## **Trustees’ Annual Report for the period** ## **From 06/04/2024 Period start date To 05/04/2025 Period end date** ## **Charity name: Insulinoma Charity UK** ## **Charity registration number: 1204926** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|Insulinoma Charity UK exists to relieve sickness
and preserve health by supporting people
affected by insulinoma and related
neuroendocrine tumours. The charity aims to
raise awareness of insulinoma, improve
understanding of the condition among
patients, families, and professionals, and
provide information, advocacy, and support to
those impacted. The charity also seeks to
promote education and public awareness of
rare endocrine conditions to improve
diagnosis, care, and outcomes.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|During the period, the charity focused on
awareness raising, patient support, and
information sharing. Activities included
providing guidance and signposting to
individuals affected by insulinoma, sharing
lived experience stories to improve public and
professional understanding, and supporting
families navigating complex diagnostic and
treatment pathways. The charity also engaged
with patients and carers to reduce isolation
and ensure that accurate, accessible
information about insulinoma was available to
those who need it.| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees have had due regard to the
Charity Commission’s guidance on public
benefit. The activities undertaken during the
period were carried out to benefit people
affected by insulinoma and the wider public by
increasing awareness of a rare condition,
supporting informed decision making, and
promoting earlier recognition and
understandingof symptoms.| ## **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|The charity does not operate a grant making
programme and does not make personal
financial grants to individuals. Any payments
made are strictly for services provided, such as
the preparation and sharing of lived experience
material and are documented and
proportionate.| |Policy on social investment
including program related
investment|Para 1.38|The charity has not undertaken any social
investments during the period.| |Contribution made by
volunteers|Para 1.38|The charity relies significantly on voluntary
input. Trustees and volunteers contribute time,
expertise, and lived experience to support
beneficiaries, develop resources, and raise
awareness of insulinoma.| |Other||| ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|During the period, Insulinoma Charity UK
established a clear presence as a support and
awareness organisation for people affected by
insulinoma. The charity supported individuals
and families during diagnosis and treatment,
shared personal stories to raise awareness of
rare disease impact, and helped reduce
isolation for those affected. The work
undertaken contributed to greater
understanding of insulinoma and highlighted
the real-world challenges faced by patients and
carers.| ## **Additional information (optional)** You may choose to include further statements where relevant about: |Achievements against
objectives set|Achievements against
objectives set|Para 1.41|The charity successfully delivered its core
objectives of awareness raising and patient
support during the period, despite being at an
early stage of development.| |---|---|---|---| ||||| |Performance of fundraising
activities against objectives
set|Para 1.41|Fundraising activity during the period was
limited and primarily involved voluntary
donations via online platforms. No formal
fundraising campaigns were undertaken.| |---|---|---| |Investment performance
against objectives|Para 1.41|The charity did not undertake any investments
during the reporting period. Accordingly, there
is no investment performance to report against
objectives. The trustees’ approach during the
period was to hold funds as cash only, ensuring
liquidity and prudent financial management
while the charity remains at an early stage of
development. This approach was consistent
with the charity’s objectives and risk
managementpriorities.| |Other||| ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|At the end of the period, the charity’s financial
position consisted solely of unrestricted funds
held in cash. All funds were held either directly
by the charity or temporarily on its behalf by
the JustGiving platform. No payments, asset
purchases, or investments were made during
theperiod.| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|The trustees have reviewed the charity’s
reserves policy. Given the early stage of the
charity and its current scale of activity, funds
are held to meet short term operational needs
and to ensure continuity of charitable
activities.| |Amount of reserves held|Para 1.22|**£6,992**| |Reasons for holding zero
reserves|Para 1.22|**N/A**| |Details of fund materially in
deficit|Para 1.24|**None**| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|The trustees consider Insulinoma Charity UK to
be a going concern and believe it has adequate
resources to continue its activities for the
foreseeable future.| ## **Additional information (optional)** You may choose to include further statements where relevant about: |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|The charity’s principal source of funds during
the period was voluntary donations received
via online fundraising platforms.| |---|---|---| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|The charity does not currently operate an
investment policy. All funds are held as cash.| |A description of the principal
risks facing the charity|Para 1.46|The trustees have identified the charity’s
principal risks as reliance on voluntary income,
limited resources, and trustee capacity. These
risks are mitigated through careful financial
oversight, prudent decision making, and
gradual, sustainable development of activities.| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||Insulinoma Charity UK does not operate or
administer any trusts. The charity does not
hold funds on trust for specific beneficiaries or
purposes beyond its general charitable
objectives. All funds received are held and
applied in accordance with the charity’s
governing document and Charity Commission
regulations.| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|Insulinoma Charity UK is constituted as an
unincorporated association and is governed by
its constitution.| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|Unincorporated association| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Appointed by founding trustee Enola Wright| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|Trustees receive induction appropriate to their
