2025-03-31-accounts - Ttpnetwork

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Trustees’ Annual Re ort p

For the year ended 31 March 2025

Charity Name: TTPNetwork

Charity Number: 1195109

Legal Structure: Charitable Incorporated Organisation (CIO)

Principal Address: 61 Bridge Street, Kington, Herefordshire, HR5 3DJ

1. Objectives and Activities

a. Charitable Objectives

The charity’s objects are to relieve the needs of persons experiencing or affected by Thrombotic Thrombocytopenic Purpura (TTP) in the United Kingdom and the Republic of Ireland with an international reach. In particular but not exclusively, by: -

The provision of Information, advice, support, representation and advocacy in the interest of social welfare, to improve equity of access to treatments, preserve life and to improve the quality of life;
Promoting best practice and the advancement of education of TTP in relation to the cause, diagnoses, prevention, alleviation, treatments and cure by raising awareness and providing information to the public and healthcare professionals nationally, and internationally;
Representing the patient voice and strengthen patient advocacy on UK and international government and non-government departmental bodies and in consultations;
Promoting public support and providing assistance for the carrying out of research by making grants for the benefit of patients with TTP;
Generating income through fundraising activities for the purpose of improving patient care;
Engaging in nonpartisan political activity provided that the trustees are satisfied that the proposed activities will further the purposes of the charity to an extent justified by the resources committed and the activity is not the dominant means by which the charity carries out its objects;
and interfacing with other Charitable organisations and corporate partners to collaborate for the benefit of patients and their families.

b. Mission Statement & Vision

Mission Statement : To improve outcomes and quality of life for patients and families affected by TTP through support, education, and advocacy.

Vision : No patient or person affected by TTP will feel alone

c. Main Activities

In the year ending 31 March 2025, the charity provided a range of leaflets for patients, their families and employers to help with understanding TTP. The TTPNetwork website was regularly updated with resources and information and the Charity proactively engaged with healthcare professionals at the 11 specialist centres in England.

2. Achievements and Performance

Published a blog and downloadable information about diet and nutrition when diagnosed with TTP.
Produced further translations of the TTPNetwork patient letter which provides medical information and contact details in case of an emergency when travelling abroad. This is now available in 25 languages.
Supported 2 patients who had not been receiving regular check ups to connect with a specialist TTP centre.
Recruited the Charity’s first paid employee.
Maintained and moderated a closed Facebook group with 1220 members
Provided one-on-one support and signposting for patients and their families (excluding medical advice)

3. Financial Review

a. Overview

The total income for the year was £59,164, mainly from grants and donations. Expenditure totaled £25,464, with the main costs being salary.

b. Reserves Policy

The trustees aim to maintain unrestricted reserves of at least three months’ core expenditure.

c. Risk

A risk register is maintained and reviewed by the Board of Trustees at their quarterly meetings.

d. Fundraising

The charity does not use professional fundraisers. All fundraising is carried out by trustees and volunteers, with full compliance to the Code of Fundraising Practice.

4. Structure, Governance and Management

The charity is governed by its constitution dated 30th June 2021. It is a Charitable Incorporated Organisation registered with the Charity Commission on 9th July 2021.

Trustee Recruitment and Appointment

Trustees are appointed in accordance with the constitution. New trustees are recruited based on the needs of the charity and provided with an induction pack and signposted to relevant online training.

Trustees who served during the year:

Kiran Grewal (Joined September 2024) Julie Hallam (Joined September 2024) Catherine Howell OBE Saida Ladha Steven Lane (Resigned August 2024) Jo McIntyre (Resigned May 2024)

Trustee Meetings

The board met four times during the year.

5. Public Benefit Statement

The trustees confirm that they have complied with the duty in section 17(5) of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission.

TTPNetwork

Profit and Loss

April 2024 - March 2025


	APR 2024 - MAR 2025	APR 2023 - MAR 2024 (PY)
Income	£59,164.15	£44,758.93
Cost of Sales	£1,164.56	£1,314.07
TOTAL	£57,999.59	£43,444.86
Expenditures	£25,464.45	£24,231.66
NET OPERATING INCOME	£32,535.14	£19,213.20
Other Expenditures	£ -8.25	£0.00
NET OTHER INCOME	£8.25	£0.00
NET INCOME/(EXPENDITURE)	£32,543.39	£19,213.20

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Accrual Basis Tuesday 24 June 2025 03:47 pm GMT+01:00

TTPNetwork Independent Examination of 2024/25 Accounts

I report to the Trustees on my examination of the accounts of the TTPNetwork (Charity Number 1195109) for the year ended 31 March 2025.

Responsibilities and basis of report

As the charity trustees of the TTPNetwork you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in my respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable directions given by the Charity Commissioner under section 145(5)(b) of the Act.

Independent examiner’s statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

Accounting records were not kept in respect of the TTPNetwork as required by section 30 of the Act; or
The accounts do not accord with those records.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Dr Bernard Crotty CPFA

1 Bryn Coed, Radyr, Cardiff, CF15 8RH.

7 October 2025

Unqualified Report 2024_25.docx

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