REGISTERED COMPANY NUMBER: 01256124 ffjngland Wales) REGisfERED CHARITY NUMBER: 273670 REPORT OF THE TRUSTEES AND UNAUDITED FINAIYCIAL STATEMENTS FOR THE YEAR ENDED 31 OCTOBER 2023 FOR THE NATIONAL SOCIETY FOR PHENYLKETONURtA (UNITED KINGDOMI LIMtrED (A COMPANY LIMITED BY GUARANTEE) Hayes & Co St Andrrws H( 3 Tarletots Offict Patk Wllmlgate Tar1en PR4 6JF "AD88862W* 27107r2tr24 COIAPANIES HOUSE . A16
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THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KIPIGDOM) LIMITED CONTENTS OF THE FII4ANCIAL STATEMENIS for Ihe year ended 31 (ktober 2023 Pge Rtport ofth¢Trnsttts Independent Examiner'$ Report Stat¢m¢nt of Fln#ndAI A¢tivits Balance Sheet 9 10 Not¢s to the Flaa•¢ial St4temeots 11 16
THE NATIONAL SOCIETY FOR PHENYLKETOP4URIA (UNITED KtNGDOMI LIMITED (REGISTERED IYUMBER: 01256124) REPORT OF THE TRUSTEFS fffvr th¢ year ended 31 October 2023 The tNstees who are also directors of thc ¢hanty for the purposes of the Companies Act 2, present their report with the fthancial statements of Ihe cbarity for the year ermled 31 (klot¢r 2023. which prcyated 10 meet the ffquirements for a directors, report and ac¢ounts for Companies Act pu.The knjsttts have adopted the provisions of Accounting and rep)rting by Charities.'Staicmtnt of Recornrnend Practic¢ applicable to ¢han"tics PTeparittg their accounts i a¢cordatKe with the Financial Reporting Standard applicablt lo the UK aThJ Republic of Ireland (FRS 102} effLtive I January 2019). The financial stateTnents hav¢ tten wepaffd in acwrdance with the accounting lie1c5 Sct out in the notes to the accounts and comply with the charity's governing d(umcnU the ChaTities Aci 2011 and Aecountin8 and keportÈng by Chanties.'Ststemeniof RecoD)oMW Practice atviicable in the UK and Republic of Ireland publi5bcd. OWECTtVES AND AcfivITIES Obje¢tives and Aims The objectives of the charity are to promote the educational. medical and social welfarc of PErsons sufferS from phenylket0uria and similar dssordets ¢ontyolled by di¢L estsblish or encolage research in phenylketonuria and r¢lai¢d disorders, to estsblish and maintain a tund or fiuK15 from which.kn make grJnts for the puryN)se of fulfilling tht objects of the society. to invil¢. pfo¢uTt. appeal for, wlle¢i and tIVe xeepl subseriptions, donations, legacie5 and gifts of money, iDvestments or other proF¢rty. The t¢¢5 hav¢ referr ¢h¢ gUidat eot)lained the Charity Comrnission's general guidan¢¢ on pyblJ¢ btfIt when revitwin8 the chari$ alms ar objediv¢5, and Jn piÈnniEJg future obJective5. Grantmaking policy The ollo¢aiion of 8ranL% is dectded on an I[7vidUal basis a5 applirton is rnade. Th¢ applJ¢ation where PolbIe will be discu&sed by the Council of Martagemeni (anonymously if necessary) but if thi5 15 tiot pjssible a dxi5i0n will bE made by the senior officer5 and trunute5 tskrn Jt the ll¢Xt Committ¢ of Management meetiti8. Where applicable, wc shall seek guidance fioEn our Meth"¢al Advisory Panel. Volunteers All [bE[S of the C(wn¢il of Management are vOlut5. They art encourngcd to Contribute ftlY to all dis¢ussJons and dwision5 made by tbe Council. Meeting5 have tninut¢5 to r¢fle¢t disuLSSN)0s. decisions aFAI disstntioTh5. Page I
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM> LIMITED OiEGISTERED NUMBER: 01256124 REPORT OF THE TRUSTEES for ¢he year end¢d 31 October 2•23 ACHIEVEMENT AND PERFORMANCE IntroductLOtL The National &Kiety for Pknyjketonuria (NSPKU) ha5 always ai the ftirefrortt of supportmg indiv1& and fJJTJilies affected by Plly]ke10llria (PKU) through JviKacy. awareness, and access io tr¢aon¢nt. As we reflect on the past year (and our 50th year!). it is ¢l¢ar that our MMunIty$ Tesilience and dedication have been instrumcntsl in moving itswards a future where PKU is not a baTTier to leading a full and vibrant lifc. The year 2023 h&$ been a pivotal and celebratory year