Coyid specifiL causes. Memb¢tS th¥ir familieb have rebvonded gelltFuubly to CICRA'S fundraising appeals during the
patldemic, for which the Trustets are gratefijl.
Costs- in parti¢Lilar, salary costs - have corne down in proportio￿ to the drop in income so financially the ch8Tity wntinu¢s
to break even. However, thi5 reflects a reductioii in charitable activity which the Trustees ar¢ keen lo reswn¢ once
r￿tridIO￿S ease. Notably the popular regiollal Family tnfortTration Days, which remain on hold.
CICRA'8 two new iyswch projects, awarded in 20?0, were delayed due to disruption caused by the pandemic. These have
now staned, so C.IC.RA is currently fimding three ongoing research projects.. Professor Holm Uhlig at Oxford, Professor
Palorna ()rdonez-Moran at Nottingham: and Annabel David at Oxford. After reviewing the fmaneial position at the end of
2020, the Trustees decided to not issue & research call in 2021 in order to pregerve their unrestricted cash reserves until
income improves and the current sithation settles.
However, it is vital Éhai we continue to fund peei. reviewed research and to support the families aiid young people diagnosed
witli Crohn's disease and Ul¢¢rative Colitis which contiiiues to inbrease, both in the UK and acmss the world for which
neither c3Us¢ nor cure are yet know￿ Good progress has been seen from research in both the understanding of these
dilYi¢ult to rnaDage IoT3g teTm conditions and the development of new treatmenls, birt we are also conscious of the possible
side effects of medicatioii on young ¢1111d￿n. With a drainatic rise in the Very Larly Onset IBD being diagnosed (VLOIBL))
it 15 Vital that continue, bearing in mind the iinpwt of these lifelollg debilitating diseases the fatnilies. F'urthermore.
the pande￿ic h85 highlbghl¢d the vital role that CILIL4 plays in supporting )'oung IBD Slifferers and their f8milies.
particularly wrth clinical resources so over-stretched at Present.
The CICRA Trustees will Continue to review and nLqnage the charity as best they can during the pgnd¢mic and econoinic
doN￿tUrn. They will do all they can lo continue as far as possible with the research and support progrdnulles planned. As
the country re-opens and ihe economy rttovers. the focus will be to re#ore the charity s iRcome and ramp up our re5earcl4
support iu)d awareness efforts. There are early positive signs ivith rescheduled fi1ndra￿l￿g events now restarting, the
Trust¢es beginning lo plan the retum of Fainily Information Days, and the CICRA office reopening.
STRUCTURE GOVEIINANCE AND MANAGEMENT
The charity is Colltrolled by Ets governing docurn¢nt, a deed of trust and constitht¢s an unincorporaled tharity.
The Crohn's in Childhood Research Association (CICRA). unincorporated charitable association, is regist¢red in England
& Wales linder c.harity Number 278212 and in scotla[￿ under Charity Nurnber SC.040700. CICRA is governed by an
ainended constittition adopted at the AnnLial General Meeill)g on 14 O¢tober 1989.
Page 5

ASSOCIATION
theyear aKled 31 Drxomb¢r2020
The board of truste¢s shall be not less than six and not more than twelve members of the Association elected at the Annual
G¢nernl Meeting. The trustees have the power to ciFopt members to fill a casual vacancy or as an addition to the existing
truste¢s. One third of the ni¢mbers of the BO3￿ shall retire each year in order of seniority but ma) be eligible for r¢-clection
The Twstees meet on average every six weeks and are responsible for determining poli¢ies, the bvdgd overall
management of the Charity. The small staff team and office volunteers are responbible for undertaking 11)e day-t<Fday
running of the Association. carying througj) the policies. budget and day to day administration os detemiined by the Board
of Trustees. As well as representing the dwily at mediLal meetiiigs" sume Tru5t¢es eontinue tu O¢ttv¢l}' assist in the offi¢¢
and in the organisation ofevents.
New Trustees co-opted during the year. or elected at the AGM. are given induction Gour5¢ by the Chair Outlining the
objects as set out in the Constitution, the roles of the other Trustees. the pres¢nt financial slanding of the charity and its
commitments. Trustees are asked to tske on or share responsibility for gvers¢¢ing a ¢ertain asped of the charity i.e.
research, finance. cotnmunication teclmolo8ie5. outreach and support, etc.
The tru%tees continue to regiElarly examine the gtrategic, bu%illess and operdtional risks to which the charity is exposed. and
confirni that they have put in place systems to mitigate those risks as far as they are able to do.
England & Wales 278212, Scotland SCO407￿)
Pat Shaw Ilous¢
13-19 Venthor Road
Sutton
Sil￿tY
SM2 6AQ
Mrs M Lee MBE (Chair)
Mr S Coleman
Mr P Cooper
Mr N GLk)ding
MrGLee
Mr Lhloe Malloy
MJ3 N Pitney-Hall
Dr P STnith
Tudor John Limited
Nightingale Ilouse
4fv48 East Street
Epsom
Siirrey
KT17 IHQ
Page 6

