OpenCharities

Creld1 Warriors

Country
England & Wales
Charity number
1209106
Status
Registered
Registered
July 12, 2024
Legal form
CIO

Address

Address
159 READING ROAD SOUTH
CHURCH CROOKHAM
FLEET
GU52 6AQ

Contact

Activities

To provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research.

Objects: To Relieve The Needs Of Children With Creld1 Gene Sequence Variation And Related Disorders And Their Families Through: A) Providing Support For Families Caring For A Child With This Condition;b) Increasing The Understanding Of The Public On This Subject;c) Making Grants To Support Research For Such Purposes;d) Such Ways As The Trustees May Determine.in These Objects ‘Creld1’ (Cysteine Rich With Egf Like Domains 1) Is A Protein Coding Gene. Sequence Changes In The Creld1 Gene Are Typically Associated With The Cause Of Atrioventricular Septal Defect (Avsd).

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities, The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 5, 2025 £104,922 £10,000

Trustees

Name Appointed
Jessica Clatworthy (Chair) July 12, 2024
Adam Neal Clatworthy July 12, 2024
Emma Jayne Court July 12, 2024
Kate Edwards July 12, 2024
Oliver Michael Folliot Powell Feb. 24, 2025
Samantha Lusty July 12, 2024
William Marcus Christopher Campbell July 12, 2024