OpenCharities

Primary Ciliary Dyskinesia Support UK

Pcd Support UK

Country
England & Wales
Charity number
1207340
Status
Registered
Registered
March 6, 2024
Legal form
CIO

Address

Address
3 Laggan Road
MAIDENHEAD
Berkshire
SL6 7JY

Contact

Activities

1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

Objects: For The Public Benefit To Preserve And Protect The Health And To Relieve The Needs Of Patients, Who Have Or Are Suspected Of Having Primary Ciliary Dyskinesia (Pcd) And Their Carers In The United Kingdom [Including Scotland And Northern Ireland] In Particular But Not Exclusively By:- Raising Awareness Of Pcd By Providing Information To The Medical Community And The General Public. - Encouraging The Advancement Of Medical Research Into The Cause, Cure, Prevention Or Relief Of Pcd, Provided That The Useful Results Of The Research Shall Be Published

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England

Finances

Period end Income Expenditure
Dec. 31, 2024

Trustees

Name Appointed
Katie Dexter (Chair) March 1, 2024
Abdullah Ihsan March 1, 2024
Gerry Paul Rowe-Ham March 1, 2024
Katie Vance March 1, 2024
Michelle Forsythe March 1, 2024
Myra Anita Tipping March 1, 2024
Natasha Mary Bellwood March 1, 2024