REGISTERED COMPANY liUMBER.. 111256124 (England alld Wale$} REGISTERED CIL4RITY NUMBER: 273670 REPORT OF THE TRUSTEES AND UNAUDITED FINAf4ciAL STATEMENTS FOR THE YEAR ENDED 31 OCTOBER 2024 FOR THE NATIONAL SOCIETY FOR PHEh'YLKETONURIA (UNITED KIAYGDO,M) LII¥IITED (A COMPANY LIMITED BY GUARANTEE) Hayes & Co St Andrews House 3 Tarleton Office Park Windgaie Tarleion PR4 6JF
THE NA TIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED CONTENTS OF TIIE FINANCIAL STATEMENTS for the year ended 31 October 2024 P4ge Report of the Trustees Independent Examiner'5 Report St#tement Of Finaneial Attivities Balanee Sheet 9 10 10 Notes to tht Financial Statements
THE NATiof*AL SOCIETY FOR PHENYLKETONURIA {DNITED KINGDOM) LIlITED REPORT OF THE TRUSTEES for the year ended 31 October 2024 Th¢ trustees who are also directors of ihe charity for ihe purpos¢s of th¢ Companies Aei 2006. present their report with th¢ fJnan¢ial slaiemenis of the tharity for the year ended 31 Octob¢r 2024, which are prepared to meei ihe requirements for a dir¢ctors' repon and ac¢ounis for Companie5 Act purposes.Th¢ trust¢cs have adopled the provisions otAc¢ounting and reporting by Chariiies".Siatemeni of Recommended Practice applicable to ch3ri1ies preparing their accounts in accordance wilh ihe Financial Reporting Standard applicable to the UK and Republic of Ireland IFRS 102) effective I January 20191. The financial slatcments have been prepared in accordante with the accounting policies set out in the notes to the accounts and comply with the chariiy's governing do¢un)ent. the Charities Act 2011 and A¢counting and Reporting by Chanties.'Stat¢mcnt of Rccomm¢nded Praciice applicable in the UK and Repiibli¢ of Ir¢land publish¢d. OBJECTIVES AND ACTIVITIES Objectlves And aims The objective5 of the charity are to promote thc ¢du¢ational, medical and social welfare of person5 suffering from phenylketonuria and SiTnilar disorders controlled by diet, to establish or encourage research in phenylketonuria and related disorders, lo e5tsblish and maintain a fund or funds from which to make gTants for the purpose of fulfilling the objects of the society, to invite, procure. appeal for, coll¢¢t and r¢ceive and a¢¢epi subscriptions. donalions. legacie5 and gifts of money, investment5 or other property. The truslc¢s hav¢ referred io ihe guidance contained in the Chariry Cominisston's general guidance on public benefit when reviewing the Charity's aims and objectives, and in planning futur¢ objeciives. Grantmgking p&licv Tht allocation of grants is decided on an individual basis as an application is made. The application where possible will be discussed by the Council of Management (anonymously if necessaryl but if this is not possible 2 decision will be rnade by the senior officers and minutes taken at rhe nexi Commilte of Management meeling. Where applicabl¢, we shall seek gllidance from our M¢dical Ad.1$gry Panel. Volunteers All member5 of the Council of Manag¢m¢nt ar¢ volunteers. They are encouraged to tontribute freely to all discussions and decisions made by the Council. Meetings have minutes tak¢n to r¢fleci discussions, decisions and dissentiorts. Page I
THE NATIO.N'AL SOCIETY FOR PHENYLKETONURIA {UNITED KINGDOM) LIMITED REPORT OF THE TRUSTEES ftsr the year ended 31 October 2024 ACHIEVEMENT AND PERFORMANCE Twstees. Repon.. Summary of Achaeveinents 2023-2024 The National Society for Phenylkeronuria (NSPKU) has had an exceptional year, with continued success in its advocacy, ndraisIng, research. and Communiry suppoff iniiiatives. As we reflect on the past 12 months, we are PToud to highlight the remarkable progress made in improving ihe lives of people living with PKU. expanding our reaclL and stngthCntng our influcn¢¢ in public h¢alth policy and awar¢n¢ss. Advocacy Campaigning Sllccess NSPKU has remained at the forefront of advocating for iinprovcd Ireatm¢nt a¢¢¢s5 and sllpport for individuals living with PKU. This year. our work ha5 focused on.. Access 10 Treatment.. NSPKU has continued to carnpaign for better access to treatnients siich as sapropterin IKuvan} and new therapies Ln development. We have worked closely with policymakers, healthcare leaders. and patient