SAM'S SUPERHEROES FOUNDATION REPORT OF THE TRUSTEES FOR THE PERIOD 14 OCTOBER 2024 TO 30 JUNE 2025 ACHIEVEMENTS AND PERFORMANCE Charitable a¢VitieS DLtring the perd, the charity mada meaningful pro9ress in improvin9 OLltcomes for Ghildien arKJ families affected by Febrile Infeclion-Related Epilepsy Syndrome IFIRESI, a lomi of NewQnset Refraclory Status Epilèplicus INORSEI. The charity also expanded ils support nefvlork for families affected by FIRES and NORSE across the UK. Increasingly. families are being directed lo the charity and reactting out for support. reflèeting grt)wing awareness and reco9nrtion of its work. By connectsng families, supporting the facilitatn of famity calls wlh the NORSE Inslitule. and offering guidance and signposting, Ihe charty helped to reduce isoLgtion and ensure families felt better supported durin9 both the acuts and long-term stages of this condition. including in ¢ases where a Iov9d one dotts not survive. In relation lo research, the charity successfulty launched its £50.CKJO fun¢Jrai5ing campavJn to support UK-based FIRES INORSEI Te5earch Through collaboration wth Igading clinicians and organisalions. Including the Epilepsy Research Insbtulg, the charty ha5 contributed lo building momentum towards Improved understsnding and Irealmenl of this rare and d&vasiatin9 condition. The chanty has also supported intemational research èfforts Ihrou9h engagement with the NORSE Inslilute, contributing UK lived experience lo hdp inform global research priontses and collaborats'on. Awarene88 of both FIRES, and ils umbrella term NORSE ,has also increased during the period through community eng89emant. m¢dia coverage and digital aclivity. Tliis inclLKle(J sharlng Ilvea experience tnrough the publbcalion ol rsonal FIRES diary entries, supporting awareness. education and connection for families affecled by this rare ¢ondilion. NalKinal and local m•dia f?atureG. alon9¥ide a 9rovrin9 onlino pre8en¢e and wb511¢ ivQtJvelopmenl, have helped to imprgve public and profession81 understsnding of the nditn. This has been demonslraled through increased ftngaog.rnenl ¥croys the charitys w•bsile and So¢1 modia platfom8, wh¢ch has ¥upported our call for more UK rès6arth and family 8UPPOrt. Thfough rts family support activities. thè charity prO¥ed dir8¢t mental and emotional we1lb.n9 support to children both in hospital and educational settings. The charity's school therapy dcJ prc¥Jramme land ad-hoc cc)Ilat>nration with local Iherapistsl continues lo deliver meanin9fv1 impaGt for children's mental and emotional wellbeing. The $&Thice operates through a combination ol paid proVisn and charrtable funding, ensufing Ihal Childn are able lo access support regar(Jies$ of IinancHI circumstan¢es. Income generated through the service ¢onlribuie5 19 the chariV5 overall financial sustainability and supports its Core aclivilies. Child are hdentilied for support through school SENCOS, with tailored one-to-one and 31Tldll yiuup inlervenllons Oellvere(t. The programme is overseen by a qualified professional lo ensure appropriate boundaries and effecbve delivery. Consistendy wsilive feedback has been received from children, parents and $¢hool¥, indicating improvements in mental and em01mal heatth, regula11. confiutrnce and communlcaiion. In addition, lunding 8nimal-a$$i$tod thgrapy visit# and hosprtal athity Pk9 provided Gomfort and support to children during hospital stoys, helping to reduce anxiety and improve overall wellbeing The charity5 hospltal-trased Creatlve therapy packs are distributed in colL4bDralion with heathc2re profg.%sittnals including play spgcialisls and nursing staff, who identify childcen most in need. Feedback from families and hospital teams has highlighted the Importance of these resources in supporting emotional wellbeing. This initiative also supports awareness of the chanty and of FIRES and NORSE and is supported by lo¢al ¢ommunty donation$. wilh the aim of developing a sustsinable. locally funded model over lime. Wider benefits to society include increased CogniOn of a rare and under-researched condition, improved access lo 5uppoII rui Èll¥rl¥d fatnilies, and contrtbuuons iowaros searCh that may lead 10 t)etter outcomes for fvlure patients. Plana for the Future LkIng ahead, th• charity wll continue to build on its Irk across rea¢ah. awarene33 and family support for those affected by FIRES and NORSE. Page 4