for the NSPKU as we marked ow 50th anniveTW. Tts mark this significartt mjlestorte. we utldertook a rebrarnl of the NSPKU. which ha5 been used extensively throughout the year, ei8lLtening awarencss of the NSPKU and the WO thai we do, and providtts8 the charity wjth a visual wesence our COTnrnunJty ¢otuct and engage wth. Throughout our Gol(kn Anniversary year. our new bTrnd rnatsia]s have IxtD embtdded within erouS ¢vents and campai8nb, ¥18nifi¢anily raising awarerw and for PhenYIkeUI]4 IPKU) suprtad resear¢h. K¢y Achievemetlls of the Year. Fundrnising and Communkty Engagement". Our ¢ommunity has showil exceptional cte4tivity and commiiDJeDt thrwgh various fiLDdraisitL8 activiiies. Exatnples incILe.. "The Yorkshiff Marathon and the art show organ]zed by d>Ji¢aLed m¢miKts. raising $i1fican[ funds forNSPKU • The In[vatIve Londoll Bridges Walk. whith alone rdiSed over £2(x)O Th¢ enthusiastic participation in the Epic Liver1 Sants t>&sh. These ¢1$ not only raise funds but also Crucial awarelless withill the broth ¢omtnutiity •The fant&%tic effort of a member runniDg frorn Gttat Ornwnd Stred H05Ptral ID iwdon to the Royal Vicioria Infinnary in New¢asil¢. This significant joun)ey w&s und•tsken to rnise fithds and awan¢$$ for NSPKU. highli8htin8 the SUPPOTtive ¢ommunity and the impact] initiatives CaTied our by mdLVLdua]s within the PKU commuruty The NSPKU community has Shown remarkable dedication and ueativity in raising fid$ various evertts throughout the year, and w¢ thatsk them enougb in our work. Advocacy and Acces5 to Treatmeot.. A sigThfficaDt achievement this yeat has beeo our telentlcss advo¢a¢y for equal access to treaettL5 hke saproprin (Kuvon) across the UL WrTr 5¢¢n br¢akthrwgh5 in ScOa[1d and Northern Irelan thaDk5 to the ColltiVe efforts of our commurrity and SUp[l¥e policakerS, and our parti¢ipation in governmental di5cussÉon$ and public awaretw camp2i8Ths has ¢leva¢•J tl visibility of PKU challenges aThJ treat[lnts. Suptx)rt aDd Lnformation Services.. Our 5UlP)rt 5ervicts have been a lif¢lin¢ for many famili¢s. From providing updated dietary guidelines to hostin8 edu¢ational w¢binars, w¢ve ensu thai (rtjr community wemains informed and supw>rted. The ftedback has been overwheitDiugly positive. hi8hii8hiiD8 the value of rhese resources. NSPKU prnvid&l extensive supwrt to families affethed by PKU, offering r¢sour¢4 guidance. •)d direct agsistsnce to improve their daily management of the condition via our tlephone supp)rt lillc. Research and Partnerships.. The NSPKU has mliinued LO SUPW)rt aT¥J fimd research aimed at improving the live5 of those affected by PKU. This ittcludes partnerslllp5 With tnedical researchers aThl institutions to advanc¢ undstandIng of the diseas¢ attd develop new treatmeots. The NSPKU has actively participatd in nseareh initiatives. aiTning to bring Iiinovatiye tse8tynts and impyove the quality of life foT those afferd by PKU. Anoual trip lo Edale.. The trip to Edale involved a wtekettd of a¢tivitie5 al1 * childmi with PKU aJLd their fatniiie5. This ¢v¢nL kwn as thc Edale Activity WcekeD¢I was hi8hli8hted by Captain PHElix, our beloved mascot who ov¢rsees our NSPKU events and adiviiits. It prnvided an opp)rnJnity for ehildten with PKU to engage in vari¢)u5 outtioor acl]vitics. f05tering Community ties 3lld allowing to ¢xprriell¢¢ adventur that are botb ad inclusive. The eveDt was wdl-received, contributing to thc cbitdren'$ 5rKial interactiODS and their families, cot)ne¢iions within th¢ PKU community. Golden Anniversary ¢venL8 and ¢el¢brauons.' We produ¢¢d a special aiuon newsletter focusing on out 50th Anniversary was Teleastsl ¢eklxir)g the progress and impa¢i of NSPKU over thE yeaT& and a display of art created by the children atKI yOUDg twle within our cotDmunity to celebzale this tnilesione. We a150 plann1 and h¢ld a wide variety of events throughoui 2023 in¢lu&d col]at)l0rt$ with l(ui 0upS with an emphasis on ¢oTnTnunity engagemen4 wth cvents like ttje ESPKU conftrcnce and Hoe of IA)rd5 reception highlighted &s major milestones. These events not ortly marked the milesttTrn¢ anniversary also show¢ased the Continued effon of NSPKU to enga8C with atld sUPPOrt the PKU commutiity ¢hrougb conweknivc pr0wart and celebrati¢)XL%. Page 2
