OpenCharities

Bruck Syndrome

Country
England & Wales
Charity number
1216729
Status
Registered
Registered
Feb. 4, 2026
Legal form
CIO

Address

Address
79 Carterhatch Lane
ENFIELD
Middlesex
EN1 4LA

Activities

We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.

Objects: The Objects Are:to Relieve The Need And Protect The Health Of Individuals, Their Families And Carers Affected By Bruck Syndrome Across The UK For The Public Benefit By:(1) Providing Active Communication Between Those Diagnosed With Bruck Syndrome Offering Them Friendship, Reassurance And Reducing Their Social Isolation. (2) Raising Awareness Of Bruck Syndrome And Its Implications For The Individual, Their Family And The Public.(3) Promoting Knowledge, Understanding And Acknowledgement Of Bruck Syndrome Within The Medical Profession And Support Services.(4) Encouraging Research And Potential Treatments Of Bruck Syndrome And Its Dissemination To The Public.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Trustees

Name Appointed
Mahdi Koutizadeh (Chair) Aug. 16, 2025
Farzad Kootyzadeh Aug. 16, 2025
Hadis Sharifian March 15, 2026
Zahra Koutizadeh Aug. 16, 2025