SAM'S SUPERHEROES FOUNDATION REPORT OF THE TRUSTEES FOR THE PERIOD 14 OCTOBER 2024 TO 30 JUNE 2025 In parkneular. tho charity plar¢s to expand its therapy dog programme and pilot deliveiy undei the leaaershlp of an experienced educational professional. such as a qualified teacher, with the aim of strengthening the structure consistency and impact of the sèrvicp fnr chiklfÈn's emotional wgllboing. Th developm¢nl wll support ihe Gontinued growth of the programme and enhance its ability 10 generate sustainabk income. which wll be reinvested into th chanty's mre athilies. The charity will also continue lo pr(3ress ils £50.000 research ¢ommrtment into FIRES and strenothèn rnllabDf8tion with clinicians. researchers and famils to support improved understanding, awaneSS and outcomes FINANCIAL REVIEW Flnancial position Al the end ol the perKKJ, the chanty remaird in a stabk financial posibon. with lolal funds carried forward 01 £42,904. The trustees recognise that this represents a relatively huh level of reserves.. however. these funds have been inlenlionally accumulated in support of the charity5 È50,000 UK research Commitment into FIRES In addition, proportion of Iheso funds is retained to support the charitys ongoing acb'vities and day-104ay cash flow requirements. Income during the Per was generated ihfough a combinatt.on of fvndraisirsg acthvits"es, donatrons and the delivery of servi¢es aligned lo the charitys obJeGlives. includiriy lis therapy ogg prograrnme. Expendilure was locu$ed on supporting the charity's core activities. includin9 research. aWaNeSS and family support inilialives. The Iruslee8 ensure that suffnI funds a maintsined to meet ongoing commf(ments and to supp)rt the charity's aclivilitss, while also monilrjrino e.Aqh flrtw to ensurè thè charity remains fInanCllY Sustainable. The Iruslees are sats'sfd that the charivs fund$ have en appl #pprnpriAtply in furthèrance of its eharitablo purposes and will eonlinue to monitor the charitys finaneial position to support rts ongoing sustainability. Reserv pollcy The Iruslee5 aim lo maintain suffiGient reseThes lo ensure the charity Gan meet ils ongoing commitments and continue Its a¢iivilies In a sustainable manner. This includes holding funds to support the charity's £50,000 UK reSeah commitment into FIRES, as well as maintainin9 appropriate levels of workiThJ capitsl lo manage day-to-day cash flow. The Iruslees revw the level of reserves on a regular bagis to ensure il MaInS appropriate in light of the ¢harity's planned activit'es ond financial commitments. The ¢harty's lolal funds carried foar(l al the end of the were £42.¥W. The trustees consider that these funds represent the eharily's res•rves. which ar• hekl to support ts £50,OCQ research commitment into FIRES, as well as 10 meet on90in9 activities and day-lTrday Gash flow requirefflents. Golng concern The trustees have conSided the charity's finan¢rdl posth'on and futu plans and have not klèntifi8d any material un¢ertainlies that would raise concern on ihè charty's ability to continue as a going concem. STRUCTURE. GOVERNANCE AND MANAGEMENT Gov•rning document The charity is controlled by its goveming documenL a deefj of trust and constitutes an unincorporated chanty. The charity t8 govemed by a Constitution of a Chaiitsbfe InGutPK)rated Organlsayon IGIOI whose only Votsng members are its charty trustees. Page S
