OpenCharities

Myhre Syndrome UK & Europe

Myhre Syndrome UK

Country
England & Wales
Charity number
1187443
Status
Registered
Registered
Jan. 20, 2020
Legal form
Trust

Address

Address
42 Coronel Close
SWINDON
SN3 4FW

Activities

To provide support, respite & counsel to those suffering with or supporting those who are from Myhre Syndrome. Activites are not limited to interventions, with support & advice, alongside building of Myhre Awareness across the UK, and the building of an Advocacy Group. Strategically, inception of a Myhre Centre of Excellence & strong associations with sister organisation's who share our outlook.

Objects: 1) The Relief Of Sickness And Preservation Of Health Among Those Suffering From Myhre Syndrome, Who Primarily (But No Exclusively) Reside In The UK, Through The Provision Of: A) Advice, Counselling And Support To Those Suffering From Myhre Syndrome. B) Information Sharing Programmes To Raise Awareness On All Aspects Of Myhre Syndrome. C) Support To Develop Medical Practices Relating To The Diagnoses And Treatment Of Myhre Syndrome. 2) To Relieve The Needs Of Those Suffering From Myhre Syndrome, And Their Families, Who Primarily (But No Exclusively) Reside In The UK, Through The Provision Of Respite, Advice And Support.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
What
General Charitable Purposes, Disability, Other Charitable Purposes
Who
Children/young People, Elderly/old People, People With Disabilities

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 6, 2025 — —
April 6, 2024 £516 £1,636
April 6, 2023 £558 £1,823
April 6, 2022 £3,347 £2,815
April 6, 2021 £2,402 £329

Trustees

Name Appointed
Nigel Jonathon Green (Chair) Jan. 1, 2020
Stacey Louise Green Jan. 1, 2020