2023-09-30-accounts - The National Wiedemann-Steiner Syndrome Warriors (Nwssw)

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

Trustees’ Annual Report for the period

From 8.9.2022 Period start date To 7.9.2022 Period end date

Charity name:The National Wiedemann Steiner Syndrome Warriors

Charity registration number:1191194

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	To support awareness of Wiedemann Steiner Syndrome, helping families. To purchase the required equipment when needed. To hold yearly and regional events.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Supported fund raising support. To provide equipment when needed. To provide support and guidance when required. To support young people with WSS into paid employment. To support community projects in raising awareness and educational settings
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard ot the charity commision’s guidance on public benefit when planning all events and what is the best way to spend funds.

Additional information (optional) You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38	N/A
Policy on social investment including program related investment	Para 1.38	N/A
Contribution made by volunteers	Para 1.38	NWSSW could not run without the dedication of our admin team, trustees, parents, carers and young people.

N/A Other

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	2021-2022 Was a very successful year with regards to our fund raising see below:- Sponsored walks Bun sales Book sales Rugby event - Dewsbury Rams Name the teddy Charity football game The charity funded the yearly event so that all families could attend with entry into the Zoo and lunch. T shirts were bought for all warriors Regional events were funded by the charity including food and refreshments. Just giving platform is fully funded

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41	Whilst no formal objectives are set for any given period ,the Trustees are always striving to increase the amounts that are raised
Performance of fundraising activities against objectives set	Para 1.41	N/A

Investment performance against objectives	Para 1.41	N/A
Other		N/A

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	At the year end the charity had £18789.15 in the bank
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	N/A
Amount of reserves held	Para 1.22	N/A
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional)

You may choose to include further statements where relevant about:

The charity’s principal sources of funds (including any fundraising)	Para 1.47	The main source of funding comes from families and members of the public.
Investment policy and objectives including any social investment policy adopted	Para 1.46	N/A
A description of the principal risks facing the charity	Para 1.46	N/A
Other		N/A

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Uncorporated association
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Trustees are appointed or reappointed annually at the Annual General Meeting held in October

Additional information (optional)

You may choose to include further statements where relevant about:

Policies and procedures adopted for the induction and training of trustees	Para 1.51	Safeguarding
The charity’s organisational structure and any wider network with which the charity works	Para 1.51	N/A
Relationship with any related parties	Para 1.51	N/A
Other		The success of our charity is down to the hard work of all our families

Reference and Administrative details

Charity name	The National Wiedemann Steiner Syndrome Warriors
Other name the charity uses
Registered charity number	1191194
Charity’s principal address	37 Palesides Avenue Ossett West Yorkshire WF5 9NL

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Alison Jane Smith	Chair	2021-2022
Joanne Elizabeth Armitage		2021-20222
Dawn Lisa Howard		2021-2022

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets N/A held in this capacity

Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of Name Address adviser

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) A Smith Full name(s) Alison Smith

Position (eg Secretary, Chair Chair, etc)

Date

01/06/2023

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