THE NATIONAL SOCIETY FOR PHENYLKETONURIA {UNITED KINGDOM) LIMJTED (REGISTERED NUMBER: 01256124) REPORT OF THE TRusfEFS for the year ended 31 Ortober 2023 House of Lords Recept'LOll.. The House of Lords Tttepiion was a signifKant highlight of th¢ year, wher¢ key issues relaied to PKU addr¢ssed ai a high l¢v¢l. The eveni facilirated Vdluable discu10[15 3fft0ng s¢akeholdert aboui ihe challenges and needs of the PKU comrnunity. iTKluding access to treatsnents and suptt fot U1¥]dual$ and families affected by PKU. Thts represents an inwrtant step in rdiSing awareness and seeking wlicy thanges to improve ihe ljves of those living with PKU. ESPKU Conference.. The ESPKU Confrrence held in Bimikllgbam was a highlight of the year, wher¢ discussions on unequal PKU treabnent a¢ross Europe and pr¢senthiions on new research. such as synthetic probiotics for PKU. were key topics. The NSPKU enabled a numir of families and memixrs of the Charity to attend and contribute to the di8cussions raking place. Challenges and Opportunities. WThile we have made significant strides. challenges remain. A(t¢ss to n¢w and exisling treatsnents varies xr05s ditrerenl regions, and dietary management continu&% to a significallt burdeD for mony families. The uwjming year will f¢xus on redlg these dispariiies and adv01n8 for broader access w PKU treamierbts. Effts to enhance public understanding of PKU through education. Tdid engaggnenr4 and commtsnity programs have en pivotal and will continue as a major focus in the fikn. Lookjng Ahead. As we move into the nexl y. our goals are clear. To enhance our advocacy tffotts to en5ufE that all PKU ill the UKhave access LO the bestPOS5ibl¢ [¢ * To eXpd our suwort se]vi¢es to in¢lude more trsonalised )StanCe aj reach un(kT5eTVEd taS To foster stronger relatioDships with iDtcr[tIolla1 PKU otganL¥tiOn& sbarlog kwI¢d8¢ and resou¢5 to berter s¢rv¢ OUT ¢onunuDiiies * To ci)ntillue to support Reseatch and D¢velopnient - The NSPKU xiively participated in research initiatLve5, aimitlg to bring irllK)vative treatmeDts alld unprove tbe qua]ity of life for those affecd by PKU - thi$ will temain a key CoThclwion. The achievements of the past year relle¢t streugth 2nd dedication of the PKU community. We are eternally wat¢tul for the hard work of our voluntee. the gcnerosity of 4)ur doDOrn aud th¢ guLdance of our Council of Management. Together, we at¢ makn.og a sigtLtfi¢arLt on the lives of those affected by PKU. We look forward to anoth¢r year of prO5S and positive chamge. We exl¢nd our deepest thanks to all our sUPrter voluntcet4 staff. and tru5t¢s for the wiwavenng ¢ommikneni and enthusiastn. Your contribulion5 drive thE S¢¢SS of (w mission atsd the wellthein8 of tht PKU community. FIIYANCIAL REVIEW Fltsan¢il position The net incoming re50urc¢s for th¢ year wffr £ 21.968 { 2022: £21,680, ddaib of which are Shr¥n on the 5taterncnt of Finwial Activitics. Prin¢ipal futhding 50urtes The principal fundin8 50urce5 are doniot4 SpOnlshIpS and fimd raising xtivities and are shown in the Stattrnent of Financial A¢livities and ill th¢ notes lo the accrxLDts. Inveslment poN¢y aAd objfftives The society's TM)licy is to hold surplus fjJTH15 in bu]ldg Sty and de511 ¥coiints. Reserves polity At 31 October 2023 £16,211 {202216,21I) was held in the re5tricd research fvn4 £2,820 w&5 held in a rtstrictcd fLthd for a n¢w website (2022..£2,820), £410 was held in a teStricd fiuHI for Mi & Chatham (2022: nil) and £2,5 for a r¢sIrict forTobcrtnotr Foothall Club (2022.. nil). £312.512 (2022.. £305965 w&$ held in the geal unrCted 8t £20,C) (2022.. £20,Tr)O) wa¥ held in designed an¢ atyj re5c[h fiujd. The society rtgul¥ly rwews the t¢Ser of the charity by means of the trwurtls rewrt at each mceting, which detAiIs all monies held by the charity. includiDg inv¢sttnents and restricted fiumls. The thjstet's policy is to h)Id r¢serves to cover a minimwn of ye*s fixed exp¢ndittLtt which is currently around £I40,Oc a ye4r. PaE¢ 3