ASSOCtATION
for Ih• ye4rthded 31 DerAmbw2
Professor I Sanderson {Ch2itman)
Professor S E[￿lS
Dr J Epstein
Dr R Heuschkel
ProfessorT MacDonald
Dr S Prothen)e
Dr LN Thapar
Professor H Uhlig
Profegsor D Wilson
DrKB]ak¢l¢y
Dr J Epstein
Approv¢d by order of the board of tLUStees On..4￿ .￿....&￿K.,......... alld signed on its behalf by..
Mrs Margaret Lee MB
Page 7

ASSOCIATION
trth¥year end￿3] D#ember2020
The tn￿teeS are responsible for preparing the Rep(irt af the Trustees and the financial statements in accordance with
applicable law and United Kingdom Ac¢ol￿tIng StandaT4ts {lJnited Kingdom CJcncrally Accepted Accounting Practice).
The law appli¢able to ¢haritits in England and Wales. the Charities Act 2011, Charity (Aecount9 and Reports)
R¢¥iilativnb 2008, th¢ t¢rnis of the Charities and Trustee Investment (Scotlandl Act 2005 and the pi'ovisions of the trust
ded Twuires the trustees lo pr¢pare fmancial statements for each financial year which give a trne and fair view of the
state of affairs of th¢ charity and of the incoming resources and application of resources, includng the ineolne and
¢xp¢nditure, of the charity for that ￿Tiod. In preparing those fmancial stslements, the trustees are requtred to
select suitable a¢counling policies and then apply them consistentlyy
observe the methods and principles in the C'haiity SORP,.
make judgement5 arld estimates that are reasonable and prudent;
prepare the fmancial statements on the going eoncem basis unless it is intippropriate tr) presume that the charity will
ntiDue in business.
The trustees aiE responsible foi. keepsng proper aecounting records whieh digcloge with rea￿nable acc￿'&CY at any time
the fIn￿l cial position of the charity and to enable them to ensure that the fin2nci21 statements eomply with the Charities
Act ?01 I, the Charity (Accoiints and Reports) Regulations 2008, the temis of the Tru%tcc Investmcnt (8cotlandl Act
2005 and tlie provisions of the tr￿t deed. They are also responsible for ￿ft811llrdI￿LT the agsets of the charity and hen
for taking reasonable steps for the prevention and detection of fraud and other irr¢gul8riti¢s.
Page 8

A3￿lation
l ￿POrt to the charity trustees on my examination of the accounts of Crohn's im Childhood Research Association (the
Trust) for the y¢ar ended 31 Deceinber 2020.
RMpowl)ilitAe8 andbasis ofreport
As the charity trustees of the Trust you are res￿n$111¢ ftsr the prq)araÉion of th¢ a￿oUnts in accordance with the
requircmenl8 of the Charities Act 2011 {'the Act'l and the teTll]s of the Charities and'lrustee Investment (Scotlandl Act
?005. The C.harity's trus*es consider that an audit ts not required for this year (under Section 144(2) of the Charities
Act 2(11 l (the 2011 Act)) and that the audit requirement of Regulation 10{I)(a) to (c) of the 2006 ACcoL￿tS Regulations
docs not apply and that an independent examination is required. It is my responsibility to examine the accounts as
require£l under Section 44(IMc) of the Act and to state whether partiwlar niatters have Come to my attentioi).
I report in respect of rny examination of the Trust's accounts Carri￿ out under section 145 of the Act and in carryii)g out
my examination I have followed all applicable Directions givell by the Charity Commission under seetion 145{5)(b} of
the Act and in accordance with Regulation I l of the 2006 A¢¢ounts (Scotland) Regulations.
Since your charity's gross income ekeeeded £250,000 your examiner must be a member of a listed body. I can confim
tliat l am qualified to undertAke the examination because l am a registered Jnember vf ICAEW whiLh is one of the listed
bodies.
I have cornpleted my examination. I confimi that no material matters have come to my attention conneLtion with the
exanjination giving me cause to believe that in any material respect..
accowtting records were not kept in respect of the Twst as required by section 130 of the Act and Sedion
44(IXal of the 2(N)5 Act and Rcgulation 4 of the 2006 Accounts Regiilations (Scotland) . or
the accounts do not accord ￿1th those records,. or
the accounts do not comply with the applieablc rcquiremcnts concerning the form and content of accounts set
out in tlie Charities {Accounts and Reports) Regulations 2008 othcr than any requirement that the accounts give
a itue and fair view which is not a matter considcrcd as p*&rt ()f an indcpendent examination.
I have no concerns and have come across no ￿her matters in ¢onn¢¢tion with the examination to which attention sboiild
be drawn in this report in order to enable a proper Unde￿tandIng of the 8¢counts to be reached.
H. M. Day Bsc FCA DCIL4
ICAEW
Tudor jo￿1 Limited
Ni￿ltingaIe Ho￿e
46-48 East Street
Epsom
s￿￿Y
KT17 IHQ
Date..
Page 9

