OpenCharities

UK Lysosomal Storage Disorder Collaborative

Lsd Collaborative

Country
England & Wales
Charity number
1201132
Status
Registered
Registered
Nov. 24, 2022
Legal form
CIO
Area of benefit
The UK And/or Overseas

Address

Address
Mps House
Repton Place
White Lion Road
Amersham
HP7 9LP

Activities

The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.

Objects: (1) The Only Objects For Which The CIO Is Established Are: (A) To Promote Health And Relieve Sickness And Distress Of Those Affected By Lysosomal Storage And Other Rare Disorders And Their Families And Carers, Including Through The Education Of The Public In All Matters Concerning These Diseases; And (B) To Promote The Efficiency And Effectiveness Of Charities And The Effective Use Of Charitable Resources Amongst Charities Established To Promote Health And Relieve Sickness In Relation To These Diseases, In Either Case, As The Trustees May Determine, Anywhere In The UK And/or Overseas(“the Objects”).

Classification

How
Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024
Dec. 31, 2023

Trustees

Name Appointed
Toni Angela Mathieson (Chair) Nov. 24, 2022
Allan David John Muir Nov. 24, 2022
Robert Stevens Nov. 24, 2022
Tanya Louise Collin-Histed Nov. 24, 2022
Valerie Ann Buxton Nov. 24, 2022