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KtNGDOM> LIMITED (REGISTERED NUMBER: 01256124) REPORT OF THE TRUSTEES for the year ended 31 Ottob¢r 21)23 STRUCTURE, GOVERNANCE AND hlANAGEMEKr Governing doturnent The National Society for Phenylk¢Lonwia (Urtit¢d KJ"ngdom) Limit&J is a ¢haritsble Company limited by 8uarnne incorpordttd 27 April 1976 and rrgi51ered with the Chan'ty Commission on 16 June 1977. Th¢ charity 1$ wntrolled by its governing documen¢ MerTh)nndum and Articles of Asso¢iaiion dated 27 April 1976. as amended by Special Re501uii¢JD dated 2 March 1991 and Special Rcsoluiion datcd 19 March 2011. Recruitrnent aDd #ppointrnent of new tru5tee5 Vacartci¢s thai aris¢ fwm tirtw to time ¥ det¢nllln and a8ff by th¢ of MaDagetncnt shau be advertis in the Siety Magazille and website in the fLf5t instsDc¢. AppIlts will k vdd aDd appointed by the SeDior Officers and appointees w211 b¢ mad¢ awar¢ of th¢ir le8aJ obli8aiiow. Training will b¢ given In line with Charity Commission procedures and th¢ Chari¢ies SORP (Sw¢meni of Owatkog Re¢ommeThJed Ptaciice). This is a po$i¢ioii Dot to be taken lightly and an honot commitment is required. The same will apply to professionals SUPFffjing th¢ society. Organi5ational 5trueture Tbe society is CA)llttolled by the C(Amcil of Managemett Tnwees dltig h year art slthvn ill this reporL The Coulleil meets at least four times a year and thc senioroffic¢TS mett sq)ardly up to lce a year. The senior offi¢eYs meet to dis¢uss issues at grtaw length than is possible at Council of Managtsnent meetings. This allows them to def]ne the society's 11]eY proposals fordis¢ussion of the coLClI ofManagemeDt. All meetings mentioned aljove have minutes tskeD. Decisio5 will be made where tx)&sible by cowus'otherwise a majority vote 1[ be U1. Risk management The truslccs knavc a duty ¢0 id¢ntsfy and rEvi¢w thr nsks ro whicb the clwity is cxpjscd and to ensute appropriate controls are in plact to provide reasonable tatICe a8airst frnud and ertw. REFEB£NCE AND ADMINISTRATIVE DAlLs R¢gister¢d Company fjumb¢r 01256124 (England and Wales) Reglstered Charlty nryniber 273670 Registered offiee St Andrews Hous¢ 3 Tarleton Office Park Windgalc TarlttOD PSt0 Lanca5hire PR4 6JF PrIn¢1p Addr¢$5 NSPKU PO Box frfM6 Sheffield S12 9ET
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOfvD LIMITED (REGISTERED NUMBER: 111256124) REPORT OF THE TRUSTEYS forth¢ year ended 31 Ortober 2023 Trustees E W tAn8t (resi 21.10.23) A Thompson I Williamson (resigned 21.10.23) D Nobl¢- Nesbitt J Cardy C Grahatn {appoint¢d 20.2.24) S L Noble-Nesbitt (3pp)in*d 1.2.24) J Skidmor¢ (3pix)Inted 25.1.24} K Learoyd (apFoint 12.11.23) Mrs A Maedonald (appointed 18.524) Dr E Vardy (appointed 18.5.24) T Chimiak (appointed 18.5.24} C Cassidy {oppoirtLed 18.5_24) Ms A Bagri {atv>inted 18.5.24) Company Secretary K Learoyd Ittdep¢nd¢nt Exarniner Hayes & Co St Andrews Housc 3 Tarleton Office PaTk Wind8ale Tarleion PR4 6JF Approved by ordty of th¢ tK)ard of trustees on..... and its behalf by.. Page 5
