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2024-03-31-accounts

Trustees’ Annual Report for the period

From 01 April 2023 (Period start date) To 31 March 2024 (Period end date)

Charity name: ThymicUK

Charity registration number: 1193092

Objectives and Activities

SORP reference
Summary of the purposes
of the charity as set out in
its governing document		 Para 1.17 ThymicUK provides a support network for patients
with thymic cancers in the United Kingdom and
advocates on their behalf.
The purposes of ThymicUK are to support people
affected by thymic cancers, and to improve the
quality of life and access to available treatments
for patients with thymic cancers in the UK.
Summary of the main
activities in relation to
those purposes for the
public benefit, in
particular, the activities,
projects or services
identified in the accounts.		 Para 1.17 and
1.19		 -ThymicUK charity stand at the Annual
Conference of the British Thoracic Oncology
Group (BTOG2023);
-Patient Advocates at BTOG2023;
-ThymicUK Research Poster at BTOG2023;
Maintaining a dedicated website and mailing list;
-Co-organisation of the International Thymic
Malignancy Awareness Month;
-Running the ThymicUK Patient Support Group;
-Organisation of Patient Webinars;
-Production and distribution of Information
Leaflets, awareness badges and ribbons;
-Cancer52 Membership;
Association of Chairs Membership;
-Patient Advocacy as member of the BTOG
Thymic Cancer Special Interest Group.
Statement confirming
whether the trustees have
had regard to the
guidance issued by the
Charity Commission on
public benefit		 Para 1.18 We confirm that all trustees have had regard to
the guidance issued by the Charity Commission
on public benefit.

Additional information (optional) You may choose to include further statements where relevant about:

SORP reference Policy on grant making Para 1.38 Policy on social investment Para 1.38 including program related investment Contribution made by Para 1.38 volunteers Other

Achievements and Performance

SORP reference
Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.		 Para 1.20 Research Poster Prize at BTOG2023
Our ThymicUK research poster “THE
EXPERIENCE OF PATIENTS WITH
THYMIC EPITHELIAL TUMOURS: A
survey of patient perception of support from
their clinical team and beyond” raised
awareness of thymic cancers and won a
runner up conference poster prize (£100
that went to the charity funds).
As patient advocates, we have been
effective in liaising with relevant
professional bodies, including the
International Thymic Malignancy Interest
Group (ITMIG), the British Thoracic
Oncology Group (BTOG), and as a
member of the rare cancer umbrella charity
Cancer 52.
-
We continued our work in the BTOG
Special Interest Group (SIG) for
Thymic Malignancies, with chair
Karen Ruddock being a member
representing ThymicUK.
-
Together with ITMIG and BTOG, we
ran a successful 2ndedition of the
Thymic Malignancy Awareness
Month in May 2023.
-
We continued to work closely with
both professional bodies to co-
organise the 3ndedition of the
Thymic Malignancy Awareness
Month to be held in May 2024.
-
We attended the ITMIG virtual
conference and Cancer 52 events
to represent the voice of those
affected by thymic cancers.
We organisedtwo ThymicUK Patient
Events; an in-person Patient Meeting with
Allied Healthcare Professionals in London
(24 May 2023); an End of Year Patient
Webinar (7 December 2023).

Working towards a comprehensive Thymic Cancer Database ThymicUK has long been advocating for the need of a comprehensive database that would allow healthcare professionals to bring together information on the rare cases of thymic malignancies, to advance learning and ultimately lead to more effective and safer treatment regimes. Support Group, Mailing List and website: We continued to run the website, the ThymicUK mailing list and the closed ThymicUK patient support group on Facebook. The group provides a safe space, in which patients and carers can exchange experiences and often very practical tips, supporting each other. Both forums have seen sustained growth with about 100 new patients and carers joining. This indicates that more doctors and nurses are aware of and signpost patients to ThymicUK as a source of information and support.

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against Para 1.41 objectives set Performance of fundraising Para 1.41 activities against objectives set Investment performance Para 1.41 against objectives Other

Financial Review

Review of the charity’s
financial position at the end
of the period		 Para 1.21 31stMarch 2024: £31766
(Starting position on 1stApril 2023: £15712
Incoming funds over the reporting period:
£16805; Outgoing funds over the reporting
period: £751)
Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 The ThymicUK policy to holding reserves is
that we currently only use funds as needed
to produce information and awareness
materials (such as leaflets, posters badges
and ribbons), for postage and other
essential costs (e.g., our website domain,
hosting, and mailing list, zoom subscription
for patient webinars, and for our patient
advocacy and raising of awareness
activities (e.g. conference charity stand).
No personal expenses are used as all
trustees volunteer their time.
With the aim to initiate research into the
causes, detection, diagnosis, treatment,
and management of thymic cancers, we
hold as reserves all those funds not
immediately needed for the above charity
aims.
Amount of reserves held Para 1.22 No set amount
Reasons for holding zero
reserves		 Para 1.22 N/A
Details of fund materially in
deficit		 Para 1.24 N/A
Explanation of any
uncertainties about the
charity continuing as a going
concern		 Para 1.23 N/A