SAM'S SUPERHEROES FOUNDATION REPORT OF THE TRUSTEES FOR THE PERIOD 14 OCTOBER 2024 TO 30 JUNE 2025 STRLJCTURE. GOVERNANCE AND MANAGEMENT Recruilmfrnt and appolntment of new trustees The Iruslees are appointed in accDrdance wth the charitys conskn'tution. Trustees are appointed by the exisb.ng Iru51ees. with consideration given to the skill$. knowW8 and experiance required lo support the effective govemance and ongoino deveknpment of the charsty. Six ol the current tnjstees weie apFoinled at the b'me of the ¢hantys registrabon on 14 OCtor 2024 Rachel Lw, founder of the charity, was appointed as a tru51ee on 11 October 2025. Thls appointment formalisèd her existing role within Ihe charity, reflects'ng her ongoing involvement in rts establishment. govemance and day-to-day operations, and ensuring appropriate oversKJhl and part1Pa.On in decision-making al trustee level. REFERENCE AND ADMINISTRATIVE DETAILS R•glstered Charlty nUMr 1210458 Prlnclpal address 5 Millward Drive Mickleov?r Derby Dorbyshir• DE3 OBE Tru$tee8 A SaundeTS S Hindmarch lappoinled 14.10.241 R Sutton lappoinled 14.10.241 E Plummer lappoinled 14.10.241 R Jones lappoinled 14.10.24} Mrs R H Liew lappoinled 11.10.25) S Lgroux lapw'nled 14.10.241 Independ•nt Ex•mln•r G S Gilbert CAMERON HUGHES LTD Chartgrgd Accountants 16 Jubilee Parkway Jubilee Business Park Derby Derbyshi DE214BJ Approved by order of the board of trustees on 25 Awl 2026 and sKJned on its behalf by.. Mrs R H Liew- Trustco Page 6
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF SAM'S SUPERHEROES FOUNDATION Indèpend•nt •xamin?rfs report to the tru¥t••8 of Sam'8 Sup¢rhen)e¥ Foundjtlon I rer)ort lo the charity trustee5 on my examination of the accounts of Sam's Superheroes Foundation (the Trustl lor the penod 14 Octobér 20?4 to 30 June 2025. R•sponsibilitlo$ and basS5 of report As the charity Iruslees of the Trust you are SponSible lor the preparntion of the accounts in accordance with the requirements of the Charities Act 2011 Cthe Acri. I report in respect of my examination of the Trust's accounts camed out under Section 145 of the Act and in carryino out my examinallon I have tollowed all appl018 Directn$ gNen by the Chartty Commission under Section 14515llbl of the Act. Indend•nt •x•mln•V• 8t•tsrnent I have completed my examinalion. I confirm that no material matters have come to my attention in connection Mlh the examinab'on giving me cause lo believe that In any material respect.. aceounling records were not kept In respect of the Trust as rnquired by Se¢tion 130 of the Act., or the accounts do not accocL1 with those re¢d5,. or the account¥ do not comply wlh ihe appIlble requirements concemlng Ihe forn and conlenl of accounts Sel out in the Chanties (Accounts and Reports) Regulations 2008 other than any fequiremenl that the accounts give • Iruo and fair which is not a matter ¢on8hlered as part of an independeril exdmination. I have no conrprnq and have come acro$$ no oth•r mattgrs in eonngction wth thts oxaminatK•n lo which attention should be drawn in this rgport in order lo enable a proper understanding of th? accounts lo be reached. G S Gilbert CAMERON HUGHES LTD Chart¢r¢d Accountants Derby 25 April 2026 PaJe 7
SAM'S SUPERHEROES FOUNDATION STATEMENT OF FINANCIAL ACTIVITIES FOR THE PERIOD 14 OCTOBER 2024 TO 30 JUNE 2025 Unieslricted fund Notes INCOME AND ENDOWMENTS FROM Donations and legacies 66,191 Other trading activities Investment income 33.879 10? Total 1C¥J.172 EXPENDITURE ON Charltabl• a¢tlvStleB General 57,268 NET INCOME 42,9)4 TOTAL FUNDS CARRIED FORWARD 42,904 The notss fom) part of these ffinancial statements Page 8
SAM'S SUPERHEROES FOUNDATION BALANCE SHEET 30 JUNE 2025 Unrestricted fund Notes CURRENT ASSETS Prepayments and accnjed income Cash al bank and in hand 15.296 32,235 47,531 CREDITORS Arnounls falling due within one year 14.6271 NET CURRENT ASSETS 42.904 TOTAL ASSETS LES8 CURRENT LIABILITIES 42.904 NET ASSETS 42,904 FUNDS Unresiricteil funds 42,904 TOTAL FUNDS 42.904 The financial statements wère apprnV by the Boa of Tru$tg•s and authoris•d for i88uo on 26 April 2026 and were signed on ils behalf by.. R H Llew- Trustee The notes fomi part of these finala1 ststements P4e. 9
