Trustees’ Annual Report for the period
From 22/12/2021 TO 31/03/2023
Charity name: Gorlin Syndrome Group
Charity registration number: 1197282
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related conditions. This includes their families and carers but not restricted to. The advancement of the education of the medical profession and the general public into Gorlin syndrome and its implications for the family. The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate the useful results thereof. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 | Undertaking surveys of the GS community in the UK to identify their needs and how they might be met, and holding a patient conference were carried out in the last year. Priority was also given to maintaining communication through Facebook, the new charityweb site, anewsletterand by email. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | Governance and public benefit guidance policies were reviewed and amended. |
Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference Para 1.38 Policy on grant making
| Policy on social investment including program related investment |
Para 1.38 | |
|---|---|---|
| Contribution made by volunteers |
Para 1.38 | Several trustees undertook sponsored activities to raise funds and awareness of the charity’s purposes on social media. |
| Other |
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The Trustees have reviewed the activities for the year to ensure they remain focused on the group's stated aims and objects and continue to deliver benefits to the public. The Trustees are satisfied that the charity's activities provide a wide public benefit. |
Additional information (optional) You may choose to include further statements where relevant about:
Achievements against Para 1.41 objectives set Performance of fundraising activities against objectives Para 1.41 set
| Investment performance against objectives |
Para 1.41 | |
|---|---|---|
| Other |
Financial Review
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The trustees are satisfied that the reserves held are sufficient to support the ongoing work of the charity. There are sufficient funds at the signing of the accounts to enable the charity to pay suppliers on time for the foreseeable future. |
|---|---|---|
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Account funds are monitored by the Treasurer, with a report on funds held given at every Executive meeting with other trustees. Funds held allow promotional media, grants and other means to increase knowledge and research in the charity’s goals. |
| Amount of reserves held | Para 1.22 | 15,833.16 |
| Reasons for holding zero reserves |
Para 1.22 | |
| Details of fund materially in deficit |
Para 1.24 | |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 |
| deficit Explanation of any uncertainties about the charity continuing as a going concern Para 1.23 |
deficit Explanation of any uncertainties about the charity continuing as a going concern Para 1.23 |
deficit Explanation of any uncertainties about the charity continuing as a going concern Para 1.23 |
|---|---|---|
| Additional information (optional) You may choose to include further statements where relevant about: |
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| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | Donations from the general public and additional funds from the charity’s own trustees by seeking sponsorship for individual events. |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | The trustees have resolved to maintain surplus funds on the deposit account whilst they further develop the strategic plan for the group going forward. |
| A description of the principal risks facing the charity |
Para 1.46 | The trustees identify and record internal and external risks envisaged in any action, situation, or program of activities. After due consideration, action will be taken to avoid or minimize the risk. This includes not proceeding with a program. Where a risk has been identified but the benefits to Gorlin |
Syndrome Group or its beneficiaries are deemed worthwhile, then transfer of risk through outsourcing, insurance or other constitutional action is considered. Other
Structure, Governance and Management