INDEPENDENf EXAMINER'S REPORT TO THE TRUSTEES OF THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED Independent ex#ffj)io¢r's report to th¢ trn5t¢u of The Na¢lo#*l So¢iety for Pbenyll(etonuri# (United Kingdorn) Lirnited ('tbe CornpaDy') I rOrt to the chartty tnJ5tee5 on my examination ofihe aOuTh of the Cwwny for the yearended 31 Oclober 2023. Respollsibiiities and basis of report As the ¢harity'S trusttts of the CoMnY (and ajso its direaots for the FMWP)ses of company law) you are respoJLsible for the preparation of the accounts in accordance with the r¢quirements of Companies Aci 2CKJ6 {'the 2006 A¢t?. Haying satisfied myself thai the accounts of the Company are not required to k audited UTthr Part 16 of the 2006 Act and a eligible for independeni examitlaiion. I rep)rt in rfspecl of my examination of your chari$ attounts ls ¢a¥ried out under Section 145 of the Charities Aci 2011 Cthe 2011 Act?. In calrying out my examination I have followed the DirectlODS giv by the Chan"ty COMM under Sectson 145{5) (b) of tbc2011 Act. Independent examiner's statement I have compl¢¢ed my examination. I confjnn that no matters hav¢ ¢om¢ to my attention itt ¢onne¢tioTh with the examiJJation giving me ¢aLLS¢ lobelieve." ' accountLD8 record5 were not kept in restttt of the Compaoy as wulledby SeciioD 386 of tht 2 Act. Or the accounts do noi a¢¢oid with thos¢ rccords: or the accounts do not comply with the acc4)untin8 rg4uir¢rn¢nts of Section 396 of the 2006 Act other than any roauiremertl thai the ottowlls give a true and fair view which 15 Tk)t a matter considered &$ part of an ind¢p¢od¢nt examination" or the a¢counts hav¢ not prewed in ¥wrdatKe with the methc4Js and principles of the StalerneDt of RornMended Pra¢ii¢e for QU{ing and tep)rting by charities (applicable to charities preparin8 their accounts ill accordaDce with the Financial RcportiDg Srandard applicabl¢ ij the UK and Republic of lrtland (FRS 102)). I bave no ¢oncerDs and bave come a¢tOSS other matter5 in conDectioD with the examiDation to whi¢b attention should be drawn in this report in order to enable a proper und¢rsfanding of the lUnts th be rtached. Anthony N Totham FC& A Hayes& Co Si Andrews House 3 Tarlelon Offiee Park Windga Tarltton PR4 6JF
THE NATIONAL SOCIETY FOR PHENYLKETONURIA {UNfTED KtNGDOM) LIMtTED STATEfvT OF FINANCIAL ACTIVITI for the year ended 31 Ottoller 2023 2023 Totsl 2022 Totsl funds Unrestricted Restricted N(rtes INCOME AND ENDOWMEKfs FROM Donations and le8acies 80,985 20,() l(KJ,985 64.809 Ch4rltabk a¢tiiti¢5 National Lottery Grant Membetship and lilerary fee5 Conference and events Mt & Mts Chatham Tobermore Ftball Club iO,IK)O 16.397 29,705 16.297 5,734 6297 5.734 3,000 2,500 18.Th)0 Vitaflo Sponsorship 18,(NX) Invcstment incomc Other InMm¢ 8.183 3.366 8.183 3,366 1,338 14.4( Tot1 132.565 25,5 158,065 136.649 EXPENDITURE ON Charitable •¢tivities Publications Research Dittitian's fees and expens¢s Conference and event COSLS Grnnts awarded SpDnsoTsh Insurdn¢¢ AdtuinisNion fees and expen5e$ Meetiog and Conf¢reDce expetjses Membership fees arKI sylwiplions Telephone Bank and Other char8es Trdvel Posl,staiionery and 2dvert151n8 Dcpreciation charge Examination fces 13.924 21.734 23.083 14.530 3.989 2590 16,514 21.734 25,708 14.530 3.989 14,070 2,880 22,183 41,273 2.608 2.625 2,038 32.763 1.289 1.885 2.038 35,388 1.289 1,885 50 150 971 2.345 2JlO 2.341 19,650 876 1.137 Iso 737 164 2.602 1,866 1.988 2,625 150 971 2,345 2.510 NSPKuSPKu Subsidy 2023 NSPKU 2023 SOTH Yearcdebrdtion cos 5.098 5.098 1.898 1.898 Website Costs T•tl 125.747 10.350 136.097 114,969 NET INCOME 6.818 15.150 21,968 21,680 RECONCILIATION OF FUNDS Total funds brought forward 325,694 19,031 344.725 323,045 Th¢ notes fomi part of these financial 5thMtr Page 7
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LtMITED srATEMENT OF FINANCIAL ACTIVITI for lhe year ended 31 (ktober 2017 2023 Totsl 2022 To[ Unrestri¢bJ R¢strietAI TOTAL FUNDS CARRtED FORWARD 332,512 34,181 J66,693 344,725 coiYrINUING OPERATIONS All income aTwJ exp#Mlitt¢ has arisen from ¢Ontinuing ]VitiEs. The notes fonn part of th¢s¢ financial statets Page 8
