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STAND AGAINST MND ANNUAL RETURN FINANCIAL YEAR ENDING 30 MARCH 2021
Stand Against MND was formed in January 2020 by Sam Perkins following his diagnosis of motor neurone disease (MND) the in March 2019. The purpose of the charity is two-fold: (1) to raise funds and awareness to support research into a cure for MND and (2) to provide funds to palliative care services that assist those who are affected by MND, including those diagnosed with MND, but also their family and friends.
Since its formation, the charity has achieved its objectives through a range of fundraising activities and promotional events including: Christmas campaigns, selling bespoke art work, Sam personally appearing on TV and radio broadcasts, and of course the support of individual fundraisers such as Team SAM participating in the East Leake Triathlon, virtual cycling challenges and running marathons. Due to the global coronavirus pandemic, we have had to become more creative in how we achieve our objectives. We are pleased that we and our supporters have risen to that challenge!
A message from our founder, Sam Perkins:
“Being diagnosed with MND at the age of 37 was devastating. The offers of help and support which flooded in from family and friends as they shared in my shock gave me a great deal of comfort. With support from my wife Emma, we decided to a harness that goodwill and attempt to make a difference for the MND community and the future prospects for treatments for the disease.
Founding Stand Against MND is a point of great pride, but little could we have known that
our first year of existence would coincide with a global pandemic. This created huge challenges for all charities and destroyed plans which we had for our first year.
I would like to take this opportunity then, to place on record my thanks to the trustees, our fundraisers, supporters and donors for delivering an exceptional first year. The dedication and imagination everyone continues to show is inspiring, providing a plentiful source of fuel in my own Stand Against MND. Thank you and here’s to our continued success.”
| General Overview | ||
|---|---|---|
| Section 1 | ||
| Trustee Report | ||
| Section 2 | ||
| Accounts | ||
| Section 3 | ||
Stand Against MND is a charitable incorporated organisation
Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX info@standagainstmnd.com
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1. GENERAL OVERVIEW
Finances
The charities financial period runs from 1 April to 31 March.
Income for the financial year ending 31 March 2021 was £43,421. Spending for the financial year ending 31 March 2021 was £16,748.00.
The charity trustees received no remuneration for the work they did as trustees.
The Trustees declare that there have been no serious incidents and, as such, no serious incidents have been reported to the Charity Commission.
Fundraising
The charity raises funds from the public without engaging with professional fundraisers. The charity worked informally, without the need for a formal written agreement, with a small number of commercial organisations in the FYE 31 March 2021 including, VFE, the Nottinghamshire Hospice and Nottingham Forest Football Club.
The charity did not receive income from contracts with central government or local authorities or from outside the United Kingdom.
Donations
The charity made two donations in FYE 31 March 2021:
-
1) £5,000 to the Nottinghamshire Hospice; and
-
2) £10,000 to the Motor Neurone Disease Association – research fund.
Trustee payments
Through the business, Aloha Creative Limited, Rebecca Clark (trustee and director of Aloha Creative Limited) received payment for graphic design and printing services provided to the charity.
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2. TRUSTEE REPORT
Paragraph references in the tables below are to SORP FRS 102.
