Tommy's Bloom Syndrome UK
- Country
- England & Wales
- Charity number
- 1215837
- Status
- Registered
- Registered
- Nov. 19, 2025
- Legal form
- CIO
Address
- Address
- 27 Glasfryn Estate
Station Road
St. Clears
CARMARTHEN
Dyfed
SA33 4DG
Contact
- Phone
- 07598 414019
- [email protected]
- Website
tommysbloomsyndromeuk.org
Activities
We support individuals and families affected by Bloom syndrome in the UK by helping them access and attend the specialised clinic at Guy's and St. Thomas hospital. We assist individuals and families affected by Bloom syndrome in the UK in making connections with each other to reduce isolation and build community.
Objects: To Promote And Protect The Physical And Mental Health Of Patients With Bloom Syndrome In The United Kingdom By: 1. The Provision Of Information, Support, Education And Practical Advice To Patients, Their Families And Their Carers As Well As Raising Awareness Of All Matters Relating To Bloom Syndrome With The General Public. 2. Promoting And Supporting Research Projects Into The Causes, Diagnosis, Prevention, Treatment And Cure Of Bloom Syndrome And Disseminating The Results Of Such Research.
Classification
- How
- Provides Services, Provides Advocacy/advice/information
- What
- General Charitable Purposes, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Region
- Throughout England And Wales
Trustees
| Name | Appointed |
|---|---|
| Leia Perry (Chair) | Nov. 19, 2025 |
| Jayne Helena Hughes B.E.M. | Nov. 19, 2025 |
| Joshua Parry | Nov. 19, 2025 |
| Kassandra Appel | Nov. 19, 2025 |
| Megan Samantha Julie Ann Simpson | Nov. 19, 2025 |
| Michelle How | Nov. 19, 2025 |
Nearby
- Dogs 4 Wildlife LTD 0.3 mi
- Ysgol Griffith Jones Parents Teachers And Friends Association 0.3 mi
- St Clears Womens Institute 0.4 mi
- Coed Sancler 0.4 mi
- 2Nd St Clears Scout Group 0.5 mi