{"country": "England & Wales", "charity_number": "1189694", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1189694", "name": "GLOBAL PORPHYRIA ADVOCACY COALITION", "known_as": null, "other_names": [{"name": "GLOBAL PORPHYRIA ADVOCACY COALITON", "name_type": "Previous name"}], "status": "Registered", "date_registered": "2020-05-28", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "10 Ruskin Road, New Costessey, NORWICH", "postcode": "NR5 0LL", "phone": "03003020030", "email": "PRESIDENT@GPAC-PORPHYRIA.ORG", "website": "WWW.GPAC-PORPHYRIA.ORG", "lat": 52.648126, "lng": 1.23088, "activities": "The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.", "purposes": null, "what_charity_does": null, "charitable_objects": "FOR THE PUBLIC BENEFIT, TO RELIEVE THE NEEDS OF PATIENTS SUFFERING FROM PORPHYRIA WORLDWIDE, IN PARTICULAR, BUT NOT EXCLUSIVELY, BY PROVIDING SUPPORT AND INFORMATION TO PATIENTS AND PATIENT GROUPS, AND BY RAISING AWARENESS OF THE DISORDER AMONGST HEALTH PROFESSIONALS, POLICY MAKERS AND THE GENERAL PUBLIC, INCLUDING BY PROVIDING INFORMATION ABOUT THE PORPHYRIA GROUP OF DISEASES, THEIR DIAGNOSES AND TREATMENTS, PROMOTING RESEARCH AND SHARING THE USEFUL RESULTS OF LATEST RESEARCH.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 309, "description": "Acts As An Umbrella Or Resource Body"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 202, "description": "Elderly/old People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 205, "description": "Other Charities Or Voluntary Bodies"}, {"type": "Who", "code": 206, "description": "Other Defined Groups"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Australia"}, {"area_type": "Country", "area_description": "Austria"}, {"area_type": "Country", "area_description": "Belgium"}, {"area_type": "Country", "area_description": "Brazil"}, {"area_type": "Country", "area_description": "Canada"}, {"area_type": "Country", "area_description": "Denmark"}, {"area_type": "Country", "area_description": "France"}, {"area_type": "Country", "area_description": "Germany"}, {"area_type": "Country", "area_description": "Ireland"}, {"area_type": "Country", "area_description": "Italy"}, {"area_type": "Country", "area_description": "Mexico"}, {"area_type": "Country", "area_description": "Netherlands"}, {"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Poland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Country", "area_description": "South Africa"}, {"area_type": "Country", "area_description": "Spain"}, {"area_type": "Country", "area_description": "Sweden"}, {"area_type": "Country", "area_description": "Switzerland"}, {"area_type": "Country", "area_description": "United States"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 24853, "latest_expenditure": 4313, "fin_period_start": "2023-11-11", "fin_period_end": "2024-11-10", "financial_years": [{"start": "2023-11-11", "end": "2024-11-10", "income": 24853, "expenditure": 4313, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-11-11", "end": "2023-11-10", "income": 8884, "expenditure": 6917, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-11-11", "end": "2022-11-10", "income": 6867, "expenditure": 714, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-05-28", "end": "2021-11-10", "income": 0, "expenditure": 0, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "SUZANNE BURRELL", "chair": true, "appointment": "2020-05-28"}, {"name": "Derry  Johna Wilcox", "chair": false, "appointment": "2024-05-11"}, {"name": "Enrica Cecilia Pupko Katz Kalb", "chair": false, "appointment": "2024-05-11"}]}