Trustees’ Annual Report for the period
From 06/04/2024 Period start date To 05/04/2025 Period end date
Charity name: Insulinoma Charity UK
Charity registration number: 1204926
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | Insulinoma Charity UK exists to relieve sickness and preserve health by supporting people affected by insulinoma and related neuroendocrine tumours. The charity aims to raise awareness of insulinoma, improve understanding of the condition among patients, families, and professionals, and provide information, advocacy, and support to those impacted. The charity also seeks to promote education and public awareness of rare endocrine conditions to improve diagnosis, care, and outcomes. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
During the period, the charity focused on awareness raising, patient support, and information sharing. Activities included providing guidance and signposting to individuals affected by insulinoma, sharing lived experience stories to improve public and professional understanding, and supporting families navigating complex diagnostic and treatment pathways. The charity also engaged with patients and carers to reduce isolation and ensure that accurate, accessible information about insulinoma was available to those who need it. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees have had due regard to the Charity Commission’s guidance on public benefit. The activities undertaken during the period were carried out to benefit people affected by insulinoma and the wider public by increasing awareness of a rare condition, supporting informed decision making, and promoting earlier recognition and understandingof symptoms. |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference | ||
|---|---|---|
| Policy on grant making | Para 1.38 | The charity does not operate a grant making programme and does not make personal financial grants to individuals. Any payments made are strictly for services provided, such as the preparation and sharing of lived experience material and are documented and proportionate. |
| Policy on social investment including program related investment |
Para 1.38 | The charity has not undertaken any social investments during the period. |
| Contribution made by volunteers |
Para 1.38 | The charity relies significantly on voluntary input. Trustees and volunteers contribute time, expertise, and lived experience to support beneficiaries, develop resources, and raise awareness of insulinoma. |
| Other |
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | During the period, Insulinoma Charity UK established a clear presence as a support and awareness organisation for people affected by insulinoma. The charity supported individuals and families during diagnosis and treatment, shared personal stories to raise awareness of rare disease impact, and helped reduce isolation for those affected. The work undertaken contributed to greater understanding of insulinoma and highlighted the real-world challenges faced by patients and carers. |
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Achievements against objectives set |
Para 1.41 | The charity successfully delivered its core objectives of awareness raising and patient support during the period, despite being at an early stage of development. |
|---|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | Fundraising activity during the period was limited and primarily involved voluntary donations via online platforms. No formal fundraising campaigns were undertaken. |
|---|---|---|
| Investment performance against objectives |
Para 1.41 | The charity did not undertake any investments during the reporting period. Accordingly, there is no investment performance to report against objectives. The trustees’ approach during the period was to hold funds as cash only, ensuring liquidity and prudent financial management while the charity remains at an early stage of development. This approach was consistent with the charity’s objectives and risk managementpriorities. |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | At the end of the period, the charity’s financial position consisted solely of unrestricted funds held in cash. All funds were held either directly by the charity or temporarily on its behalf by the JustGiving platform. No payments, asset purchases, or investments were made during theperiod. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The trustees have reviewed the charity’s reserves policy. Given the early stage of the charity and its current scale of activity, funds are held to meet short term operational needs and to ensure continuity of charitable activities. |
| Amount of reserves held | Para 1.22 | £6,992 |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | None |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | The trustees consider Insulinoma Charity UK to be a going concern and believe it has adequate resources to continue its activities for the foreseeable future. |
Additional information (optional) You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The charity’s principal source of funds during the period was voluntary donations received via online fundraising platforms. |
|---|---|---|
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | The charity does not currently operate an investment policy. All funds are held as cash. |
| A description of the principal risks facing the charity |
Para 1.46 | The trustees have identified the charity’s principal risks as reliance on voluntary income, limited resources, and trustee capacity. These risks are mitigated through careful financial oversight, prudent decision making, and gradual, sustainable development of activities. |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
Insulinoma Charity UK does not operate or administer any trusts. The charity does not hold funds on trust for specific beneficiaries or purposes beyond its general charitable objectives. All funds received are held and applied in accordance with the charity’s governing document and Charity Commission regulations. |
|
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Insulinoma Charity UK is constituted as an unincorporated association and is governed by its constitution. |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Unincorporated association |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed by founding trustee Enola Wright |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | Trustees receive induction appropriate to their role and are supported to understand their legal duties and responsibilities under charity law. |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | The charity is trustee led and operates without paid staff. Trustees collectively manage strategy, governance, and operations. |
| Relationship with any related parties |
Para 1.51 | There are no undisclosed related party transactions. |
| Other |
Reference and Administrative details
| Charity name | Insulinoma Charity UK |
|---|---|
| Other name the charity uses | None |
| Registered charity number | 1204926 |
| Charity’s principal address | 96 Empress Ave West Mersea Colchester CO5 8BL |
|---|---|
Names of the charity trustees who manage the charity
| 1 2 3 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Enola Patricia Wright | Founder | Enola Patricia Wright | ||
| Peter David Collins | Treasurer | |||
| Paula Anne Davies | Secretary |
– Corporate trustees names of the directors at the date the report was approved
Director name N/A
Name of trustees holding title to property belonging to the charity
| Trustee name | **Dates acted if not for whole year ** | |
|---|---|---|
| N/A | ||
Funds held as custodian trustees on behalf of others
Description of the assets The charity did not hold any funds or other assets as custodian held in this capacity trustee on behalf of others during the reporting period. Name and objects of the Not applicable, as no assets were held on behalf of another charity on whose behalf the charity or third party. assets are held and how this falls within the custodian charity’s objects Details of arrangements for Not applicable. As no custodial assets were held, there were no safe custody and arrangements required for custody or segregation beyond the segregation of such assets charity’s standard financial controls for its own funds. from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Type of | Name | Address |
|---|---|---|
| adviser |
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
The charity has not disclosed detailed information about key personnel in order to protect personal privacy and security. Given the small size of the charity and the limited number of individuals involved in its governance and operations, the trustees consider that disclosure of detailed personal information is not necessary for transparency and could place individuals at risk. This approach is consistent with Charity Commission guidance and data protection principles.