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KJNGDOM) LIMITED (REGISTERED NUMBEIL. 01256124} BALANCE SHEET 31 Odober 2023 2023 To7 fimds 2022 Totsl nds Unre*ricted fijuds Rtrcted Note5 FIXED ASSETS Intsngible asseL5 5,676 5.676 CURRENT ASSETS Debtors Pr¢payments and a¢¢¥ued inc¢)me Cath at bank 41285 1270 297.886 42.285 1.270 332,067 17,793 5.513 323,970 34,181 341.441 34.181 375,622 347270 CREDITORS Amollnts fallhng due within e year 10 (14.605) (14.605) (7.515) NET CURRETr4T ASSETS 326,836 34.181 361.017 339,761 TOTAL ASSETS CURRENT UABILITIES 332,512 34.181 366.693 344.725 NET A&8ETS 332.512 34.181 366,693 344,725 FUNDS Unrestricted fund5 Restricted fijnds 332.512 34.181 325.694 19.031 TOTAL FUNDS 366.693 344.725 The chatirable compaDy is ¢ntitleO exempuoll frC audit Under S¢¢tion 477 of th¢ Companie5 A¢t 2006 for th¢ year ended 31 October 2023. Tht mernbeTS have noi requiwrd the Company ¢0 obts1 on audii of its financial ststemenrs for the yw end¢d 31 October 2023 in accordance with Sectton 476 of the Cowie5 Act 2(1)6. The Injstees acknowledge their resFMyDsibiliLie5 for {a) ensuring that the chaTitsble Company keeps lift8 rwotd5 thzt o)rnply with S¢dion5 386 2nd 387 of th¢ Cotnpanies Act 2 and pr¢paring fthan¢ial statemen¢s whKh give a and fair view of the slate of affaits ofthe dharitable ¢DmpaDy &5 at the end of cach financial year and of its surplus or &ficit for each financial yeaT in aCrdanCe with the reqU1ments of Sections 394 and 395 and which otheTh¥is¢ ¢omply with th¢ r¢qwr¢m¢n(5 of th¢ Companies Act 2006 telatiDg ¢0 financial sta1ellts. so far as applicable LO the clwi"tsble cOpany. Ibl The notes fortn part of thc5e financial statements Page 9 ¢OthtiDued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINCDOM) LIMITED (REGISTERED NUMBER: 012561241 BALANCE SHEET- continued 31 October 2023 These flnancial stakrncnts bave prepattd in xcordaDce with tbe pmvisiorns applicabk w chatitsble coPanIeS subj¢¢t to thr smill cowi¢s fEgim The fi al swem¢nts w¢ approved by the B(thrd of Trle¢S a1 authorised for IU¢ w¢T¢ si&ry¢d OD ILS Ertha]f by: on A Thorn n. Tru5tce Th¢ ndes fomi of thts¢ fina121 sutements Page 10
THE NATIONAL SOCIETY FOR PHENYLKETONURIA {UNITED KINGDOW LIMITED NOTES TO THE FtNMCIAL STATEMENIS for the year ended 31 October 2023 ACCOU1ING POLICIES Basis of prepring the fiHDci#l thtements The Natiowol Society for Phenylketoouria (United Kin8d() Limited is am incorFy)ra*d charity ttgiswed in England. In thc event of the charity bth.ng WOUTkl up. the liability in reyct of the guardniee is limited to £1 per member of the chan"ty.The w$trred offKe address is St Andrews H(Mt. 3 Tarleton Office Patk. Windgate, Tarleton, Preslon, Lancashire. PR4 6JF.The nattue of the Charitys opuations and principal activities are explained in the Tnjsttts rep(4t The financial ststernents of the charitable company. whi¢h is a public benefit entity undu FRS 102. have been prepa]rd irt a¢wrdanc¢ with th¢ Charities SORP {FRS102) 'Aw)unting and Rew>rtin8 by Charities.. Statement ol Recotnmctlded Practice applicable w Charities preparing their acc4mts in accordance with the FinaDcial Reporting Swidard applicable in the UK and Republic of Irriaud (FRS 102) (elTe¢tive l January 2019),Financial Reporting St¥JLdard 102 Tr FinJn¢ial Reporting SratMlaTd applicable in the UK alld Rq)ubli¢ o(lrtlaThd' and the Companies Act 2(M)6. The fjnancial statements havc be PTepartd uoder the htSrical ¢onv¢niion. The finan¢io1 sratements ate prepad ¢)n a gokDg concern b3sis under thE hiOr1¢al cost ¢onveniion. financial statements are Preparcd in sterling which Is the fwwionai CUrrY of the chariry and rounded to the ttearesi £. The 5]LifiCallt accoutktkng polices applied in th¢ prepaiation of th¢5¢ financial ststernents are set cxjt below. These policies have been ¢onsisMily applied to all years. All illcome is re¢owd in the Ststemeni of Financial Activitie5 onlr the charity has eniitlemeni to the funds, it is probabl¢ that the income will k received and the amounican be measur1 reliably. Grnnts are