2024-04-05-accounts - The Ricky Casey Trust

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From

Trustees' Annual Report for the period

Period start date Period end date 06 04 2023 05 04 2024

Section A Reference and administration details

Charity name

The Ricky Casey Trust

Other names charity is known by

Registered charity number (if any) 1191716

Charity's principal address FIRST FLOOR SWAN BUILDINGS 20 SWAN STREET MANCHESTER Postcode M4 5JW

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Nicola Casey	Founder & CEO
Andrew Casey	Treasurer
Grace Widdall	Secretary
Tom Waddell	Trustee
Andrew Stevenson	Trustee	Resigned 9.2.2024
Lee McAllister	Trustee

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser	Name Address	Name Address




Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

TRUST DEED Type of governing document (eg. trust deed, constitution) TRUST How the charity is constituted (eg. trust, association, company) All appointed by Nicola Casey, Founder and CEO. Trustee selection methods

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;
relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

Summary of the objects of the charity set out in its governing document

The objects of the charity (‘the objects’) are:

(1) To advance the education of and to raise awareness among the general public and healthcare professionals in fighting all renal cancers in the United Kingdom and in particular, but not exclusively, the subtype Renal Medullary Carcinoma (RMC).
(2) To raise funds in order to advance research into renal cancers (as in (1) above) and to provide equipment and treatment for the

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same for sufferers of such medical conditions residing permanently or temporarily in the United Kingdom through the provision of financial assistance, support, and practical advice as the trustees see fit from time to time.

(3) To relieve the sickness and preserve the health of people suffering from renal cancers (as in (1) above) and improve and extend the quality of life of people living with renal cancers (as in (1) above) who are permanently or temporarily in the United Kingdom and to support the families of such people in the event of hardship as the trustees see fit from time to time.
(4) To provide and assist in the provision of facilities not normally provided by the statutory authorities as the trustees see fit from time to time in order to support and promote the health and rehabilitation of firefighters across the United Kingdom.

D

The Ricky Casey Trust was founded in 2020. We are the only charity in the UK to represent rare renal cancers with a particular focus on RMC (Renal Medullary Carcinoma), this type of cancer has links to the sickle cell trait.

Below is a summary of our main charitable activities during the specified reporting period:

Changes to Charity Personnel:

We have received the resignation of one of our trustees due to personal and work commitments. We will be looking to replace him as soon as possible.

Education / Networking Activities

As part of our collaboration with the Chris CJ Johnson Foundation (see fundraising activities below), Nicola Casey has introduced another UK patient with RMC to the wider support network. This is the home for virtual peer-to-peer support groups for RMC, and has guest speakers to provide answers, advocacy, education, support, and navigation to empower people living with RMC. The patient has found this to be a great source of help to speak with other RMC sufferers.

Dr Msaouel, a Physician-Scientist and Oncologist at the MD Anderson Centre in Houston Texas is dedicated to research surrounding RMC and continues to share his knowledge and experience in RMC with physicians in the UK.

Nicola Casey (CEO & Founder) was invited to do an interview on Granada Reports with Becky Morris, daughter of the late news reporter Tony Morris who died from a rare renal cancer. Becky was running in memory of her dad at the London Colour Obstacle Rush and wanted to raise awareness and funds for the Ricky Casey Trust. Following this, through the interview the charity was contacted by a member of the public whose husband had signs and symptoms and requested support.

Through previous events, a meeting took place with the Health & Care Leader for Oldham and we were connected with various Health Care professionals across Greater Manchester leading to a meeting with the Clinical Lead for Urology.

We attended an AnswerCancer conference where we met with Salford

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CVS who advised us to apply for potential funding to help with our upcoming awareness events in the community. Two of the trustees completed the grant application which was successful which enabled us to provide leaflets for presentations for 2 events. One was at our local football ground, Oldham Athletic FC as we had been chosen for their dedicated Charity Spotlight Event and the other was at a Black Man Health Awareness evening which encouraged some of those who were not aware of their status to be tested. We have also attended other local support groups and raised awareness.

