OpenCharities

Through Our Eyes

Country
England & Wales
Charity number
1211355
Status
Registered
Registered
Dec. 10, 2024
Legal form
CIO

Address

Address
10 COURTLANDS DRIVE
EPSOM
KT19 0AJ

Activities

We help families of babies born with Blepharophimosis, Ptosis and Marcus Gunn Jaw Winking Syndrome in many ways. We host regular online meetings for families where they can share their stories and get information. We raise money to help families get crucial surgery when they cannot afford it. We build a community and provide support for these rare conditions.

Objects: For The Public Benefit, The Relief Of Sickness And The Preservation And For The Public Benefit, The Relief Of Sickness And The Preservation And Protection Of Health Amongst Sufferers Of Blepharofimosis, Ptosis And Marcus Gunn Jaw Winking Syndrome By:a) Increasing Awareness Both Among The Public And The Medicalcommunity About The Complexity And Potential Severity Of The Health Conditions, Symptoms And Treatment Of The Health Conditions.b) Funding Treatments Including Operations, Surgery And Travel For Blepharofimosis Ptosis And Marcus Gunn Jaw Winking Syndrome; Funding Services To Provide Relief To Long Term Sufferers Of The Health Condition Such As Counselling And Therapy.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With Section 7 Of The Charities And Trustee Investment (scotland) Act 2005 And Section 2 Of The Charities Act (northern Ireland) 2008protection Of Health Amongst Sufferers Of Blepharofimosis, Ptosis And Marcus Gunn Jaw Winking Syndrome By:a) Increasing Awareness Both Among The Public And The Medicalcommunity About The Complexity And Potential Severity Of The Health Conditions, Symptoms And Treatment Of The Health Conditions.b) Funding Treatments Including Operations, Surgery And Travel For Blepharofimosis Ptosis And Marcus Gunn Jaw Winking Syndrome; Funding Services To Provide Relief To Long Term Sufferers Of The Health Condition Such As Counselling And Therapy.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With Section 7 Of The Charities And Trustee Investment (scotland) Act 2005 And Section 2 Of The Charities Act (northern Ireland) 2008.for The Public Benefit, The Relief Of Sickness And The Preservation And Protection Of Health Amongst Sufferers Of Blepharofimosis, Ptosis And Marcus Gunn Jaw Winking Syndrome By:a) Increasing Awareness Both Among The Public And The Medicalcommunity About The Complexity And Potential Severity Of The Health Conditions, Symptoms And Treatment Of The Health Conditions.b) Funding Treatments Including Operations, Surgery And Travel For Blepharofimosis Ptosis And Marcus Gunn Jaw Winking Syndrome; Funding Services To Provide Relief To Long Term Sufferers Of The Health Condition Such As Counselling And Therapy.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With Section 7 Of The Charities And Trustee Investment (scotland) Act 2005 And Section 2 Of The Charities Act (northern Ireland) 2008.

Classification

How
Provides Services, Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Who
Other Defined Groups

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Oct. 31, 2025 £14,394 £7,256

Trustees

Name Appointed
Vanessa Rodrigo Jakubowski (Chair) Sept. 1, 2024
Alex Law May 7, 2025
Dr h.c. Michael Holzemann April 21, 2026
Karina Strazheva April 21, 2026
Miguel Rodrigo Carmena Dec. 1, 2024