# DESMOID AID UK

## Details

- **Country:** England & Wales
- **Charity number:** 1207309
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 5, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1207309


## Contact

- **Address:** 16, OCKENDEN ROAD, LITTLEHAMPTON, 16, OCKENDEN ROAD
- **Postcode:** BN17 7FH
- **Phone:** 07974005676
- **Email:** info@desmoidaiduk.com
- **Website:** www.desmoidaiduk.com



## Activities

**Objects:** TO RELIEVE CHARITABLE NEEDS OF PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS (ALSO KNOWN AS AGGRESSIVE FIBROMATOSIS AND DESMOID TUMOURS) AND THOSE WHO CARE FOR THEM FOR THE PUBLIC BENEFIT BY THE PROVISION OF:A. FINANCIAL GRANTS TO PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS;B. EDUCATION AND INFORMATION TO RAISE PUBLIC AWARENESS AND PROMOTE THE EFFECTIVE CARE OF PEOPLE AFFECTED BY DESMOID TUMOURS;C. ANY OTHER ADDITIONAL SUPPORT TO PEOPLE AFFECTED BY DESMOID TUMOURS AND RELATED CONDITIONS AS TRUSTEES SEE FIT.THERE IS NO GEOGRAPHICAL LIMITS WITHIN ENGLAND AND WALES.

**Activities:** Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.




## Classification

- **How:** Makes Grants To Individuals, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes
- **Who:** The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £8134 | £963 | — | — |



## Trustees

- **Jacqui Black** (Chair) — appointed Feb. 23, 2024
- Anna Worthington — appointed Feb. 21, 2024
- Rosemary Sloman — appointed Feb. 16, 2024
- Sam Hackett — appointed Feb. 18, 2024