## **Trustees’ Annual Report for the period**
## **From 1.10.24 Period start date To 30.9.25 Period end date**
## **Charity name:The National Wiedemann Steiner Syndrome Warriors**
## **Charity registration number:1191194**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**To support awareness of Wiedemann**
**Steiner Syndrome, helping families.**
**To purchase the required equipment**
**when needed.**
**To hold yearly and regional events.**|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and 1.19|**Supported fund raising support.**
**To provide equipment when needed.**
**To provide support and guidance when**
**required.**
**To support young people with WSS into**
**paid employment.**
**To support community projects in**
**raising awareness and educational**
**settings**|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**The trustees have had regard ot the**
**charity commision’s guidance on public**
**benefit when planning all events and**
**what is the best way to spend funds.**|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
SORP reference **N/A** Para 1.38 Policy on grant making **N/A** Para 1.38 Policy on social investment including program related investment
|Contribution made by
volunteers|Para 1.38|**NWSSW could not run without the**
**dedication of our admin team, trustees,**
**parents, carers and young people.**|
|---|---|---|
|Other||**N/A**|
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**1.10.24 - 30.9.25**
**This year we have seen a decrease in**
**fund raising due to the cost of living**
**crisis. We have our annual event booked**
**in for September 2026. We have**
**supported a regional meet up in October**
**2024.**|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
|Achievements against
objectives set|Para 1.41|**Whilst no formal objectives are set for**
**any given period ,the Trustees are**
**always striving to increase the amounts**
**that are raised**|
|---|---|---|
|Performance of fundraising
activities against objectives
set|Para 1.41|**N/A**|
|Investment performance
against objectives|Para 1.41|**N/A**|
NIA
Other
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|**At the end of the financial year the**
**charity had £20550.66 in the bank**
**account.**|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**N/A**|
|Amount of reserves held|Para 1.22|**N/A**|
|Reasons for holding zero
reserves|Para 1.22|**N/A**|
|Details of fund materially in
deficit|Para 1.24|**N/A**|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**N/A**|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**The main source of funding comes from**
**families and members of the public.**|
|---|---|---|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**N/A**|
|A description of the principal
risks facing the charity|Para 1.46|**N/A**|
|Other||**N/A**|
**Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25||
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Uncorporated association**|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Trustees are appointed or reappointed**
**annually at the Annual General Meeting**
**held in December 2025.**|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
|Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|**Safeguarding**|
|---|---|---|
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|**N/A**|
|Relationship with any related
parties|Para 1.51|**N/A**|
|Other||**The success of our charity is down to**
**the hard work of all our families**|
## **Reference and Administrative details**
|Charity name|The National Wiedemann Steiner Syndrome Warriors|
|---|---|
|Other name the charity uses||
|Registered charity number|1191194|
||Charity’s principal address
37 Palesides Avenue
Ossett
West Yorkshire
WF5 9NL|
|---|---|
## **Names of the charity trustees who manage the charity**
||**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body)**
**entitled to appoint trustee**
|
|---|---|---|---|---|
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|Alison Jane
Smith|Chair|2023-2025|~~**(if any)**~~|
||Joanne
Elizabeth
|Trustee|2023-2025||
||~~Armitage~~
Dawn Lisa
~~Hd~~|Trustee|2023-2025||
||~~owar~~
Kym Purnell|Trustee|2023-2025||
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Corporate trustees – names of the directors at the date the report was approved
## **Director name**
Name of trustees holding title to property belonging to the charity
Trustee name
Dates acted rf not forwhole year
## **Funds held as custodian trustees on behalf of others**
|Description of the assets
held in this capacity|N/A|
|---|---|
|Name and objects of the
charity on whose behalf the
assets are held and how this
falls within the custodian
charity’s objects|N/A|
|Details of arrangements for
safe custody and
segregation of such assets
from the charity’s own assets|N/A|
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
**Name of chief executive or names of senior staff members (Optional** ~~**information)**~~
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
**Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees Signature(s)** A Smith **Full name(s)** Alison Smith **Position (eg** Chair **Secretary, Chair, etc)**
**Date** 18/02/2026
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