## **Trustees’ Annual Report for the period**
## **From 8.9.2022 Period start date To 7.9.2022 Period end date**
## **Charity name:The National Wiedemann Steiner Syndrome Warriors**
## **Charity registration number:1191194**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**To support awareness of Wiedemann**
**Steiner Syndrome, helping families.**
**To purchase the required equipment**
**when needed.**
**To hold yearly and regional events.**|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**Supported fund raising support.**
**To provide equipment when needed.**
**To provide support and guidance when**
**required.**
**To support young people with WSS into**
**paid employment.**
**To support community projects in**
**raising awareness and educational**
**settings**|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**The trustees have had regard ot the**
**charity commision’s guidance on public**
**benefit when planning all events and**
**what is the best way to spend funds.**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
||
SORP reference||
|---|---|---|
|Policy on grant making|Para 1.38|**N/A**|
|Policy on social investment
including program related
investment|Para 1.38|**N/A**|
|Contribution made by
volunteers|Para 1.38|**NWSSW could not run without the**
**dedication of our admin team, trustees,**
**parents, carers and young people.**|
**N/A** Other
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**2021-2022**
**Was a very successful year with regards**
**to our fund raising see below:-**
**Sponsored walks**
**Bun sales**
**Book sales**
**Rugby event - Dewsbury Rams**
**Name the teddy**
**Charity football game**
**The charity funded the yearly event so**
**that all families could attend with entry**
**into the Zoo and lunch.**
**T shirts were bought for all warriors**
**Regional events were funded by the**
**charity including food and**
**refreshments.**
**Just giving platform is fully funded**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
|
Achievements against
objectives set|
Para 1.41|
**Whilst no formal objectives are set for**
**any given period ,the Trustees are**
**always striving to increase the amounts**
**that are raised**|
|---|---|---|
|Performance of fundraising
activities against objectives
set|Para 1.41|**N/A**|
||||
|Investment performance
against objectives|Para 1.41|**N/A**|
|---|---|---|
|Other||**N/A**|
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|**At the year end the charity had**
**£18789.15 in the bank**|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**N/A**|
|Amount of reserves held|Para 1.22|**N/A**|
|Reasons for holding zero
reserves|Para 1.22|**N/A**|
|Details of fund materially in
deficit|Para 1.24|**N/A**|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**N/A**|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
|
The charity’s principal
sources of funds (including
any fundraising)|
Para 1.47|
**The main source of funding comes from**
**families and members of the public.**|
|---|---|---|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**N/A**|
|A description of the principal
risks facing the charity|Para 1.46|**N/A**|
|Other||**N/A**|
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25||
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Uncorporated association**|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Trustees are appointed or reappointed**
**annually at the Annual General Meeting**
**held in October**|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
|
Policies and procedures
adopted for the induction
and training of trustees|
Para 1.51|
**Safeguarding**|
|---|---|---|
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|**N/A**|
|Relationship with any
related parties|Para 1.51|**N/A**|
|Other||**The success of our charity is down to**
**the hard work of all our families**|
## **Reference and Administrative details**
|Charity name|The National Wiedemann Steiner Syndrome Warriors|
|---|---|
|Other name the charity uses||
|Registered charity number|1191194|
|Charity’s principal address|37 Palesides Avenue
Ossett
West Yorkshire
WF5 9NL|
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**Names of the charity trustees who manage the charity**
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Alison Jane Smith|Chair|2021-2022||
||Joanne Elizabeth
Armitage||2021-20222||
||Dawn Lisa Howard||2021-2022||
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## – Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets N/A held in this capacity
Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
**Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** A Smith **Full name(s)** Alison Smith
**Position (eg Secretary,** Chair **Chair, etc)**
**Date**
01/06/2023
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