ASSOCIATION
fcf lkn year ¢ndwJ31 D￿1b￿2020
2020
Total
funds
2019
Total
finds
Unrestricted
ds
Restricted
fi￿dS
Notes
Donations and legacies
153,548
74,450
227,998
260,003
Other trading activitie5
Investment income
18.252
6,49U
24,742
806
27,818
2.6¥4
172,606
80.940
253,546
290,505
Raising funds
66,491
66,491
90,325
Research
Support and information pro￿.￿mMe
17,845
64.601
17,845
116,171
41,178
202,777
51,570
13,152
13,152
8,225
Total
162,089
51.570
213,659
342,505
10.517
29.370
39.887
(52,000)
17
13,663
26224
(52,000)
RECONCILIATION OF FUM)S
535,107
30,630
565,737
617,737
605 624
505 737
The notes forni part tsf these financial statements
Page 10

ASSOCtATION
31 2ff20
2020
Total
funds
2019
Total
funds
Unrestrieted
fullds
R¢stricted
funds
Notes
Tangible assets
Investments
514
353.077
514
353,077
2,416
352,621
12
353,591
353.591
355.037
Stocks
Debtors
Lash at bank and in hand
13
14
2,082
42,236
177,187
2,082
42.236
254.875
3.147
40.841
222.532
77.688
221,505
77,688
299,193
266,520
Arnount5 fai]ing due within one year
15
(26,326}
(20,834)
{47,160)
(55.820)
195,179
56,854
252 033
210,700
548.770
56.854
605,624
565,737
NET ASS
548.770
605,624
565.737
17
Unrestricied funds
Restricted funds
548,770
56,854
535,107
30,630
605,624
565,737
The financial statements were approved by th¢ Board of Trustees and authorised for issue on
..&￿..￿￿?4￿1k .W*........... and were signed on 11$ behalf by:
MLeeMB
ee
S Coleman- Trustee
The not¢s forni part of these financial statetTrents
Pagell

