OpenCharities

Hope For Hermione

Country
England & Wales
Charity number
1210847
Status
Registered
Registered
Nov. 7, 2024
Legal form
CIO

Address

Address
6 GORHAM DRIVE
DOWNSWOOD
MAIDSTONE
ME15 8UU

Activities

Hope for Hermione's Primary purposes are;- For the advancement of education to raise awareness of Beta Propeller Accumulation Neurodegeneration (BPAN).- For the advancement of health and saving lives by raising funds to support research to find a cure for BPAN.- To provide support and services to individuals, families, caregivers and friends of those affected by BPAN.

Objects: To Promote And Protect The Physical And Mental Health Of Those Diagnosed With Beta-Propeller Protein-Associated Neurodegeneration (bpan) And Their Families And Carers By:- Grant Funding External Organisations To Undertake Research Into All Areas Of Bpan;- Providing Or Assisting In The Provision Of Equipment, Facilities And Services Not Normally Provided By The Statutory Authorities;- Providing Support, Education And Practical Advice On Living With And Managing Bpan; And- Educating And Raising Awareness Of Bpan Amongst The Wider Public.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Trustees

Name Appointed
Kathleen Paton (Chair) Aug. 14, 2024
Andrew Paton Sept. 15, 2024
Caryn de Nocker Sept. 15, 2024
Courtney Bolton Nov. 28, 2024