OpenCharities

Ei Cure Project UK

Country
England & Wales
Charity number
1205112
Status
Registered
Registered
Oct. 9, 2023
Legal form
CIO

Address

Address
12 Manor Fields
Alrewas
BURTON-ON-TRENT
DE13 7DA

Activities

Epidermolytic Ichthyosis (EI) is a painful genetic skin disease where the skin blisters with minimal trauma, but also grows excessively fast limiting mobility and resulting in frequent skin infections. There is no cure, and most people who are affected spend 2-4 hours caring for their skin and wounds every single day. The EI Cure Project UK is a non-profit organisation which includes patient a

Objects: The Objects Of The CIO Are:the Relief Of Sickness And The Promotion Of Good Health For The Public Benefit By Funding And Supporting Research Into The Causes And Treatment Of Epidermolytic Ichthyosis (“ei”) And Publishing And Disseminating The Useful Results Thereof; Andthe Relief Of Sufferers Of Ei And Their Families And Carers By The Provision Of Grants To Charities Or Other Organisations That Support Individuals Affected By Ei.

Classification

How
Makes Grants To Organisations, Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Country
Austria, Qatar
Region
Throughout England

Finances

Period end Income Expenditure
April 5, 2025 £69,749 £40,750

Trustees

Name Appointed
Andrew Sanders (Chair) April 26, 2023
Catherine Lancashire April 26, 2023
Hannah Lark July 11, 2023
Rhiannon Sian Morgan July 11, 2023