receivable in the SOFA when rec¢ivable. When don0 SFttify that given to the rharity must be Used in the fubjre financial y¢ar4 the iti¢om¢ is d¢feTred utltil thai year. Asxts and investhnts do[ to the charity are iti¢luded ¥ donation income at rnarket value at the time of rrceipL No arnunt is included in the fioaTKJal ststements for Volunteertiff in linc with the SOIiP (fr$ 102). Expenditure Liabilities are recogtused as expendilure a5 500n as there is a legal or consbwtivt obligation eommittins the charity lo that expenditu, It is pwbable that a transfer of econornic tfnefits will k rcquircd in settlemertt and the arnouDt of the obligation can be Tneasuruj ffliably. ExFtnthDJrt is accounted for on an accruals basis and has bc¢ll classified uDdei headillgs that a88regatc ail ct related to the category. Wknere Sts caT)t)ot b¢ directly attTibulcd to partiujlar hcadings they have tttn allttared to activilies on a b&%is consistent with the use of sources. Cbaritable exndIAre COTllpYLses those costs illcurred by the charity dElivery of its aclivities aDd services. including those costs of any indirect tlUTe ll¢$$ary Supp them. The clwity is not $teI for VAT. ,Intan8ible Sets Intsngible as5eL8 are rec(Kded at C051 and then amortised oll a straight line basis over their us¢fv] lives. The U5efvl live5 of intrgible &ssds as follows.. Website - 5 years straigh¢ line Provision is made for any impaimienL Tangible fixed Sets Deprttiaiion is provthd at the following all[ll1 tates in order to write otTeach asset over its &%timated wefvl Comput¢requipment 33% on cost TangJbl¢ wets are iniltally r¢cortsi at co Taxatlon Th¢ charity is exempt from )0raOn tsx on Tts charithble I1vIlle Pageii continued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED r40fES TO THE FINANCtAL STATEMENTS- Cotttinued for the yeir ended JI October 2017 ACCOUPITING POLICIFS- ¢omtiDu¢d Fund 8Ctounting U1StrIcted fiulds caD be 4Lsed iaCcOrdre with the ch2n"tsble objectives * the discTeiion of the trustees. Designated fiuth Comprise of wjrestricted fvDds that have tten s¢tas?de by the tswtees for particularpurp¥)ses. Restri¢td fifftds Can onty be used for particular restricted With the objeus of the cbarity. Restriction5 arise when specified by the donor or whth thnds art nised for particular 51ctrd PUTPOSC5.The cost of raising ond administeringsuch fur)ds are ¢lrgj against the5pecific fund. Furtherexplanation of thc na¢urE and purp¢ of cacb fund is irKludtd in the Mtes to the financial statements. Goitig ¢oD¢ern The tru5tefs a5se55 wlther the thse of 80iD8 COQC¢rn is appropriate i.e. whether there are any llmterial )c¢rtaii)ties r¢lad events or Conditions that may cast sigtLifiL3nt doubt on the ability of th¢ ¢barity nlillue as a going ujacern. The trStS make this &sses5meDi in Tespttt of a p¢riod of èt kast one year frotn the dat¢ of authorisalion for tssu¢ of the financial sthments and havc ¢oncILed that the charity has adequate resources ntinue in qKrntiotul existence for the foreseeable fvlure and there are no mattkal unc¢rtainti¢5 about the charity's ability to continue &s a 80ing corwn. thws they ¢oniinue w adopt the going concern basis of accounting in prep2riJg the fitwKi31 $thtts. CRITICAL ACCOUNTING JUDGEFNTs AND KEY SOURCLS OF EMMATION uNcERTAy There have been no 5]lficant judgements made in the Fyocess of preparitig the financial ststCrneDts. There have been key as5umpiions concerning the futtt and other key souttes of estimatiort urtcertainty at the reporring date that have a significani risk of ¢ausing # matrri#l aljusthjcnt to the Ing amounts of assets and liabilities withjn the nex( fuwJ¢ial ytsr. INVLSTMEKr tNCOME 2023 2022 Dep)sit x¢ount inlErrst 8.183 1.338 NET INCOMEI(EXPENDITURE) Net inCoeXl¢ure) LS stated afterchargin{CtIjtiTr 2023 2022 DepTe¢ioti0rt. Own assets Computer software amonisation 430 1,866 2.510 Pa8e 12 ¢ontinucd...