CROHWS INCHItJ)HOOD RESEARCH
ASSOCtATION
I'he fmancial statements of the ch￿lty, which is a public benefit entity under FRS 102, have been prepared in
accordaJ)c£ with the ch￿IlleS SORP {FRS 102) 'Accounting and Reporting by Charities.. Staternent of
Recommended Practice applicable to charities preparin.4 theiy accounts in 2ceordanee with the FI[￿)cIal
Reporting Standard applicable in the UK and Reptsblic ol. Ireland IFRS 102) (eftective l January 2019),,
Financial Reporting Stsndard 102 'The Financial Reporting Standard Rpplicable in the UK and Republic of
Ireland, and the Charities Act 2011. The fit)ancial statements have been prepared Imder the historical cost
Conventio￿ with the exception of investments which are included at market V21ue.
ThL charity has taken advantage of thc following d￿&¢]0￿urC cxcinption% in prcparii)g tlic8c financial stat￿ents,
as pennitted by FRS 102 The Financial Reporting Etgndard applicable in the IJK and Republic (Trf Ireland,:
th¢ requirements of Section 7 Ststement of Cash Flows.
COME
All inLome is re¢OgniS￿ in th¢ Siatement of Financial Activities once the charty has entitlement to the fiind4 it
is probable that the income will be reeeived andth¢ arnol￿t ¢an be measLwed reliably.
Liabilities art recogni5ed as expenditure as soon as ther¢ is a legal or constructive obligation conunitting the
charity to that expenditUTe, it Is probabl¢ that a transfer of economi¢ benefits will be required in settlement and
the amount of the obligation can be measw'ed reliably. EXpendItt￿e És accounted for on an accruals basis l￿d has
been ¢I￿Sified under headiiigs that aggregate all rost related to the ¢at¢gory. Where ¢osls Ca￿0t ￿ directly
attribLlted io particular headings they have bepn allocated to artiyities on a basis coT]5islent with the use of
resources.
Grants oftered subject to conditions which have not been met at the year end date are noted as a cominitmeni but
not accrued as expenditure.
TANGIBLE F]XED ASSETS
Depreciatiot] is provided at the following annual rates order kn MTite Dff eath ￿Set over its estitllated usefi]I
life.
Computer eqiiipnient
Furniture and equspment
330/0 Straight line
20. 330/0 Sti'aightlsne
STOCKS
Stod(s gr¢ valued al the lower of cost and Det reaiisable value, aftermaking due allowance for obsolete and slow
moving itetll5.
TAXATION
The charity ig exempt from on ils charitable activities.
Unrestricted funds Can be I￿¢d in accordance with the charitable objectives at the discretion of the trustees.
R¢strirfed funds only be used for particular restricted purposes within the objects of the Ch￿lty. Restrictions
arise when specified by th¢ donor or IvheT> fLmd8 are raiwl for particul￿ restricted puiposes.
Further Explanation of the llatt￿e and Pl￿)95e of ea¢h fiwkd is inoluded li) the notes to the financial statements.
Page l?
ntinued...

ASS(￿lATIoN
theyear ￿ded31 Decatthff 2020
The charity operate8 a defined contribution pengion scheme. Contributions payable to th¢ Charity's pension
scheme are Charged to the Statement of Financial Activities in the period to which they relate.
InVest￿ents are shown in Balance Sheet at the year end market valiie. Any unrealised gasns or losses on
revftluatitsn are accounted foy in the period in which they arise. Realised and unreali5ed gaiTEs and losses are
combined in the appropriate section of the SOFA.
2020
2019
McrchandiAC (inel xmas)
Chri%tma¢8umrncr draw
200 Club
7.701
11,447
8.717
12.343
6.758
24,742
27,818
2020
2019
Schroder Inveslment AJ)terest
Deposit a¢counl int¢rest
Coll.. Deposit
Scbroders Trixed Interest account
1,768
18
898
350
456
806
RAtSlNO IY)NATIONS AND LEGACIES
2020
2019
Staff costs
Trustees. expet)ses
Postage and stationery
Oftiee eosts (40/.1
arkding and Rdvertising
Legal and ban1< costs
Lotteries
Other fun£lraising expenses
Staff expenses
Outsourcing
20,623
485
2,657
18.245
22,689
627
2.859
19.397
378
311
5,842
27,463
56
2,7?3
63
3,690
13,804
139
3.012
02,994
83.054
continued...

ASSOCIATION
forthe year ath131 Dec￿￿2020
Direct
Costs (see
note 6)
Grant
funding of
activities
Totals
Resehreh
Supptsrt and information prograEtuDe
6.388
116 171
11,457
17,845
116 171
122,559
11,457
134 016
2020
2019
Staff costs
Tnistees, expenses
Postage and stationery
Office costs {60•/•)
Marketing and advertising
Family meetings
Lega] fees
Outsoureing
Sraff expenses
Depreciation
61,83?
1,926
5.044
27,367
17.038
1,197
95
4,518
1,639
90.661
4.512
5.309
29.095
28.128
38.163
467
4.085
8.047
1.903
122.559
210370
Ther¢ were no tmtees, MnLmeration or other benefits for the year ended 31 December 2020 nor for the year
ended 31 December 2019.
2020
2019
Trustees, expenses
No TTLSStee Teceived any ren]uneration for their services as a Tjustee. A total of £2,412 1?019.' £5,389) was
reimbursed to 4 TTllStees12019.. 5} of which £829 (?019.. £887) was for governance pl￿pOSeS. Four TnJste¢s
carry out trdsks in furtherance of the charity's objectives on an expenses only basis and these costs have been
a]located as appropriate to Research, Support & Inforniation and Cost of Generatiiig funds.
Page 14
ontinued...

