GAND AID UK: For the Year End 31 March 2025 GAND AID UK CIO - FOUNDATION ANNUAL REPORT al and Administrative Services Trustees Gene Shaun Selby (Chair) Rebecca Selby Brian Camey Alexandra Johnson Charlty Numb 1202691 Prlnclpal Addre88 2 Carr Head New Barn Lane Rossendale 8B4 7AQ Flnanclal Examlnor SSJ Accounting Ltd 56 Mill Gate Ackworth Pontefract WF7 7PN
GAND AID UK: Forthe Year End 31 March 2025 Trustees Report P.3-8 Independent examinerfs report Statement of finanaal activities P.10
GAND AID UK: Forthe Year End 31 Marth 2025 GAND AID UK CIO- FOUNDATION Trustees Report For the Year End 31 March 2026 The annual report covers 01 April 2024 to 31 March 2025 and acknovAedges SORP 2019 relevant to this accounting period in using its guidance to assist GAND AID UK (registered 12 April 2023) and FRS102 for accounting purpos8s in compiling tl report and meeting its obligations as a registered Charity Incorporated Organisation (CIO) in adopting the 'Accountin9 and Reportsng by Charibes. Statement of Recommended Practice applicable to chartties prepanng their financial ststernents in accordance bmth the Financial Reporting Standard applicable in the UK and Republic of Ireland {effectiv8 1 January 2019).. It is also noted that future accountin9 periods will respond to the updated SORP 2026 with re9ard to repo.n9 updates. Chalr'8 Report Gene Shaun Sèlb Th8 report recognises that GAND AID UK is set up for the purposes of its pnmary users, stakeholders and the stewardship and management of funds during and within its fundraising activitias The Charity, within its second year of reportsng, has engaged with donors, funders and financial supporters that continue to help raise funds within the early start-up of the charity. l am satr'sfi8d that GAND AID UK has effectively targeted appropriate audiences through the creation of a lomial wbsite and associated srrial media platforms, established a UK database of those affected by the neurodevelopmental condition, and through furKJraising activities. providing direct access to GAND AID UK officials both online and-or in person. l am, therefore, satisfied that GANO AID UK is continuing to build the foundab'on to meet its charitable obligatior6 and continues to remain finanallY viable beyond its initial start-up. The report is compiled by the Charity's Trustees and use of a Company for financial accounting purposes, although the second-year's financial income amount falls short of fomal auditsng requirements. Ob ectiv and Activit1•8 The objectives of the Chanty remain unchanged arKI for. The relief of sickness and the preservation and protectron of health for the Public Benefit of people affected by or suffering from GATAD2B-ASSOCIATED NEURODEVELOPMENTAL DISORDER (GAND) and in parbcular but without limitation by al providing advi, edu¢ats'on and support for such persons and their families including Ihe provision of Servi dogs b) raising awareness about GAND and providing infonnats'on and advi* to members of the medical profession and c) funding research into GAND and early idents"ficatson and possible treatment.
GAND AID UK: Forthe Year End 31 March 2025 In response, the Charity has created a fomial website (gandaiduk.orgl th associated social media access. 'get involved. contact Infomiats'on and useful resource links in both providing information and raising awareness. The Charity organised a number of fundraising events in generating fiJrth8r awareness and continues to subscribe to the Glijbal 'Rare SeaSe. Day campaign using both the UK and European platforms. The Charity has established a UK database of affected families with some consenting to the use of their data for medical research purposes. The database also provides the opportunity to communicate directly with those aff8Cted by the condition and the Charity is increasing its networks to reach those organisats'ons and profèssions that are able to contnbute to its charitable aims and objectives. Public Benefit Statemont The Twstees meet on a scheduled basis to plan, review and implement the Charity's strategy wilh the Trustees paying due regard tt) the guidan on its obligab'ons to deliver activits'6s for the Public Benefit, as those described and issued by the Charity Commission. The Charity is confident that it has initiated the types of adivities that provides a Public Benefrt through its acthons, and continues to build momentum in which it is able to reach its int8nded tsrget groups and particulady families Achlevemont and Perfomiance The Charity has established a close Nvorking lationShiP with Us-based Dr Tyler Pierson (Medical Doctor and Primary Investigator of GATA02B) and has referred a number of UK families to Dr Pierson's research programme. Dr Pierson has committed to attend GAND AID UK inaugural GAND Conference in April 2025 and agreed to one-tckone consuftatson with all att8nding UK families. Wèbsite The Charity continues to add and update its website providing links to activities and events. The website is conts'nually updated with the latest news and features. The website includes the most recent research update i.e. 'Gatad2b, associated wrth the neurodevelopmental syndrome GAND, and provides open access to artide(s) distnbuted under the tenns of the Creab've Commons CC BY license. Social Media The Charity continues to uses Instagram to promote its activities and subscribes to both the UK and European 'Rare Disease, day platforms and continues to access EURODIS, which offers seminars and webcasts for training purposes. Press No Press coverage during this reporb'ng period.
