{"country": "England & Wales", "charity_number": "1208059", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1208059", "name": "KLEEFSTRA SYNDROME UK", "known_as": null, "other_names": [{"name": "KLEEFSTRASYNDROME.ORG", "name_type": "Working name"}], "status": "Registered", "date_registered": "2024-04-30", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "3-4 spire house, waterside business park, ashbourne", "postcode": "DE6 1DG", "phone": "01335346772", "email": "chair@kleefstrasyndrome.org", "website": "www.kleefstrasyndrome.org", "lat": 53.010568, "lng": -1.743407, "activities": "The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF PEOPLE WITH KLEEFSTRA SYNDROME AND THEIR FAMILIES AND PEOPLE CONNECTED TO, CARES FOR, SUPPORTS, OR WORKS WITH SOMEONE WITH KLEEFSTRA SYNDROME BY:-\u2022 INCREASING AWARENESS OF THE SYMPTOMS OF KLEEFSTRA SYNDROME TO SUPPORT DIAGNOSIS AND PROFESSIONAL AND MEDICAL ASSISTANCE;\u2022 THE PROVISION OF INFORMATION, ADVICE AND OTHER ASSISTANCE, TO SUPPORT THOSE AFFECTED WITH KLEEFSTRA SYNDROME;\u2022 THE PROMOTION OF RESEARCH INTO THE CAUSES, TREATMENT AND MANAGEMENT OF KLEEFSTRA SYNDROME AND \u2022 DISSEMINATING AND PUBLISHING THE USEFUL RESULTS OF ANY SUCH RESEARCH; AND\u2022 UNDERTAKING ANY OTHER CHARITABLE ACTIVITIES IN CONNECTION WITH KLEEFSTRA SYNDROME.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH [SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005] AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008].", "classifications": [{"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 3587, "latest_expenditure": 13271, "fin_period_start": "2024-04-30", "fin_period_end": "2024-12-31", "financial_years": [{"start": "2024-04-30", "end": "2024-12-31", "income": 3587, "expenditure": 13271, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Wendy Elizabeth Hocking", "chair": true, "appointment": "2023-07-23"}, {"name": "Anna Gibbs", "chair": false, "appointment": "2023-07-23"}, {"name": "Annette Read", "chair": false, "appointment": "2026-03-12"}, {"name": "Barbara Janet Roberts", "chair": false, "appointment": "2023-07-23"}, {"name": "Courtney Helliwell", "chair": false, "appointment": "2024-05-01"}, {"name": "Dr Katherine Palmer", "chair": false, "appointment": "2023-07-23"}, {"name": "Hannah Banfield", "chair": false, "appointment": "2024-05-01"}, {"name": "Vytautas Berzanskis", "chair": false, "appointment": "2023-07-23"}]}