OpenCharities

Desmoid Aid UK

Country
England & Wales
Charity number
1207309
Status
Registered
Registered
March 5, 2024
Legal form
CIO

Address

Address
16
OCKENDEN ROAD
LITTLEHAMPTON
16
OCKENDEN ROAD
BN17 7FH

Contact

Activities

Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.

Objects: To Relieve Charitable Needs Of People Diagnosed With Desmoid-Type Fibromatosis (also Known As Aggressive Fibromatosis And Desmoid Tumours) And Those Who Care For Them For The Public Benefit By The Provision Of:a. Financial Grants To People Diagnosed With Desmoid-Type Fibromatosis;b. Education And Information To Raise Public Awareness And Promote The Effective Care Of People Affected By Desmoid Tumours;c. Any Other Additional Support To People Affected By Desmoid Tumours And Related Conditions As Trustees See Fit.there Is No Geographical Limits Within England And Wales.

Classification

How
Makes Grants To Individuals, Acts As An Umbrella Or Resource Body
What
General Charitable Purposes
Who
The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £8,134 £963

Trustees

Name Appointed
Jacqui Black (Chair) Feb. 23, 2024
Anna Worthington Feb. 21, 2024
Rosemary Sloman Feb. 16, 2024
Sam Hackett Feb. 18, 2024