# PRIMARY CILIARY DYSKINESIA SUPPORT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1207340
- **Other names:** PCD SUPPORT UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 6, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1207340


## Contact

- **Address:** 3 Laggan Road, MAIDENHEAD, Berkshire
- **Postcode:** SL6 7JY
- **Phone:** 0000000000
- **Email:** chair@pcdsupport.org.uk
- **Website:** https://pcdsupport.org.uk/



## Activities

**Objects:** FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT THE HEALTH AND TO RELIEVE THE NEEDS OF PATIENTS, WHO HAVE OR ARE SUSPECTED OF HAVING PRIMARY CILIARY DYSKINESIA (PCD) AND THEIR CARERS IN THE UNITED KINGDOM [INCLUDING SCOTLAND AND NORTHERN IRELAND] IN PARTICULAR BUT NOT EXCLUSIVELY BY:- RAISING AWARENESS OF PCD BY PROVIDING INFORMATION TO THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. - ENCOURAGING THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF PCD, PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED

**Activities:** 1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £0 | £0 | — | — |



## Trustees

- **Katie Dexter** (Chair) — appointed March 1, 2024
- Abdullah Ihsan — appointed March 1, 2024
- Gerry Paul Rowe-Ham — appointed March 1, 2024
- Katie Vance — appointed March 1, 2024
- MICHELLE FORSYTHE — appointed March 1, 2024
- Myra Anita Tipping — appointed March 1, 2024
- Natasha Mary Bellwood — appointed March 1, 2024