OpenCharities

Ttpnetwork

Country
England & Wales
Charity number
1195109
Status
Registered
Registered
July 9, 2021
Legal form
CIO

Address

Address
61 Bridge Street
KINGTON
HR5 3DJ

Activities

TO RELIEVE THE NEEDS OF THOSE EXPERIENCING OR AFFECTED BY THROMBOTIC THROMBOCYTOPENIC PURPURA (TTP) IN THE UK AND THE REPUBLIC OF IRELAND WITH AN INTERNATIONAL REACH. BY:- THE PROVISION OF INFORMATION, ADVICE, SUPPORT, REPRESENTATION AND ADVOCACY. TO IMPROVE EQUITY OF ACCESS TO TREATMENTS, PRESERVE AND IMPROVE THE QUALITY OF LIFE AND PROMOTE BEST PRACTICE AND ADVANCEMENT OF EDUCATION IN TTP.

Objects: The Objects Of The CIO Are:-To Relieve The Needs Of Persons Experiencing Or Affected By Thrombotic Thrombocytopenic Purpura (Ttp) In The United Kingdom And The Republic Of Ireland With An International Reach. In Particular But Not Exclusively, By:-The Provision Of Information, Advice, Support, Representation And Advocacy In The Interest Of Social Welfare, To Improve Equity Of Access To Treatments, Preserve Life And To Improve The Quality Of Life;promoting Best Practice And The Advancement Of Education Of Ttp In Relation To The Cause, Diagnoses, Prevention, Alleviation, Treatments And Cure By Raising Awareness And Providing Information To The Public And Healthcare Professionals Nationally, And Internationally;representing The Patient Voice And Strengthen Patient Advocacy On UK And International Government And Non-Government Departmental Bodies And In Consultations;promoting Public Support And Providing Assistance For The Carrying Out Of Research By Making Grants For The Benefit Of Patients With Ttp;generating Income Through Fundraising Activities For The Purpose Of Improving Patient Care;engaging In Nonpartisan Political Activity Provided That The Trustees Are Satisfied That The Proposed Activities Will Further The Purposes Of The Charity To An Extent Justified By The Resources Committed And The Activity Is Not The Dominant Means By Which The Charity Carries Out Its Objects; Andinterfacing With Other Charitable Organisations And Corporate Partners To Collaborate For The Benefit Of Patients And Their Families.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With [Section7 Of The Charities And Trustee Investment (Scotland)act 2005] And [Section 2 Of The Charities Act (Northern Ireland) 2008].

Classification

How
Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups, The General Public/mankind

Areas of operation

Country
Ireland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £59,164 £25,464
March 31, 2024 £44,769 £24,232
March 31, 2023 £25,274 £2,470
March 31, 2022 £3,605 £311

Trustees

Name Appointed
Catherine Anne Howell OBE Feb. 18, 2021
Julie Hallam Aug. 21, 2024
Karen Jean Heath Jan. 27, 2026
Kirandeep Kaur Grewal Aug. 21, 2024
Saida Banu Ladha Feb. 18, 2021