# BRUCK SYNDROME

## Details

- **Country:** England & Wales
- **Charity number:** 1216729
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Feb. 4, 2026
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1216729


## Contact

- **Address:** 79 Carterhatch Lane, ENFIELD, Middlesex
- **Postcode:** EN1 4LA
- **Phone:** 07525858565
- **Email:** info@brucksyndrome.org
- **Website:** www.brucksyndrome.org



## Activities

**Objects:** THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF INDIVIDUALS, THEIR FAMILIES AND CARERS AFFECTED BY BRUCK SYNDROME ACROSS THE UK FOR THE PUBLIC BENEFIT BY:(1) PROVIDING ACTIVE COMMUNICATION BETWEEN THOSE DIAGNOSED WITH BRUCK SYNDROME OFFERING THEM FRIENDSHIP, REASSURANCE AND REDUCING THEIR SOCIAL ISOLATION. (2) RAISING AWARENESS OF BRUCK SYNDROME AND ITS IMPLICATIONS FOR THE INDIVIDUAL, THEIR FAMILY AND THE PUBLIC.(3) PROMOTING KNOWLEDGE, UNDERSTANDING AND ACKNOWLEDGEMENT OF BRUCK SYNDROME WITHIN THE MEDICAL PROFESSION AND SUPPORT SERVICES.(4) ENCOURAGING RESEARCH AND POTENTIAL TREATMENTS OF BRUCK SYNDROME AND ITS DISSEMINATION TO THE PUBLIC.

**Activities:** We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales




## Trustees

- **Mahdi Koutizadeh** (Chair) — appointed Aug. 16, 2025
- Farzad Kootyzadeh — appointed Aug. 16, 2025
- Hadis Sharifian — appointed March 15, 2026
- Zahra Koutizadeh — appointed Aug. 16, 2025