## **Trustees’ Annual Report for the period**
**From 22/12/2021 TO 31/03/2023**
**Charity name: Gorlin Syndrome Group**
**Charity registration number: 1197282**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The relief of sickness and the protection and
preservation of the health of persons affected
by Gorlin syndrome and any related
conditions. This includes their families and
carers but not restricted to.
The advancement of the education of the
medical profession and the general public
into Gorlin syndrome and its implications for
the family.
The promotion of research into the causes,
effects, treatment and management of Gorlin
syndrome and to disseminate the useful
results thereof.|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.|Para 1.17 and 1.19|Undertaking surveys of the GS community in
the UK to identify their needs and how they
might be met, and holding a patient
conference were carried out in the last year.
Priority was also given to maintaining
communication through Facebook, the new
charityweb site, anewsletterand by email.|
|Statement confirming whether
the trustees have had regard
to the guidance issued by the
Charity Commission on public
benefit|Para 1.18|Governance and public benefit guidance
policies were reviewed and amended.|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
SORP reference Para 1.38 Policy on grant making
|Policy on social investment
including program related
investment|Para 1.38||
|---|---|---|
|Contribution made by
volunteers|Para 1.38|Several trustees undertook sponsored
activities to raise funds and awareness of the
charity’s purposes on social media.|
|Other|||
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to the
circumstances of its
beneficiaries and any wider
benefits to society as a whole.|Para 1.20|The Trustees have reviewed the activities for
the year to ensure they remain focused on
the group's stated aims and objects and
continue to deliver benefits to the public. The
Trustees are satisfied that the charity's
activities provide a wide public benefit.|
## **Additional information (optional)** You may choose to include further statements where relevant about:
Achievements against Para 1.41 objectives set Performance of fundraising activities against objectives Para 1.41 set
|Investment performance
against objectives|Para 1.41||
|---|---|---|
|Other|||
## **Financial Review**
|Review of the charity’s
financial position at the end of
the period|Para 1.21|The trustees are satisfied that the reserves
held are sufficient to support the ongoing
work of the charity. There are sufficient funds
at the signing of the accounts to enable the
charity to pay suppliers on time for the
foreseeable future.|
|---|---|---|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Account funds are monitored by the
Treasurer, with a report on funds held given
at every Executive meeting with other
trustees. Funds held allow promotional
media, grants and other means to increase
knowledge and research in the charity’s
goals.|
|Amount of reserves held|Para 1.22|15,833.16|
|Reasons for holding zero
reserves|Para 1.22||
|Details of fund materially in
deficit|Para 1.24||
|Explanation of any
uncertainties about the charity
continuing as a going concern|Para 1.23||
|deficit
Explanation of any
uncertainties about the charity
continuing as a going concern
Para 1.23|deficit
Explanation of any
uncertainties about the charity
continuing as a going concern
Para 1.23|deficit
Explanation of any
uncertainties about the charity
continuing as a going concern
Para 1.23|
|---|---|---|
|**Additional information (optional)**
You may choose to include further statements where relevant about:|||
|The charity’s principal sources
of funds (including any
fundraising)|Para 1.47|Donations from the general public and
additional funds from the charity’s own
trustees by seeking sponsorship for individual
events.|
|Investment policy and
objectives including any social
investment policy adopted|Para 1.46|The trustees have resolved to maintain
surplus funds on the deposit account whilst
they further develop the strategic plan for the
group going forward.|
|A description of the principal
risks facing the charity|Para 1.46|The trustees identify and record internal and
external risks envisaged in any action,
situation, or program of activities. After due
consideration, action will be taken to avoid or
minimize the risk. This includes not
proceeding with a program. Where a risk has
been identified but the benefits to Gorlin|
Syndrome Group or its beneficiaries are deemed worthwhile, then transfer of risk through outsourcing, insurance or other constitutional action is considered. Other
## **Structure, Governance and Management**
|Description of charity’s trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|Governing Document
The Constitution was adopted in January
2002 and updated in March 2021. The charity
is administered by an Executive Committee
comprising the Chair, Treasurer and
Secretary with 3 other trustee members.
Executive Committee members hold office for
3 years, but may be re-appointed for a further
term(s) thatmay befor less than 1year.|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|The charity was granted CIO (Charity
Incorporated Organisation) status by the
Charity Commission, England and Wales on
the 22nd of December 2021.|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled to
appoint one or more trustees|Para 1.25|The Group have a written policy pertaining to
the recruitment and re-election of trustees.
An annual review of the roles and
responsibilities of trustees is undertaken to
ensure a fair distribution of the work of the
charity. This policy underlines the principle of
equal opportunity within an open and efficient
process of recruiting, retaining and
supervising a diverse Executive Committee.
