# CRELD1 WARRIORS

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1209106
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 12, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1209106


## Contact

- **Address:** 159 READING ROAD SOUTH, CHURCH CROOKHAM, FLEET
- **Postcode:** GU52 6AQ
- **Phone:** 07508542562
- **Email:** CRELD1@outlook.com
- **Website:** CRELD1.com



## Activities

**Objects:** TO RELIEVE THE NEEDS OF CHILDREN WITH CRELD1 GENE SEQUENCE VARIATION AND RELATED DISORDERS AND THEIR FAMILIES THROUGH: A) PROVIDING SUPPORT FOR FAMILIES CARING FOR A CHILD WITH THIS CONDITION;B) INCREASING THE UNDERSTANDING OF THE PUBLIC ON THIS SUBJECT;C) MAKING GRANTS TO SUPPORT RESEARCH FOR SUCH PURPOSES;D) SUCH WAYS AS THE TRUSTEES MAY DETERMINE.IN THESE OBJECTS ‘CRELD1’ (CYSTEINE RICH WITH EGF LIKE DOMAINS 1) IS A PROTEIN CODING GENE. SEQUENCE CHANGES IN THE CRELD1 GENE ARE TYPICALLY ASSOCIATED WITH THE CAUSE OF ATRIOVENTRICULAR SEPTAL DEFECT (AVSD).

**Activities:** To provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 5, 2025 | £104922 | £10000 | — | — |



## Trustees

- **Jessica Clatworthy** (Chair) — appointed July 12, 2024
- Adam Neal Clatworthy — appointed July 12, 2024
- Emma Jayne Court — appointed July 12, 2024
- Kate Edwards — appointed July 12, 2024
- Oliver Michael Folliot Powell — appointed Feb. 24, 2025
- Samantha Lusty — appointed July 12, 2024
- WILLIAM MARCUS CHRISTOPHER CAMPBELL — appointed July 12, 2024