advocates to push for equitable access to medication5 and dietary 5UPPOrt acros5 all NHS regions. Engagement with Parliament and Healthcaie Bodies.. NSPKU representatives have takcn PKU awareness to parliamentary discussions, meeiing with MPS and govemmenl health officials lo highlight the challenges of PKU management and the need for susiained NHS funding for treatment and dieiary support. Taking PKU Awaieness to Parliament.. NSPKU iepresentalives have act2vely engaged with MPS and policymakers. ensuring that PKU remains on the agenda. Oui efforts have contributed 10 increased parliameniary awareness, panicularly in discussions on healihcaTe funding, dietary rnanagemeni support, and thc need for poli¢y Changes that would improve the lives of those with PKU. NSPKU at ihe ESPKU Conference.. The society played a significani role in this year's European Society foi PKU IESPKUI Conference, held in the UK. The event provided an oppornnity io collabora(e on international best practi¢¢s, share research updates, and sirengihen alliances wilh global PKU advocaies. Campaigning for Fairer PKU Managemeni Guidelines". NSPKU has worked tirelessly 10 ensure thai health¢ar¢ professionals, schools, and workplaces understand the unique dietary and medical needs of PKU individuals. with updated gllid¢lin¢s and poli¢y proposals submilled ro rel¢vanl 8uihoriiies. 2. Community. Supp•rt #nd Engagement Providin8 direct support lo PKU individuals and fatnilies rernains central to NSPKU'S mission. This year, w¢ hav¢ expanded our services and educaiional iniiiaiives. ensuring ihat people with PKU have access lo expert guidancc. emotional support, and essential resources. Expansion of The NSPKU Helpline.. OUT telephone and online support services have been enhanced to offer (imely and personalised advice on PKU managemeni. dietary challenges. and treatment options. EducatEonal Webinars and Resources.. NSPKU has h05ted Several online seminars with leading metaboli¢ specialisis and dietitians, ensuring PKU palienis. parents. and caregivers have aeeess to the latest ]nedical guidance and research. Edale Acrivily Weekend.. One of the most su¢cessfvl communiry events this year wa5 the Edale Activity Weekend. which broughi togeiher children aged 8-12 living with PKU foT a weekend of outdoor adventure, confidence-buildu)g. and peer suppon. The weekend. subsidised by Ni SPKU. was an opportunity for young people to develop social Connections and practical skills for managing PKU. Suppon for S¢hools and NuTscrics.' The NSPKU has aciivcly supported parents and educarors. ensuring children with PKU rc¢¢ive appropriat¢ dietary and mcdical accommodaiions. A key success has been Hurley's Nurscry, which sei an example by tmplcm¢nling a PKU-fricndly meal plan and supporting dietary Compliance for one of its pupils. Fundraising ind FinAnel*l Growth The ¢ommitmeni and generosity of NSPKU'S ndraIserS have been outstanding, ellsuring the Society remains financially resilient and able io suppon ils Core acriviiies. Key highlighis include.. Total Fundraising Impact.. Over the past year, NSPKU'S supporters have raised 5ub5tantial funds, wilh fundraising efforts cxceeding expectations. Page 2
THE INATIONAL SOCIETY FOR PHENYLKETONURIA IUNITED KIN'GDOM) LIMITED REPORT OF THE TRUSTEES for the year ended 31 October 2024 Race to £IOK Challenge.. This campaign saw runners across the UK unitc to raise well over the £lO.000 targ¢t for NSPKU. increasing awareness and cotnmllnity engagen)ent. Corporare Donations and Grani& SEgnifi¢ant ¢ontTibuiions have be¢n received from Reed Foundation I£IO,0001, The Geoffr¢y & Pauline Martit] Choritable TtU5t (£IO,0001, Making a Differenc¢ Locally IMADL). and Chroma R¢cruitmeni. Community Fundraising Initiaiives-. Isle of Wight P¢rimcter Walk raised £2.393 through an incredible endurance challenge. London Bridgcs Walk raised over £2,000 with participants walking across 12 iconic London bridges in support of PKU. Climbing Sliev¢ Donard {Northern Ireland's highest peak) rydised £4,126, led by PKU parents and supporters. Fashion Show Fundrais¢r'. Hosted by Imier Whe¢1 Club of Roborough. raising £1,170 for NSPKU. Fircwalking for PKU.. Brave ndraIserS