We also met with the CEO of the Sickle Cell Care Manchester and the Lead Nurse Practitioner of the Sickle Cell and Thalassaemia Centre Manchester who were very keen to collaborate in joining forces and raising awareness of the connection with Sickle Cell and RMC. Through this connection we were invited to be part of the North West Sickle Cell Patient Event. We met other organisations who were interested in The Ricky Casey Trust holding an awareness event within their organisation.

We were invited to bid for a donation from another local charity (Saddleworth Round Table) in which we were successful and this helped cover the cost of providing charity t-shirts for our other upcoming events.

The Ricky Casey Trust is currently in the process of contributing to a GP training module (Gateway C) highlighting signs and symptoms of RMC, Nicola Casey has shared Ricky Casey’s journey and treatment as part of this module. Tom Waddell our trustee and Oncologist at the Christie Hospital was interviewed and key points was summarised to help to improve investigations after a patient’s first presentation to a GP and hopefully reduce missed or misdiagnosed cases in general practice.

Nicola Casey our CEO & founder was nominated as one of Inspirational Women of Oldham.

Fundraising Activities:

The Virtual Walk that was developed in collaboration with the Chris CJ Johnson Foundation in Houston Texas continues to be our annual ‘Keepin it Renal’ event. Our 2024 virtual walk began on 6[th] March which is Ricky Casey’s birthday and ran throughout the month of March which is also kidney cancer awareness month. People set themselves their own challenges throughout the month.

On 23[rd] March our trustee Lee MacAllister and friend Glyn Billington led a group to walk from Blackpool FC to Springhead FC in Oldham. This was a 54 mile walk that was completed in 22 hours and was to commerate Ricky’s 54[th] birthday. They were also supported by a local cycle team and some of other trustees joined at various points in the walk. This was a huge success and raised much needed funds. The event was documented by RAM Films. A new t-shirt was designed and printed for this event with a QR code printed on the t-shirt thereby adding another way to collect donations.

Our Annual Charity Ball was held on Saturday 9[th] March 2024. This was again a great success with full capacity of 200 attendees. We secured and received 3 sponsorships for the event. The evening was hosted by professional MC Alan Keegan (the voice of Old Trafford and EA Sports FIFA). Various fundraising activities were conducted during the evening including a raffle and charity auction. This annual event forms one of our key recurrent fundraising opportunities as a charity.

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We have had more individuals this year wanting to get involved with the charity in taking on their own personal challenges and raising more funds and awareness in doing so:

Marathon in Perth Australia
Ultra marathons, half marathons and 10k runs
54 mile walk
Charity evening including comedy night and tapas evening
Vintage Car Auction and profit divided between The Ricky Casey Trust and 2 other local charities
Virtual Cycle rides
3 Peaks & Snowden
Tough Mudder
Charity Football Match
Xmas Santa Dash

In December 2023 we continued with our virtual Christmas card.

Patient / Carer Support Activities:

We are able to provide support and assist with our main objectives.

Administrative Activities:

TEXT RICKY platform set up

Summary:

As summarised above the charity has carried out a wide range of activities towards its purpose of public benefit.

We can also confirm that The Ricky Casey Trust trustees have had regard to the guidance issued by the charity commission on public benefit.

Additional details of objectives and activities (Optional information)

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You may choose to include further statements, where relevant, about:

policy on grantmaking;
policy programme related investment;
contribution made by volunteers.

The

Section D Achievements and performance

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Section D Achievements and performance

Summary of the main achievements of the charity during the year

Virtual walk in conjunction with CJ Johnson Foundation in the USA.
Meeting with Health Care Leader for Oldham  Meeting with Clinical Lead for Urology, NHS Manchester Integrated Care.
Media coverage via newspaper, radio and T.V.  Nominated Inspirational Woman of Oldham  More individuals taking on personal challenges to raise money for the trust.
Set up TEXT RICKY platform.  Successful annual ball  Annual Keepin it Renal challenge  Received new and continued sponsorships.  UK contact for support through TV  Associated Charity Partner for Manchester Half Marathon  Successful uptake for blood testing to ‘Know your status’  Gateway C GP Training Module  Patient Support Group

Additional information on many of the above activities is contained within section C in relation to the ‘Summary of main activities undertaken for the public benefit ‘

Section E Financial review

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Our charity does not have a reserve policy at the moment.