| Charity name | Stand Against MND |
| Other name the charity uses | SAM |
| Registered charity number | 1187436 |
| Charity’s principal address | 12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX |
| Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
| Alan Samuel Perkins | Founder and Chair | N/A | N/A |
| Emma Reid | Secretary | N/A | N/A |
| Alastair John Hall | Treasurer | N/A | N/A |
| Rebecca Clark | N/A | N/A | N/A |
| Victoria Clare Alvis | N/A | N/A | N/A |
| Greg William Mitchell | N/A | N/A | N/A |
| Richard Carey | N/A | N/A | N/A |
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| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The purpose of the charity is: 1) the promotion and funding of research into the nature, causes, diagnosis, prevention, treatment and cure of motor neurone disease and the publication of the results of such research; and 2) the provision of support, assistance and information to people affected (directly or indirectly) by motor neurone disease through clinical, hospice or other forms of palliative care. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
The charity has undertaken arrange of activities to raise funds and awareness in line with its purpose. In particular, fundraising activities have included: taking part in sponsored challenges in support of the charity (marathons, triathlons, John O’ Groats virtual cycle challenge, sale of bespoke art work). Awareness of MND has taken place by using social media to create ‘Sam’s Story’ sharing Sam’s personal experience of being diagnosed and living with MND as well as Sam appearing on BBC and ITV news broadcasts and radio programmes. Sam also participated in a ‘hero’ video for Nottingham Forest Football Club. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees receive updates from the Charity Commission regarding being a trustee. |
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| Policy on grant making | Para 1.38 | The charity policy on grant making permits the trustees to approve the making of a grant to organisations that have the same or similar objectives to the charity. |
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The charity has provided £10,000 of funding to organisations that work towards researching a cure for MND. The donation part-funded the “MND: Next Top Model” research project. In addition to the donation, Sam interviewed the Head of Research at the Motor Neurone Disease Association to share on social media to assist in raising awareness. A single donation of £5,000 was made to the Nottinghamshire Hospice which provides palliative care to those who live with MND and their support network (as well as other individuals who require end-of-life support). |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | At the end of the period the charity had raised a total of £43,421. Of this total the charity donated £15,000 pounds, spent £200 on administrative fees and purchased £1,548 in Merchandise. This left a total £26,672 in Cash funds and approximately assets worth £1500 |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The charity’s policy is to hold about £10,000 in reserve. This is to fund merchandise and events that we will look to hold throughout the year. As this is the first full year of the charity and because of Covid 19 the Charity has held more back then we plan to for future years. |
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| Amount of reserves held | Para 1.22 | £26,672 in cash funds and £1500 worth of merchandise assets. |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The charity’s principal sources of funds are from private fundraising. |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | The charity is not investing any of its funds. |
| A description of the principal risks facing the charity |
Para 1.46 | The key principal risk for the charity remains the effect the pandemic has had on the ability to coordinate in-person events that provide an opportunity to raise funds and awareness of the charity and its objectives. |
| Type of governing document |
Para 1.25 | Constitution |
| How is the charity constituted? |
Para 1.25 | Charitable Incorporated Organisation (CIO) |
