Trustees. Annual Report for the period Period start date Period end date 2023 2024 From To Section A Reference and administration details Charity name Myodesopsia Intemational Other names charity is known by Registered charity number {if any) 1202141 Charity's principal address Myodesopsia Internalional 4th Floor, 86-90 Paul Street London Postcode EC2A 4NE Names of the charity trustees who manage the charity Dates acted if not for whole ear Trustee name Office lif any) Name of person (or body) entitled toa oint trustee ifan Dymock Brett Matthew Mazewski Chair Alaster Moffal Mark Kelly Joanne Magpuri 0210312023 - 2310412023 0210312023 - 1610312023 10 12 13 14 15 16 17 18 19 20 Names of the trustees for the charity, if any, (for example, any custodian trustees) Name Dates acted if not for whole ear TAR March 2012
Names and addresses of advisers (Optional information) e of adviser Name Address Name of chief executive or names of senior staff members (Optional information) Section B Structure, governance and management Description of the charity's trusts Constitution Type of governing document leg. trust deed, constilutic How the charity is constituted leg. Irusl, ass Ilion, compar Charitable Incorporated Organisation - Association Model {ClO) Trustee selection methods leg. appointed by, elected I Elected by the membership at annual general meetings IAGMSI or appointed by trustees for specific purposes between AGMS. Additional governance issues {Optional infomiation} Given the small size of the Charity, all Trustees are performing executive roles at present in addition to their governance duties. The focus of the Board has been to scale up the Charity's capacity in furtherance of its charitable objects, and to ensure the financial stability of the organisation. You may choose to include additional information, where relevant, about.. policies and procedures adopted for the induction and training of trustees., the charity's organisational structure and any wider network with which the charity works., relationship with any related parties- trustees. consideration of major risks and the system and procedures to manage them. Due to limitations in funding and the need to build a system for managing the personal data of members, membership was not open during the period considered and the Charity was governed entirely by the Trustees. However, during this time, no Trustees were scheduled to retire by rotstion which would require replacement, so the limitations of no formal membership were minimal. No major risks to the Charity or ils members were identified during this time, as costs were minimal and could be covered by donations from Trustees. As mentioned above, Trustees are very mindful of the need to handle members, personal data in a secure fashion, and regret thal it was not possible to formally open membership during the period considered while a system to manage thal data was being set up. The Board of Trustees has made all possible efforts lo consult with experts on governance, data protection. organisational scaling and fundraising. as well as medical and scientific professionals lo further the advancement of the Charily s objects while slrictly adhering to all relevanl re ulalions. Section C Ob'ectives and activities TAR March 2012
11 To preserve and protect the health of individuals diagnosed with myodesopsia (also known as eye floaters or symplomatic vilreous floaters) in particular by.. Al promoling. supporting. sponsoring. and commissioning research into the diagnosis, underslanding and trealment of the condilion. Summary of the objects of the charity set out in its governing document Bl facililaling collaboralion belween patients, clinicians, and researchers in order to improve understanding of the condition and the patient experience. Cl providing up-to-dale and relevant information to individuals diagnosed with the condition and to medical professionals as a means of improving understanding and raising awareness of myodesopsia. 21 To relieve the needs of people diagnosed with myodesopsia, and by extension their families and carers, by providing assistance in the form of su ort networks for the atient communil The Trustees, in exercising their powers as elected representatives of Myodesopsia International. have had due regard for the Charity Commission's guidan on public benefit. In general, the major activities of the Charity in the period considered have been aimed al increasing capacity of the organisation, and establishing procedures that will allow it to continue successfully after the tenure of the current Trustees. In particular= Trustee Matthew Mazewski is involved in a study to ascertain the prevalence of myodesopsia in a sample of the general population of the United Stales of America. The Charity was, for a time. engaged in discussions to facililale Ihe Iransfer of funds from a large donor lo the Indiana University School of Medicine where the study is being carried out. While this was ultimately not necessary, the Trustees had productive discussions on the structure and planned timeline for the study. Additionally, informal arrangements have been made for the Charity to help publicise the findings of this research, in line with object 1 (Al. Summary of the main activilies undertaken for the public benefit in relation to Ihese objects (include within this section the slatutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit) In pursuan of object 1{B}, the Charity and Trustees have maintained open lines of communication with a number of medical professionals with expertise in the area of myodesopsia and have explored possibilities for future Gollaboration. The Trustees believe that the building of a patient- physician network will be crucial to improving the understanding of the condition and the patient experience. In pursuance of object 1 {C), the Charity engaged a volunteer to help curate a research repository of up-to-date, peer-reviewed scientific literature on the topic of myodesopsia, ils diagnosis, and ils Irealment. This repository is now freely available on the Charity website and will be updated and rnaintained as new relevant research is published. In pursuance of object 2, Ihe Charity has developed for its websile a section dedicaled to recommendations for non-medical adjustments patients may make lo their lives thal other patients have found helpful in their experience of Ihe condition, while making clear thal this resource is not a substitute for medical advice provided by a qualified professional. The Trustees believe this repository leverages the patient experience to lessen Ihe suffering of other palients. In pursuan of object 2, Ihe charity maintains open lines of communication with a broader atient neork, includin throu TAR March 2012