AsSOc￿￿oN
forth¢yw 6nded31 DeLYmbcz2020
STAFF COSTS
The average monthly number of employees during the year was as follows..
2020
2019
A¢Jtninistsation
No employees received emolurnents in excess of £60.000.
Unrestricted
fimds
ReslriLted
fun(Is
Total
funds
Donations and lega¢i¢s
171,836
88.167
260,(K)3
Other trading activities
Investment income
22,989
4,829
27,818
2.684
Totsl
197,509
92,996
290,505
Raising ￿ndS
90,325
90,325
RC￿carch
Support and inforniation programme
29.￿)5
138,770
11,273
64,007
41,178
202,777
267,?25
7)280
342,505
(69,716)
17,716
(51000)
RECONCILIATION OFFLft4DS
604,823
12.914
617,737
535,107
30,630
565,737
Page 15
cDntinued...

ASSOCIAIION
th¢ year e￿]ed31 DeL*M￿2020
io.
The charge for the year is made up as follows..
2020
2019
Craitor brought forward
Payments during year
Creditor carried forward
{1,700)
1,700
(36.896}
57.103
21,907
11. TANGIBLE FIXED ASSETS
Improvements Fixtures
to
propety
fitEings
Totals
At l January 2020 and 31 December 2020
3,850
49,156
53,006
At l January 2020
Charge for year
2,567
769
4¥,023
1,133
50,590
1,902
At 31 December 2020
49.156
52.492
NBTBOOKVALUE
At J l December 2020
514
514
At 31 Decejnber 2019
1,133
12.
2020
2019
353.077
)52,6?1
There were no investment assets outside the UK.
tnvestments (neither listed nor unlisted) were as follows:
2020
2019
Schroders Fixed Deposit account
No description
352.621
456
352,6?1
353,077
352,621
Pag¢ 16
continued...

CROHNS IN CHtLDHOOD RESEARCH
ASS(QIATION
forthe ythr ets1ed31 D￿ll￿2020
13.
2020
2019
Stocks
2,082
3,147
14.
2020
2019
Other de￿or5
Prepayinents d accrued income
4,69?
37,544
37.359
15.
2020
2019
Trade creditors
Taxation and social security
Other creditors
21.424
260
25,476
25,641
3.098
27,081
55,820
16.
Minimum le4)se pa)'ments under non-cancellable operdting leases fall due as follows".
2020
2019
Within oiie year
Between one and five years
26.447
35.263
61.710
P￿C 17
continued...

CROHNS IN CHILDHOOD RESEARCH
Ass(￿￿￿oN
fortheyear ended31 Decembu 2020
17.
Net
movement
in funds
TranSf￿S
between
funds
At
31.1?.20
At 1.1.20
General fund
Designated fi￿d
498,573
10,517
(174.874)
178 0?0
334216
214,554
535,107
10,517
3,146
548.770
Regear¢h- PhD students
SLVPOrt meetings
Family Days
Research grnnts
Global Make Some Noise
3,146
8,688
16,000
(3,146)
(1,687)
7.INJI
16.(100
24.690
9.163
24.690
6,367
29,370
3,146
56,854
565 737
39,887
605,624
Net movement in funds, included in the above are as follows..
Incoming
rttoitrtts
Resources
expended
Movemetlt
in funds
General fw?d
172,606
{162.089}
10,5l7
Sllppgrt ￿eetingS
earch grwitS
Parenting packs
Global Make Sorne Noise
4.750
24.690
1,500
50.
(6,437)
(1.687)
24,690
(1,500)
43,633)
6.367
80,940
(51,570)
29.370
253 540
213 659}
39.887
Page 18
continued...