ThE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINCDOM) LIMITED NOTES TO THE FINANCIAL STATEMENTS- condnued for the yer etsded 31 Odober 21123 TRUSTEES, REMUNERATION AND BENEFITS There were no trustres. remune170tt or other for the year ended 31 October 2023 nor for th¢ year ended 31 Ociober 2022. Trnsttes. expenses There were no ttlLSt¢es' expells¢s wd for the year ended 31 (ktthr 2023 nor for the ye4T ended 31 October 2022. cofvtPARATIVES FOR THE STATEMENf OF FINANCIAL ACTIVITIES UDTe5trictd fimds Restricted fimd5 Total fijnds INCOME AND ENDOWMENfs FROM Donations and legacies 64.8¢Y) 64,809 Charitable aCtiti National Lottery Grant M¢mbershJ"p and literary fees Cortfeiertce and events 10,¢ 10,(M)O 16.397 29,705 16.397 29.705 Investment irtcome Other income 1.338 14,4(X) 1.338 14,400 Tot•1 126,649 iO.(KM) 136,649 EXPENDITURE ON Charitable ¢tiviti¢s Publicatio Research Dietili3ll's fees and exeS Conference and eveTht costs Gtanrs aWded SpoDsor5hip In5ufdnce AdfftinisirJiion ftcs and eKpeiises Meeting and COnfer¢[e expenses Membership fees aThl subscriptio Telephon¢ Bank and Other ¢harges Travel PosLs&tionery and advertising DeprtciatiOD charge Exami0$ fees 14.070 2.880 22,183 31.273 2,frf)8 14.070 2.880 22,183 41.273 2.608 10.(K#) 1341 19.650 876 1,137 150 737 164 2.(I12 1,866 1.988 2 J41 19,650 876 1,137 150 737 164 2,602 1.866 1,988 Tot] I04,969 10.000 114,969 NET INCOME Tran5fer5 bettveen fwDds 21,680 1.834 21.680 (1,834) Nrt moY¢m¢nt im funds 23514 {1,834) 21,680 RECONCILIATION OF FUNDS Total futKis broughi forward 302,180 20,865 323.045 Page 13 Continued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA JNITED KINGDOM) LIMITED NOTES TO THE FINANCtAL STATEMENTS- twtinue4 forthe year ended 31 October 2023 COMPARATIVES FOR THE STATEMENT OF FANANCIAL AcrtVlTIES- }ntInUed UDrestrict¢d Restriaed Totsl fid$ TOTAL FUNDS CARRIED FORWARD 325.694 19,035 344,725 IiYrANGIBLE FIXED ASSETS Computer software COST At l November 2022 Additions 9.328 3.222 Ai 31 Odober 2023 12.550 AMORTISATION At l November 2022 Ch2]ge for year 4,364 2,510 At 31 Octobei 2023 6,874 NET BOOK VALUE At 31 October 2023 5,676 At 31 (kioFKT 2022 4,964 TANGIBLE FIXED ASSETS Computer equipment cosr At l November 2022 and 31 (ktobEr2023 430 DEPRECIATION At l November 2022 and 31 O¢tob¢r2023 430 NET BOOK VALUE Al 31 October 2023 At 31 October 2022 Pagt 14 continued...
THE f4ATIONAL SOCIETY FOR PHENYLKETONiJRIA (UNrrED KINGDOK) LIED NOTES TO THE FU¥Af4CIAL STATEMENTS- tomtinued for the ye•r ended 31 October 2023 DEBTORS: AMouNfs FALLING DIJE AFTER MORE THAN ONE YEAR 2023 2022 Trade debtors 42285 17.793 CREDITORS: AMOUNTS FALLING DUE wfrHIN OIYE YEAR 2023 2022 Trade ereditors Accr1 rxpenses 9505 5.IlXI 6.084 1,431 14.605 7,515 Ai. MOVEMENT IN FUNDS Net movemcnt in fut At 1.11.22 At 31.10.23 Unrestrfrt¢d fund5 General fund NSPKU Grant and restEb futKI 305.694 20,(KN) 6.818 312.512 20.0 325.694 6.818 332.512 Rutri¢t¢d fumd$ Research FuDd Websit¢ Mr& ME5 Chatham Toberniore Football Club 16211 2.820 16.211 15,060 410 2.500 12240 410 2,5(K) 19,031 15.150 34,181 TOTAL FUNDS 344,725 21.968 366.693 Net movement in fiLDds, included io the above are as followts: Resow¢es Movement in funds ureTICted funds Generdl fund 132,565 (125,747) 6,818 Restri¢t¢d Website 20.(KK> {7,7(Kl) (2,590) 12.240 410 2,500 Tobermore Football Club 2.5(Xl 25.5(Kl {IOJ50) 15.150 TOTAL FUNDS 158.065 (136.(Y)7) 21,968 Page 15 continued...
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE FINA]¥CIAL STATEMENTS- eoththiutd for tb¢ year ¢nd¢d 31 O¢tob¢r 2023 ii. MOVEMEffr IN FUNDS- ¢olltinlled Comp•ratives for movemtst in futtds Net Transfu5 At At 31.10.22 in fijnds Ujtremricted Generdl fimd NSPKU Grant and ftsearch fimd 282.180 20.(KXI 21.680 1.834 305.694 20,000 302.180 21.680 I,R.14 R¢stricted fund$ Research Fund Website 16.211 4.654 16,211 2.820 (1.834) 20,865 (1.8341 19,031 TOTAL FUNDS 323,045 21,680 344.725 Comparative net movement in funds illcluded in the above a os follows." Inming Resources expended Movement Unre5trided fwids General fill)d 126.649 (104,969) 21,680 R¢Strirt funds CoDference 10,(xx) (10.ow) TOTAL FtJP41XS 136.649 (114.969) 21.680 12. RELATED PARTY DISCLOSURES There We no rela*d party tra1¢0$ for the ye¥cndcd 31 (ktober 2023. Page 16