
## **Trustees’ Annual Report for the period** 

**From 8.9.2021 Period start date   To 7.9.2022               Period end date** 

**Charity name:The National Wiedemann Steiner Syndrome Warriors** 

## **Charity registration number:1191194** 

## **Objectives and Activities** 


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SORP reference<br>Summary of the  Para 1.17 To support awareness of<br>purposes of the charity  Wiedemann Steiner Syndrome,<br>as set out in its  helping families.<br>governing document To purchase the required<br>equipment when needed.<br>To hold yearly and regional<br>events.<br>Summary of the main  Para 1.17 and  Supported fund raising support.<br>1.19<br>activities in relation to  To provide equipment when<br>those purposes for the  needed.<br>public benefit, in  To provide support and guidance<br>particular, the activities,  when required.<br>projects or services  To support young people with<br>identified in the  WSS into paid employment.<br>accounts. To support community projects in<br>raising awareness and<br>educational settings<br>Statement confirming  Para 1.18 The trustees have had regard ot<br>whether the trustees  the charity commision’s guidance<br>have had regard to the  on public benefit when planning<br>guidance issued by the  all events and what is the best<br>Charity Commission on  way to spend funds.<br>public benefit<br>**----- End of picture text -----**<br>


## **Additional information (optional)** 

You may choose to include further statements where relevant about: 

SORP reference **N/A** Para 1.38 Policy on grant making **N/A** Para 1.38 Policy on social investment including program related investment 




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NWSSW could not run without the<br>Para 1.38 dedication of our admin team,<br>Contribution made by  trustees, parents, carers and<br>volunteers young people.<br>N/A<br>Other<br>**----- End of picture text -----**<br>


## **Achievements and Performance** 


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SORP reference<br>2021-2022<br>Was a very successful year with<br>Summary of the main  regards to our fund raising see<br>Para 1.20<br>achievements of the  below:-<br>charity, identifying the<br>difference the charity’s  Sponsored walks<br>work has made to the<br>circumstances of its  Bun sales<br>beneficiaries and any<br>wider benefits to society  Book sales<br>as a whole.<br>Rugby event - Dewsbury Rams<br>Name the teddy<br>Charity football game<br>The charity funded the yearly<br>event so that all families could<br>attend with entry into the Zoo<br>and lunch.<br>T shirts were bought for all<br>warriors<br>Regional events were funded by<br>the charity including food and<br>refreshments.<br>Just giving platform is fully<br>funded<br>**----- End of picture text -----**<br>


## **Additional information (optional)** 

You may choose to include further statements where relevant about: 

Achievements against Para 1.41 objectives set 

**Whilst no formal objectives are set for any given period ,the Trustees are always striving to increase the amounts that are** 




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raised<br>N/A<br>Performance of<br>fundraising activities  Para 1.41<br>against objectives set<br>Investment performance  Para 1.41 N/A<br>against objectives<br>N/A<br>Other<br>**----- End of picture text -----**<br>




## **Financial Review** 


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Review of the charity’s  Para 1.21 At the year end the charity had<br>financial position at the  £18789.15 in the bank<br>end of the period<br>Statement explaining  Para 1.22 N/A<br>the policy for holding<br>reserves stating why<br>they are held<br>Amount of reserves held Para 1.22 N/A<br>Reasons for holding zero  Para 1.22 N/A<br>reserves<br>Details of fund materially Para 1.24 N/A<br>in deficit<br>Explanation of any  Para 1.23 N/A<br>uncertainties about the<br>charity continuing as a<br>going concern<br>Additional information (optional)<br>You may choose to include further statements where relevant about:<br>The main source of funding<br>comes from families and<br>The charity’s principal  members of the public.<br>sources of funds  Para 1.47<br>(including any<br>fundraising)<br>N/A<br>Investment policy and<br>objectives including any  Para 1.46<br>social investment policy<br>adopted<br>N/A<br>A description of the  Para 1.46<br>principal risks facing the<br>charity<br>N/A<br>Other<br>**----- End of picture text -----**<br>




## **Structure, Governance and Management** 


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Description of charity’s<br>trusts:<br>Type of governing  Para 1.25<br>document<br>(trust deed, royal<br>charter)<br>How is the charity  Para 1.25 Uncorporated association<br>constituted?<br>(e.g unincorporated<br>association, CIO)<br>Trustee selection  Para 1.25 Trustees are appointed or<br>methods including  reappointed annually at the<br>details of any  Annual General Meeting held in<br>constitutional provisions  October<br>e.g. election to post or<br>name of any person or<br>body entitled to appoint<br>one or more trustees<br>**----- End of picture text -----**<br>


## **Additional information (optional)** 


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You may choose to include further statements where relevant about:<br>Safeguarding<br>Policies and procedures<br>adopted for the  Para 1.51<br>induction and training of<br>trustees<br>N/A<br>The charity’s<br>organisational structure  Para 1.51<br>and any wider network<br>with which the charity<br>works<br>N/A<br>Relationship with any  Para 1.51<br>related parties<br>The success of our charity is<br>Other down to the hard work of all our<br>families<br>**----- End of picture text -----**<br>


## **Reference and Administrative details** 


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Charity name The National Wiedemann Steiner Syndrome Warriors<br>Other name the charity<br>uses<br>Registered charity  1191194<br>number<br>**----- End of picture text -----**<br>





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Charity’s principal  37 Palesides Avenue<br>address Ossett<br>West Yorkshire<br>WF5 9NL<br>**----- End of picture text -----**<br>




## **Names of the charity trustees who manage the charity** 


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Name of person (or body)<br>Dates acted if not for<br>Trustee name Office (if any) entitled to appoint trustee<br>whole year<br>(if any)<br>Alison Jane  Chair 2021-2022<br>1 Smith<br>Joanne Elizabeth  2021-20222<br>2<br>Armitage<br>Dawn Lisa  2021-2022<br>3<br>Howard<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20<br>**----- End of picture text -----**<br>


Corporate trustees – names of the directors at the date the report was approved **Director name** 

Name of trustees holding title to property belonging to the charity 


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Trustee name Dates acted if not for<br>whole year<br>**----- End of picture text -----**<br>




## **Funds held as custodian trustees on behalf of others** 

Description of the assets N/A held in this capacity 

Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements N/A for safe custody and segregation of such assets from the charity’s own assets 

## **Additional information (optional)** 

## **Names and addresses of advisers (Optional information)** 

**Type of Name Address adviser** 

**Name of chief executive or names of senior staff members (Optional information)** 

## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 



## **Declarations** 

**The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees** 

**Signature(s)** A Smith **Full name(s)** Alison Smith 

**Position (eg** Chair **Secretary, Chair, etc)** 

**Date** 01/06/2023 



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