OpenCharities

Global Porphyria Advocacy Coalition

Global Porphyria Advocacy Coaliton

Country
England & Wales
Charity number
1189694
Status
Registered
Registered
May 28, 2020
Legal form
CIO

Address

Address
10 Ruskin Road
New Costessey
NORWICH
NR5 0LL

Activities

The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.

Objects: For The Public Benefit, To Relieve The Needs Of Patients Suffering From Porphyria Worldwide, In Particular, But Not Exclusively, By Providing Support And Information To Patients And Patient Groups, And By Raising Awareness Of The Disorder Amongst Health Professionals, Policy Makers And The General Public, Including By Providing Information About The Porphyria Group Of Diseases, Their Diagnoses And Treatments, Promoting Research And Sharing The Useful Results Of Latest Research.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups

Areas of operation

Country
Australia, Austria, Belgium, Brazil, Canada, Denmark, France, Germany, Ireland, Italy, Mexico, Netherlands, Northern Ireland, Poland, Scotland, South Africa, Spain, Sweden, Switzerland, United States
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Nov. 10, 2024 £24,853 £4,313
Nov. 10, 2023 £8,884 £6,917
Nov. 10, 2022 £6,867 £714
Nov. 10, 2021 — —

Trustees

Name Appointed
Suzanne Burrell (Chair) May 28, 2020
Derry Johna Wilcox May 11, 2024
Enrica Cecilia Pupko Katz Kalb May 11, 2024