cornplet¢d & firewaik challenge to support PKU awarenes5 and funding. Wedding and Birthday Donaltons.. Many NSPKU supporters chose to donat¢ in ¢¢lebraiion of their tTtil¢stones, including Frankie & Joe Clarke's wedding at)d Auniie Viv's 70th birthday, raising over £400 eaeh. Re5ear¢h and Medical Advancements NSPKU Continues to play an aetive role in advancing resear¢h and supporting the dcv¢lopmeni of improved tr¢atments. This ycar, wc have.. Collaboraied with leading metabolit researchers and pharniaceulical compAnies 10 promote itjnovative treatment pathways, including gene therapy and synth¢tic probiotics. Provided updates on the impaci of SapTOPtcrin {Kuvanl h¥0 years after its ini¢ial NHS rollout, ensuring continued patient acccss and data Collection on its effeciii'eness. Engaged with NHS meiabolic teams to d¢velop better treatm¢nt frameworks and dietary support plans for PKU Patients. Future Goals and Strategic Priorities A5 we mov¢ tnro the next year. NSPKU remains dedicated to expanding lis advocacy. support. and research efforts. Our Strategie prtorities include.. Advocating for wider access lo new PKU treairncnts ond ensuring fair and consistent NHS coverage a¢ross all r¢gions. Strengthening patient support services. including more person21iscd dictary advice, School suppon programs, and expand¢d h¢lpline hours. Fostering international pam)erships to collaborat¢ on global PKU resear¢h and awarelle5S IElltiatives. Invesiing in mcdi¢al research. ensuring that PKU reTnains a focus for scientific and healthcare advantements. Enhancing community engagement by supporting Ial PKU groups and hosiing more in-person and virnial support events. Contluston This y¢ar has been one of Significant progress. resilience, and uniry wiihin the PKU ¢ommunity. Through dedi¢aled advocacy, tireless fundraising, and unwavering support, NSPKU has CL)nlinued to niakc a meaning1 impact on the lives of tndividuals with PKU and their f&milies. We expr¢ss our deepest gratitude lo ¢vcry donor, fundraiser. advocaie, and volunteer who has contributed to our mission. As we mov¢ forward, we remain cornmitted lo improving acce5S to tr¢atment. providing vital support service5, and advocating for a fi]tUTe where PKU individuals can live iheiT fijllesl liv¢s. Together. we are making alosting difference. Page 2
TIIE NA TIONAL SOCIETY FOR PHENYLKETONURIA {UNITED KINGDOM) LIMITED REPORT OF THE TRUSTEES for the year ended 31 October 2024 FINANCIAL REVIEW Finanelal position The net Lncoming resources for the year were £ 35,041 12023-. £21.9681 details of which are shown on the statement of Financial Activities. PriD¢ipg1 funding sources The principal funding SOUTces arc donations, sponsorships and fund raising activities and are shown in the STatement of Financial Ac(ivities and ID th¢ notcs to the a¢¢ounts. Investment polic>. and objective5 Th¢ Sl¢ty'S policy is to hold surplus funds in building society and deposit accounis. Re5erve$ policy At 31 October 2024 £16,211 12023.. £16,211 I was held in the resEri¢red rese8r¢h fijnd, £5,42Q was hcld in a restricted fund for a new website (2023.. £15,000), £410 was held in a reslri¢ted fund for Mr & Mrs Chathani 12023.. £410}, £2,500 for a restricted fund for Tobem)ore Foorball Club12023.. £2,500), £10,000 was held in a Rcs¢ar¢h in PKU nd (2023.. nil) and £1 O,00(J was held in a Reaching out fund12023'. nil) £337.793 12023.. £312.5121 was hcld In th¢ gen¢ral unrestricted fund and £20,000 12023.. £20.000) was held in a designated grant and r¢scarch nd. Thc soci¢ty rcgularly reviews the reserves of the charity by means of the tTeasurer's report at each meeting, which details all monies held by the charity, including investments and TeStTlCted fuTJds. The trnstee's polL¢y IS to hold resetves lo cov¢r a rnininiiim of two year's fixed expenditure which is currently aTound £140,000 a year. Page 3