Other optional information
During the reporting period, the charity continued to operate at an early stage of development, focusing on establishing sound governance, compliance with Charity Commission requirements, and a clear framework for future activity. The trustees remained mindful of proportionality, ensuring that resources were used effectively and in line with the charity’s objects. The charity did not employ staff during the period and relied on trustee and volunteer input to deliver its activities.
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
Enola Wright | P Collins |
|---|---|---|
| Enola Patricia Wright | Peter David Collins | |
Founder |
Treasurer | |
| 12 January 2026 | ||
| 12 January 2026 |
Charity Name No (if any) Insulinoma Charity UK 1204926 Receipts and payments accounts CC16a For the period Period start date Period end date To from 06/04/2024 05/04/2025
Section A Receipts and payments
| A1 Receipts | Unrestricted funds to the nearest £ - 4 3,650 - 4,605 - 4,220 73 4,112 - - - 4,112 900 156 - - - - - - - 1,056 - - - 1,056 3,056 - - 3,056 |
Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Total funds to the nearest £ - - 4 3,650 - 4,605 - 4,220 73 4,112 - - - 4,112 900 156 - - - - - - - 1,056 - - - 1,056 3,056 |
Total funds to the nearest £ - - 4 3,650 - 4,605 - 4,220 73 4,112 - - - 4,112 900 156 - - - - - - - 1,056 - - - 1,056 3,056 |
Last year to the nearest £ |
|---|---|---|---|---|---|---|
| Initial donation | - | 250 | ||||
| Corporate donations | 200 | |||||
| Insulinoma e-Bookproceeds | 4 | 45 | ||||
| Private donations | 3,650 | 1,150 | ||||
| Just Givingfunds - Enola Wright | - | 1,127 | ||||
| Just Givingfunds - Insulinoma CharityUK | 4,605 | 4,220 | ||||
| Adjustment - Just Giving funds - Insulinoma Charity UK - amount incorrectly shown as receipt in A1 Receipts in 2024 and in B2 Other Monetary Asset in 2024 - receipt was actually post Year End in 2024 |
- 4,220 | - | ||||
| Deposit Account Interest | 73 | - | ||||
| Sub total(Gross income for AR) |
4,112 |
6,992 | ||||
| A2 Asset and investment sales, (see table). |
||||||
| - | ||||||
| - | - | |||||
| Sub total | - | - | ||||
| Total receipts A3 Payments |
||||||
| 6,992 | ||||||
| Fund raisingevent costs/fees | 900 | - | ||||
| Software and Website fees/licenses | 156 | - | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| **Sub total ** | 1,056 | - | ||||
| A4 Asset and investment purchases, (see table) |
||||||
| - | ||||||
| - | ||||||
| **Sub total ** | - | - | ||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
||||||
| - | ||||||
| 3,056 | - | 3,056 | 6,992 | |||
| - | - | - | - | |||
| - | - | - | - | |||
| 3,056 | - | 3,056 | 6,992 |
CCXX R1 accounts (SS)
12/01/2026
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B1 Cash funds B2 Other monetary assets B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets |
Signature Details Details Co-operative Bank - Current Account Co-operative Bank - Deposit Account Details Details Total cash funds (agree balances with receipts and payments account(s)) Details |
Unrestricted funds Restricted funds to nearest £ to nearest £ 725 - 9,323 - - - 10,048 - Agreement Error OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Enola Wright Peter Collins |
Endowment funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
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| Date of approval |
|||
| Enola Wright | 17/12/2025 | ||
| Peter Collins | 17/12/2025 |
CCXX R2 accounts (SS)
12/01/2026
2