volunteer whose primary focus is engagement with the online community. The Charity now maintains a section on its website for individuals to read lanonymisedl stories detailing the experiences of other patienls. and to submit their own if desired. Additional details of objectives and activities (Optional information) You may choose to include further statements, where relevant, about- policy on grantmaking- policy programme related investment., contribution made by volunteers. TAR March 2012
Section D Achievements and performance The Charity established a bank account with HSBC through which all funds are now managed. This has allowed the creation of a PayPal account for receiving donations. Summary of the main achievements of the charity during the year A new website has been developed that is easily maintained and that has very few overhead costs. This website is being used in pursuance of a number of the Charity's objects, and also has embedded a donation link powered by PayPal. The development of a freely available research repository with lay summaries of the research projects is a highlight of the year, and has enabled the Charity to begin making inroads into bridging the knowledge gap between patients, scientists, and medical professionals. Numerous productive conversations have occurred wilh medical professionals who may be future advisors to the Charily, and with other similar organisations who have expressed their positive view of the Charity's mission and have given advice for next steps. A Strategic Vision document was prodUd by Trustees that outlines (il The Charity and ils formalion- lill the condition of myodesopsia, including the challenges fad by patients- {iiil The Charily s vision for the future and how it plans to achieve those goals,. and (iv) a call to aclion for potential volunteers and funders. This documenl is freely available on Ihe Charily s website. TAR March 2012
Section E Financial review Given the small amounl of funds held by the Charity al any one time, with costs covered on a monthly basis, the Charity does not currently have a reserves policy. The main benefits provided to beneficiaries at present are provided through the Charity's website, which is paid for each year in advance, al very low cost. The Board of Trustees reviews the Charity's financial situation formally every quarter, and infomially on a weekly basis, ensuring that all costs are covered. In light of the low ongoing costs, the srnall amount of funds held by the Charity al any one lime, and the regular monitoring of the Charity's finances, the Trustees feel that a reserves olic is unnecessa at resent. Brief statement of the charity's policy on reserrfes Details of any funds materially in deficit None Further financial review details (Optional information) The Charity is principally funded at present by small donations from individuals, including the Trustees. Where appropriate and according to the Charity's policy on such transactions, loans from Trustees have been accepted to cover one-off or ongoing costs. You may choose lo includ6 additional information. where relevant about.. the charity's principal sources of funds {including any fundraisingl- how expenditure has supported the key objectwes of Ihe charity., investment policy and objectives including any ethical investment policy adopted. The main sources of expenditure during the period considered have been the maintenance of a physical address and the hosting of a website. The Charity s website is a key tool for enabling it to pursue its objects, allowing low-cost dissemination of knowledge about the condition to the general public. At present, the Charity holds no investments. Section F Other optional information Section G Declaration The trustees declare that they have approved the trustees, report above. Signed on behalf of the charity's trustees Signalure(s) Full name{s) Position (eg Secretary, Chair, etc) Dymock Brett Chair Date 20 - 01 2025 TAR March 2012
CHARITY COMMISSION FOR ENGLAND AND WALES yodesopsia International Recei ts and ments accounts CC16a è perio from 21312023 To 311312024 Section A Receipts and payments Unrestricted funds to the nearest Restricted funds Endowment funds Total funds Last year to the neartrst £ to the neartrst £ io the ntrarest £ to thé ntrar*st £ A1 Recei Start-up funds Tru818tr Donations Refunded Payments 39 145 34 39 145 Sub total(Gross income for AR) 218 218 5set an See table . Investment sa es, Sub total Total receipts 218 21 A3Pa ents Bank Fees IT Costs Virtual Offi 23 19 23 19 150 Sub total 192 192 A4 Asset and investment Sub total 192 192 Net of receipts/(payments) A5 Transfers between funds AS Cash funds last yèar ènd Cash funds this year end 26 26 26 CCXX R1 accounts ISSI 2010112025
Section B Statement of assets and liabilities at the end of the period Unrestricted funds Restricted funds Endowment funds Categories Details to nearest £ to nearest £ to nearest £ B1 Cash funds Tmste8 Loans 26 Total cash funds 26 Unrèstrlct8d funds to n&ar&st £ Rèstrlct8d funds to noarest £ Endowmènt funds to n&are8t £ D•taSls B2 Other monetary assets Fund to whlch asset belon Cost loptionall CutTsnt value tional Detai15 B3 Investment assets Fund to which asset belon unr88irici8d Details domain nam& Cost loptlonall Current value B4 Assets retained for the charity's own use Fund to which relates Amount duè tional When duè tional Details B5 Liabilities Signed by one or two trustees on behalf of all the trustees Date of roval Signature Print Name Dymock Brett 20-01 202 CCXX R2 accounts ISSI 2010112025