cROH￿s IN CHILDHOOD RESEARCH
ASSOCL4TION
fortl*year ttdty1311)e¢embtr2020
17.
Net
Transfers
bctwcen
fi￿d5
movement
in fiu)ds
At
31.12.19
At 1.1.19
General fimd
Designated fund
559,501
(69.716)
8,788
498,573
36,534
604,823
(69,716)
535,107
Suprrf)rt meetings
Faniily Days
Rcsehrch grant4
Global Make Sorne Noise
3,324
5,000
4,590
5,364
11.000
{1.444)
2.796
8.688
16.000
3,146
12.914
17.716
617,737
52,000
565 737
Compktrative net movement in ￿llds. included in the above are as follows..
Incuming
resources
Resources
expended
Movement
in funds
General fund
197,i09
(267,225)
(69,716)
Support meetings
Family Day8
Rcsearch grants
Palpnting pack4
Global Make Some Noise
22,OOn
26,500
9,829
5,51X)
(16,636)
115,500)
(11273)
15,500)
26371)
5,3&1
11,000
{1.444)
92,996
75,280
17,716
290.505
342,505
52,000)
This fi]nd represeiits amounts donated to CICRA towards the cost of the Support Meetings held.
Tl)is fund represents amounts donated to CICRA towards the cost of Research Grants.
This fund represents amounts donated to CICRA tow￿< ds the costs of providing parenting packs.
Global Makn Som0Noi8e
This fiind represents amounts donated to CICIL4 by the Global Make Some Noise Charily towards the cost of A
ipport Wotker.
Page 19
continued...

ASSOCIATION
Iheyear ended 31 D￿¢m￿ 2QO
18.
The c.harity has future grant commitments atreads, entered into and spread over the y¢ars to 2021 2024
inclusive, totslling £214,554 (2019.. £36.534) Theqe multi-year grants &re reviewed annually and payments
for second and subsequent years are only made upon receipt of satisfactory progress reports. Conseqiierttly.
the tn]stees do not eonsider it appropriate to make provision for these commitments in the financial stslements.
Existing research Commitments..
Grant awarded io.. Dr Annabel David, Oxford University
Grant &ivarded to.. Professor Holm Uhli& Oxford University
Grant awarded to.. Asst. Professor Paloma Ordonez-moran, Nottingham Universtty
Laboratr>ry consumables grnnt: Prof. S&ndersoffj Barts & the Royal London Hospital
36,S34
99267
49,953
214.554
The timing of the thve comrnitments is as follows..
Grant C.ommitmenls 2021
Grant C.ommitmenls 2022
Cirant c.ommitments 2023
Cirant Commilmcnts 2024
109,371
49,422
40,289
15272
19. RELATED PARTYDISCLOSURBS
There were no related party transactions for the year ended 31 December 2020.
Page 20

ASSOakTION
fOrtheY￿ end￿31 December 2020
2020
2019
DonatEons
Legacies
223.658
257,870
227,998
260.(N)3
Merchandise (incl xmas)
C.hriStm￿surnrner draw
2(K) Club
7,701
11,447
8.717
12.343
24.742
27.818
S¢hToder Iiivestment interest
D¢posit a¢count interest
COIF Deposit
S¢hroder5 FIX￿ InleTrst account
1.768
18
898
350
456
806
2,684
253,546
29),505
) ruslees, expenses
Wages
Social 5e¢urity
Pensions
Postage and stationery
Oftice costs (40Q/)
fvIarketing advei115ing
Legal and baDk costs
Lotterie5
Other fiindraising expenses
Staff expenses
Outsourcing
485
19,478
757
388
2,657
18.?45
276
63
3,690
13,804
139
3,012
827
20.988
1,294
407
2,859
19,397
378
311
5,84?
27,463
56S
2,723
62,994
83,054
Merchandise (includino Christmas cards)
3,497
7,271
Tru%tees' expenses
Carried lorward
1,926
1.926
4,512
4.512
This page does not forn) part of the statutory financial ststements
Page21

cROH￿s N CHILDHOOD RESEARCH
ASSOCIATION
forthe ye4r ended31 Decem￿2020
2020
2019
Bro[￿ht forward
Wages
Social security
Pensions
Postage and stationery
otrice coslb (60/0)
MarketlDg and advertising
Family meelings
Legal fees
Outsourcing
Staff e.xpen5e5
Depreciation of tangible futed assets
Grants to institulioits
1.926
57.890
?.631
1,311
5,044
27,367
17.038
,197
95
4,518
1,639
1,903
4.512
83.091
5,743
1,827
5,309
29,095
28,128
38,163
467
4,085
8.047
1.903
134,016
243.955
Wagcs
Social security
Pensions
Trustce insurance
AGM costs
Accountancy
Legal and bank costs
Staff ¢xpen5¢5
7.705
421
200
2.283
181
54
966
561
3.620
298
262
3,240
525
70
13.152
8.225
Total resources expended
213,659
342 505
39.887
52,000
Thi5 page does not lorni part of the statutory financial stateJnent5
Page 22