GAND AID UK: For the Year End 31 Marth 2025 Merchandise The Charity designed T-shirts. Hoodies, and collaterals i.e branding, bannef5, booklets ahead of the inaugural Gand Aid UK conferen (April 2025). Fundraisin Events and Raisin Awareness Community Raffle (Ravrtenstsll, Lancashire) Rare Disease Da Februa 2025 ILEX General Practice held a GAND AID UK rare disease raising awareness day involving the Charity's Trustees arKI th8 local community. GAND Famil Folder A 'work in progress, project with updated versiorvJ including contributions from Dr Tyler Pierson and Summerseat Physiotherapy. Internab'onal NerkS Continuing working relaknonships with {a) 'Helping Hands, the United States charity for GAND Syndrome (b) EURODIS and (c) the Cedars-sinai Medical Centre (United States). which includes a focus on studies into neurodevelopmental condition8. Famil Su ort GAND AID UK provided a small grant toward physiotherapy for a GAND4ffected child GAND AID UK Conference The Charity planned in advance the following ahead of the 12-13 April 2025 Conference.. aration Secured a Corporate Sponsor for the ven Designed and printed Event collaterals. Organised Travel and Accommodatson provision for Key Note Speaker Communicated with and invited over twenty-five families Secured Conference Speakers i.e. Specialists In Speech, Ear, Nose and Throat and Physiotherapy Financlal revlew The results for the year ending are shown in the Statement of Financial Ath'vib"es on page 10 and considered sab'sfactory by the Trustees This is the Charity's second year in fundraising activities and it is altgning and accumulating funds in line with charty objethves.
GAND AID UK-. For the Year End 31 March 2025 Reservès Polic At the year end the charity's funds were in credit by £25.511.47 consisting enb'rely of unrestricted funds generated through donations. The amortisation of goodwill (£5,C(IO) with regard to the seth'ng-up and maintenance of the Charity in the first twenty-four months wll be reflected in its reserve policy yth and increase to the above amount being eonsFd8red annual operats'ng expenses. Plans for Future Periods The core objective is (a) dellvering the inaugural 2025 UK-based GAND Conferenc8 Specifically targets'ng UK families and professionals in the field of neurodevelopment provision and (b) using the conference to fijlly engage with GANaffected families and building a database for communicats.on purposes. To further increase the number of TnJ8te8s. as per the Charity's constitutlon. Risk Mana ement The Trustees have revIevd their risk register (Governance. Strategic, Compliance, Operational. Financial. Exlemal arKI R8PUtational) vthi¢h in turn shapes and influences the Charity in ensuring that appropriate controls are in place and to reduce exposure to misunderstanding, error and potentsal fraud. Recrultment and A oinknen of New Tru$ In line with Charity's constitution, the Chanty added a fourth Trustee in meeting their obligation to reduce the risk of potents'al 'Conflicts of Interest, in addition to bringing In a wealth of experience in charity-associated ath'vitses. Truslee Tralnin The Trustees did not atterKI any fonnal training courses although one Trustee Completed an Animal-Assisted Therapy qualification in support of the Charity's wider provision. Str cture Governance and Mana ement GAND AID UK is a Charitable Incorporated Organisab'on (CIO - Foundation) govemed by a constitution dated 09 August 2022. The Charity was wistered on 12 April 2023 by the Charity Commission for England and Walas. The Trustees who served during the year are.. G S Selby R L Selby B Camey A Johnson O.B.E. The day-ttrday management remains the responsibility of R L Selby and B Camey with senior management G S Selby (Chair) taking responsibility for reporb'ng
GAND AID UK: For the Year End 31 Marth 2025 purposes, policy development and finala1 management. A Johnson will bring her considerable charity expertise and advise accordingly. On 13 July 2023, GAND AID UK successfully applied to the Charities Aid Foundation (CAF) Bank, a banking Servi for over 14,000 CharrtS. Registered office: 25 ngS Hill Avenue. Kings Hill. Wast Malling. Kent ME19 4JQ Registered in England and Wales urKler number 1837656 The Charity continues to deploy an enhanced security with dual authorisation needed for payment purposes. Statsment of the Trusteos Res nslbllitle• The primary purpose of the trustees, annual report is to ensure that the charity is.. publicly acc¢)untable to its stakeholders for the Stewardship and management of the funds it holds on trust - the report is considered a Corent document meeting the requirements of law and regulation - it provides a fair, balancEd and urKJerstsndable review of the charity's structure, legal purposes. objectives, actimts'es. financial performance and financial posib'on - it explains what the charity 18 set up to do, how it B going about rt, and what is achieved as a result of its work - assass the charity's progress against its objectives and to understand Its plans in relation to its purposes. The Trustees remain responsible for maintaining appropriate accounting records and providing financial statements in line with the Charities Act {2011), the Charity Regulations (2008) and within the articles of the Constitution in helping to redu the vulnerability to finanoal fraud and irregularity.
