OpenCharities

Tommy's Bloom Syndrome UK

Country
England & Wales
Charity number
1215837
Status
Registered
Registered
Nov. 19, 2025
Legal form
CIO

Address

Address
27 Glasfryn Estate
Station Road
St. Clears
CARMARTHEN
Dyfed
SA33 4DG

Activities

We support individuals and families affected by Bloom syndrome in the UK by helping them access and attend the specialised clinic at Guy's and St. Thomas hospital. We assist individuals and families affected by Bloom syndrome in the UK in making connections with each other to reduce isolation and build community.

Objects: To Promote And Protect The Physical And Mental Health Of Patients With Bloom Syndrome In The United Kingdom By: 1. The Provision Of Information, Support, Education And Practical Advice To Patients, Their Families And Their Carers As Well As Raising Awareness Of All Matters Relating To Bloom Syndrome With The General Public. 2. Promoting And Supporting Research Projects Into The Causes, Diagnosis, Prevention, Treatment And Cure Of Bloom Syndrome And Disseminating The Results Of Such Research.

Classification

How
Provides Services, Provides Advocacy/advice/information
What
General Charitable Purposes, Disability
Who
Children/young People, People With Disabilities

Areas of operation

Region
Throughout England And Wales

Trustees

Name Appointed
Leia Perry (Chair) Nov. 19, 2025
Jayne Helena Hughes B.E.M. Nov. 19, 2025
Joshua Parry Nov. 19, 2025
Kassandra Appel Nov. 19, 2025
Megan Samantha Julie Ann Simpson Nov. 19, 2025
Michelle How Nov. 19, 2025