Applicants to the Executive are required to
complete an Application Form including a
declaration of eligibility to become a trustee.
Following this stage, suitable applicants are
invited to meet the trustees so that they can
be further assessed and fully informed about
the role and in turn ask questions of the
trustees. All successful applicants are
contacted within 48 hours and personal
referees contacted.
New trustees are formally appointed at the
next AGM and provided with an induction
pack and training programme based on
individual need.|
## **Additional information (optional)** You may choose to include further statements where relevant about:
Policies and procedures
|adopted for the induction and
training of trustees|Para 1.51||
|---|---|---|
|The charity’s organisational
structure and any wider
network with which the charity
works|Para 1.51||
|Relationship with any related
parties|Para 1.51||
|Other|||
## **Reference and Administrative details**
|**Charity name**
|**Gorlin Syndrome Group**|
|---|---|
|Other name the charityuses||
|**Registered charity number**|**1197282**|
|Charity’s principal address
|43 Tor View
Tregadillett
Launceston
Cornwall
PL15 7HB|
|||
**Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or**
**body) entitled to**
**appoint trustee (if**
**any)**|
|---|---|---|---|---|
||David Rowley|Chair|Resigned February
2023||
||John Dooher|Treasurer|||
||Peter Rowley|Secretary|Resigned February
2023||
||Margaret Costello||Passed away
September 2022||
||VickyGill|Chair|Chair from 26/02/2023||
||Sam Gill||Resigned December
2022||
||Martin Hill||||
||Jan Heath||Resigned December||
**----- Start of picture text -----**
2022
9 Sally Webster Resigned 21/01/2022
Stephen Morton Secretary Joined 22/09/2022,
10 Appointed Secretary
February 2023
11 Andrew Gill Joined 19/01/2023
12
13
14
15
16
17
18
19
20
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– Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
_Description of the assets held in this capacity_
_Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects_
_Details of arrangements for safe custody and segregation_
_of such assets from the charity’s own assets_
**Additional information (optional) Names and addresses of advisers (Optional information) Type of Name Address adviser Medical** GARETH EVANS **Medical** JOHN LEAR **Medical** CATHERINE HARWOOD
**Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees Signature(s)** A W Gill **Full name(s)** ANDREW WILLIAM GILL **Position (eg** Treasurer **Secretary, Chair, etc) Date** 14/05/2024
**No (if any) Gorlin Syndrome Group CN 1197282**
## **Receipts and payments accounts**
**For the period** Period start date Period end dat **To from** 22/12/2021 31/03/2023 **Section A Receipts and payments Unrestricted Restricted Endowment Total fund funds funds funds to the nearest to the neares to the nearest £ to the nearest £ £ A1 Receipts** Interet on deposit accounts **136 - - 136** Donations and Grants **7,251 - - 7,251** Fees for charitable servies **7,478 - - 7,478** Give aid **976 - - 976** Failed payment **238 - - 238 - - - - - - - - - - - -** _**Sub total** (Gross income for AR)_ **16,079 - - 16,079 A2 Asset and investment sales, (see table). - - - - - - -** _**Sub total**_ **16,07** _**Total receipts**_ **9 - - 16,079 A3 Payments** Insurance **99 - - 99** Grants and donations paid **5,000 5,000** Bank charges **91 - - 91** Voluntary recipts **1,875 1,875** General running costs **5,500 5,500 - - - - - - - -**
**----- Start of picture text -----**
- - - -
- - - -
Sub total
12,565 - - 12,565
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total
- - - -
12,56
Total payments 5 - - 12,565
Net of receipts/(payments) 3,51 3,
4 - -
A5 Transfers between funds
- - - -
A6 Cash funds last year end
- - -
Cash funds this year end 3,51
4 - - 3,514
**----- End of picture text -----**
## **Section B Statement of assets and liabilities at the end of the period**
**Unrestricted Restricted Categories Details funds funds to nearest £ to nearest £ B1 Cash funds** Bank account 1 **20,515** Bank account 2 **15,883 - -** _**Total cash funds**_ **36,398** (agree balances with receipts and payments Agreement account(s)) Error OK **Unrestricted Restricted funds funds Details to nearest £ to nearest £ B2 Other monetary assets - - - - - - - - - - - -**
## **B3 Investment assets**
**B4 Assets retained for the charity’s own use**
## **B5 Liabilities**
Signed by one or two trustees on behalf of all the trustees
## **Details**
## **Details**
## **Details**
Signature
**Fund to which asset belongs - - - - -**
**Fund to which asset belongs**
**-**
**Fund to which Amount due liability relates (optional) - - - - -**
Print Name
A W GILL