Trustees. Annual Report for the period
Period start date
Period end date
2023
2024
From
To
Section A
Reference and administration details
Charity name
Myodesopsia Intemational
Other names charity is known by
Registered charity number {if any)
1202141
Charity's principal address
Myodesopsia Internalional
4th Floor, 86-90 Paul Street
London
Postcode
EC2A 4NE
Names of the charity trustees who manage the charity
Dates acted if not for whole
ear
Trustee name
Office lif any)
Name of person (or body) entitled
toa
oint trustee
ifan
Dymock Brett
Matthew Mazewski
Chair
Alaster Moffal
Mark Kelly
Joanne Magpuri
0210312023 - 2310412023
0210312023 - 1610312023
10
12
13
14
15
16
17
18
19
20
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name
Dates acted if not for whole
ear
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Names and addresses of advisers (Optional information)
e of adviser
Name
Address
Name of chief executive or names of senior staff members (Optional information)
Section B
Structure, governance and management
Description of the charity's trusts
Constitution
Type of governing document
leg. trust deed, constilutic
How the charity is constituted
leg. Irusl, ass
Ilion, compar
Charitable Incorporated Organisation - Association Model {ClO)
Trustee selection methods
leg. appointed by, elected I
Elected by the membership at annual general meetings IAGMSI or
appointed by trustees for specific purposes between AGMS.
Additional governance issues {Optional infomiation}
Given the small size of the Charity, all Trustees are performing executive
roles at present in addition to their governance duties. The focus of the
Board has been to scale up the Charity's capacity in furtherance of its
charitable objects, and to ensure the financial stability of the organisation.
You may choose to include
additional information, where
relevant, about..
policies and procedures
adopted for the induction and
training of trustees.,
the charity's organisational
structure and any wider
network with which the charity
works.,
relationship with any related
parties-
trustees. consideration of
major risks and the system
and procedures to manage
them.
Due to limitations in funding and the need to build a system for managing
the personal data of members, membership was not open during the
period considered and the Charity was governed entirely by the Trustees.
However, during this time, no Trustees were scheduled to retire by
rotstion which would require replacement, so the limitations of no formal
membership were minimal.
No major risks to the Charity or ils members were identified during this
time, as costs were minimal and could be covered by donations from
Trustees. As mentioned above, Trustees are very mindful of the need to
handle members, personal data in a secure fashion, and regret thal it was
not possible to formally open membership during the period considered
while a system to manage thal data was being set up.
The Board of Trustees has made all possible efforts lo consult with
experts on governance, data protection. organisational scaling and
fundraising. as well as medical and scientific professionals lo further the
advancement of the Charily s objects while slrictly adhering to all relevanl
re
ulalions.
Section C
Ob'ectives and activities
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11 To preserve and protect the health of individuals diagnosed with
myodesopsia (also known as eye floaters or symplomatic vilreous
floaters) in particular by..
Al promoling. supporting. sponsoring. and commissioning research into
the diagnosis, underslanding and trealment of the condilion.
Summary of the objects of the
charity set out in its
governing document
Bl facililaling collaboralion belween patients, clinicians, and researchers
in order to improve understanding of the condition and the patient
experience.
Cl providing up-to-dale and relevant information to individuals diagnosed
with the condition and to medical professionals as a means of improving
understanding and raising awareness of myodesopsia.
21 To relieve the needs of people diagnosed with myodesopsia, and by
extension their families and carers, by providing assistance in the form of
su
ort networks for the
atient communil
The Trustees, in exercising their powers as elected representatives of
Myodesopsia International. have had due regard for the Charity
Commission's guidan￿ on public benefit.
In general, the major activities of the Charity in the period considered
have been aimed al increasing capacity of the organisation, and
establishing procedures that will allow it to continue successfully after the
tenure of the current Trustees. In particular=
Trustee Matthew Mazewski is involved in a study to ascertain the
prevalence of myodesopsia in a sample of the general population of the
United Stales of America. The Charity was, for a time. engaged in
discussions to facililale Ihe Iransfer of funds from a large donor lo the
Indiana University School of Medicine where the study is being carried
out. While this was ultimately not necessary, the Trustees had productive
discussions on the structure and planned timeline for the study.
Additionally, informal arrangements have been made for the Charity to
help publicise the findings of this research, in line with object 1 (Al.
Summary of the main
activilies undertaken for the
public benefit in relation to
Ihese objects (include within
this section the slatutory
declaration that trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit)
In pursuan￿ of object 1{B}, the Charity and Trustees have maintained
open lines of communication with a number of medical professionals with
expertise in the area of myodesopsia and have explored possibilities for
future Gollaboration. The Trustees believe that the building of a patient-
physician network will be crucial to improving the understanding of the
condition and the patient experience.
In pursuance of object 1 {C), the Charity engaged a volunteer to help
curate a research repository of up-to-date, peer-reviewed scientific
literature on the topic of myodesopsia, ils diagnosis, and ils Irealment.
This repository is now freely available on the Charity website and will be
updated and rnaintained as new relevant research is published.
In pursuance of object 2, Ihe Charity has developed for its websile a
section dedicaled to recommendations for non-medical adjustments
patients may make lo their lives thal other patients have found helpful in
their experience of Ihe condition, while making clear thal this resource is
not a substitute for medical advice provided by a qualified professional.