THE ATIONAL SOCIETY FOR PHENYLKETONURIA {UNITED KINGDOM) LII¥IITED REPORT OF THE TRUSTEES for the vear ended 31 Ottober 21124 STRUCTURE, GOVERNANCE AND MANAGEMEf4T Governin% document The National Society for Pheftylketonuria (United Kingdom) Limited is a charitable company limil¢d by guarantee incorporated on 27 Aprtl 1976 and regiSt¢r wilh the Charity Cornmission on 16 june 1977. The charity is conlrolled by its governing document, Mernorandum and Articles of Association dated 27 April 1976, as amended by Special Resolution dated 2 March 1991 and Spwial Resolution dated 19 March 2011. Recruitment appointmeDt of new tru5t¢es Va¢ancies Ihat arise from lime 10 time a5 determined and agreed by the Council of Manag¢meni shall be adv¢rtiscd in th¢ Society Magazine and wcbsiie In the first instance. Applicants will be vetted and appointed by Ihe Trusiees and appoinl¢cs will be Inade aware of their legal obligaiions. Training will be given in lin¢ wtih Charity Commission pro¢cdurcs and the Charities SORP Istaiemenl of Operating Recommended Praciice). This is a posi¢ion not lo be taken lightly and an honest comrnitment is requiTed. The same will apply to professionals supporting th¢ so¢i¢ty. Org#ni$ation81 structure The society is ¢onirolled by the Council of Managemcnt. Tnjstees during the year are shown in this r¢porl. The Couneil eets bi-monthly, supported by a Tange of sub-groups. The sub-groups meet to discuss issues at greatcr length than is possible al Council of Management meerings. All mectings mentioned abov¢ have minutes taken. Dccisions will be made where possibl¢ by consensus.. otherwise a majority vote will be used. Risk management The trusiees havc a duty 10 identify and review ihe risks to whi¢h Ihe charity is ¢xposed and to ensure appropriate controls are in plac¢ to provide reasonable assurance against fraud and error. REFERENCE AND ADMINISTRATIVE DETAILS RegRstered Comp#nv number 01256124 {England and Wal¢s) Registered Charlty number 273670 Registered office St Andrews Hous¢ 3 Tarleton OffJ¢¢ Park WÈndgale Tarl¢ton Preston Lancashire PR4 6JF Trustees A Thonipson D Noble- Nesbitt J CaTdy C Graham lapp)inted 20.2.241 S L Nobl¢-Ncsbitl lapptsinled 1.2.241 J Skidmor¢ (appointed 25.1.241 K Learoyd Mrs A Macdonald lappoin¢ed 18.5.24) Dr E Vardy lappoint¢d l 8.5.241 T ChimEak (appointed 18.5.241 C Cassidy (appointed l 8.5.24} Ms A Ba8ri (appoint¢d 18.5.241 CompAny SecretAry K L¢aroyd Page 4
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED REPORT OF THE TRUSTEES for the year ¢nd¢d 31 October 2024 REFERENCE AND ADMINISTRATIVE DETAILS Independent Examlner Hayes & Co St Andrews House 3 Tarlelon Office Park Windgal¢ T2rl¢ton PR4 6JF Approved by order of the board of trustees on 21" March 2025 and signed on its b¢half by.. A Thompson- T$t¢¢ Page 5
INDEPE.YDENT EXAlI.ER's REPORT TO THE TRUSTEES OF THE NATIOP*'AL SOCIETY FOR PHEliYLKETONURIA (UNITED KINGDOM) LIMITED Jndependtnt ¢xarniner's report to the trustees of The NatioDAI Society for Phemylket•nuri# IVnit¢d Kingdom) Llmlted I'the Compgnv,) I report to the ¢harity tru5t¢e5 on my examination of the account5 of the Company for the year ended 31 October 2024. Responsibilities b#si5 of report As th¢ charity'5 Inlslees of the Company {and also its directOTS for the purpos¢s of company law} you are re5pon5ible for the prcparaiion of the accounts in accordance with the requirements of thc Companies Aci 2(1061'ihe 2006 Act,). Having satisfied myself that the accounts of th¢ Company are noi required to be 2udil¢d under Part 16 of the 2006 Act and ar¢ ¢ligible for independent examination. I r¢port in respect of my exaTnination of your charity's accounts as ca1¢d out undcr Section 145 of the Charitie5 Act 2011 I'the 2011 Act,). In carry2ng out my examination I have followed the Directions given by Ihe Charity ComTni55ion und¢r S¢¢tion 145{5} (bl of ihe 2011 Act. Independent ex4mlner's stateent I have compl¢ted my ¢xaminaiion. I confimi that no rnatters have come to my attention in conn¢ction wtth the examinaiion giving me cousc io believe.. accounting r¢cords were not kept in respect of the Company as required by Section 386 of the 2006 A¢t,' or the accounts do not a¢cord with ihose records. or the accounts do not comply with the accounting requirem¢nts of Seciion 396 of the 2006 Act other than any requiiement that t]ie accounts give a true and fair view which 15 not a matier considered as part of an independent examination.. or che accounts have not becn pr¢par¢d in accordance with the methods and principles of the Siatenient of Recommended Practice for aecouniing and reporting by charities (applicable to ¢harilies preparing their accounts ill accordance with th¢ Financial Reportirtg Standard applicablc in the UK and Republic of Ireland IFRS 10211. hav¢ no concerns and have come aertsss no other In2tt¢rs in connection with the examination to which attention should be drawn in this report in order io enable a proper und¢rsianding of the accounts to be reached. Anihony N Toiham FCA. CTA Hayes & Co Si Andrews House 3 Tarleton Office Park Windgare Tarleton PR4 6JF Date.. ..2..11313< Page 6
