## **Trustees’ Annual Report for the period** **From Period start date 29/09/2023 To Period end date 30/06/2024** **Charity name: Tommys Journey** **Charity registration number: 1204972** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**Our charities purpose as set out in our**
**governing document are:**
**● To provide emotional and**
**financial support to parents /**
**carers of neonates who have**
**been diagnosed with Neonatal**
**Hemochromatosis.**
**● Our charities aim is to keep**
**families together during a life**
**altering time.**| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**Our main activities for this financial year**
**continued to be promotion of the charity**
**and raising awareness of the rare liver**
**disease.**
**The strategies we used to achieve this**
**are as follows:**
**● Raising awareness through**
**public awareness campaigns**
**such as social media,**
**newspapers and magazines.**
**● Organising and carrying out**
**fundraising events, to again raise**
**awareness but also raise funds**
**for the charity.**
**● Invest in charity branded**
**merchandise which not only**| |||**advertises the charity but is**
**equally cost effective.**
**● We educated ourselves further on**
**updated medical advice regarding**
**Neonatal Hemochromatosis to**
**positively impact the emotional**
**support we offer.**
**● The charity trustees decided that**
**we would support individuals**
**financially by offering them a**
**grant.**
**● Working in partnership with other**
**agencies such as hospitals to**
**ensure we were reaching the right**
**audience.**| |---|---|---| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**All of our charitable activities focus on**
**supporting ****_any_family whose neonate**
**has been diagnosed with neonatal**
**hemochromatosis (NH).**
**A neonate diagnosed with NH more**
**often than not would have a prolonged**
**admission in hospital, whether that is to**
**receive treatment to regenerate the liver**
**or to recover from having a liver**
**transplant. Unfortunately, some**
**neonates sadly lose their life to this liver**
**disease resulting in still birth or death**
**caused by liver disease.**
**The impact of our work will go far**
**beyond the immediate affected family**
**and includes reducing the stress of**
**extended family members and friends.**
**Raising awareness of this rare**
**life-threatening disease will help educate**
**the public and it is our hope that one day**
**we can support further medical research**
**in further understanding is rare liver**
**disease.**| ## **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|**A summary of our grant making policy is**
**briefly detailed below:**
**● Details of the Hospital where**
**treatment is being received.**
**● The name of the ward/unit that**
**the neonate is admitted to.**| |||| |||**● Confirmation of either diagnosis**
**of Neonatal Hemochromatosis or**
**confirmation of a liver transplant**
**due to neonatal**
**hemochromatosis.**| |---|---|---| |Policy on social investment
including program related
investment|Para 1.38|**N/A**| |Contribution made by
volunteers|Para 1.38|**Having the support of volunteers for**
**this financial year has positively aided in**
**the successes that the charity has seen.**
**Our volunteers have supported our**
**trustees in organising and overseeing**
**events and future fund-raising ideas.**| |Other||**N/A**| ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**As stated previously our charity has not**
**been able to support any beneficiaries**
**at current due to the rarity of the**
**disease.**
**However, it has positively benefited**
**society as we are spreading awareness**
**of a disease that many people have not**
**heard of. As well as raising funds in the**
**hope one day that we can support future**
**medical research and any families that**
**have to go though this life changing**
**diagnosis.**| |**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:| |---|---|---| |
Achievements against
objectives set|
Para 1.41|
**N/A**| |||**N/A**| |||||| |---|---|---|---|---| ||Performance of fundraising|Para 1.41||| ||activities against objectives|||| ||set|||| ||||**N/A**|| ||Investment performance|Para 1.41||| ||against objectives|||| ||||**N/A**|| ||Other|||| |||||| ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|**Upon review of the financial year, being**
**the first year in which the charity has**
**existed the trustees deem the charity to**
**be in a healthy stable financial state. The**
**charity holds a sufficient amount of**
**funds to be able to positively impact the**
**lives of affected beneficiaries.**| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**At current our charity does not have a**
**reserves policy as our trustees have**
**deemed it not necessary. Any money**
**raised will remain in the charity bank**
**account until a time a beneficiary**
**requires financial help.**| |Amount of reserves held|Para 1.22|**N/A**| |Reasons for holding zero
reserves|Para 1.22|**N/A**| |Details of fund materially in
deficit|Para 1.24|**The charities funds are not materially**
**deficit, and the charity has not**
**overspent financially.**| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**At present trustees of Tommys Journey**
**have no uncertainties regarding the**
**charity continuing and achieving its goal**
**to support families emotionally and**
**financially.**| ## **Additional information (optional)** You may choose to include further statements where relevant about: |||| |---|---|---| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**N/A**| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**N/A**| |A description of the principal
risks facing the charity|Para 1.46|**N/A**| |Other||**N/A**| |||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|**Our governing document has is**
**formatted as a charitable trust, as it has**
**been established to support**
**beneficiaries for a charitable purpose**
**should they meet the criteria. The trust**
**outlines the charities objectives and**
**rule, such as the criteria in order to**
**qualify as a beneficiary.**| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Tommys Journey is a Charitable**
**Incorporated Organisation.**| |
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Any future trustees will need to be**
**considered and agreed upon by all three**
**founding trustees, Lauren Beckett,**
**Kayleigh Taylor and Callum Harknett. All**
**three trustees have to be in agreement**
**when appointing a new trustee to the**
**board.**| |**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:| |---|---|---| |
Policies and procedures
adopted for the induction
and training of trustees|
Para 1.51|
**At current the charity has not adopted**
**any polices or procedures regarding**
**training for trustees as at present it is**
**not in the charity’s intention to appoint**
**any new trustees. However, with that**
**said as the charity grows this is**
**something the current trustees will**
**develop.**| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|**N/A**| |Relationship with any
related parties|Para 1.51|**N/A**| |Other||**N/A**| ## **Reference and Administrative details** |Charity name|Tommys Journey| |---|---| |
Other name the charity uses|
N/A| |Registered charity number|1204972| ||||| |---|---|---|---| ||Charity’s principal address|28 Bush Close|| |||Toddington|| |||Dunstable|| |||LU5 6EF|| ||||| ||||| ## **Names of the charity trustees who manage the charity** |1
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**
**Nam**
**e of**
**pers**
**on**
**(or**
**body**
**)**
**entitl**
**ed to**
**appo**
**int**
**trust**
**ee (if**
**any)**| |---|---|---|---| ||Lauren Beckett|N/A|| ||
Kayleigh Taylor|N/A|Laur
en
Bec
kett| ||
Callum Harknett|N/A|Laur
en
Bec
kett| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| ||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity Trustee narn8 Date5 acted rf not for whole ## **Funds held as custodian trustees on behalf of others** |Description of the assets
held in this capacity|**Tommys Journey has not appointed any Custodian**
**trustees for this financial period as the only assets**
**held are the funds which have been raised, and these**
**funds have been paid directly into the charities bank**
**account. Chairperson Lauren Beckett and Trustee**
**Kayleigh Taylor manage the online charity bank**
**account.**| |---|---| |Name and objects of the
charity on whose behalf the
assets are held and how this
falls within the custodian
charity’s objects|**N/A**| |Details of arrangements for
safe custody and
segregation of such assets
from the charity’s own assets|**N/A**| ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---|---| |**Type of**
**adviser**
**Name**
**Address**|||| ||**N/A**||| ||||| ||||| ||||| |**Name of chief executive or names of senior staff members (Optional information)**|||| ||**N/A**||| ||||| ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** Kayleigh Taylor **Full name(s)** Lauren Beckett **Position (eg Secretary,** Chair Secretary **Chair, etc) Date** 28/04/2025