| Description of charity’s trusts: | ||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Governing Document The Constitution was adopted in January 2002 and updated in March 2021. The charity is administered by an Executive Committee comprising the Chair, Treasurer and Secretary with 3 other trustee members. Executive Committee members hold office for 3 years, but may be re-appointed for a further term(s) thatmay befor less than 1year. |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | The charity was granted CIO (Charity Incorporated Organisation) status by the Charity Commission, England and Wales on the 22nd of December 2021. |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | The Group have a written policy pertaining to the recruitment and re-election of trustees. An annual review of the roles and responsibilities of trustees is undertaken to ensure a fair distribution of the work of the charity. This policy underlines the principle of equal opportunity within an open and efficient process of recruiting, retaining and supervising a diverse Executive Committee. Applicants to the Executive are required to complete an Application Form including a declaration of eligibility to become a trustee. Following this stage, suitable applicants are invited to meet the trustees so that they can be further assessed and fully informed about the role and in turn ask questions of the trustees. All successful applicants are contacted within 48 hours and personal referees contacted. New trustees are formally appointed at the next AGM and provided with an induction pack and training programme based on individual need. |
Additional information (optional) You may choose to include further statements where relevant about:
Policies and procedures
| adopted for the induction and training of trustees |
Para 1.51 | |
|---|---|---|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | |
| Relationship with any related parties |
Para 1.51 | |
| Other |
Reference and Administrative details
| Charity name |
Gorlin Syndrome Group |
|---|---|
| Other name the charityuses | |
| Registered charity number | 1197282 |
| Charity’s principal address |
43 Tor View Tregadillett Launceston Cornwall PL15 7HB |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
|---|---|---|---|---|
| David Rowley | Chair | Resigned February 2023 |
||
| John Dooher | Treasurer | |||
| Peter Rowley | Secretary | Resigned February 2023 |
||
| Margaret Costello | Passed away September 2022 |
|||
| VickyGill | Chair | Chair from 26/02/2023 | ||
| Sam Gill | Resigned December 2022 |
|||
| Martin Hill | ||||
| Jan Heath | Resigned December |
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2022
9 Sally Webster Resigned 21/01/2022
Stephen Morton Secretary Joined 22/09/2022,
10 Appointed Secretary
February 2023
11 Andrew Gill Joined 19/01/2023
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– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects
Details of arrangements for safe custody and segregation
of such assets from the charity’s own assets
Additional information (optional) Names and addresses of advisers (Optional information) Type of Name Address adviser Medical GARETH EVANS Medical JOHN LEAR Medical CATHERINE HARWOOD
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees Signature(s) A W Gill Full name(s) ANDREW WILLIAM GILL Position (eg Treasurer Secretary, Chair, etc) Date 14/05/2024
No (if any) Gorlin Syndrome Group CN 1197282
Receipts and payments accounts
For the period Period start date Period end dat To from 22/12/2021 31/03/2023 Section A Receipts and payments Unrestricted Restricted Endowment Total fund funds funds funds to the nearest to the neares to the nearest £ to the nearest £ £ A1 Receipts Interet on deposit accounts 136 - - 136 Donations and Grants 7,251 - - 7,251 Fees for charitable servies 7,478 - - 7,478 Give aid 976 - - 976 Failed payment 238 - - 238 - - - - - - - - - - - - Sub total (Gross income for AR) 16,079 - - 16,079 A2 Asset and investment sales, (see table). - - - - - - - Sub total 16,07 Total receipts 9 - - 16,079 A3 Payments Insurance 99 - - 99 Grants and donations paid 5,000 5,000 Bank charges 91 - - 91 Voluntary recipts 1,875 1,875 General running costs 5,500 5,500 - - - - - - - -
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- - - -
- - - -
Sub total
12,565 - - 12,565
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total
- - - -
12,56
Total payments 5 - - 12,565
Net of receipts/(payments) 3,51 3,
4 - -
A5 Transfers between funds
- - - -
A6 Cash funds last year end
- - -
Cash funds this year end 3,51
4 - - 3,514
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Section B Statement of assets and liabilities at the end of the period
Unrestricted Restricted Categories Details funds funds to nearest £ to nearest £ B1 Cash funds Bank account 1 20,515 Bank account 2 15,883 - - Total cash funds 36,398 (agree balances with receipts and payments Agreement account(s)) Error OK Unrestricted Restricted funds funds Details to nearest £ to nearest £ B2 Other monetary assets - - - - - - - - - - - -
B3 Investment assets
B4 Assets retained for the charity’s own use
B5 Liabilities
Signed by one or two trustees on behalf of all the trustees
Details
Details
Details
Signature
Fund to which asset belongs - - - - -
Fund to which asset belongs
-
Fund to which Amount due liability relates (optional) - - - - -
Print Name
A W GILL