2024-06-30-accounts

Trustees’ Annual Report for the period

From Period start date 29/09/2023 To Period end date 30/06/2024

Charity name: Tommys Journey

Charity registration number: 1204972

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	Our charities purpose as set out in our governing document are: ● To provide emotional and financial support to parents / carers of neonates who have been diagnosed with Neonatal Hemochromatosis. ● Our charities aim is to keep families together during a life altering time.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Our main activities for this financial year continued to be promotion of the charity and raising awareness of the rare liver disease. The strategies we used to achieve this are as follows: ● Raising awareness through public awareness campaigns such as social media, newspapers and magazines. ● Organising and carrying out fundraising events, to again raise awareness but also raise funds for the charity. ● Invest in charity branded merchandise which not only

		advertises the charity but is equally cost effective. ● We educated ourselves further on updated medical advice regarding Neonatal Hemochromatosis to positively impact the emotional support we offer. ● The charity trustees decided that we would support individuals financially by offering them a grant. ● Working in partnership with other agencies such as hospitals to ensure we were reaching the right audience.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	All of our charitable activities focus on supporting _any_family whose neonate has been diagnosed with neonatal hemochromatosis (NH). A neonate diagnosed with NH more often than not would have a prolonged admission in hospital, whether that is to receive treatment to regenerate the liver or to recover from having a liver transplant. Unfortunately, some neonates sadly lose their life to this liver disease resulting in still birth or death caused by liver disease. The impact of our work will go far beyond the immediate affected family and includes reducing the stress of extended family members and friends. Raising awareness of this rare life-threatening disease will help educate the public and it is our hope that one day we can support further medical research in further understanding is rare liver disease.

Additional information (optional) You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38	A summary of our grant making policy is briefly detailed below: ● Details of the Hospital where treatment is being received. ● The name of the ward/unit that the neonate is admitted to.

		● Confirmation of either diagnosis of Neonatal Hemochromatosis or confirmation of a liver transplant due to neonatal hemochromatosis.
Policy on social investment including program related investment	Para 1.38	N/A
Contribution made by volunteers	Para 1.38	Having the support of volunteers for this financial year has positively aided in the successes that the charity has seen. Our volunteers have supported our trustees in organising and overseeing events and future fund-raising ideas.
Other		N/A

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	As stated previously our charity has not been able to support any beneficiaries at current due to the rarity of the disease. However, it has positively benefited society as we are spreading awareness of a disease that many people have not heard of. As well as raising funds in the hope one day that we can support future medical research and any families that have to go though this life changing diagnosis.

Additional information (optional) You may choose to include further statements where relevant about:	Additional information (optional) You may choose to include further statements where relevant about:	Additional information (optional) You may choose to include further statements where relevant about:
Achievements against objectives set	Para 1.41	N/A
		N/A

	Performance of fundraising	Para 1.41
	activities against objectives
	set
			N/A
	Investment performance	Para 1.41
	against objectives
			N/A
	Other

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	Upon review of the financial year, being the first year in which the charity has existed the trustees deem the charity to be in a healthy stable financial state. The charity holds a sufficient amount of funds to be able to positively impact the lives of affected beneficiaries.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	At current our charity does not have a reserves policy as our trustees have deemed it not necessary. Any money raised will remain in the charity bank account until a time a beneficiary requires financial help.
Amount of reserves held	Para 1.22	N/A
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	The charities funds are not materially deficit, and the charity has not overspent financially.
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	At present trustees of Tommys Journey have no uncertainties regarding the charity continuing and achieving its goal to support families emotionally and financially.

Additional information (optional) You may choose to include further statements where relevant about:

The charity’s principal sources of funds (including any fundraising)	Para 1.47	N/A
Investment policy and objectives including any social investment policy adopted	Para 1.46	N/A
A description of the principal risks facing the charity	Para 1.46	N/A
Other		N/A

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	Our governing document has is formatted as a charitable trust, as it has been established to support beneficiaries for a charitable purpose should they meet the criteria. The trust outlines the charities objectives and rule, such as the criteria in order to qualify as a beneficiary.
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Tommys Journey is a Charitable Incorporated Organisation.
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Any future trustees will need to be considered and agreed upon by all three founding trustees, Lauren Beckett, Kayleigh Taylor and Callum Harknett. All three trustees have to be in agreement when appointing a new trustee to the board.

Additional information (optional) You may choose to include further statements where relevant about:	Additional information (optional) You may choose to include further statements where relevant about:	Additional information (optional) You may choose to include further statements where relevant about:
Policies and procedures adopted for the induction and training of trustees	Para 1.51	At current the charity has not adopted any polices or procedures regarding training for trustees as at present it is not in the charity’s intention to appoint any new trustees. However, with that said as the charity grows this is something the current trustees will develop.
The charity’s organisational structure and any wider network with which the charity works	Para 1.51	N/A
Relationship with any related parties	Para 1.51	N/A
Other		N/A

Reference and Administrative details

Charity name	Tommys Journey
Other name the charity uses	N/A
Registered charity number	1204972

	Charity’s principal address	28 Bush Close
		Toddington
		Dunstable
		LU5 6EF

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year Nam e of pers on (or body ) entitl ed to appo int trust ee (if any)
	Lauren Beckett	N/A
	Kayleigh Taylor	N/A	Laur en Bec kett
	Callum Harknett	N/A	Laur en Bec kett

– Corporate trustees names of the directors at the date the report was approved Director name

Name of trustees holding title to property belonging to the charity

Trustee narn8 Date5 acted rf not for whole

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity	Tommys Journey has not appointed any Custodian trustees for this financial period as the only assets held are the funds which have been raised, and these funds have been paid directly into the charities bank account. Chairperson Lauren Beckett and Trustee Kayleigh Taylor manage the online charity bank account.
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects	N/A
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets	N/A

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
	N/A
Name of chief executive or names of senior staff members (Optional information)
	N/A

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Kayleigh Taylor Full name(s) Lauren Beckett Position (eg Secretary, Chair Secretary Chair, etc) Date 28/04/2025