# MYHRE SYNDROME UK & EUROPE

## Details

- **Country:** England & Wales
- **Charity number:** 1187443
- **Other names:** MYHRE SYNDROME UK
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Jan. 20, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1187443


## Contact

- **Address:** 42 Coronel Close, SWINDON
- **Postcode:** SN3 4FW
- **Phone:** 07771541080
- **Email:** myhresyndrome@btinternet.com
- **Website:** www.myhresyndrome.com



## Activities

**Objects:** 1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF: A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME. B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME. C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME. 2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.

**Activities:** To provide support, respite & counsel to those suffering with or supporting those who are from Myhre Syndrome. Activites are not limited to interventions, with support & advice, alongside building of Myhre Awareness across the UK, and the building of an Advocacy Group. Strategically, inception of a Myhre Centre of Excellence & strong associations with sister organisation's who share our outlook.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes, Disability, Other Charitable Purposes
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 6, 2025 | — | — | — | — |
| April 6, 2024 | £516 | £1636 | — | — |
| April 6, 2023 | £558 | £1823 | — | — |
| April 6, 2022 | £3347 | £2815 | — | — |
| April 6, 2021 | £2402 | £329 | — | — |



## Trustees

- **Nigel Jonathon Green** (Chair) — appointed Jan. 1, 2020
- Stacey Louise Green — appointed Jan. 1, 2020