# EI CURE PROJECT UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1205112
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 9, 2023
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1205112


## Contact

- **Address:** 12 Manor Fields, Alrewas, BURTON-ON-TRENT
- **Postcode:** DE13 7DA
- **Phone:** 07921 723235
- **Email:** eicureproject@gmail.com
- **Website:** www.eicureproject.com



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE:THE RELIEF OF SICKNESS AND THE PROMOTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT BY FUNDING AND SUPPORTING RESEARCH INTO THE CAUSES AND TREATMENT OF EPIDERMOLYTIC ICHTHYOSIS (“EI”) AND PUBLISHING AND DISSEMINATING THE USEFUL RESULTS THEREOF; ANDTHE RELIEF OF SUFFERERS OF EI AND THEIR FAMILIES AND CARERS BY THE PROVISION OF GRANTS TO CHARITIES OR OTHER ORGANISATIONS THAT SUPPORT INDIVIDUALS AFFECTED BY EI.

**Activities:** Epidermolytic Ichthyosis (EI) is a painful genetic skin disease where the skin blisters with minimal trauma, but also grows excessively fast limiting mobility and resulting in frequent skin infections. There is no cure, and most people who are affected spend 2-4 hours caring for their skin and wounds every single day. The EI Cure Project UK is a non-profit organisation which includes patient a




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Austria
- Qatar
- Throughout England





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Andrew Sanders** | Chair | April 26, 2023 |
| CATHERINE LANCASHIRE |  | April 26, 2023 |
| Hannah Lark |  | July 11, 2023 |
| Rhiannon Sian Morgan |  | July 11, 2023 |