SAM'S SUPERHEROES FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE PERIOD 14 OCTOBER 2024 TO 30 JUNE 2025 DONATIONS Included in Donations is an amcrtjnt of £55.297. Which wa¥ raised wk)r to the eharty being fom)ally r¢gisleied with the Chanty Commission. ACCOUNTING POLICIES Basis of preparing thè financial stat•m•nt8 The finanGial statements ol the charty, which is a pUtlC benefit entsty under FRS 102. have been prepared in ac¢grdance with the Charitie5 SORP IFRS 1021 'Accounling and Reporting by Charities.. Statement of Rg¢¢rnrnended Practice applicable to chairtie5 preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021 (effective 1 January 20191,, Financial Reporting Standard 102 'The Financial Reporting Standard appluble in the UK and Reputsli¢ of Ireland. an¢J the Charit$ Act 2011. The financial stslernents have been prepared under the historical cost convention. Incom• All income Is fecognlsed Sn ihe Staiemenl ol Financial ActNitss once the charity has entitlement lo the fvnds, f( is probable thai the income will b8 received and the amount can be measured feliabty. Expondltur• Liabilitiej are 09nISed as expendilure as 8fX)ii as Ihere 15 a legal or ccffistrucifve obligation comrnitting the charity lo that expendrf(ure. il is probable that a transfer of eCOr1C bènefit5 will b6 required in settlèment and thg amount of tho obligation ¢an bè mea$ufed relwbly. Expendrture is aUnted for on an acciuol¥ bÉa¥ib illl has been ¢lassrfied under headings that aggregate all cost relaled to the ¢alegory. whe c0515 cannot be dlreclly attnbuled lo partlar hgadino% they havo boon alhx•t•(I to %tiviti•¢ on a ba618 con8lOtent with tho u¥e of resources. Taxatlon The ¢harity is exempl from tsx on its charitabb actNities. Fnd a¢countlng Unreslncted lunds can be used In a¢¢ordance vrilh the Charitable objectives al the discretion of the Iruslees. FleslriLle¢J fuiids can only used for panicular restrictea purposes within the ODiects of the eharity Reslriclions arise when specified by the donot or when lunds ara Ta for partscular r8stri¢led purposes. Further explanation of the natu arHI purpose ol each lund inclu(1od in the notes to the financial statements. OTHER TRADING ACTNMES Fundraising events 33,879 Page 10 continued...
SAM'S SUPERHEROES FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE PERIOD t4 OCTOBER 2024 TO 30 JUNE 2025 INVESTMENT INCOME Deposit account interr•_st 102 TRUSTEES. REMUNERATION AND BENEFs There were no Iruslees, Temuneratn or othér benefits fof thé pèric¥J ended 30 June 2025. Trustees. exponsos There were no Iru$tses' exFenses paKI for the period ended 30 June 2025. CREDITORS: AMOUNTS FALLING DUE MTHIN ONE YEAR Trade creditors Other crettiiors 499 4,128 4.627 MOVEMENT IN FUNDS Nel movement in lund8 Al 30.6 25 Unrestrlctod funds General fund 42,904 42,904 TOTAL FUNDS 42,5 42,904 Nel InoveiTienl in funos, Included In the above are as fol1¢y.. In¢Thni1ig rosources Resources expgnded Movement in funds Unrestrlctod lunds General fund 100.172 157.2681 42,904 TOTAL FUNDS 1¢JO.172 157,2681 42,904 PaJe11 conb'nued...
SAM'S SUPERHEROES FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- contlnued FOR THE PERIOD 14 ocfo8ER 2024 TO 30 JUNE 2025 RELATED PARTY DISCLOSURES Payments on behalf of the charity have been made by R Liow during the period. At 30 June 2025 £2,327 was still outstanding lo her. Page 12
SAM'S SUPERHEROES FOUNDATION DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE PERIOD 14 OCTOBER 2024 ro 30 JUNE 2025 INCOME ANO ENDOWMENTS Donation$ and le9acl Gifts Donations Subsciiplions 61,088 5,100 86,191 Oth•r tradlng aetlvltl•s Fundraising events 33,879 Inve$tm•nt Income D9posII account interest 102 Total Incoming rosource• 100,172 EXPENDITURE Charitable actlvltl•s Advortising Activity packs Dog therapy cogt# Oonalions made Event costs Computer costs Prize$ 1,21J 11,281 6.489 10.247 21.647 1,755 300 52.972 Support costs Flnanc• BtiiiK blidiye5 1,143 G•v•man¢¢ ¢o¥ts Insurance Slindries Accountancy and legal fees Independent examiners fee 1,867 86 600 600 3.153 Total resoue$ expended 57,268 Net Incomè 42,904 Thi8 page th)es not fomi part of the tstslulory financrél staLernents Page 13