# HOPE FOR HERMIONE

## Details

- **Country:** England & Wales
- **Charity number:** 1210847
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 7, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1210847


## Contact

- **Address:** 6 GORHAM DRIVE, DOWNSWOOD, MAIDSTONE
- **Postcode:** ME15 8UU
- **Phone:** +447974796672
- **Email:** info@hopeforhermione.com
- **Website:** www.hopeforhermione.com



## Activities

**Objects:** TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) AND THEIR FAMILIES AND CARERS BY:- GRANT FUNDING EXTERNAL ORGANISATIONS TO UNDERTAKE RESEARCH INTO ALL AREAS OF BPAN;- PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT, FACILITIES AND SERVICES NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES;- PROVIDING SUPPORT, EDUCATION AND PRACTICAL ADVICE ON LIVING WITH AND MANAGING BPAN; AND- EDUCATING AND RAISING AWARENESS OF BPAN AMONGST THE WIDER PUBLIC.

**Activities:** Hope for Hermione's Primary purposes are;- For the advancement of education to raise awareness of Beta Propeller Accumulation Neurodegeneration (BPAN).- For the advancement of health and saving lives by raising funds to support research to find a cure for BPAN.- To provide support and services to individuals, families, caregivers and friends of those affected by BPAN.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Throughout England And Wales




## Trustees

- **Kathleen Paton** (Chair) — appointed Aug. 14, 2024
- Andrew Paton — appointed Sept. 15, 2024
- Caryn de Nocker — appointed Sept. 15, 2024
- Courtney Bolton — appointed Nov. 28, 2024