OpenCharities

Keep ME Breathing

Country
England & Wales
Charity number
1201757
Status
Registered
Registered
Jan. 27, 2023
Legal form
CIO

Address

Address
83 ROWAN AVENUE
HOVE
BN3 7JH

Activities

Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.

Objects: To Assist In The Treatment And Care Of Persons Suffering From Congenital Central Hypoventilation Syndrome (Cchs), By:i. The Provision Of Grants To Organisations Focusing On The Advancement In Understanding And Treatment Of Cchs.ii. Advancing The Education Of The General Public In All Areas Relating To Cchs.

Classification

How
Makes Grants To Organisations, Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Feb. 28, 2025 £134,340 £174,625
Sept. 30, 2023 £345,092 £32,103

Trustees

Name Appointed
James Oakley (Chair) Jan. 27, 2023
Eloise Francis Kent April 15, 2023
Emma Lucas Jan. 27, 2023
Stephanie Roberts Jan. 27, 2023