THE NATIOIYAL SOCIETY FOR PHENYLKETONUIUA {UNITED KINGDOM) LIMITED STATF,MENT OF FINANCIAL ACTIVITIES for the year ended 31 Oettsber 21124 2024 Total nds 2023 Total funds Unrestricted nds Restricied funds Notes INCOME AND ENDOWMENTS FROM Donations aDd legactes 109,288 20,0Th) 129.288 100,985 Charithble Activitles Men)bership and literary fees Conference and evenis Mr & MTS Chaiham Tobem)ore Fooiball Club 16,490 20,372 16,490 20.372 16.297 5.734 3.000 2.500 18.0(M) Viiaflo Sponsorship 18.000 18,1)00 Investm¢nt income Other income 11,621 6,739 11,621 6,739 8,183 3.366 Total 182.510 20,0) 202,510 158.065 EXPENDITURE ON Charitable 3Ctivities Conference and events Publications Research Dietitian's fees and expenses Conference and event costs Grants awarded Insurance Adminisrration f¢cs and cxpcns¢s Me¢ting and Confcrcn¢c ¢xpens¢s Membership fee5 and subscriptions Telephone Bank and Other charges Travel Post. siationery and advertising Depreciation charge NSPKUIESPKU Subsidy 2023 NSPKU 2023 50TH Year Celebration ¢osts 59,661 18,703 3.115 29.269 59,661 18,703 3.115 29,269 16,514 21.734 25.708 14.530 3,989 2.038 35.388 1,289 1,885 50 150 971 2,345 2.510 5.098 2.157 38.751 167 1,747 50 552 1,230 1,827 2,157 45.751 167 1,747 50 552 1,230 1,827 2,640 7,000 2.640 1,898 Website eosts Total 157.229 9,640 166.869 136,097 NET INCOME 25,281 10,360 35,641 21,968 RECO.YCILL4TION OF FUNDS To] funds brought forward 332,512 34,181 366.693 344.725 TOTAL FUNDS CARRIED FORWARD 357,793 44,541 402,334 366,693 The ntsies fortn part of ihese financial statements Page 7
THE 'ATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LJIMITED STA TEf41ENT OF FINANCIAL ACTIVITIES ftsr the yegr ended 31 October 2024 CONTINUING OPERATIONS All income and ¢xpenditure has aris¢n from coniinuing activities. The noteb fom part of th¢s¢ flnancial statements Page 8
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KtNGDOMI LIMITED BALANCE SHEET 31 October 2024 2024 Total funds 2Q23 Total nds Unr¢stricled funds Restri¢ted funds Not¢5 FIXED ASSETS Intangibl¢ ass¢ts 3.686 3.686 5,676 CURREf4T ASSETS Debtors Prepaymertis and accrued income Cash al bank 480 1.-306 363,563 480 1,306 408,In4 42,285 1.270 332.067 44,541 365,349 44.541 409.890 375.622 CREDITORS Amounts falling due within one year 111,2421 {11.242) (14,605} NET CURRENT ASSETS 354,107 44,541 398,648 361,017 TOTAI. ASSETS LESS CURRENT LIABILITIES 357.793 44.541 402,334 366.693 NET ASSETS 357 793 44,541 402.334 366.693 FU.NDS Linre5tricted funds Restricted funds 357.793 44.541 332,512 34,181 TOTAL FUNDS 402,334 366.693 The charitable company is entitled to exemption from audit under Section 477 of the Compani¢5 Act 2006 for th¢ y¢ar ended 31 October 2024. The members have not requir¢d th¢ Company to obtain an audit of its financial statements for the year ended 31 Octob¢r 2024 in a¢¢ordanc¢ with Section 476 of the Companies Act 2006. The trustees acknowledge their responsibilities foi la) ensuring that the charitable company keeps accounting records Ihai comply wilh Sections 386 and 387 of the Companies Aci 2006 and preparing financial siaiemenrs which give a tNe and fair view of rhe slate of affairs of the charilablc company as ai the end of each financial year and of its surplus or deficit for each financial year in ac¢ordan¢e wilh Ihc requir¢m¢nts of Scclions 394 and 395 and which otherwis¢ ¢omply w'ith the requirenients of thc Con)panies Act 2006 r¢lating lo financial 5ratements. $0 far as applicabl¢ to th¢ ¢haritable cornpany. {b} The notes torni part of these financial statements Pag¢ 9 continu¢d...
