Trustees’ Annual Report for the period
From 1.10.24 Period start date To 30.9.25 Period end date
Charity name:The National Wiedemann Steiner Syndrome Warriors
Charity registration number:1191194
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To support awareness of Wiedemann Steiner Syndrome, helping families. To purchase the required equipment when needed. To hold yearly and regional events. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 | Supported fund raising support. To provide equipment when needed. To provide support and guidance when required. To support young people with WSS into paid employment. To support community projects in raising awareness and educational settings |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees have had regard ot the charity commision’s guidance on public benefit when planning all events and what is the best way to spend funds. |
Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference N/A Para 1.38 Policy on grant making N/A Para 1.38 Policy on social investment including program related investment
| Contribution made by volunteers |
Para 1.38 | NWSSW could not run without the dedication of our admin team, trustees, parents, carers and young people. |
|---|---|---|
| Other | N/A |
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | 1.10.24 - 30.9.25 This year we have seen a decrease in fund raising due to the cost of living crisis. We have our annual event booked in for September 2026. We have supported a regional meet up in October 2024. |
Additional information (optional)
You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | Whilst no formal objectives are set for any given period ,the Trustees are always striving to increase the amounts that are raised |
|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | N/A |
| Investment performance against objectives |
Para 1.41 | N/A |
NIA Other
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | At the end of the financial year the charity had £20550.66 in the bank account. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | N/A |
| Amount of reserves held | Para 1.22 | N/A |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The main source of funding comes from families and members of the public. |
|---|---|---|
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | N/A |
| A description of the principal risks facing the charity |
Para 1.46 | N/A |
| Other | N/A |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Uncorporated association |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees are appointed or reappointed annually at the Annual General Meeting held in December 2025. |
Additional information (optional)
You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | Safeguarding |
|---|---|---|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | N/A |
| Relationship with any related parties |
Para 1.51 | N/A |
| Other | The success of our charity is down to the hard work of all our families |
Reference and Administrative details
| Charity name | The National Wiedemann Steiner Syndrome Warriors |
|---|---|
| Other name the charity uses | |
| Registered charity number | 1191194 |
| Charity’s principal address 37 Palesides Avenue Ossett West Yorkshire WF5 9NL |
|
|---|---|
Names of the charity trustees who manage the charity
| Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee |
|
|---|---|---|---|---|
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Alison Jane Smith |
Chair | 2023-2025 | ~~(if any)~~ |
| Joanne Elizabeth |
Trustee | 2023-2025 | ||
| ~~Armitage~~ Dawn Lisa ~~Hd~~ |
Trustee | 2023-2025 | ||
| ~~owar~~ Kym Purnell |
Trustee | 2023-2025 | ||
Corporate trustees – names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted rf not forwhole year
Funds held as custodian trustees on behalf of others
| Description of the assets held in this capacity |
N/A |
|---|---|
| Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects |
N/A |
| Details of arrangements for safe custody and segregation of such assets from the charity’s own assets |
N/A |
Additional information (optional)
Names and addresses of advisers (Optional information)
Type of Name Address adviser
Name of chief executive or names of senior staff members (Optional ~~information)~~
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees Signature(s) A Smith Full name(s) Alison Smith Position (eg Chair Secretary, Chair, etc)
Date 18/02/2026
Date Count Payment (Deblt) Deposit (Credit) ota .00 OO ?.00 LU as