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| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | As set out in the constitution, apart from the first charity trustees, every trustee must be appointed by a resolution passed at a properly convened meeting of the charity trustees. In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed for the effective administration of the charity. |
| Relationship with any related parties |
Para 1.51 | The charity uses Aloha Creative Limited to provide graphic design and printing services. Rebecca Clark (trustee) is a director of Aloha Creative Limited. |
Declarations
The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees
| Signature Full name Position Date |
||
| Emma Reid | Alastair John Hall | |
| Secretary | Treasurer | |
29 January 2022 |
30 January 2022 |
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3. ACCOUNTS
Stand Against MND No (if any) Receipts and payments accounts CC16a Period start date Period end date For the period 23/03/2020 To from 31/03/2021
Section A Receipts and
payments
| Section A Receipts and payments |
||||||
|---|---|---|---|---|---|---|
| A1 Receipts | Date | Unrestricted funds to the nearest £ £332 £1,000 £1,000 £733 £600 £29 |
Restricted funds to the nearest £ - - - - - - |
Endowment funds to the nearest £ - - - - - - |
Total funds to the nearest £ £332 £1,000 £1,000 £733 £600 £29 |
Last year to the nearest £ |
| Stars in their eyes event | 23-Mar- 20 |
£332 | - | - | £332 | - |
| Stars in their eyes event | 23-Mar- 20 |
£1,000 | - | - | £1,000 | - |
| Stars in their eyes event | 23-Mar- 20 |
£1,000 | - | - | £1,000 | - |
| Paul Caygill - JustGiving donation | 02-Apr- 20 |
£733 | - | - | £733 | - |
| Chris Slater - Dry Jan | 03-Apr- 20 |
£600 | - | - | £600 | - |
| Paul Caygill - JustGiving donation | 01-May- 20 |
£29 | - | - | £29 | - |
Stand Against MND is a charitable incorporated organisation
Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX
info@standagainstmnd.com
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| Chris Slater - Dry Jan | 18-May- 20 |
£10 | - | - | £10 | - | ||||
|---|---|---|---|---|---|---|---|---|---|---|
| Rachel Pearce sober challenge donation | 01-Jun- 20 |
£300 | - | - | £300 | - | ||||
| Lily and Sam Book money | 02-Jun- 20 |
£187 | - | - | £187 | - | ||||
| Sam Perkins Justgiving account | 16-Jun- 20 |
£15,922 | - | - | £15,922 | - | ||||
| Lily and Sam Book money | 01-Jul- 20 |
£283 | - | - | £283 | - | ||||
| Lily and Sam Book money | 13-Jul- 20 |
£53 | - | - | £53 | - | ||||
| Lily and Sam Book money | 17-Jul- 20 |
£10 | - | - | £10 | - | ||||
| Lily and Sam Book money | 31-Jul- 20 |
£146 | - | - | £146 | - | ||||
| Lily and Sam Book money | 07-Sep- 20 |
£200 | - | - | £200 | - | ||||
| VFE Landsend to John O'groats | 16-Sep- 20 |
£1 | - | - | £1 | - | ||||
| VFE Landsend to John O'groats | 23-Sep- 20 |
£5,608 | - | - | £5,608 | - | ||||
| Rachel Pearce sober challenge donation | 24-Sep- 20 |
£244 | - | - | £244 | - | ||||
| Virginmoney giving | 30-Sep- 20 |
£1,742 | - | - | £1,742 | - | ||||
| Lily and Sam Book money | 05-Oct- 20 |
£84 | - | - | £84 | - | ||||
| Richard Carey East Leake Tri | 07-Oct- 20 |
£550 | - | - | £550 | - | ||||
| Virginmoney giving | 07-Oct- 20 |
£1,010 | - | - | £1,010 | - | ||||
| Sam Perkins Justgiving account | 12-Oct- 20 |
£1,771 | - | - | £1,771 | - | ||||
| Virginmoney giving | 14-Oct- 20 |
£574 | - | - | £574 | - | ||||
| Phillippa Neath East Leak Tri | 19-Oct- 20 |
£2,000 | - | - | £2,000 | - |
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| VFE Landsend to John O'Groats | 21-Oct- 20 |
£29 | - | - | £29 | - | ||||
|---|---|---|---|---|---|---|---|---|---|---|
| Virginmoney giving | 21-Oct- 20 |
£284 | - | - | £284 | - | ||||
| Horsforth Brewery - Money from Sam Beer | 27-Oct- 20 |
£813 | - | - | £813 | - | ||||
| Virginmoney giving | 28-Oct- 20 |
£117 | - | - | £117 | - | ||||
| Lily and Sam Book money | 03-Nov- 20 |
£50 | - | - | £50 | - | ||||
| Virginmoney giving | 04-Nov- 20 |
£1,768 | - | - | £1,768 | - | ||||
| Virginmoney giving | 11-Nov- 20 |
£233 | - | - | £233 | - | ||||
| Virginmoney giving | 18-Nov- 20 |
£1,390 | - | - | £1,390 | - | ||||
| Lily and Sam Book money | 02-Dec- 20 |
£46 | - | - | £46 | - | ||||
| Virginmoney giving | 09-Dec- 20 |
£231 | - | - | £231 | - | ||||
| Virginmoney giving | 16-Dec- 20 |
£88 | - | - | £88 | - | ||||
| Virginmoney giving | 23-Dec- 20 |
£49 | - | - | £49 | - | ||||
| Virginmoney giving | 31-Dec- 20 |
£717 | - | - | £717 | - | ||||
| Virginmoney giving | 06-Jan- 21 |