Additional information (optional) You may choose to include further statements where relevant about:

The charity’s principal
sources of funds (including
any fundraising)		 Para 1.47
Investment policy and
objectives including any
social investment policy
adopted		 Para 1.46
A description of the principal
risks facing the charity		 Para 1.46
Other

Structure, Governance and Management

Description of charity’s
trusts:
Type of governing document
(trust deed, royal charter)		 Para 1.25 Constitution
How is the charity
constituted?
(e.g unincorporated
association, CIO)		 Para 1.25 CIO
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees		 Para 1.25 All three trustees have been co-founders of
the charity. The appointment of any new
trustee would be agreed by all current
trustees

Additional information (optional)

You may choose to include further statements where relevant about:

Policies and procedures
adopted for the induction
and training of trustees		 Para 1.51
The charity’s organisational
structure and any wider
network with which the
charity works		 Para 1.51
Relationship with any related
parties		 Para 1.51
Other

Reference and Administrative details

Charity name ThymicUK
Other name the charity uses
Registered charity number 1193092
Charity’s principal address 69 Worcester Road
London E17 5QR

Names of the charity trustees who manage the charity

1
2
3
4
5
6
7
8
9
10		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Karen Ruddock Whole Year
Heidrun Bien Whole Year
Marrika Colvin Whole Year
Oliver Neeley 01.04.23 – 01.02.24

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of Name Address adviser Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s)
Full name(s)
Position (eg Secretary,
Chair, etc)
Date		 Dr Heidrun Bien Karen Ruddock
Dr Heidrun Bien Karen Ruddock

Trustee, Secretary & Treasurer		 Chair
26.01.2025
26.01.2025

----- Start of picture text -----
ThymicUK 1193092
Receipts and payments accounts CC16a
For the period 01.04.2023 31.03.2024
To
from
Section A Receipts and payments
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
Donations through fundraisers via Justgiving 3,280 - - 3,280 -
Donations as direct transfers to the charity bank account 8,351 - - 8,351 -
Donations and fundraisers via PayPal Giving Fund 4,490 - - 4,490 -
Donations through donate button on the charity website via PayPal 30 - - 30 -
awareness badges and ribbons donations via website via PayPal 107 - - 107 -
donations via AmazonSmile 132 - - 132 -
research poster prize at BTOG 2023 annual conference 100 - - 100 -
Sub total (Gross income for AR) 16,490 - - 16,490 -
A2 Asset and investment sales, (see table).
charity savings account interest 315 - - 315
- - - - -
Sub total 315 - - 315 -
Total receipts 16,805 - - 16,805 -
A3 Payments
postage (sending awareness badges/ribbons/information 74 - - 74 -
mailchimp and webhosting fees 324 - - 324 -
printing reserarch poster for BTOG 2023 45 - - 45 -
cost for charity stand at BTOG2024 300 300
paypal fees 8 - - 8 -
Sub total [ 751 ] - - 751 -
A4 Asset and investment purchases, (see table)
- - - -
Sub total [ - ] - - - -
Total payments 751 - - 751 -
Net of receipts/(payments) 16,054 - - 16,054 -
----- End of picture text -----

CCXX R1 accounts (SS)

26/01/2025

1

A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end		 -
15,712
31,766		 -
-
-		 -
-

-		 -
15,712
31,766		 -
-
-

CCXX R2 accounts (SS)

26/01/2025

2

Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on behalf of all the trustees
B5 Liabilities
B3 Investment assets
B2 Other monetary assets
B4 Assets retained for the charity’s own use
B1 Cash funds		 Details
Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
net taz year income (receipt minus
payments)
Details
Karen Ruddock
Signature
Dr Heidrun Bien		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
16,054
-
-
-
31,766
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
Fund to which
asset belongs
Cost (optional)
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
Print Name
Dr Heidrun Bien
Karen Ruddock		 Endowment
funds
to nearest £
-
-
-
OK
Endowment
funds
to nearest £
-
-
Current value
(optional)
-
-
Current value
(optional)
-
-
When due
(optional)
Date of
approval
26.01.2025
26.01.2025

CCXX R3 accounts (SS)

26/01/2025

3