Trustees’ Annual Report for the period
From 8.9.2021 Period start date To 7.9.2022 Period end date
Charity name:The National Wiedemann Steiner Syndrome Warriors
Charity registration number:1191194
Objectives and Activities
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SORP reference
Summary of the Para 1.17 To support awareness of
purposes of the charity Wiedemann Steiner Syndrome,
as set out in its helping families.
governing document To purchase the required
equipment when needed.
To hold yearly and regional
events.
Summary of the main Para 1.17 and Supported fund raising support.
1.19
activities in relation to To provide equipment when
those purposes for the needed.
public benefit, in To provide support and guidance
particular, the activities, when required.
projects or services To support young people with
identified in the WSS into paid employment.
accounts. To support community projects in
raising awareness and
educational settings
Statement confirming Para 1.18 The trustees have had regard ot
whether the trustees the charity commision’s guidance
have had regard to the on public benefit when planning
guidance issued by the all events and what is the best
Charity Commission on way to spend funds.
public benefit
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Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference N/A Para 1.38 Policy on grant making N/A Para 1.38 Policy on social investment including program related investment
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NWSSW could not run without the
Para 1.38 dedication of our admin team,
Contribution made by trustees, parents, carers and
volunteers young people.
N/A
Other
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Achievements and Performance
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SORP reference
2021-2022
Was a very successful year with
Summary of the main regards to our fund raising see
Para 1.20
achievements of the below:-
charity, identifying the
difference the charity’s Sponsored walks
work has made to the
circumstances of its Bun sales
beneficiaries and any
wider benefits to society Book sales
as a whole.
Rugby event - Dewsbury Rams
Name the teddy
Charity football game
The charity funded the yearly
event so that all families could
attend with entry into the Zoo
and lunch.
T shirts were bought for all
warriors
Regional events were funded by
the charity including food and
refreshments.
Just giving platform is fully
funded
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Additional information (optional)
You may choose to include further statements where relevant about:
Achievements against Para 1.41 objectives set
Whilst no formal objectives are set for any given period ,the Trustees are always striving to increase the amounts that are
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raised
N/A
Performance of
fundraising activities Para 1.41
against objectives set
Investment performance Para 1.41 N/A
against objectives
N/A
Other
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Financial Review
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Review of the charity’s Para 1.21 At the year end the charity had
financial position at the £18789.15 in the bank
end of the period
Statement explaining Para 1.22 N/A
the policy for holding
reserves stating why
they are held
Amount of reserves held Para 1.22 N/A
Reasons for holding zero Para 1.22 N/A
reserves
Details of fund materially Para 1.24 N/A
in deficit
Explanation of any Para 1.23 N/A
uncertainties about the
charity continuing as a
going concern
Additional information (optional)
You may choose to include further statements where relevant about:
The main source of funding
comes from families and
The charity’s principal members of the public.
sources of funds Para 1.47
(including any
fundraising)
N/A
Investment policy and
objectives including any Para 1.46
social investment policy
adopted
N/A
A description of the Para 1.46
principal risks facing the
charity
N/A
Other
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Structure, Governance and Management
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Description of charity’s
trusts:
Type of governing Para 1.25
document
(trust deed, royal
charter)
How is the charity Para 1.25 Uncorporated association
constituted?
(e.g unincorporated
association, CIO)
Trustee selection Para 1.25 Trustees are appointed or
methods including reappointed annually at the
details of any Annual General Meeting held in
constitutional provisions October
e.g. election to post or
name of any person or
body entitled to appoint
one or more trustees
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Additional information (optional)
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You may choose to include further statements where relevant about:
Safeguarding
Policies and procedures
adopted for the Para 1.51
induction and training of
trustees
N/A
The charity’s
organisational structure Para 1.51
and any wider network
with which the charity
works
N/A
Relationship with any Para 1.51
related parties
The success of our charity is
Other down to the hard work of all our
families
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Reference and Administrative details
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Charity name The National Wiedemann Steiner Syndrome Warriors
Other name the charity
uses
Registered charity 1191194
number
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Charity’s principal 37 Palesides Avenue
address Ossett
West Yorkshire
WF5 9NL
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Names of the charity trustees who manage the charity
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Name of person (or body)
Dates acted if not for
Trustee name Office (if any) entitled to appoint trustee
whole year
(if any)
Alison Jane Chair 2021-2022
1 Smith
Joanne Elizabeth 2021-20222
2
Armitage
Dawn Lisa 2021-2022
3
Howard
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
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Corporate trustees – names of the directors at the date the report was approved Director name
Name of trustees holding title to property belonging to the charity
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Trustee name Dates acted if not for
whole year
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Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity
Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements N/A for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
Type of Name Address adviser
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees
Signature(s) A Smith Full name(s) Alison Smith
Position (eg Chair Secretary, Chair, etc)
Date 01/06/2023
Year: Date Description Account Payment (Debit) Deposit (Credit) Total 139 0.0
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