The Trustees believe this repository leverages the patient experience to
lessen Ihe suffering of other palients.
In pursuan￿ of object 2, Ihe charity maintains open lines of
communication with a broader
atient ne￿ork, includin
throu
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March 2012

volunteer whose primary focus is engagement with the online community.
The Charity now maintains a section on its website for individuals to read
lanonymisedl stories detailing the experiences of other patienls. and to
submit their own if desired.
Additional details of objectives and activities (Optional information)
You may choose to include
further statements, where
relevant, about-
policy on grantmaking-
policy programme related
investment.,
contribution made by
volunteers.
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Section D
Achievements and performance
The Charity established a bank account with HSBC through which all
funds are now managed. This has allowed the creation of a PayPal
account for receiving donations.
Summary of the main
achievements of the charity
during the year
A new website has been developed that is easily maintained and that has
very few overhead costs. This website is being used in pursuance of a
number of the Charity's objects, and also has embedded a donation link
powered by PayPal.
The development of a freely available research repository with lay
summaries of the research projects is a highlight of the year, and has
enabled the Charity to begin making inroads into bridging the knowledge
gap between patients, scientists, and medical professionals.
Numerous productive conversations have occurred wilh medical
professionals who may be future advisors to the Charily, and with other
similar organisations who have expressed their positive view of the
Charity's mission and have given advice for next steps.
A Strategic Vision document was prodU￿d by Trustees that outlines (il
The Charity and ils formalion- lill the condition of myodesopsia, including
the challenges fa￿d by patients- {iiil The Charily s vision for the future
and how it plans to achieve those goals,. and (iv) a call to aclion for
potential volunteers and funders. This documenl is freely available on Ihe
Charily s website.
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Section E
Financial review
Given the small amounl of funds held by the Charity al any one time, with
costs covered on a monthly basis, the Charity does not currently have a
reserves policy. The main benefits provided to beneficiaries at present
are provided through the Charity's website, which is paid for each year in
advance, al very low cost. The Board of Trustees reviews the Charity's
financial situation formally every quarter, and infomially on a weekly
basis, ensuring that all costs are covered. In light of the low ongoing
costs, the srnall amount of funds held by the Charity al any one lime, and
the regular monitoring of the Charity's finances, the Trustees feel that a
reserves
olic
is unnecessa
at
resent.
Brief statement of the
charity's policy on reserrfes
Details of any funds materially
in deficit
None
Further financial review details (Optional information)
The Charity is principally funded at present by small donations from
individuals, including the Trustees. Where appropriate and according to
the Charity's policy on such transactions, loans from Trustees have been
accepted to cover one-off or ongoing costs.
You may choose lo includ6
additional information. where
relevant about..
the charity's principal
sources of funds {including
any fundraisingl-
how expenditure has
supported the key objectwes
of Ihe charity.,
investment policy and
objectives including any
ethical investment policy
adopted.
The main sources of expenditure during the period considered have been
the maintenance of a physical address and the hosting of a website. The
Charity s website is a key tool for enabling it to pursue its objects,
allowing low-cost dissemination of knowledge about the condition to the
general public.
At present, the Charity holds no investments.
Section F
Other optional information
Section G
Declaration
The trustees declare that they have approved the trustees, report above.
Signed on behalf of the charity's trustees
Signalure(s)
Full name{s)
Position (eg Secretary, Chair,
etc)
Dymock Brett
Chair
Date
20 - 01 2025
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CHARITY COMMISSION
FOR ENGLAND AND WALES
yodesopsia International
Recei
ts and
ments accounts
CC16a
è perio
from
21312023
To
311312024
Section A Receipts and payments
Unrestricted
funds
to the nearest
Restricted
funds
Endowment
funds
Total funds
Last year
to the neartrst £
to the neartrst £
io the ntrarest £
to thé ntrar*st £
A1 Recei
Start-up funds
Tru818tr Donations
Refunded Payments
39
145
34
39
145
Sub total(Gross income for
AR)
218
218
5set an
See table .
Investment sa
es,
Sub total
Total receipts
218
21
A3Pa
ents
Bank Fees
IT Costs
Virtual Offi
23
19
23
19
150
Sub total
192
192
A4 Asset and investment
Sub total
192
192
Net of receipts/(payments)
A5 Transfers between funds
AS Cash funds last yèar ènd
Cash funds this year end
26
26
26
CCXX R1 accounts ISSI
2010112025

Section B Statement of assets and liabilities at the end of the period
Unrestricted
funds
Restricted
funds
Endowment
funds
Categories
Details
to nearest £
to nearest £
to nearest £
B1 Cash funds
Tmste8 Loans
26
Total cash funds
26
Unrèstrlct8d
funds
to n&ar&st £
Rèstrlct8d
funds
to noarest £
Endowmènt
funds
to n&are8t £
D•taSls
B2 Other monetary assets
Fund to whlch
asset belon
Cost loptionall
CutTsnt value
tional
Detai15
B3 Investment assets
Fund to which
asset belon
unr88irici8d
Details
domain nam&
Cost loptlonall
Current value
B4 Assets retained for the
charity's own use
Fund to which
relates
Amount duè
tional
When duè
tional
Details
B5 Liabilities
Signed by one or two trustees on
behalf of all the trustees
Date of
roval
Signature
Print Name
Dymock Brett
20-01 202
CCXX R2 accounts ISSI
2010112025