THE INA TIONAL SOCIETY FOR PHENYLKETONURIA IU,YITED KtNGDOMI LIMITED BALANCE SHEET- eontinued 31 Ottober 2024 These financial statements havc been pr¢pared in accordance with the provisions applicable to charitable companies subjeci to th¢ small companies regime. The financial stalements were approved by th¢ Board of Trustees and authori$¢d for issue on 21, Marth 2025 and w¢re signed on its behalf by.. A Thompson - Truste¢ The tjotes fomi part of these financial statements Page 10
THE NA TIONAL SOCIETY FOR PHETrIYLKETOh'URIA (UNITED KINGDOM) LIMITED NOTES TO THE FINANCIAL STATEMENTS for the year ended 31 October 2024 ACCOUNTING POLICIES Basis of prepArin% the fmarteial statements The National Society foT Phenylketonuria (United Kin8dom) Limited is an incorporated charity registered in England. In the event of the charity beEng wound up, the liability in respect ofthe guarantee is limited to £1 per member of the charity. The registered office address is St Andrews House. 3 T&Tleion Office Park, Windgate, Tarl¢ion, Pr¢sion, Lancashire. PR4 6JF.The nawre of ¢he charity's operations and principal activities are ¢xplained in thc TNslees report. The finan¢ial stat¢mcnis of the charitabl¢ company. which 1$ a public benefii enliry under FRS 102, have been prepared in a¢¢ordancc with lh¢ Charitics SORP {FRSI 021 'A¢couniing and Reporting by Charities.. Statement of Recommet)ded Practic¢ appli¢abl¢ to chariiics preparing th¢ir accounts in accordance with the Financial Reporting Standard applicable in the UK and R¢publi¢ of Ir¢land IFRS 1021 l¢ff¢ctive l January 2019},Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland, and ihe Companies Att 2(K)6. The financkal statesnenls have been prepared under the histori¢al cost conveniion. The financial statements are prepared on a going Concern basis under the historical cost Convention. The rinancial slaiemenis are prepared in sterling which is the functional currency of the chaTity and rounded to the ncaresl £. The significant accounting polices applied in the prcparaiion of these financial sl8icments are sei out below. These polici¢s hav¢ b¢¢n ¢onsistcnrly appli¢d to all years. Ineome All income 15 recogniscd in tlie Statement of Financial Activities onc¢ the charity has ¢ntitlern¢nt to the fvnds, it is probable that the income will be reccived and the amount ean bc measured reliably. Grants are receivable in the SOFA when ieceiyable. When donor5 specify that grant5 given to the charity must be used in the future financial years. the income is defted until thai year. Assets and Investments donated to the charity are included as donaiion Income ai market value at the time of receipt. No amount is included in ihe financial siaiemenis for volunteer time in line wjth the SORP Ifrs 1021. Expenditure Liabilities arc reeognised as cxpcnditure as soon as thcr¢ is a l¢gal or ¢on$tru¢tive oblkgation Committing the charity to that expcnditure, it is probable that a transfcr of ¢conomic ben¢fJts will b¢ rcquircd in scrtlemcnt and the atnount of the obligation can be measured reliably. Expcnditure is accounted for on an accNal$ basis and has been classified under heading5 tlial aggregate all cosl related to the category. Where costs canngl bc dir¢ctly aitiibuted lo particular heading5 they have been allocared to activitie5 on a basts consistent with th¢ us¢ of resources. Charitable expendille comprises ihose costs incurred by the Charity on delivery of ils activities and services, including those costs of any indirect nawre necessary to support ihem. Th¢ charity is not registcred for V AT. Intangible asS¢t$ Intaiigible assets are recorded at C05t and ihen arnortised on a straight line basis over their useful lives. The useful lives of inlangible assets are as follows.. Website 5 years straight line Provision is made for any impairment. Tangible fixed asset5 Depreciation is propided at th¢ following annual rdtes in order to write off each asset over its estimaied useful Computer