# KEEP ME BREATHING

## Details

- **Country:** England & Wales
- **Charity number:** 1201757
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 27, 2023
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1201757


## Contact

- **Address:** 83 ROWAN AVENUE, HOVE
- **Postcode:** BN3 7JH
- **Phone:** 07473633321
- **Email:** james@keepmebreathing.com
- **Website:** keepmebreathing.com



## Activities

**Objects:** TO ASSIST IN THE TREATMENT AND CARE OF PERSONS SUFFERING FROM CONGENITAL CENTRAL HYPOVENTILATION SYNDROME (CCHS), BY:I. THE PROVISION OF GRANTS TO ORGANISATIONS FOCUSING ON THE ADVANCEMENT IN UNDERSTANDING AND TREATMENT OF CCHS.II. ADVANCING THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CCHS.

**Activities:** Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS)  a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Feb. 28, 2025 | £134340 | £174625 | — | — |
| Sept. 30, 2023 | £345092 | £32103 | — | — |



## Trustees

- **James Oakley** (Chair) — appointed Jan. 27, 2023
- ELOISE FRANCIS KENT — appointed April 15, 2023
- Emma Lucas — appointed Jan. 27, 2023
- Stephanie Roberts — appointed Jan. 27, 2023