role and are supported to understand their
legal duties and responsibilities under charity
law.| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|The charity is trustee led and operates without
paid staff. Trustees collectively manage
strategy, governance, and operations.| |Relationship with any
related parties|Para 1.51|There are no undisclosed related party
transactions.| |Other||| ## **Reference and Administrative details** |Charity name|Insulinoma Charity UK| |---|---| |Other name the charity uses|None| |Registered charity number|1204926| |Charity’s principal address|96 Empress Ave
West Mersea
Colchester
CO5 8BL| |---|---| ||| ## **Names of the charity trustees who manage the charity** |1
2
3|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**| |---|---|---|---|---| ||Enola Patricia Wright|Founder||Enola Patricia Wright| ||Peter David Collins|Treasurer||| ||Paula Anne Davies|Secretary||| ## – Corporate trustees names of the directors at the date the report was approved **Director name N/A** Name of trustees holding title to property belonging to the charity |**Trustee name**|**Dates acted if not for whole year **|| |---|---|---| |**N/A**||| |||| |||| |||| |||| |||| ## **Funds held as custodian trustees on behalf of others** Description of the assets The charity did not hold any funds or other assets as custodian held in this capacity trustee on behalf of others during the reporting period. Name and objects of the Not applicable, as no assets were held on behalf of another charity on whose behalf the charity or third party. assets are held and how this falls within the custodian charity’s objects Details of arrangements for Not applicable. As no custodial assets were held, there were no safe custody and arrangements required for custody or segregation beyond the segregation of such assets charity’s standard financial controls for its own funds. from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Type of**|**Name**|**Address**| |---|---|---| |**adviser**||| ## **Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details The charity has not disclosed detailed information about key personnel in order to protect personal privacy and security. Given the small size of the charity and the limited number of individuals involved in its governance and operations, the trustees consider that disclosure of detailed personal information is not necessary for transparency and could place individuals at risk. This approach is consistent with Charity Commission guidance and data protection principles. ## **Other optional information** During the reporting period, the charity continued to operate at an early stage of development, focusing on establishing sound governance, compliance with Charity Commission requirements, and a clear framework for future activity. The trustees remained mindful of proportionality, ensuring that resources were used effectively and in line with the charity’s objects. The charity did not employ staff during the period and relied on trustee and volunteer input to deliver its activities. ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** |**Signature(s)**
**Full name(s)**
**Position (eg Secretary,**
**Chair, etc) **
**Date**|Enola Wright|P Collins| |---|---|---| ||Enola Patricia Wright|Peter David Collins| ||
Founder|Treasurer| ||12 January 2026|| ||12 January 2026|| **Charity Name No (if any) Insulinoma Charity UK 1204926 Receipts and payments accounts CC16a For the period** Period start date Period end date **To from** 06/04/2024 05/04/2025 ## **Section A Receipts and payments** |**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**
**-**
**4**
**3,650**
**-**
**4,605**
**- 4,220**
**73**

**4,112**
**-**
**-**
**-**
**4,112**
**900**
**156**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**1,056**
**-**
**-**
**-**
**1,056**
**3,056**
**-**
**-**
**3,056**|**Restricted**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowment**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Total funds**
**to the nearest £**
**-**
**-**
**4**
**3,650**
**-**
**4,605**
**- 4,220**
**73**
**4,112**
**-**
**-**
**-**
**4,112**
**900**
**156**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**1,056**
**-**
**-**
**-**
**1,056**
**3,056**|**Total funds**
**to the nearest £**
**-**
**-**
**4**
**3,650**
**-**
**4,605**
**- 4,220**
**73**
**4,112**
**-**
**-**
**-**
**4,112**
**900**
**156**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**1,056**
**-**
**-**
**-**
**1,056**
**3,056**|**Last year**
**to the nearest £**| |---|---|---|---|---|---|---| |Initial donation|**-**|||||**250**| |Corporate donations||||||**200**| |Insulinoma e-Bookproceeds|**4**|||||**45**| |Private donations|**3,650**|||||**1,150**| |Just Givingfunds - Enola Wright|**-**|||||**1,127**| |Just Givingfunds - Insulinoma CharityUK|**4,605**|||||**4,220**| |Adjustment - Just Giving funds -
Insulinoma Charity UK - amount incorrectly
shown as receipt in A1 Receipts in 2024
and in B2 Other Monetary Asset in 2024 -
receipt was actually post Year End in 2024|**- 4,220**|||||**-**| |Deposit Account Interest|**73**|||||**-**| |**_Sub total_**_(Gross income for_
_AR)_|
**4,112**|||||**6,992**| |||||||| |**A2 Asset and investment sales,**
**(see table).**||||||| ||**-**|||||| ||**-**|||||**-**| |**_Sub total_**|**-**|||||**-**| |**_Total receipts_ **
**A3 Payments**||||||| |||||||**6,992**| |||||||| |Fund raisingevent costs/fees|**900**|||||**-**| |Software and Website fees/licenses|**156**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| |**_Sub total_ **|**1,056**|||||**-**| |||||||| |**A4 Asset and investment**
**purchases, (see table)**||||||| ||**-**|||||| ||**-**|||||| |**_Sub total_ **|**-**|||||**-**| |**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**||||||| |||||||**-**| |||||||| ||**3,056**|**-**||**3,056**||**6,992**| ||**-**|**-**||**-**||**-**| ||**-**|**-**||**-**||**-**| ||**3,056**|**-**||**3,056**||**6,992**| CCXX R1 accounts (SS) 12/01/2026 1 ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B1 Cash funds**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
**B3 Investment assets**|Signature
**Details**
**Details**
Co-operative Bank - Current Account
Co-operative Bank - Deposit Account
**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**725**
**-**
**9,323**
**-**
**-**
**-**
**10,048**
**-**
Agreement Error
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
Enola Wright
Peter Collins|**Endowment**
**funds**
**to nearest £**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**Endowment**
**funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| |||Enola Wright|**17/12/2025**| |||Peter Collins|**17/12/2025**| CCXX R2 accounts (SS) 12/01/2026 2