Kleefstra Syndrome UK
Kleefstrasyndrome.org
- Country
- England & Wales
- Charity number
- 1208059
- Status
- Registered
- Registered
- April 30, 2024
- Legal form
- CIO
Address
- Address
- 3-4 spire house
waterside business park
ashbourne
DE6 1DG
Contact
- Phone
- 01335346772
- [email protected]
- Website
kleefstrasyndrome.org
Activities
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
Objects: The Objects Of The CIO Are To Relieve The Needs Of People With Kleefstra Syndrome And Their Families And People Connected To, Cares For, Supports, Or Works With Someone With Kleefstra Syndrome By:-• Increasing Awareness Of The Symptoms Of Kleefstra Syndrome To Support Diagnosis And Professional And Medical Assistance;• The Provision Of Information, Advice And Other Assistance, To Support Those Affected With Kleefstra Syndrome;• The Promotion Of Research Into The Causes, Treatment And Management Of Kleefstra Syndrome And • Disseminating And Publishing The Useful Results Of Any Such Research; And• Undertaking Any Other Charitable Activities In Connection With Kleefstra Syndrome.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With [Section 7 Of The Charities And Trustee Investment (Scotland) Act 2005] And [Section 2 Of The Charities Act (Northern Ireland) 2008].
Classification
- How
- Provides Advocacy/advice/information
- What
- Disability
- Who
- People With Disabilities
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Dec. 31, 2024 | £3,587 | £13,271 |
Trustees
| Name | Appointed |
|---|---|
| Wendy Elizabeth Hocking (Chair) | July 23, 2023 |
| Anna Gibbs | July 23, 2023 |
| Annette Read | March 12, 2026 |
| Barbara Janet Roberts | July 23, 2023 |
| Courtney Helliwell | May 1, 2024 |
| Dr Katherine Palmer | July 23, 2023 |
| Hannah Banfield | May 1, 2024 |
| Vytautas Berzanskis | July 23, 2023 |
Nearby
- St. Oswald's Ladybirds Pre-School 0.1 mi
- Careline 0.3 mi
- The Parochial Church Council Of The Ecclesiastical Parish Of St. Oswald, Ashbourne 0.4 mi
- ACE Youth Trust 0.4 mi
- Ashbourne Tai Chi 0.5 mi