Brief statement of the charity’s policy on reserves

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;
investment policy and objectives including any ethical investment policy adopted.

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date

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Charity Name No (if any) THE RICKY CASEY TRUST 1191716 Receipts and payments accounts CC16a For the period Period start date Period end date To from 4/6/2023 4/5/2024

Section A Receipts and payments

Unrestricted Restricted Endowment funds funds funds

Total funds Last year

	Unrestricted funds	Restricted funds	Endowment funds	Total funds	Last year
	to the nearest £	to the nearest £	to the nearest £	to the nearest £	to the nearest £
A1 Receipts
Opening balance	125,418	-	-	125,418	87,336
Fastpayments	14,387	-	-	14,387	24,919
Gift Aid - HMRC	3,200	-	-	3,200	3,027
Paypal	11,053	-	-	11,053	5,165
Interest	290	-	-	290	147
BASCs	2,795	-	-	2,795	-
Donations	4,688	-	-	4,688
Sponsors	928	-	-	928	-
Fp Enthuse	7,203	-	-	7,203
Amazon	67	-	-	67	89
Give asyou live	15,583	-	-	15,583	18,165
Mercahndise					125
*Sub total*(Gross income for AR)	185,612	-	-	185,612	138,973

A2 Asset and investment sales,
(see table).
	-	-	-	-
	-	-	-	-	-
*Sub total*	-	-	-	-	-

**Total receipts **	185,612	-	-	185,612	138,973
A3 Payments
CAF Account Fees	60	-	-	60	-
Fundraising costs	10,207	-	-	10,207	-
Clean Pages - website admin	390	-	-	390	-
Virtually There - remote office	250	-	-	250	-
Equipment	143	-	-	143	-
Merchandise	2,630	-	-	2,630	-
Donations	450	-	-	450	-
Zoom	62	-	-	62	-
Printright	527	-	-	527	-
Enthuse D/D	432	-	-	432	-
Amazon	64	-	-	64	-
Sundries	242	-	-	242	-
Public Liability Insurance	129	-	-	129	-
**Sub total **	15,586	-	-	15,586	-

A4 Asset and investment
purchases, (see table)
	-	-	-	-
	-	-	-	-
**Sub total **	-	-	-	-	-

**Total payments **	15,586	-	-	15,586	-

**Net of receipts/(payments) **	170,026	-	-	170,026	138,973
A5 Transfers between funds	-	-	-	-	-
A6 Cash funds last year end	-	-	-	-	-
**Cash funds this year end **	170,026	-	-	170,026	138,973

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories B1 Cash funds B2 Other monetary assets B3 Investment assets B5 Liabilities B4 Assets retained for the charity’s own use Signed by one or two trustees on behalf of all the trustees	Details Details Details Details Details Signature *Total cash funds* (agree balances with receipts and payments account(s))	to nearest £ to nearest £ - - - - - - - - Agreement Error OK to nearest £ to nearest £ - - - - - - - - - - - - Cost (optional) - - - - - Cost (optional) - - - - - - - - - - - - - - Print Name ANDREW CASEY Unrestricted funds Restricted funds Unrestricted funds Restricted funds Fund to which asset belongs Fund to which asset belongs Fund to which liability relates Amount due (optional)	to nearest £ Endowment funds
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			OK
			to nearest £ Endowment funds
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			Current value (optional)
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			Current value (optional)
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			Date of approval
		ANDREW CASEY

Independent examiner's report on the accounts

Section A Independent Examiner’s Report

Report to the trustees/ members of

Charity Name

THE RICKY CASEY TRUST

05/04/2024

On accounts for the year ended Charity no (if any)

1191716

Set out on pages

(remember to include the page numbers of additional sheets)

Responsibilities and basis of report

I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended DD / MM / YYYY .

As the charity trustees of the Trust, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect:

accounting records were not kept in accordance with section 130 of the Act or
the accounts do not accord with the accounting records

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. * Please delete the words in the brackets if they do not apply.

Signed:

Date:

Name:

Relevant professional qualification(s) or body (if any):

October 2018

IER

Address:

Section B Disclosure

Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose .

October 2018

IER