equipment 33 % 011 cost Tangible assets are initially recorded ai Cosi. Taxation The charity is exempl from corporation tax on its charitable activities. Pagell ¢ontinued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE FlliANCIAL STATEMENTS- Cont1ned for the year ended 31 October 2024 ACCOUNTING POLICIES- Continued Fund 8¢counting Unrestricted funds can be used in accordance with the charitable objective5 al the discr¢tion of the trnstees. Designaied funds comprise of unrestri¢t¢d funds that have been set aside by the tn]st¢es for particular purposes. Restricted funds can only be used for particular r¢stricted purposes within the objects of th¢ ¢h3rity. Restrictions arise when specified by the donor or when funds arc raised for particular restricted purpos¢s. The C051 of raising and administering such funds are charged against the specific fund. Further explanation of the nature and purpose of each fvnd is included in the notes io ihe fmancial stalemenls. Going eollcern The Inisiee5 assess whether ihe use of going concern is appropTiat¢ i.e. whether there are any material uncenainiies related to events or conditions thal may cast significant doubt on the abiliry of the Charity lo continue as a gotng concern. The trustecs make Ihis asse55Tnent in respect of a period of al least one ytai fton] the dale of authorisalion for issue of th¢ financial statement5 and have concludcd that thc charity has adequate resources to continue in operational existcnce for the foreseeable futUT¢ and therc are no mat¢rial uncertainties about the chariry's abiliiy to continue as a going ¢on¢ern. Ihus ihey continue to adopt th¢ going concern basis of accounting in preparing the financial slatcments. CRITICAL ACCOUNTJYG JUDGEMENTS AND KEY SOURCES OF ESTIMATION UNCERTAINTY There have b¢¢n no signifi¢ant judgemenis made in the process of preparing the financial staiements. There have been n(Tr key assiimplions concerning the future and othcr kcy sources of esiimation uncertainty at rhe reporting date that have a signifi¢ant risk of Causing a Iaterial adjustment 10 the Carrying amoiin15 of assets and liabiliries within the next finan¢ial year. INVESTMENT It*COME 2024 2023 Deposit a¢couni interesi 11,621 8.183 NET INCOMEI(EXPENDITURE) Net incomellexpenditurel is stated after chargIn{credItingl'. 2024 2023 Computer software amort15ation 2,640 2,510 Page 12 continucd...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE Fif4iANCIAL STATEMENTS- continued for the year ended 31 Oetober 2024 TRUSTEES. REMUNERATION AND BENEFITS There were no trustees. remuneration or oiher benefits for the year ended 31 (ktober 2024 nor for the y¢ar ended 31 Ocrober 2023. Tru$tee$' ¢¥pen5e$ There were no 31 October 2023. tru5tees' exp¢ns¢s paid for the year ended 31 Ociober2024 nor for ihe year ertded COMPARA TIVES FOR THE STA TEMENT OF FANANCIAL ACtIVITIES UDr¢stTlCt¢d funds R¢stricted funds Total funds INCOME AND ENDOWMENTS FROM Donations and Icgacics 80,985 20.000 100.985 Charitable &ctivRtie$ Membership and literary fees Conference and events Mr&. Mrs Chatham Toberniore Football Club 16,297 5,734 16.297 5.734 .1.00 3,Onn 2,500 2,500 18.0(M) Vitaflo Sponsorship 18,000 Investjnent in¢ome Other income 8,183 3,366 8,183 3,366 Total 132,565 25.5(M) 158.065 EXPENDITURE ON Charitable activitie5 Publications ReseaTch Dietitian's fee5 and expense5 Conference and event costs Grants awarded Insurance Administration f¢cs and expenses Mc¢ting and Confcrcn¢¢ ¢xpenses Memb¢rship fees and subscriptions Telcphone Bank and Other eharge5 Travel Post, stationery and advertising DepTeciaiion charge NSPKUIESPKU Subsidy 2023 NSPKU 2023 50TH Year Celebration costs 13,924 21,734 23.083 14,530 3.989 2.038 32,763 1,289 1.885 50 150 971 2,345 2,590 16.514 21,734 25.708 14,530 3,989 2,038 35,388 1.289 1.885 50 150 971 2.345 2.510 5,098 2,625 2,625 2,510 5,098 1,898 1,898 W¢bsiie costs Total 125,747 10.350 136.097 NEI" INCOME 6,818 15,150 21,968 Page 13 continued...