£103 | - | - | £103 | - | ||||
| Virginmoney giving | 13-Jan- 21 |
£105 | - | - | £105 | - | ||||
| Virginmoney giving | 20-Jan- 21 |
£55 | - | - | £55 | - | ||||
| Lily and Sam Book money | 27-Jan- 21 |
£17 | - | - | £17 | - | ||||
| Corporate donation (cheque) | 02-Feb- 21 |
£620 | - | - | £620 | - | ||||
| Virginmoney giving | 10-Feb- 21 |
£756 | - | - | £756 | - |
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| Amazon smile donation | 11-Feb- 21 |
£50 | - | - | £50 | - | |||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Virginmoney giving | 17-Feb- 21 |
£227 | - | - | £227 | - | |||||||||
| Virginmoney giving | 24-Feb- 21 |
£105 | - | - | £105 | - | |||||||||
| Lyndsey Clarke donation | 26-Feb- 21 |
£350 | - | - | £350 | - | |||||||||
| Virginmoney giving | 03-Mar- 21 |
£198 | - | - | £198 | - | |||||||||
| Virginmoney giving | 10-Mar- 21 |
£360 | - | - | £360 | - | |||||||||
| Lily and Sam Book money | 12-Mar- 21 |
£30 | - | - | £30 | - | |||||||||
| Virginmoney giving | 17-Mar- 21 |
£85 | - | - | £85 | - | |||||||||
| Virginmoney giving | 24-Mar- 21 |
£15 | - | - | £15 | - | |||||||||
| Virginmoney giving | 31-Mar- 21 |
£141 | - | - | £141 | - | |||||||||
| - | - | - | |||||||||||||
| - | - | - | - | ||||||||||||
| Sub total(Gross | income for AR) | 43,421 | - | - | 43,421 | - | |||||||||
| A2 Asset and investment | sales, (see | ||||||||||||||
| table). | |||||||||||||||
| - | - | - | - | ||||||||||||
| - | - | - | - | - | |||||||||||
| Sub total | - | - | - | - | - | ||||||||||
| Total receipts | 43,421 | - | - | 43,421 | - |
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A3 Payments
| Virgin Money registration fee | 02-Jun- 20 |
£180 | - | - | 180 | - | |||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Nottinghamshire Hospice donation | 22-Jun- 20 |
£5,000 | - | - | 5,000 | - | |||||
| MND Association donation | 02-Dec- 20 |
£10,000 | - | - | 10,000 | - | |||||
| Post office costs | 04-Feb- 21 |
£10 | - | - | 10 | - | |||||
| Gsuite business account costs | 19-Feb- 21 |
£10 | - | - | 10 | - | |||||
| - | - | - | - | - | |||||||
| - | - | - | - | - | |||||||
| Sub total | |||||||||||
| 15,200 | - | - | 15,200 | - | |||||||
| A4 Asset and investment purchases, | |||||||||||
| (see table) | |||||||||||
| Aloha Creative Ltd for SAM Merchandise | £1,548 | - | - | 1,548 | |||||||
| - | - | - | - | ||||||||
| Sub total | |||||||||||
| 1,548 | - | - | 1,548 | - | |||||||
| Total payments | 16,748 | - | - | 16,748 | - | ||||||
| Net of receipts/(payments) | 26,672 | - | - | 26,672 | - | ||||||
| A5 Transfers between | funds | ||||||||||
| - | - | - | - | - | |||||||
| A6 Cash funds last year end | - | - | - | - | - |
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Cash funds this year end
26,672 - - 26,672 -
Section B Statement of assets and liabilities at the end of the period
| Details Money raised not yet donated. Total cash funds (agree balances with receipts and payments account(s)) Details |
Unrestricte d funds to nearest £ 26,672 - - 26,672 OK Unrestricte d funds to nearest £ - - - - - - |
Restricted funds to nearest £ - - - - OK Restricted funds to nearest £ - - - - - - |
Endowmen t funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowmen t funds to nearest £ |
|||
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - | |
| - | - | - | |
Categories Details Money raised not yet donated.
B1 Cash funds
B2 Other monetary assets
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B3 Investment assets
B4 Assets retained for the charity’s own use
B5 Liabilities
| Details | Fund to which **asset belongs ** |
Cost (optional) - - - - - |
Current value (optional) |
|---|---|---|---|
| - | - | ||
| - | - | ||
| - | - | ||
| - | - | ||
| - | - |
| Details Charity Merchandise Details |
Fund to which asset belongs Unrestricted Fund to which liability relates |
Cost (optional) - - - - - - - Amount due (optional) - - - |
Current value (optional) |
|---|---|---|---|
| 1,500 | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
|||
| - | |||
| - | |||
| - |
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Signed by two trustees on behalf of all the trustees
| Signature | Print Name Alastair Hall Emma Reid |
Date of approval 30 January 2022 29 January 2022 |
|---|---|---|
| Alastair Hall | 30 January 20 | |
| Emma Reid | 29 January 20 |
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