GAND AID UK: Forthe Year End 31 March 2025 The Trustees Report was approved on 19 January 2026 by the Board of Tnjstees: Gene Shaun Selby Trustee (Chair) Date.. 19 January 2026
GAND AID UK-. Forthe Year End 31 March 2025 Inde endent Examiners Re Respective responsibilities of trustees and examiner. The charitys trustees are resF)onsible for the preparation of the financial statements. The charitys trustees Consider that an audit is not required for this period under section 144(1) of the Charities Ad 2011 (the 2011 Act) and that an independent examination is needed. It is my pOnsibil to.. (i) examine the financial statements under section 145 of th8 2011 Act., {ii) to follow the procedures laid in the general 'reOn$ gNen by the Charity Commission under section 14515)(b) of the 2011 Act; and (iii) to state whether particular matters have corne to my attention. Foundats'on for Examiner R ort The examinats'on was conducted in accordance with directives provided by the Charity Commission. that the examinab'on included a review of the accounting r8cords kept by the Chanty and an assessment of the financial statements submitted with thos8 records. ort The procedures undertaken do not provide all th8 evidence that would be required in an audlt and consequently no opinion is given as to whether the financial ststements present a 'true and fair and Ihe report is limited to those matters set out in th8 statement below. Independent examinerfs statement In piecing together the examination, no matters have arlsen that (a) gives me reasonable cause to believe that in any material respect th& requirements.. (i) to maintain account'rng records in accordance with secb'on 130 of the 2011 Act,. and, (li) to prepare financial statements which accord wrth the accounb'ng records, and comply with the accounb'ng requirements of the 2011 Act., have not been met or (bl to which. in my opinion. attention should be drawn in order to enable a propar understarKling of the financial statements to b8 reached. SSJ Accountsng Limited 56 Millgate, Ackworth Pontefract, West Yorkshire WF7 7PN
6AND AID UK.. For the Year End 31 March 2025 For the Year End 31 March 2025 Income & Expendlture Year 2 Year 1 3110312025 3110312024 In¢ome Donation• 11,279.12 18,270.70 Int•r08t Rocelv 19.38 TOTAL INCOME 11,327.32 18,840.28 Expenditur• Bank & Flnance charges 69.IXI Fllghts 4,11JO.IJ) Physlo 4 Progrn•• 260.00 8annornlLoanets 139.20 TOTAL EXPENDITURE 4,589.20 59.00 Surplus 6,738.12 18,781.28 The Financial Statement was approved by the Board of Tnjstees on 19 January 2026 and was signed on its behalf by.. Gene Shaun Selby Trustee (Chair) Date.. 19 January 2026 io
GAND AID UK-. Forthe Year End 31 March 2025 Accountin Pollcies 1. Goin concem" (a) At the tsme of approviThJ the financial statements, the Trustees consider that they have made a reasonable progress during their 2na.year and maintain an expectation that the charity has generated sufficient resources to contsnue in operational e$tence for the foreseeable futur8. 2. Incomin resources (a) Income amounts can be measured reliably with donors encouraged to pay directly into the CAF Bank account. These amounts remain unrestricled funds until such time that conditions are placed on funds. It is not the intenb'on to hold any '¢ash in-hand, amounts. 3. Govemance Costs (a) To date, there is no associated experKliture with the Charity's activiti88 or administrative services li