THE NATIONAL SOCIETY TrOR PHENYLKETONURIA (UNITED KINGDO1) LIMITED NOTES TO THE FINAN'CIAL STATEMENTS- continued for the year ended 31 October 2024 COMPAIL4TIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES- continued Unresiricted Resiiicted nds funds Total funds RECONCILIATION OF FUNDS Totsl funds brollght fonyard 325.694 19,031 344.725 TOTAL FUNDS CARRIED FORWARD 332.512 34,181 366,693 INTAf4GIBLE FIXED ASSETS Computer sofnvare COST Ai l November 2023 Additions 12.550 650 At 31 October 2024 13,200 AMORTISATION At l November 2023 Charge for year 6,874 Ai 31 Ociober 2024 9,514 r4ET BOOK VALUE Ai 31 October 2024 3,686 At 31 October 2023 5,676 TANGIBLE FIXED ASSETS Computer equiptnent COST At l November 2023 and 31 O¢tober 2024 430 DEPRECIATION At l NoveTnber 2023 and 31 October 2024 430 NET BOOK VALUE At 31 October 2024 At 31 October 2023 Page 14 continued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KIRYGDOM) LIMITED NOTES TO I'HE FINAh'CIAL STATE1¥1ENTS- eontinued for the yeAr ¢Dded 31 O¢tober 2024 DEBTORS: AMouf+JTS FALLING DUE AFTER MORE THAf4 of4E YEAR 2024 2023 Trade debtors 480 42.285 io. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 Trade creditors Accrued expenses 9,647 1,595 9.505 5.100 1,242 14,605 MOVEMENT IY FbNDS Net movernent in funds At 1.11.23 At 31.10.24 Unr¢5trict¢d funds G¢n¢ral fvnd NSPKU Grant and research fi)nd 312,512 20,000 25.281 337,793 20.0(N) 332,512 25,281 357.793 Restricted fuRds Research Fund Website Mr&. Mrs Chatham Toberniore Football Club Research in PKU Reaching out fund 16,211 15,060 410 2,500 16,211 5.420 410 2.500 10.000 10.o(K) {9,6401 10.000 l O,(N)O 34,181 10,360 44.541 TOTAL FU,Ds 366,693 35,641 402.334 Net rnovement in funds, in¢lud¢d in the above are as follows.. Incoming r¢sour¢es Resources expended Movement in funds Unrestricted funds General fund 182,510 (157,229) 25.281 Restricted funds Wcbsiie Rc5earch in PKU Reaching out fur]d 19,6401 {9,640) 10.000 10.000 i 0,000 i 0,000 20,0(H) 9.640) 10,360 TOTAL FUNDS 2(Tr2,510 (166,869) 35,641 Page 15 ¢ontinued..
THE NATIONAL SOCIL TY F()R PHEIYYLKETONURIA {UNITED KINGDOM) LITrIITED NOTES TO THE FINANCIAL STATEMENTS- eontlDu¢d for the year ended 31 October 2024 MOVEhlENT IN FUNDS- continued Compargtives for movement in funds N¢t moYcin¢nl in funds At At 31.10.23 Unre5tri¢t¢d funds General fund NSPKU Grdni and research nd 305,694 20,000 6.818 312,512 20.000 325.694 6.818 332.512 Restricted funds Research Fund Web51te Mr & Mr5 Chatham Tobemlore Foorball Club 16.211 2,820 16,211 15,060 41 2,500 12,240 410 2,500 19,031 15,150 34,181 TOTAL FUNDS 344,725 21,968 366,693 Comparative nel movement in fund5. in¢ludcd tn the above are as follows.. Incoming resources Re50urees expended Movement in funds Unr¢stri¢ted funds Gencral fund 132,565 1125.747) 6,818 Restrieted funds Websire Mr &. MTS Chatham TobeTtnore Footbo11 Club 20.(100 3.000 2.500 {7,7601 (2,5901 12,240 410 2.5(M) 25.500 110,350) 15,150 TOTAL FUNDS 158,065 136,0971 21,968 12. RELATED PARTY DISCLOSURES There were no related party transactions for thc year ended 31 Octob¢r 2024. Page 16